Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Stomach Emptying

rache

By rache
in Related Issues & Disorders

Recommended Posts

rache Apprentice
rache
Posted

I had a stomach emptying scan done today and they called me back with my results. it takes 220 min for my stomach to empty all its contents!!!!! most people take 90 min. wow, so there is something wrong with me. does anyone else have this problem and how did you get treated? they asked me if i had taken reglan and zelnorm- which i have taken both with no luck. so now what will they do? the dr office didnt call me back yet today, hopefully theyll call tomorrow! im just curious if anyone else has experienced this and if they found any relief. thank you!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mamaw Community Regular
mamaw
Posted

Hi Rachel

I was told I had undigested food laying for long periods of time. I guess thats the same thing. A dco told me that it could be caused by diabetes (I never heard that before from diabetics) so I'm not sure if thats correct. But I do not have diabetes so I still don't know why. I get so sick of doctors who label stuff with no clue if itis correct but they didn't seem alarmed by this ...

hope you get feeling better soon.

mamaw

Lister Rising Star
Lister
Posted

not sure if i had the same test, but i had a upper GI done and you have to wait around for this milkshake thing to pass thru u so they can take x-rays of it going down, it took 4 hours to reach my small intestines and they said thats perfectly normal, so im not sure if your so bad off

ehrin Explorer
ehrin
Posted
Hi Rachel

I was told I had undigested food laying for long periods of time. I guess thats the same thing. A dco told me that it could be caused by diabetes (I never heard that before from diabetics) so I'm not sure if thats correct. But I do not have diabetes so I still don't know why. I get so sick of doctors who label stuff with no clue if itis correct but they didn't seem alarmed by this ...

hope you get feeling better soon.

mamaw

It's called diabetic gastroparesis and it occurs in many T1 diabetics, not T2, not sure who you were talking to, but most diabetics are T2.

I was dxed with gastroparesis on the same day I was dxed with Celiac.

My stomach had not emptied after 12+ hours of fasting,

but gastroparesis usually entails nausea, vomitting and weight loss - I had none of those and strongly

suspect that my stomach not emptying had to do with Celiac and not gastroparesis.

They did put me on Reglan, but from what I can tell this is not a maintenance drug and can cause some real ill effects, (it can make the body mimic Parkinson's disease) so I have not been taking it.

I'm going to ask my GI for another upper GI to determine if my stomach is still not emptying since going gluten-free 7 months ago.

jaten Enthusiast
jaten
Posted

The upper GI and the stomach-emptying scan are two different tests. I've had both so I'm positive of this.

Gastroparesis (slow emptying stomach) is not always linked with diabetes; that's just one of the causes.

Rache, yes, there is something wrong, but it's not rare. There are different meds they can try. How long have you been gluten-free?

evie Rookie
evie
Posted

Hi... I have just the opposite...had tests just a few weeks ago that showed too fast emptying of my stomach. so am now eating 5 to 6 times a day with small meals, also am to do most of my liquid drinking between meals. that is not to easy to do! but has helped me, have less diarrhea. That is very important to me and am now gaining a bit of energy! after much of that for many months I got VERY weak. The technician told me my problem could be caused by celiac disease. Best of luck to all you celiacs however your stomachs empty!

The gluten free diet has really helped me, even tho improvement does seem slow. evie :)

judy05 Apprentice
judy05
Posted
I had a stomach emptying scan done today and they called me back with my results. it takes 220 min for my stomach to empty all its contents!!!!! most people take 90 min. wow, so there is something wrong with me. does anyone else have this problem and how did you get treated? they asked me if i had taken reglan and zelnorm- which i have taken both with no luck. so now what will they do? the dr office didnt call me back yet today, hopefully theyll call tomorrow! im just curious if anyone else has experienced this and if they found any relief. thank you!

I also had this when they did my scope. It looked so gross. I had eaten peanut butter before I stopped eating the night before. He said my stomach was emptying too slow, but he didn't seem overly concerned about it. I had been taking Nulev to slow down the spasms which were causing severe pain. I was never diagnosed with Celiac (don't have the gene) but I am gluten intolerant and I have been gluten-free for app 3 years.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Rachel--24 Collaborator
Rachel--24
Posted

My GI doctor told me my digestion is very slow....is this the same thing as slow emptying? He didnt seem concerned about it.

jaten Enthusiast
jaten
Posted
My GI doctor told me my digestion is very slow....is this the same thing as slow emptying? He didnt seem concerned about it.

Maybe but not necessarily. Where's the slow down? Or is it just in general. When you think about the different organs, and how much is involved in digestion...well, different tests show different aspects of the process.

ehrin Explorer
ehrin
Posted

The upper GI and the stomach-emptying scan are two different tests. I've had both so I'm positive of this.

Yes you are correct, my bad.

I had the upper GI done prior to the stomach emptying test (what is it's actual name?) to see if I had acid reflux. I was just confusing the two!

rache Apprentice
rache
Posted
  • Author

to answer everyones Q's:

ive had an upper GI, it was fine. ive been gluten-free for over a year. they suggested zelnorm or reglan, both which ive taken. but im going to do Reglan again. and the problem is with the Stomach emptying, not anywhere else in my intestines from what i understand...

