Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Internal Itching Anyone?

discountshopper

Recommended Posts

discountshopper Rookie
discountshopper
Posted

Hi all,

Has anyone experienced internal itching as a symptom of glutening (or other strange disease)? I have been gluten-free since November and think I probably got some gluten about 4 days ago. Yesterday I started getting some very strange internal itching sensations on the right side of my torso, basically the line of the liver and ascending colon. There is no rash or skin issues, just a need to "scratch by rubbing" the itch that is inside. There do not seem to be any sore spots involved, just itchiness. I have had years of issues with internally itchy feet and hands which has subsided for the most part since going gluten-free. This internal torso itching is not constant, but comes and goes throughout the day. It has been going on for a day and a half so far and has not increased in intensity. Anyone experienced this?

Thanks,

Linda

Celiac, gluten-free since 11/05

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


gointribal Enthusiast
gointribal
Posted

oh man I totally get that, but I thought it was just me. Some times my stomach itches, its weird but I know what you are talking about!

Ursa Major Collaborator
Ursa Major
Posted

Sometimes I get a terrible itch in my throat, and yes, inside the torso as well. It's maddening when it happens.

  • 1 year later...
lukewarmandbothered Newbie
lukewarmandbothered
Posted

Wow. This is the first I've ever heard of people having this same problem. I get that when I ingest something I have some sort of allergy towards. It's happened with a certain protein powder in the past and with some other things. I feel like there's this itch inside your esophagus that you JUST can't get to...you try and try to like clear your throat or itch your chest/throat, but nothing works.

Glad to see I'm not alone. :-)

pugluver31902 Explorer
pugluver31902
Posted

I get it in the exact same spot. Really wierd.

  • 4 months later...
RMARS Newbie
RMARS
Posted
Hi all,

Has anyone experienced internal itching as a symptom of glutening (or other strange disease)? I have been gluten-free since November and think I probably got some gluten about 4 days ago. Yesterday I started getting some very strange internal itching sensations on the right side of my torso, basically the line of the liver and ascending colon. There is no rash or skin issues, just a need to "scratch by rubbing" the itch that is inside. There do not seem to be any sore spots involved, just itchiness. I have had years of issues with internally itchy feet and hands which has subsided for the most part since going gluten-free. This internal torso itching is not constant, but comes and goes throughout the day. It has been going on for a day and a half so far and has not increased in intensity. Anyone experienced this?

Thanks,

Linda

Celiac, gluten-free since 11/05

fedora Enthusiast
fedora
Posted

When I first gave up wheat in 1995 it was because of internal itching ALL OVER. It was terrible. I thought I would go crazy. It went away in a week after giving up wheat. I stupidly went back to eating but never had as severe issues with internal itching.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Michi8 Contributor
Michi8
Posted

I've had problems with internally itchy ears. I know it if because of allergies though. Have also had it deep in the tissues of my toes and fingers...it coincided with a sudden drop in temperature last summer, so I had chalked it up to maybe being raynauds...likely tied to seasonal allergies.

Wouldn't be surprised if it happens elsewhere in the body too!

Michelle

ShayFL Enthusiast
ShayFL
Posted

Ive had the inner ears and my upper mouth (pallet) itch like crazy. I hate when it happens.

Oh and sometimes the bottom of my feet. But I think that has to do with my neuropathy.

johnfrancis Newbie
johnfrancis
Posted

I used to get sever itching on the muscle just above my knee, it was so bad that I wore a hole in two pairs of jeans scratching it.

Thankfully it went away when I started on a gluten-free diet.

The first doctor I told said it was a build up of lactic acid and I should make sure that I stretched and warmed down properly after excercise. But I still excercise without proper strectching and the itching has never returned!

AliB Enthusiast
AliB
Posted

I used to get a really itchy tip of my nose! It would drive me mad! Sometimes it would just come on out of nowhere, I mean even when I hadn't eaten anything for ages. I have had it occasionally since but rarely. I got it a couple weeks ago - I hadn't eaten anything for at least 3 hours so what the heck triggered it I haven't a clue. Weird.

I've had that itching in the roof of the mouth and in the hands and feet too. I used to get it in the balls of my feet and it would drive me so mad I'd want to dig something into it! That went away quite a while before going gluten-free and I never knew what caused it or why it went!

I did get restless legs virtually every night and itching in other areas of my feet like the heels (so bad my husband and I have separate rooms - between my thrashing and his snoring we were keeping each other awake all night!). I realised when I looked at a Reflexology chart that those areas equated with the colon and the RLS was linked to that too. I had a bad stomach one night and my legs were thrashing about in the bed like something possessed! Around 5am I had to 'evacuate'. I went back to bed and slept like a baby for what was left of the night. I slept and so did my legs.

