Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Do People Function Without Sleep?

DingoGirl

Recommended Posts

DingoGirl Enthusiast
DingoGirl
Posted

Got two hours sleep last night. And I need 8 hours!! :blink: (possibly a result of Tues. night's accidental and horrendous glutening - hits me the next day).

Coffee doesn't do it for me. Red Bull doesn't do it. Not sure caffeine has any affect on me (maybe if I drank POTS and POTS of coffee). What do you guys do to stay clear-headed and alert on little or no sleep?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


nettiebeads Apprentice
nettiebeads
Posted
Got two hours sleep last night. And I need 8 hours!! :blink: (possibly a result of Tues. night's accidental and horrendous glutening - hits me the next day).

Coffee doesn't do it for me. Red Bull doesn't do it. Not sure caffeine has any affect on me (maybe if I drank POTS and POTS of coffee). What do you guys do to stay clear-headed and alert on little or no sleep?

Well, I can't say clear headed and alert, but I can stumble through the day if I drink Mountain Dew and/or take a non-drowsy head meds - ephredine and its equivilents do it for me. And some of the newer allergy meds like allegra. But then I've always been super sensitive to those type of things.

Hope you get over your glutening quickly.

Annette

CarlaB Enthusiast
CarlaB
Posted

I just do what I can get done that day. I try to avoid the urge to drink a lot of caffeine or to take more than a 20 minute nap so that I don't have the same problem the next night. Usually when I can't sleep, I just lay there and rest and don't worry about not sleeping. At least then I can get a good night's rest. I'm a little less tired than if I get anxious about not sleeping. I try to go to bed at my normal bedtime the next night so that I don't go to bed too early then end up waking up in the middle of the night again. That becomes a bad cycle for me.

Guinevere Newbie
Guinevere
Posted

i get insomnia when i'm glutened too.

caffeine is so hard on your body, do you drink enough water? dehydration will make you more tired than caffeine can wake you up. dehydration will also give you brain fog and make you generally fatigued. i also agree with the power-nap of 20 minutes, it can go a long way.

whenever i get glutened, i immediately take charcoal - i take at least 5 capsules so that the charcoal will absorb the offending gluten. i don't get perfect results with this always, but it does make a big difference. the downside to charcoal is that it absorbs everything, nutrition, etc. in my book, that's okay as long as the gluten goes too. you can also do a drinkable form of clay, has no taste and will absorb anything in your gut. pick it up at health food store, or whole foods, good to have on hand.

DingoGirl Enthusiast
DingoGirl
Posted
  • Author
i get insomnia when i'm glutened too.

caffeine is so hard on your body, do you drink enough water? dehydration will make you more tired than caffeine can wake you up. dehydration will also give you brain fog and make you generally fatigued. i also agree with the power-nap of 20 minutes, it can go a long way.

whenever i get glutened, i immediately take charcoal - i take at least 5 capsules so that the charcoal will absorb the offending gluten. i don't get perfect results with this always, but it does make a big difference. the downside to charcoal is that it absorbs everything, nutrition, etc. in my book, that's okay as long as the gluten goes too. you can also do a drinkable form of clay, has no taste and will absorb anything in your gut. pick it up at health food store, or whole foods, good to have on hand.

Good information...I drink lots of water and minimal caffeine, and you are right, dehydration is exhausting! I am going to try the charcol, great idea. NAPPING? I couldn't fall asleep during the day if you put a gun to my head. So sad. I am jealous of nappers...

I just remember Excedrin...am going to see if it's gluten-free, THAT gives me energy!!

jenvan Collaborator
jenvan
Posted

I can't function w/o sleep. But...a few things that help ease the pain a bit--yes, water and some good snacks throughout the day, peanut butter/apple...something with protein. Not a lot of 'sugar.' I haven't caffeine in over a decade--not one drop...so that's not an option for me. Sometimes I will get a headache, and might drop some Tylenol for that. Sunglasses when outside, definitely :) Music with a good beat to help get me going. Eye drops sometimes for tired irriated eyes. Wow…I’m getting more tired thinking about this! :blink: Hope you get some real sleep soon!!

mmaccartney Explorer
mmaccartney
Posted

I cannot function without adequate sleep. My brain simply stops working and I cannot think right. My arthritis flares up and I am in pain all day.

