Ibs Leads To Other Diseases....

[danikali]

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Wow! I just can't believe what I was reading. I've never read anywhere that IBS can lead to other diseases, even though I now know that it can, actually, ALWAYS does. I just wanted to share this because it shocked me so much. I mean, probably 75% of us were told we had IBS before we got the Celiac diagnosis and other illnesses. DOCTORS LIE!

[Ursa Major]

Actually, the truth is, that IBS doesn't lead to anything. When you get 'diagnosed' with IBS the doctor is just too lazy or ignorant to figure out what the problem really is. So, at some point, maybe you find out you have celiac disease, for instance. IBS didn't lead to celiac disease, it was celiac disease all along, misdiagnosed as IBS.

[danikali]

Actually, the truth is, that IBS doesn't lead to anything. When you get 'diagnosed' with IBS the doctor is just too lazy or ignorant to figure out what the problem really is. So, at some point, maybe you find out you have celiac disease, for instance. IBS didn't lead to celiac disease, it was celiac disease all along, misdiagnosed as IBS.

Actually, yeah, you're right. IBS is just an excuse, not a diagnosis. I get so sad when I think of all of the doctors that told me I had IBS (in the beginning, without even testing me!) and that it would never to lead to anything serious. It's so sad.

[Smunkeemom]

IBS= we don't know why you are sick so we will tell you this to shut you up

yeah, that's about the summary.

It's kinda like when I was really really sick for about 2 months once, and went to the ER from dehydration and they said "oh you have gastroenteritis" sounded professional and official, I get home and look it up and it basically means you are puking.

Then they said I had IBS, then they decided that I didn't have IBS but probably had anxiety that was causing all my problems (yeah, you would be anxious too if you were sick and your doctors didn't care)

Now that I know I have celiac everything makes sense, all my symptoms, every single one, traced back to celiac.

I get so sad when I hear someone say they have IBS, because I know it's a BS diagnosis. (funny how IBS has BS right in it, and the doctor saying it "IBS" it's like he is saying "I bull..." okay, you can figure out why I am laughing)

[NSG]

Doctors do lie!! I remember asking them if I should be on a gluten-free diet in 1989 - when my daughter was diagnosed. Everyone said No [for 17 years]. But they continued to misdiagnose me - IBS, RA, Migranes, Fibromyalgia, depression, etc. It took 3 TIA, a mild stroke, and a trip to the hopsital for chest pain [electrolyte imbalance] before my neurologist suggested a gluten-free diet. My GP still thinks I'm crazy for considering it!

[wolfie]

Another IBS person here. Several drs told me that is what I had......I kept talking about diarrhea, food intolerances, constipation, gas and worsening lactose intolerance. They kept telling me to increase my fiber intake via whole grains (wheat). It just made me sicker. My current PCP is more willing to accept that IBS isn't the final answer and that a lot of things are missed and diagnosed as IBS.

[Rachel--24]

IBS= we don't know why you are sick so we will tell you this to shut you up

Yup and probably most of us have gotten that "diagnosis" at some point. Its so funny when they say it too...."You have IBS"

LMAO!! Whatever....

They act all serious about it too....like they've found the answer to all your problems...its IBS.

[Deej]

Add me to the list.

I'm really radical about this. I have come to believe that it is IBS that does not exist, that it is a catch-all excuse and that there is always (always!) a diagnosis that the physician is either too lazy or too uninformed to be bothered to make. Anytime anyone tells me they have IBS I suggest they find another doctor who will order the full range of tests and find the cause so it can be treated.

[judy05]

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Wow! I just can't believe what I was reading. I've never read anywhere that IBS can lead to other diseases, even though I now know that it can, actually, ALWAYS does. I just wanted to share this because it shocked me so much. I mean, probably 75% of us were told we had IBS before we got the Celiac diagnosis and other illnesses. DOCTORS LIE!

IBS stands for" I Be Stumpted!!"

[Lister]

this is not always true, as much as everyone wants to belive that ibs is pure bs its not always the case, my girlfriends grand mother was diagnosed with ibs when she was 12, since then she has undergone every test imaginable to try to figure out whats wrong. Including multipale biopsys celiac tests colonoscopys the works she literaly has had every test done on her, unyet she is still told she has ibs, so if the rule out absolutly everything else is this still a bs diagnosis because i meen it sounds to me like spastic colons do exist.