Since going gluten-free, apart from when I have been affected by something, either gluten or some other something that has disagreed, not only has the itching gone, so has the RLS. Bliss. (PS. My husband joined me on gluten-free and he no longer snores to wake the dead!)

cupid Newbie
cupid
Posted

Hi, I just experienced the internal ichy stomache when I tried to do the candidia diet but assumed it was from getting rid of the toxins but also started a digestive pill @ same time so now I'm wondering about which caused it. Need to do the diet again but since haven't been on gluten-free/cf diet very long found it very hard!!

Megra Newbie
Megra
Posted

Hi all,

Has anyone experienced internal itching as a symptom of glutening (or other strange disease)?

Sometimes I itch like crazy all over! I scratch so hard I can make myself bleed. Gross, Gross, Gross,. I try to take something to make me sleepy, and then go to bed so I'll stop! (most always happens at night )

  • 5 years later...
doya Newbie
doya
Posted

Hi all,

Has anyone experienced internal itching as a symptom of glutening (or other strange disease)? I have been gluten-free since November and think I probably got some gluten about 4 days ago. Yesterday I started getting some very strange internal itching sensations on the right side of my torso, basically the line of the liver and ascending colon. There is no rash or skin issues, just a need to "scratch by rubbing" the itch that is inside. There do not seem to be any sore spots involved, just itchiness. I have had years of issues with internally itchy feet and hands which has subsided for the most part since going gluten-free. This internal torso itching is not constant, but comes and goes throughout the day. It has been going on for a day and a half so far and has not increased in intensity. Anyone experienced this?

Thanks,

Linda

Celiac, gluten-free since 11/05

Hi! I don't know if you're still there, since this post was sent many years ago, but I found it while looking at what my issue is. I have the exact same internal itch on the right side of my stomac, around the liver are, that just few weeks ago started to be on the left side too. I don't have pain, just this intollerable itch and a lot of nausea that comes with it. I was wondering if after all those years you found out what was causing yours, so maybe you'll be able to help me. Please, please.... I can't go on like this no more!! Thank you so much.

Doya

kareng Grand Master
kareng
Posted

Hi! I don't know if you're still there, since this post was sent many years ago, but I found it while looking at what my issue is. I have the exact same internal itch on the right side of my stomac, around the liver are, that just few weeks ago started to be on the left side too. I don't have pain, just this intollerable itch and a lot of nausea that comes with it. I was wondering if after all those years you found out what was causing yours, so maybe you'll be able to help me. Please, please.... I can't go on like this no more!! Thank you so much.

Doya

Sorry but the OP hasn't been here in 7 years.

GF Lover Rising Star
GF Lover
Posted

The member Doya who posted last has started a new thread.  I will go ahead and end this thread for being dated.

 

Colleen

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. AlwaysLearning
      - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

      Get tested for vitamin deficiencies. Though neuropathy can be a symptom of celiac, it can also be caused by deficiencies due to poor digestion caused by celiac and could be easier to treat.
    2. Colleen H
      - Colleen H replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

      Thank you so much for your response Yes it seems as though things get very painful as time goes on. I'm not eating gluten as far as I know. However, I'm not sure of cross contamination. My system seems to weaken to hidden spices and other possibilities. ??? if cross contamination is possible...I am in a super sensitive mode of celiac disease...
    3. Jmartes71
      - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not...
    4. AlwaysLearning
      - AlwaysLearning replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does m...
    5. AlwaysLearning
      - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,079
    • Most Online (within 30 mins)
      7,748
    Terra33
    Newest Member
    Terra33
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • AlwaysLearning
      Gluten related ??

      By AlwaysLearning · Posted

      Get tested for vitamin deficiencies.  Though neuropathy can be a symptom of celiac, it can also be caused by deficiencies due to poor digestion caused by celiac and could be easier to treat.
    • Colleen H
      Gluten related ??

      By Colleen H · Posted

      Thank you so much for your response  Yes it seems as though things get very painful as time goes on.  I'm not eating gluten as far as I know.  However, I'm not sure of cross contamination.  My system seems to weaken to hidden spices and other possibilities. ???  if cross contamination is possible...I am in a super sensitive mode of celiac disease.. Neuropathy from head to toes
    • Jmartes71
      My only proof

      By Jmartes71 · Posted

      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
      My only proof

      By AlwaysLearning · Posted

      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
    • AlwaysLearning
      Gluten related ??

      By AlwaysLearning · Posted

      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.