When I do get glutened or casiened, I do loose a lot of sleep. Taking sleep aids isn't an option as most everything just comes right back up. So, I take the next day(s) off, and stay home and relax.

I'm lucky that I get paid for sick time, I know that some don't. My employer hasn't mentioned that this is a problem....they can't. I have an autoimmune disease that is recognized as a disability and hence protected by the ADA.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


tarnalberry Community Regular
tarnalberry
Posted

exercise - a quick burst of something that'll give me a good endorphin rush. fast and hard, like a sprint. won't keep me going forever, but it's something.

CarlaB Enthusiast
CarlaB
Posted

The 20 minute power nap ... I don't know that I'd call it actual sleeping, more like "power resting".

Guest mvaught
Guest mvaught
Posted
whenever i get glutened, i immediately take charcoal - i take at least 5 capsules so that the charcoal will absorb the offending gluten. i don't get perfect results with this always, but it does make a big difference. the downside to charcoal is that it absorbs everything, nutrition, etc. in my book, that's okay as long as the gluten goes too.

That's a great idea, I never thought of charcoal for glutening - and you say that it works all right? I am so frustrated getting accidently glutened from time to time because it messes me up for weeks - so I have been searching for something to help with that. i will try the charcoal.

francelajoie Explorer
francelajoie
Posted

Chocolate covered coffee beans for me!! :D

Elizabeth-Elindel Rookie
Elizabeth-Elindel
Posted

Charcoal? How exactly does it get rid of the gluten? Where do I get this stuff?? :)

Elizabeth

Smunkeemom Enthusiast
Smunkeemom
Posted

first I take a long shower, it relaxes me. (which yeah, I am stressed if I don't get enough sleep, so then I am cranky and sleepy)

then I eat a good breakfast, I try for fruit with it, since it gives me energy.

I try to shy away from caffiene since then I won't sleep well for a few days and have to feel like that all over again.

It seems the better I keep myself hydrated the better I feel.

If all else fails I go for a sprint outside, the combo of a little exercise and a little sun jump starts my body.

(when I was younger and irresponsible, I used to drink a MT Dew and eat some chocolate, it only lasts for about 2 hours though then if you don't get some more soda you crash, but if you do get more soda, then in 2 hours from then you crash really really hard)

Guest moorkitty
Guest moorkitty
Posted

I gave up caffeine weeks ago as the energy burst would be short-lived, followed by even more tiredness. I have substituted with a greens drink as soon as I wake, with a half ounce of aloe vera juice thrown in. Sometimes, I'll put in a bit of powdered matcha green tea which I find gives me focused and sustained energy. Through the day, I am now using raspberry leaf tea (high in iron), stinging nettle or red clover tea with a bit of honey. Before bed, a cup of camomile tea with a valerian root capsule and a balance calcium-magnesium tablet is useful. I also have a diffusor by my bed into which I put a few drops of lavender oil and run this through the night.

  • 4 weeks later...
mrsfiles Newbie
mrsfiles
Posted
My employer hasn't mentioned that this is a problem....they can't. I have an autoimmune disease that is recognized as a disability and hence protected by the ADA.

I am having an awful time with my boss!!! Where did you find the above info on the ADA? I would love to have it to show her. Thanks, Brenda

dh204 Apprentice
dh204
Posted
i get insomnia when i'm glutened too.

caffeine is so hard on your body, do you drink enough water? dehydration will make you more tired than caffeine can wake you up. dehydration will also give you brain fog and make you generally fatigued. i also agree with the power-nap of 20 minutes, it can go a long way.

whenever i get glutened, i immediately take charcoal - i take at least 5 capsules so that the charcoal will absorb the offending gluten. i don't get perfect results with this always, but it does make a big difference. the downside to charcoal is that it absorbs everything, nutrition, etc. in my book, that's okay as long as the gluten goes too. you can also do a drinkable form of clay, has no taste and will absorb anything in your gut. pick it up at health food store, or whole foods, good to have on hand.

Charcoal? Isn't that what they give you at the hospital to make you throw up? Sorry if I am totally wrong about that....I didn't know it also absorbs all the other stuff too. Will have to give it a try. Can you find it in healthfood stores?