[Smunkeemom]

this is not always true, as much as everyone wants to belive that ibs is pure bs its not always the case, my girlfriends grand mother was diagnosed with ibs when she was 12, since then she has undergone every test imaginable to try to figure out whats wrong. Including multipale biopsys celiac tests colonoscopys the works she literaly has had every test done on her, unyet she is still told she has ibs, so if the rule out absolutly everything else is this still a bs diagnosis because i meen it sounds to me like spastic colons do exist.

or she was intolerant to milk or soy, or corn, or something else that they didn't test her for.....

besides spastic colon and IBS are two very different things (if I recall correctly)

[Lister]

spastic colon is another word for ibs or atleast thats what my doctor says but from what i can tell my doctor is a joke so i dont really know. i have been diagnosted with "ibs" but he is still going to test me for chrons,ulceritive colits/colon cancer and he has already tested me for alot of stuff. From what i can tell i meen if ibs is real i have it-but this is by reading the pamphlet he gave me since i match all the symptoms. But at this point i match alot of symptoms for things so i dont really know what im talking about. We need a real doctor to come on these forums and see what they think of this stuff, of course they would have to make a disclaimer so they dont get sued but whatever. ok since i dont really know what im talking about im gonna end the post

oh one thing i do know, IBS itself if it exisists does not lead to any other diseases, but usualy ibs itself is another disease not proporly diagnosed, but ibs itself does not cause any damage or anything it just simply means that your colon has problems passing food it will randomly desided to either move to slowly or move to fastly causing gastral pains and discomfurt

[Warrior Woman]

I HATE doctors and doubt if I would help them if they ran by on fire!

I just got my blood tests back and they are negative. The blood test I FORCED him to do- rat bastard (RB)

This was the thrid doctor I saw over this. #1 RB said I should eat more fiber w/o asking how much I already eat which is a lot. #2 RB took a biopsy w/o blood test so I stopped eating gluten. For two weeks I fet amazing than heard him say- 'the biopsies are normal- if you have any other problems make another appointment' WHAT?!!? HEY MORON- THAT MEANS I STILL HAVE TE SAME PROBLEMS I WALKED IN WITH. Than #3 RB was like 'yeah the biopies were normal so you probably have IBS'

WTF is wrong with them? You are a doctor! That means you decided to HELP people- not just collect checks from the insurance compaines after saying 'It's IBS'

I am so mad - in case no one noticed.

And if one more uneducated person (someone that doesnt have any knowledge of celiac or anything about the digestive system) or doctor tells me I have IBS I am going to punch someone in the mouth.

And after all that venting I am still mad!

[Smunkeemom]

I HATE doctors and doubt if I would help them if they ran by on fire!

I just got my blood tests back and they are negative. The blood test I FORCED him to do- rat bastard (RB)

This was the thrid doctor I saw over this. #1 RB said I should eat more fiber w/o asking how much I already eat which is a lot. #2 RB took a biopsy w/o blood test so I stopped eating gluten. For two weeks I fet amazing than heard him say- 'the biopsies are normal- if you have any other problems make another appointment' WHAT?!!? HEY MORON- THAT MEANS I STILL HAVE TE SAME PROBLEMS I WALKED IN WITH. Than #3 RB was like 'yeah the biopies were normal so you probably have IBS'

WTF is wrong with them? You are a doctor! That means you decided to HELP people- not just collect checks from the insurance compaines after saying 'It's IBS'

I am so mad - in case no one noticed.

And if one more uneducated person (someone that doesnt have any knowledge of celiac or anything about the digestive system) or doctor tells me I have IBS I am going to punch someone in the mouth.

And after all that venting I am still mad!

My advice is to get a brand new doctor, go in calmly and tell them exactly what you wrote here and add "I am sick, I feel like nobody cares, I need to know what is wrong so I can fix it, can you help me?"

see if that works.

It worked for hubby, it has yet to work for me and the girls. I am about to try the new route of going to medical school and being my own doctor (although it's probably not ethical or something)

[Ursa Major]

Warrior Woman, just ignore those dumb doctors and do what you know is the right thing to do, which is being gluten free. Who cares what ANY of them say!

[bluesky8130]

add another to the list...

