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Hi Im Newwwwww 2 This Site


nilam

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nilam Newbie

hi every1 in new 2 this site.. im 20 yrs old from uk, n 4 the past year ive lost so much weight n become so weak!.. its onli till last week a diff doc suggested ive got celiac n avoid nethin with gluten.. n its literally been been 2days since ive changed my diet n ive noticed tht my stomach isnt churning as much as how it wud, n i dnt feel like im bein chokd 2 death!.. sooo pretty much think ive got this... im havin my endscopy on monday!...n im scared :( in the past year ive lost so much weight n beme so thin.... i wana b nice n healthy agen.. but at least i no im not alone...

well guys i thort id introduce myself!..

tcc

:rolleyes:


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Guest nini

if you are having the endoscopy you really shouldn't be off of gluten yet. You need to be consuming gluten in order for the test to be valid. Also, have they done bloodwork yet? There are five tests on the Celiac panel that need to be done before the endoscopy. And when they do the biopsy they need to take a minimum of 6-8 samples.

If you are feeling better on the diet after just two days though, it is highly likely that even if your tests come back negative or inconclusive that you are still gluten intolerant.

gavinsdaddy Rookie

Welcome to the group

rosiline Newbie

if you are having the endoscopy you really shouldn't be off of gluten yet. You need to be consuming gluten in order for the test to be valid. Also, have they done bloodwork yet? There are five tests on the Celiac panel that need to be done before the endoscopy. And when they do the biopsy they need to take a minimum of 6-8 samples.

If you are feeling better on the diet after just two days though, it is highly likely that even if your tests come back negative or inconclusive that you are still gluten intolerant.

mouse Enthusiast

Hi. Welcome to the forum. There are a great bunch of people here that will help guide you through the learning curves. I also lost a lot of weight (53 pounds) and did not gain any of it back. But, I am 64 and that might have something to do with it.

Ursa Major Collaborator

Hi Nilam, and welcome to the group. I agree with everything Nini says. You should be eating gluten for the testing, and should have had your bloodwork done before the endoscopy. But your fast positive response to the diet is pretty good evidence that your problem is celiac disease.

Would you mind writing in regular English? I have had great trouble reading your post (and I am sure a few others who are 'a little older' would appreciate it, too). Thanks!

KaitiUSA Enthusiast

Welcome to the family :D Let me know if you have any questions I would be happy to help


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    • Mari
    • trents
      Sorry, I think I got you mixed up with another poster.
    • rei.b
      I hadn't been eating gluten free before having the antibody test done. I started eating gluten free after having the test done because the gastro PA told me to eat gluten-free for 6 months. I'm now 3 months in.
    • trents
      I tend to agree with RMJ. Your doc took the reasonable and practical approach to diagnosis. All things considered, it was the right way to go. However, if you have first degree relatives that show signs of possible celiac disease, urge them to get formally tested before they start the gluten free diet.
    • RMJ
      It sounds like you have a very reasonable GI doctor, who diagnosed you based on family history and symptoms after eating gluten. I would consider you lucky! The other option would be to make yourself very sick by doing weeks of a gluten challenge prior to an endoscopy.
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