Also, there was a time when I did yoga once a week, and I found that I was quite energized afterwards. I haven't been keeping up with the yoga (I really need to get started on that again) but I try to drink a lot of water, maybe some herbal tea or green tea. I try not to drink too much coffee...I'm on one cup a day as soon as I wake up (otherwise I absolutely cannot function for the rest of the day).

taz sharratt Enthusiast
taz sharratt
Posted

sorry about you not sleeping, srry i cant help ypu on this one as i suffer the other way around, no matter how much i get it doesnt seem to be enough for me. the only time i was awake like that is when my kids are ill and not in school\the next day, then i have little or no sleep as they are right next to me all day and night saying " mum mum mum" its hard to drop off with the 24 - 7. instead of pumping you self up with caffine why not try to cleanse your systym with a nice cup of green tea or lemon tea. sorry cant sujest anything else but hope you get shut eye soon.

flagbabyds Collaborator
flagbabyds
Posted

I functioned w/out sleep for 13 years, undiagnosed sleep apnea did it for me...

didn'[t realise taht i wasn't sleeping until i went on CPAP and then knew the difference.

DingoGirl Enthusiast
DingoGirl
Posted
  • Author

Molly you have been through quite a lot! I had insomnia for two years that I swear nearly killed me - - I was on a medication for depression (an MAO inhibitor called Nardil - wicked stuff) and my inept doctor never prescribed anything for sleep or worked with me to find another med. And actually, I was a rapi-cydling bipolar, which she or I didn't know....it was hell. Slept ON AVERAGE six hours a week, sometimes eight.

Mercifully, those days are over, and the days without sleep are very few and far between. And, I do think gluten can cause insomnia also.

Thanks for all the tips, everybody.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Seeking advice on potential gluten challenge

      Welcome to the celiac.com community, @JudyLou! There are a couple of things you might consider to help you in your decision that would not require you to do a gluten challenge. The first, that is if you have not had this test run already, is to request a "total IGA" test to be run. One of the reasons that celiac blood antibody tests can be negative...
    2. JudyLou
      - JudyLou posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Seeking advice on potential gluten challenge

      Hi there, I’m debating whether to consider a gluten challenge and I’m hoping someone here can help with that decision (so far, none of the doctors have been helpful). I have a history of breaking out in a horrible, burning/itchy somewhat blistering rash about every 8 years. This started when I was in my early 30’s and at that point it started at the ankle...
    3. marzian
      - marzian commented on Scott Adams's article in Diagnosis, Testing & Treatment
      5

      A Future Beyond the Gluten-Free Diet? Scientists Test a New Cell Therapy for Celiac Disease (+Video)

      This is very exciting news. The research lends itself to preventing the immune system in other autoimmune disorders from getting out of sorts. As someone with a compendium of autoimmune disorders I feel a bit of hope.
    4. Jmartes71
      - Jmartes71 posted a topic in Related Issues & Disorders
      0

      Medications

      Hello, just popped in my head to ask this question about medications and celiac? I have always had refurse reaction to meds since I can remember of what little meds my body is able to tolerate. I was taking gabapentin 300mg for a week, in past I believe 150? Any ways it amps me up not able to sleep, though very tired.However I did notice it helped with...
    5. Scott Adams
      - Scott Adams replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Blood Test for Celiac wheat type matters?

      I'm not saying that some celiacs won't need it, but it should be done under a doctor's supervision because it can cause lots of problems in some people.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,139
    • Most Online (within 30 mins)
      7,748
    kathleen apodaca
    Newest Member
    kathleen apodaca
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • trents
      Seeking advice on potential gluten challenge