Years ago I was diagnosed with IBS and they gave me everything they could think of...peppermint oil capsuls (yuck), tried changing my diet, told me to stay away from food that were high in fibre, then to eat foods high in fibre. While I was pregnant, told me to stay away from lactose in all forms (was diagnosed with lactose intolerance in late 80s). I have been tested for Crohn's (in the family), Colitis, diverticulitis...everything but Celiac.

Now that hubby was diagnosed and our household is gluten-free - I feel so much better!! If I do have gluten after weeks of not having it - I get soooo sick.

I wonder if it's sympothy pains...

blue

[ravenwoodglass]

IBS = I be stupid - heres a prozac

add another to the list...

Years ago I was diagnosed with IBS and they gave me everything they could think of...peppermint oil capsuls (yuck), tried changing my diet, told me to stay away from food that were high in fibre, then to eat foods high in fibre. While I was pregnant, told me to stay away from lactose in all forms (was diagnosed with lactose intolerance in late 80s). I have been tested for Crohn's (in the family), Colitis, diverticulitis...everything but Celiac.

Now that hubby was diagnosed and our household is gluten-free - I feel so much better!! If I do have gluten after weeks of not having it - I get soooo sick.

I wonder if it's sympothy pains...

blue

Nope, welcome to the 'club'.

[Chako]

I am thinking this does not bode well for my 4 year old son. The GI we just met with said IBS was the least of the possibilities. I guess that means if nothing shows up on the scopes then we go with this as they have no clue. Great to know.

Does the bloodwork for IBS run the same as for celiac? I mean the IgA and IgG in terms of levels? Do they just diagnose IBS if they have nothing via bloodwork and a negative scope?

[Anglgrle3]

It worked for hubby, it has yet to work for me and the girls. I am about to try the new route of going to medical school and being my own doctor (although it's probably not ethical or something)

[inquirer]

I think the reason for the increased risk of cancer for IBS, celiac, crohn's, etc. is the constant source of irritation and thus inflammation. They are now finding out that chronic inflammation predisposes you to cancer. That's why it is so important for people who consider themselves borderline gluten sensitive or those in denial to stop ingesting gluten. You can have inflammation due to the gluten and not have exaggerated symptoms or classic symptoms.

[inquirer]

Chako,

I had IBS for years. I stopped eating bread a couple of years ago when my pants started getting too tight. Other than occasional pasta and pizza I didn't eat any wheat. When I started researching celiac for my husband, I started remembering all of the symptoms that I used to have that had gone away. I used to worry that I was getting ovarian cancer because my stomach would bloat up so much. Since my husband tested gluten sensitive, I have made the household gluten free. I'm not bothering to test myself since I already know I feel better. I had my kids tested (still waiting for results) so we would know whether or not to make a big deal about gluten outside of the house. Since my husband has two gluten sensitivity genes, I already know that they will get at least one of those and will be predisposed to developing problems if not now perhaps later on. Might as well get them used to gluten free now and avoid the serious autoimmune diseases.

Apart from the issue of cancer, the constant inflammation can also help lead to autoimmune disease. My husband has been seriously ill with an autoimmune disease that has attacked his lungs. Cutting out the gluten and going after the yeast infection has made a big difference. I am cautiously optimistic that he might actually recover. Two months ago the future was very bleak. He's working his way off the prednisone and is AWOL from the chemo they had planned for him. We will be working with an integrative medicine specialist to work on supplements that will help his body to heal instead of destroying it.

(Doctor: The surgery was a success but unfortunately the patient died!)

[debmidge]

QUOTE FROM PRIOR POST ABOVE :

Does the bloodwork for IBS run the same as for celiac? I mean the IgA and IgG in terms of levels? Do they just diagnose IBS if they have nothing via bloodwork and a negative scope?

[Smunkeemom]

I am thinking this does not bode well for my 4 year old son. The GI we just met with said IBS was the least of the possibilities. I guess that means if nothing shows up on the scopes then we go with this as they have no clue. Great to know.

Does the bloodwork for IBS run the same as for celiac? I mean the IgA and IgG in terms of levels? Do they just diagnose IBS if they have nothing via bloodwork and a negative scope?

90% of the people I know that have crohns or celiac, have been originally diagnosed with IBS, none of them had any labs or procedures prior to the IBS diagnosis, only after when they found out what was "really wrong".