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      GI DX celiac despite neg serology and no biopsy

      Certainly, it would b wise to have a gene test done if your physician is open to it as it would provide some more data to understand what's going on. But keep in mind that the genetic test for celiac disease cannot be used as to diagnose celiac disease, only to establish the potential to develop active celiac disease. About 40% of the general population possess...
    2. Roses8721
      - Roses8721 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      gluten-free Oatmeal

      Had Quaker gluten-free oatmeal last night and my stomach is a mess today. NO flu but def stomach stuff. Anyone else?
    3. Roses8721
      - Roses8721 replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      GI DX celiac despite neg serology and no biopsy

      So you would be good with the diagnosis and not worry to check genetics etc etc? Appreciate your words!
    4. Scott Adams
      - Scott Adams replied to Ginger38's topic in Related Issues & Disorders
      5

      Shingles - Could It Be Related to Gluten/ Celiac

      As recommended by @Flash1970, you may want to get this: https://www.amazon.com/Curist-Lidocaine-Maximum-Strength-Topical/dp/B09DN7GR14/
    5. Scott Adams
      - Scott Adams replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Challenges eating gluten before biopsy

      For those who will likely remain gluten-free for life anyway due to well-known symptoms they have when eating gluten, my general advice is to ignore any doctors who push to go through a gluten challenge to get a formal diagnosis--and this is especially true for those who have severe symptoms when they eat gluten. It can take months, or even years to recover...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,472
    • Most Online (within 30 mins)
      7,748
    kygirlsusan
    Newest Member
    kygirlsusan
    Joined
  • Celiac.com Sponsor (A20):

  • Celiac.com Sponsor (A22):



  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • trents
      GI DX celiac despite neg serology and no biopsy

      By trents · Posted

      Certainly, it would b wise to have a gene test done if your physician is open to it as it would provide some more data to understand what's going on. But keep in mind that the genetic test for celiac disease cannot be used as to diagnose celiac disease, only to establish the potential to develop active celiac disease. About 40% of the general population possess one or both of the primary genes known to be associated with the development of active celiac disease but only about 1% of the population actually develop active celiac disease. So, the gene test is an effective "rule out" tool but not an effective diagnostic tool.
    • Roses8721
      gluten-free Oatmeal

      By Roses8721 · Posted

      Had Quaker gluten-free oatmeal last night and my stomach is a mess today. NO flu but def stomach stuff. Anyone else?
    • Roses8721
      GI DX celiac despite neg serology and no biopsy

      By Roses8721 · Posted

      So you would be good with the diagnosis and not worry to check genetics etc etc? Appreciate your words!
    • Scott Adams
      Shingles - Could It Be Related to Gluten/ Celiac

      By Scott Adams · Posted

      As recommended by @Flash1970, you may want to get this: https://www.amazon.com/Curist-Lidocaine-Maximum-Strength-Topical/dp/B09DN7GR14/
    • Scott Adams
      Challenges eating gluten before biopsy

      By Scott Adams · Posted

      For those who will likely remain gluten-free for life anyway due to well-known symptoms they have when eating gluten, my general advice is to ignore any doctors who push to go through a gluten challenge to get a formal diagnosis--and this is especially true for those who have severe symptoms when they eat gluten. It can take months, or even years to recover from such a challenge, so why do this if you already know that gluten is the culprit and you won't be eating it anyway?  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS--but those in this group will usually have negative tests, or at best, elevated antibodies that don't reach the level of official positive. Unfortunately test results for celiac disease are not always definitive, and many errors can be made when doing an endoscopy for celiac disease, and they can happen in many ways, for example not collecting the samples in the right areas, not collecting enough samples, or not interpreting the results properly and giving a Marsh score.  Many biopsy results can also be borderline, where there may be certain damage that could be associated with celiac disease, but it just doesn't quite reach the level necessary to make a formal diagnosis. The same is true for blood test results. Over the last 10 years or so a new "Weak Positive" range has been created by many labs for antibody results, which can simply lead to confusion (some doctors apparently believe that this means the patient can decide if they want more testing or to go gluten-free). There is no "Weak Negative" category, for example. Many patients are not told to eat gluten daily, lots of it, for the 6-8 week period leading up to their blood test, nor asked whether or not they've been eating gluten. Some patients even report to their doctors that they've been gluten-free for weeks or months before their blood tests, yet their doctors incorrectly say nothing to them about how this can affect their test, and create false negative results. Many people are not routinely given a total IGA blood test when doing a blood screening, which can lead to false negative interpretations if the patient has low IGA. We've seen on this forum many times that some doctors who are not fully up on how interpret the blood test results can tell patients that the don't need to follow a gluten-free diet or get more testing because only 1 of the 2 or 3 tests done in their panel is positive (wrong!), and the other 1 or 2 tests are negative.  Dermatologists often don't know how to do a proper skin biopsy for dermatitis herpetiformis, and when they do it wrongly their patient will continue to suffer with terrible DH itching, and all the risks associated with celiac disease. For many, the DH rash is the only presentation of celiac disease. These patients may end up on strong prescriptions for life to control their itching which also may have many negative side effects, for example Dapsone. Unfortunately many people will continue to suffer needlessly and eat gluten due to these errors in performing or interpreting celiac disease tests, but luckily some will find out about non-celiac gluten sensitivity on their own and go gluten-free and recover from their symptoms. Consider yourself lucky if you've figured out that gluten is the source of your health issues, and you've gone gluten-free, because many people will never figure this out.    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.