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Question For You Veterans...


JerryK

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JerryK Community Regular

How long does it take before you notice you've eaten something with Gluten?

An example, yesterday I ate an Apple Fritter for breakfast and about 7PM, I got

sick. So...2 hours, 4 hours, etc...anyone?


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Mango04 Enthusiast

For me it can be an instantaneous reaction, or it can take hours, or days. I don't know why it varies like that, but it does. If you got sick at 7pm it very well could have been from your breakfast.

kabowman Explorer

My gluten reactions start, mild gas, about 2-3 hours later. However, about 5 hours later I am in horrible pain with cramping, horrible gas, and D and the next day I have brain fog - which could either be the glutening or the meds I take to get by. My system then takes days - up to a week - before I can even consider that I am back to normal.

Funny because my dairy, soy, corn, etc. reactions tend to hit within 15-30 minutes which is one way I can tell a glutening apart from the rest.

jerseyangel Proficient

A gluten reaction for me is fairly predictable. It starts about 2 hours after the ingestion. The first signs are stomach rumbling and gas that lead to D.

JerryK Community Regular
A gluten reaction for me is fairly predictable. It starts about 2 hours after the ingestion. The first signs are stomach rumbling and gas that lead to D.

Interesting this matches my symptoms exactly. I also feel kinda and groggy for a couple hours after

eating something glutened. But I can certainly relate to the rumbling tummy and follow on symptoms...

jerseyangel Proficient
Interesting this matches my symptoms exactly. I also feel kinda and groggy for a couple hours after

eating something glutened. But I can certainly relate to the rumbling tummy and follow on symptoms...

The groggyness (?) is probably a combination of fatigue and brain fog--I get that, too. The rumbling stomach is the dead giveaway for me because that is the only time that it happens.

tarnalberry Community Regular

Dizziness/brain fog can start as early as 15-30 minutes. Stomach noises can start in 1-2 hours. Intestinal cramping and slight diahhreah starts in 8-12 hours, usually. Fatigue starts in 12-24 hours. Severity varies greatly from episode to episode.


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JerryK Community Regular
Dizziness/brain fog can start as early as 15-30 minutes. Stomach noises can start in 1-2 hours. Intestinal cramping and slight diahhreah starts in 8-12 hours, usually. Fatigue starts in 12-24 hours. Severity varies greatly from episode to episode.

This fits so well with my symptoms it is uncanny. I've had this on and off for like..ever. I never knew I wasn't "normal".

jerseyangel Proficient

It's not that it's normal, it's just that we learn to live with the symptoms. It happens over time, in some cases, and after a while we forget what "normal" actually feels like.

tarnalberry Community Regular

exactly. I didn't know it wasn't normal either. my doc pretty much said "yep, you get so used to something, it becomes 'normal' for you. you don't even think of mentioning it. but it's not 'normal' for people in general. so we'll test you."

you may not have had celiac all your life - it can be triggered at any time. but you do need to get tested now.

ravenwoodglass Mentor
This fits so well with my symptoms it is uncanny. I've had this on and off for like..ever. I never knew I wasn't "normal".

I thought it was normal too until the off and on symptoms became part of my daily existance. Then it was at least 10 years before I was diagnosed. I get dizzy within a few minutes, then the tummy rumbles and gas, then I get GERD symptoms, the next day joint and muscle pain arrive along with a truely vile depression that will hit along with obsessive thoughts of every horrible thing you could imagine. The depression only lasts 1 to 2 days but it is overwhelming while it is there. Finally 1 to 3 days later I get violent D. It takes about 2 weeks for me before the joint and muscle pain and fatigue and brain fog are gone.

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    • Scott Adams
      If your tTg-IgA was 28 and positive is at 3, you are nearly 10x over the positive marker, so the most likely explanation by far would be celiac disease. I also do not understand why your doctor would not want to run the blood test, which is the normal first step in the diagnosis process.
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    • trents
      So the tTG-IGA at 28 is positive for celiac disease. There are some other medical conditions that can cause elevated tTG-IGA but this is unlikely. There are some people for whom the dairy protein casein can cause this but by far the most likely cause is celiac disease. Especially when your small bowel lining is "scalloped". Your Serum IGA 01 (aka, "total IGA") at 245 mg/dl is within normal range, indicating you are not IGA deficient. But I also think it would be wise to take your doctor's advice about the sucraid diet and avoiding dairy . . . at least until you experience healing and your gut has had a chance to heal, which can take around two years. After that, you can experiment with adding dairy back in and monitor symptoms. By the way, if you want the protein afforded by dairy but need to avoid casein, you can do so with whey protein powder. Whey is the other major protein in dairy.
    • jenniber
      hi, i want to say thank you to you and @trents   . after 2 phone calls to my GI, her office called me back to tell me that a blood test was “unnecessary” and that we should “follow the gold standard” and since my biopsy did not indicate celiac, to follow the no dairy and sucraid diet. i luckily have expendable income and made an appt for the labcorp blood test that day. i just got my results back and it indicates celiac disease i think 😭   im honestly happy bc now i KNOW and i can go gluten free. and i am SO MAD at this doctor for dismissing me for a simple blood test that wouldn’t have cost her anything !!!!!!!!!!! im sorry, im so emotional right now, i have been sick my whole life and never knew why, i feel so much better already   my results from labcorp:   Celiac Ab tTG TIgA w/Rflx Test Current Result and Flag Previous Result and Date Units Reference Interval t-Transglutaminase (tTG) IgA 01 28 High U/mL 0-3 Negative 0 - 3 Weak Positive 4 - 10 Positive >10 Tissue Transglutaminase (tTG) has been identified as the endomysial antigen. Studies have demonstrated that endomysial IgA antibodies have over 99% specificity for gluten sensitive enteropathy. Immunoglobulin A, Qn, Serum 01 245 mg/dL 87-352
    • JoJo0611
      Thank you this really helped. 
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