Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anyone Want To Throw In The Towel?


NiqueP

Recommended Posts

NiqueP Rookie

Before anyone else says it , I know it's better to be healthy than thin. That being said, the weight gain after going gluten-free has me wondering in (fleeting moments)if it's all worth it. Watching the lbs. go up is also as depressing as being sick all the time. I have always been an active person. I workout 2 hrs a day. always watch what I eat and it has made no difference. My weight keeps creeping up. :(


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



MegGFBoston Rookie
Before anyone else says it , I know it's better to be healthy than thin. That being said, the weight gain after going gluten-free has me wondering in (fleeting moments)if it's all worth it. Watching the lbs. go up is also as depressing as being sick all the time. I have always been an active person. I workout 2 hrs a day. always watch what I eat and it has made no difference. My weight keeps creeping up. :(

I know what you mean!!! I feel the same way. I'm just creeping out of the situational depression I have been for three months (after buying all new spring/summer) clothes since nothing fit!!

But somehow I keep reminding myself that I am healthy (if not happy) and I have to say that now after six months of gluten free things seem to be normalizing - not losing weight as quickly as I would like - but it is not going up anymore either. I basically cut out all starches - including rice, potato etc that seems to be working

Hang in there!!!

par18 Apprentice
I know what you mean!!! I feel the same way. I'm just creeping out of the situational depression I have been for three months (after buying all new spring/summer) clothes since nothing fit!!

But somehow I keep reminding myself that I am healthy (if not happy) and I have to say that now after six months of gluten free things seem to be normalizing - not losing weight as quickly as I would like - but it is not going up anymore either. I basically cut out all starches - including rice, potato etc that seems to be working

Hang in there!!!

When I first started on the diet about 13 months ago I needed to gain about 30 lbs. It took about 10 months of steady eating to do this but I did. I was depressed because I could not be active being so underweight. I started being active again about 2 1/2 months into the diet. Before I was diagnosed I never thought about eating. Now I have to remind myself every day to make sure I eat something because I am extremely active burning calories. The reason I say this is because whether we are trying to lose or gain or remain the same it is going to be something we have to work on harder than the average person. I think this is a very good test of our organizational skills. Being active and doing physical exercise either by work or play is an important part of all of our lives. Anyone strong willed enough to stick to this diet can also gain or lose whatever amount of weight they desire. Feeling sorry for yourself is also a good way not to accomplish anything. I have no doubt that if you keep a check on the amount of starches and get exercise you can get there. The ultimate happiness that you may not have now will follow. Good luck.

Tom

tarnalberry Community Regular

are you replacing gluten-filled filled with yet starchier, lower nutritional-value gluten-free substitutes? if so, you may want to give those up in exchange for fruits/vegetables. also, if you're now absorbing more of what you are eating, you may need to reevaluate your daily caloric needs, and slowly cut back on the quantity of calories you consume in day.

Becky6 Enthusiast

It is very frustrating! I had gained a bunch of weight because I was on prednisone. Now that I am gluten-free I have gained even more! I know it is because I am absorbing the nutrients now but it is frustrating! Hang in there. For me I feel so much better that I would rather be heavier than not able to get out of bed.

lovegrov Collaborator

Well, as sick as I was I know my choices are: A) be gluten free and weigh more, or B) eat gluten, be skinnier and then die.

No choice there.

richard

BRUMI1968 Collaborator
It is very frustrating! I had gained a bunch of weight because I was on prednisone. Now that I am gluten-free I have gained even more! I know it is because I am absorbing the nutrients now but it is frustrating! Hang in there. For me I feel so much better that I would rather be heavier than not able to get out of bed.

I know what you mean about the Prednisone; I was on it for about 9 months or so a few years ago - my face got moony and I gained 20 pounds. I'm glad to hear you're off it. Nasty stuff! I just read today that some folks gain weight once they go gluten free since they are getting nutrients and calories and the like. I lost 10 #s when I quit wheat - now that I am gluten free (2 weeks), I hope I don't gain it back.

Good luck to you! I'm sure you'll even out and be whatever weight is healthy for you. In America I think we're too obsessed with what the scale says versus how we feel. So long as you feel healthy, that is what counts.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Kaycee Collaborator

I went onto this gluten free diet with a bit of tredipation.

I have a different problem, and was in need of loosing a bit of weight, and had managed to loose two stone prior to being diagnosed with celiac, that was a battle as I was always hungry.

My worry with being gluten free was maybe I would get a bit down, and let the weight creep back up and I thought I would be just as hungry.

But the opposite has happened, I found I did not gain one ounce of what I had lost, nor did I lose any, but my appetite has changed and I am no longer starving, and feel more in control of my diet.