      By trents · Posted

      Welcome to the celiac.com community, @JudyLou! There are a couple of things you might consider to help you in your decision that would not require you to do a gluten challenge. The first, that is if you have not had this test run already, is to request a "total IGA" test to be run. One of the reasons that celiac blood antibody tests can be negative, apart from not having celiac disease, that is, is because of IGA deficiency. If a person is IGA deficient, they will not respond accurately to the celiac disease blood antibody tests (such as the commonly run TTG-IGA). The total IGA test is designed to check for IGA deficiency. The total IGA test is not a celiac antibody test so I wouldn't think that a gluten challenge is necessary. The second is to have genetic testing done to determine if you have the genetic potential to develop celiac disease. About 30-40% of  the general population have the genetic potential but only about 1% actually develop celiac disease. So, genetic testing cannot be used to diagnose celiac disease but it can be used to rule it out. Those who don't have the genetic potential but still have reaction to gluten would not be diagnosed with celiac disease but with NCGS (Non Celiac Gluten Sensitivity).  Another possibility is that you do have celiac disease but are in remission. We do see this but often it doesn't last.
    • JudyLou
      Seeking advice on potential gluten challenge

      By JudyLou · Posted

      Hi there, I’m debating whether to consider a gluten challenge and I’m hoping someone here can help with that decision (so far, none of the doctors have been helpful). I have a history of breaking out in a horrible, burning/itchy somewhat blistering rash about every 8 years. This started when I was in my early 30’s and at that point it started at the ankles and went about to my knees. Every time I had the rash it would cover more of my body, so my arms and part of my torso were impacted as well, and it was always symmetrical. First I was told it was an allergic reaction to a bug bite. Next I was told it was eczema (after a biopsy of the lesion - not the skin near the lesion) and given a steroid injection (didn’t help). I took myself off of gluten about 3 weeks before seeing an allergist, just to see if it would help (it didn’t in that time period). He thought the rash looked like dermatitis herpetiformis and told me to eat some bread the night before my blood tests, which I did, and the tests came back negative. I’ve since learned from this forum that I needed to be eating gluten daily for at least a month in order to get an accurate test result. I’m grateful to the allergist as he found that 5 mg of doxepin daily will eliminate the rash within about 10 days (previously it lasted for months whether I was eating gluten or not). I have been gluten free for about 25 years as a precaution and recommendation from my doctor, and the pattern of breaking out every 8 years or so remains the same except once I broke out after just one year (was not glutened as far as I know), and now it’s been over 9 years. What’s confusing to me, is that there have been 3 times in the past 2 years when I’ve accidentally eaten gluten, and I haven’t had any reaction at all. Once someone made pancakes (they said they were gluten-free, they were not) and I ate several. I need to decide whether to do a gluten challenge and get another blood test. If I do, are these tests really accurate? I’m also concerned that I could damage my gut in that process if I do have celiac disease. My brother and cousin both had lymphoma so that’s a concern regarding a challenge as well, though there is a lot of cancer in various forms in my family so there may be no gluten connection there. Sorry for the ramble, I’m just doubting the need to remain gluten free if I don’t have any reaction to eating it and haven’t had a positive test (other than testing positive for one of the genes, though it sounds like that’s pretty common). I’d appreciate any thoughts or advice! 
    • Jmartes71
      Medications

      By Jmartes71 · Posted

      Hello, just popped in my head to ask this question about medications and celiac? I have always had refurse reaction to meds since I can remember  of what little meds my body is able to tolerate. I was taking gabapentin 300mg for a week,  in past I believe 150? Any ways it amps me up not able to sleep, though very tired.However I did notice it helped with my bloating sibo belly.I hate that my body is that sensitive and medical doesn't seem to take seriously. Im STILL healing with my skin, eye, and now ms or meningioma ( will know in April  which)and dealing with this limbo nightmare. I did write my name, address ect on the reclamation but im not tech savvy and not sure if went through properly. I called my city representative in Stanislaus County and asked if theres a physical paper i can sign for proclamation for celiac and she had no clue about what I was saying, so I just said I'll go back on website. 
    • Scott Adams
      Blood Test for Celiac wheat type matters?

      By Scott Adams · Posted

      I'm not saying that some celiacs won't need it, but it should be done under a doctor's supervision because it can cause lots of problems in some people.
    • Jmartes71
      Airborne Gluten?

      By Jmartes71 · Posted

      I also noticed I get debilitating migraines when I smell gluten, wheat and its not taken seriously when it affects one in every way.Im still begging to properly be heard.I also noticed tolerance level is down the drain with age and life changes. I have been told by incompetent medical that im not celiac or that sensitive. Diagnosed in 1994 by gi biopsy gluten-free ever since along with other lovely food allergies. Prayers
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.