I haven't ever met anyone who had any tests prior to an IBS diagnosis, which is why I think it's what doctors tell you when they don't want to check you out.

If your son's scopes and celiac panel show up neg, you might want to check him for other intolerances, like soy.

[Felidae]

IBS= we don't know why you are sick so we will tell you this to shut you up

Exactly!

Then the doctors push medications to "treat" the symptoms of IBS, which then requires more medications. Just go to the IBS forum where almost everyone is on medication and almost nobody wants to think about dietary change.

Does the bloodwork for IBS run the same as for celiac? I mean the IgA and IgG in terms of levels? Do they just diagnose IBS if they have nothing via bloodwork and a negative scope?

IBS is a blanket diagnosis (Rome II criteria) for when they do not know what is wrong with you. It is not a disease and therefore your blood will be normal. Exactly what you said, negative bloodwork and negative scope equals IBS diagnosis.

[Lister]

"I think the reason for the increased risk of cancer for IBS, celiac, crohn's, etc. is the constant source of irritation and thus inflammation. They are now finding out that chronic inflammation predisposes you to cancer. That's why it is so important for people who consider themselves borderline gluten sensitive or those in denial to stop ingesting gluten. You can have inflammation due to the gluten and not have exaggerated symptoms or classic symptoms."

ibs itself does not cause inflamation when they diagnose if proporly for ibs nothing abnormal should be found thus ibs can not lead to cancer, but if there is inflamation then it is something else rather then IBs so then yes it can lead to cancer, but ibs itself is just spasims in the instanel track that makes food pass to fast or to quickly other symptoms meen its something else then IBS

as for celiac,chrons etc yes those can lead to other things like cancer, well celiac not as much as long as its caught early and you change your lifestile but if its a ongoing problem and you never change your style then as we all know it can lead to lots of things but all i am saying is that IBS itself is not a inflamation and therefore does not leave you open for autoimmune diseases

but after reading about inflamation leaving you open for autoimmune disease it makes me worry since i know im currently inflamed and have been for about a month i did change my lifestyle but as we all know it takes time for the healing to finish so im worried that i may get something during the healing prossess o well anyways yeah that was just my 2 cents on the subject, and for once i acually slightly know what im talking about and thats rare for me

one thing that is wrong is though to diagnose someone with IBS before checking for everything else that can cause the same problems aka (chrons,Ulceritive colitis,spasticcolon,colon cancer,celiac) but if you have had all the proper and by proper i meen Biopses and colonoscopy and bloodwork and everything still is coming back negative then IBS can be a real diagnoses but in my personel opinon ibs is a BS diagnosis until these things have been cleared and no doctor should ever just diagnose someone with IBS and send them home. I have had all the proper tests that the doctor feels is nessasary and has ruled out the posabiltys of all of those other things and has come down to just gluten sensativity and either a spastic colon or IBS- am i doing the wrong thing with not going thru with the colonoscopy? he desided it was not nessasary after talking with a GI specailist about my problems and testing my stools for white blood cells (aparently a sign that no matter how early the chrons,ulceritive,cancer) will show up in your stools and mine did not so he ruled them out and said that im gluten sensative with a colon problem(ibs or spastic colon). Judging by everyone elses posts im wondering if he did the wrong thing or is he on the right path?

Open Original Shared Link

here is a good website that i recommend anyone read that has gotten the dianoses of IBS without proper testing, it contains lots of usefull info

"What Diseases Need to Be Ruled Out For a Spastic Colon Diagnosis?

In essence, the diagnosis of Spastic Colon is a process of exclusion. There is no medical test available that will be positive for Spastic Colon; instead, your doctor will test you for all other illnesses that can mimic Spastic Colon, and if those tests are negative, and if your symptoms fit the Rome II Guidelines, you'll then be diagnosed with Spastic Colon. In particular, it's important that the following diseases are excluded before you accept a diagnosis of Spastic Colon:

Colon cancer

Inflammatory bowel diseases (Crohn's and Ulcerative Colitis)

Bowel obstructions

Diverticulosis / Diverticulitis

Gallstones

Food allergies

Celiac (a genetic, autoimmune disorder resulting in gluten intolerance)

Bacterial infections

Intestinal parasites

Endometriosis

Ovarian cancer "

there, see ibs does exisit its just you need to rule out everything else first

ok wow i posted way to long sorry