Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Allergies


Mango04

Recommended Posts

Mango04 Enthusiast

Does anyone know? Would I just go to an allergest? I don't trust allergists all that much when it comes to food. Is there some sort of Enterolab equivalent that I would just order? Is there a way to get tested even if I am not eating the allergens?

I know I'm gluten intolerant, but when I eat dairy or soy my throat swells and it's difficult to breathe. I have been tested in the past (maybe six or seven years ago) through a blood test and everything came back negative. I'd like to get tested again though.

Anyone know?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

I would suggest going to an allergist. You said that you were tested for food allergens six or seven years ago. Did you have the breathing problems with those foods then? Food allergies can appear _at any time_, so they may have developed since your last test. A good allergist will no that there is no foolproof way to test for allergies (though having you ingest all the things they'll test you for, then drawing blood to do an IgE for each one is the closest, no one's going to do that test - the scratch test is closest to that, but being in the skin, isn't quite the same). Dietary responses, like what you describe, ARE used in doctors officed (usually observed, and some tests are sometimes run during the reaction), to identify food allergies in difficult to determine cases.

jerseyangel Proficient

To have allergy testing, you would need to see an allergist. I would suggest calling around to the ones you are considering--I did and there were a couple that told me on the phone that they did not test for food allergies. I ended up finding a good allergist. I had the full compliment of skin testing for foods. He did them over 2 appointments, one month apart in case there were any reactions (to be safe). He also "gets" food intolerance--he advised me against having the blood testing for those, and told me that a rotation diet was a better way to go. I ended up following that advice and it took about 6 months to determine which things I was intolerant to. Good luck with it! :)

KaitiUSA Enthusiast

You have got good advice from the previous posters. I would see an allergist and get a number of tests done.

If you get those kinds of reactions when eating certain foods I would avoid those foods in the meantime so it doesn't get worse or give you more problems.

shai76 Explorer

Just curious, but why don't you trust allergists? I really think you should try going to one or a ENT. My allergist is great, and has a natural health councilor at the office, and they have a lab right there. I prefer the RAST (blood) tests. My allergist preferes to go by what your symptoms are when you eat the offending food rather then by the testing. I think that is the best indicator.

Mango04 Enthusiast
Just curious, but why don't you trust allergists? I really think you should try going to one or a ENT. My allergist is great, and has a natural health councilor at the office, and they have a lab right there. I prefer the RAST (blood) tests. My allergist preferes to go by what your symptoms are when you eat the offending food rather then by the testing. I think that is the best indicator.

I guess that was just sort of a broad generalization that I shouldn't have made. I suffered a lot as a kid from allergies and I could never find an allergist willing to help me or acknowledge that food could have been my problem. One accused me of being on drugs when I was 12 because my nose was so messed up. It's strange that when I eliminated milk that problem went away. Anway, I'm sure there are great allergists out there and maybe I'll try to find one. Maybe it's just all intolerance related, in which case I know an allergist can't really help. I know for a fact that I react to dairy and soy. I will never ever eat dairy again regardless.

I'm mostly curious to find out how important it is for me to completely eliminate all traces of soy. Every once in a while I'll eat small amounts of soy, which I know I shouldn't, because it does make me feel like I'm choking if I eat too much. I was wondering if test results could tell me if my reaction could ever possibly result in anaphylaxis. I have no idea. I'm generally a fan of listening to my body and ignoring test results, but I was just curious about the tests....

shai76 Explorer
I guess that was just sort of a broad generalization that I shouldn't have made. I suffered a lot as a kid from allergies and I could never find an allergist willing to help me or acknowledge that food could have been my problem. One accused me of being on drugs when I was 12 because my nose was so messed up. It's strange that when I eliminated milk that problem went away. Anway, I'm sure there are great allergists out there and maybe I'll try to find one. Maybe it's just all intolerance related, in which case I know an allergist can't really help. I know for a fact that I react to dairy and soy. I will never ever eat dairy again regardless.

I'm mostly curious to find out how important it is for me to completely eliminate all traces of soy. Every once in a while I'll eat small amounts of soy, which I know I shouldn't, because it does make me feel like I'm choking if I eat too much. I was wondering if test results could tell me if my reaction could ever possibly result in anaphylaxis. I have no idea. I'm generally a fan of listening to my body and ignoring test results, but I was just curious about the tests....

Some doctors believe that the higher the "class rating" or IGE antibody response the more likely it is you could suffer anaphelectic reaction. But, from my experience and others I have talked to, you can be juts a class 1 and have a serious reaction, and be a class 4 and not have hardly any reaction. So the test measures how much the IGE antibodies go up in response to the allergen, but not your bodies response tot he IGE levels increasing. I'm a class 2 with milk, but class 3 with soy. I don't really react to soy, but I have life threatening reactions to milk.

I would say try an allergist or an ENT and get tested then kind of measure that against your own experience monitoring your reactions. Also your body can build blocking antibodies to allergens, like what the goal is with allergy shots. So you could measure allergic to something but not actually react to it.

Celiacs can cause multiple food allergies because it makes food more difficult to digest and can cause a sort of "leaky guy" type thing where proteins in food pass whole into the body and the antibodies see it as an invader. So it is possible for your allergic to lighten up or "go away" after some time on gluten free. At least I am hoping that can happen. :unsure:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,029
    • Most Online (within 30 mins)
      7,748

    Nancy N Rosen
    Newest Member
    Nancy N Rosen
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
    • Scott Adams
      Those are driving distance from me--I will try to check them out, thanks for sharing!
    • Scott Adams
      I am so sorry you're going through this bad experience--it's difficult when your own lived reality of cause and effect is dismissed by the very professionals meant to help you. You are absolutely right—your violent physical reactions are not "what you think," but undeniable data points, and it's a form of medical gaslighting to be told otherwise, especially when you have a positive HLA-DQ2 gene and a clear clinical picture. Since your current "celiac specialist" is not addressing the core issue or your related conditions like SIBO and chronic fatigue, it may be time for a strategic pivot. Instead of trying to "reprove" your celiac disease to unwilling ears, consider seeking out a new gastroenterologist or functional medicine doctor, and frame the conversation around managing the complications of a confirmed gluten-free diet for celiac disease. Go in and say, "I have celiac disease, am strictly gluten-free, but I am still suffering from these specific complications: SIBO, chronic fatigue, dermatological issues, and high blood pressure linked to pain. I need a partner to help me address these related conditions." This shifts the focus from a debate about your diagnosis to a collaborative plan for your current suffering, which is the help you truly need and deserve to work toward bouncing back.
    • NanCel
      Hello, no I had to have them re done and then used a liner over the top.  Many dentists are not aware of the celiac effects.  Best of luck.   There is other material, yet, very expensive.
    • sleuth
      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.