I am still overweight, but will deal with that later, well soon.

I did eat gluten free bread for a while, but have given it up as to me it seems about as bad as eating white bread. Has anybody got any thoughts on that?

Cathy

lindalee Enthusiast
I went onto this gluten free diet with a bit of tredipation.

I have a different problem, and was in need of loosing a bit of weight, and had managed to loose two stone prior to being diagnosed with celiac, that was a battle as I was always hungry.

My worry with being gluten free was maybe I would get a bit down, and let the weight creep back up and I thought I would be just as hungry.

But the opposite has happened, I found I did not gain one ounce of what I had lost, nor did I lose any, but my appetite has changed and I am no longer starving, and feel more in control of my diet.

I am still overweight, but will deal with that later, well soon.

I did eat gluten free bread for a while, but have given it up as to me it seems about as bad as eating white bread. Has anybody got any thoughts on that?

Cathy

White bread is bad and I rarely ate it. I went for the "GOOD STUFF" Whole Grains --ha,ha- I always stay hungry. I seem to want to eat very frequently whatever that means I am not overweight. I used to rely alot on popcorn as a filler but I am going to try to avoid corn also. I haven't tried to gluten-free breads. Some of the crackers are ok. Does anyone know if staying hungry means I am not absorbing? LInda Lee

Nancym Enthusiast
White bread is bad and I rarely ate it. I went for the "GOOD STUFF" Whole Grains --ha,ha- I always stay hungry. I seem to want to eat very frequently whatever that means I am not overweight. I used to rely alot on popcorn as a filler but I am going to try to avoid corn also. I haven't tried to gluten-free breads. Some of the crackers are ok. Does anyone know if staying hungry means I am not absorbing? LInda Lee

I find eating lots of starchy, sugary stuff makes me hungry. If I keep my diet centered around meat, veggies, fruit and such that I don't get ravenously hungry. I think it is the ups and downs of blood sugar.

CarlaB Enthusiast

Linda Lee, I've been five months gluten-free and no longer have the ravenous appetite. Occassionally I do, but most of the time I'm eating more normal ... still more than my husband, but a lot less than I used to.

I've gained all my weight back but the five pounds I didn't want anyway. Now I'm trying to balance eating enough with not gaining that five pounds back!

Fiddle-Faddle Community Regular

Try drinking a cup of herbal tea at the beginning of every meal, and in between every meal. That will help you cut down on the amount you're filling your stomach with). Also, as someone suggested above, be REALLY careful about the gluten-free breads and pastas--they are way heavier and more fattening than their gluten-filled counterparts.

ehrin Explorer
Before anyone else says it , I know it's better to be healthy than thin. That being said, the weight gain after going gluten-free has me wondering in (fleeting moments)if it's all worth it. Watching the lbs. go up is also as depressing as being sick all the time. I have always been an active person. I workout 2 hrs a day. always watch what I eat and it has made no difference. My weight keeps creeping up. :(

Geesh I know what you mean - how long have you been gluten-free? I'm in my 7th month and have put on over 10 pounds. I am already overweight so it's the last thing I need. Do you find you lack energy as well? That's my problem. Prior to my celiac diagnosis I was an avid gym goer. Exercise was a major component to keeping good control of my diabetes, however I now find that I have an almost lackadaisical approach to EVERYTHING. I have no motivation to hit the gym - I'm still maintaining good control of my diabetes, but I'm no where near as stringent as I was prior to diagnosis. I started weight watchers and have been gaining a pound a week. You'd think that'd be motivation in and of itself, but it isn't. Now I just figure I'll see how fat I can actually get :huh:

I don't know. My mother said I get P.I.A. (pain in the a$$) diseases. I couldn't agree more.

jenvan Collaborator
are you replacing gluten-filled filled with yet starchier, lower nutritional-value gluten-free substitutes? if so, you may want to give those up in exchange for fruits/vegetables. also, if you're now absorbing more of what you are eating, you may need to reevaluate your daily caloric needs, and slowly cut back on the quantity of calories you consume in day.

I 2nd was Tiffany said above. A great weight to lose weight...and to just eat anyway, is lower-carb. When you do choose a carb, go for a high fiber/high nutrition one...such as millet or quinoa vs. white rice. When I started adding on the pounds post gluten-free, I cut down on my simple carb intake and have stopped gaining weight...even lost most of what I gained. Eat protein, and as I mentioned, higher fiber, more "filling" foods.

Are you on any medications?

sjc Newbie

I am also gaining weight. I also have diarrhea. I try so hard to make sure the food I am eating is safe. It is so depressing, hard to find comfortable clothes, and don't want to see people I know because I am so embarrassed how I look. I have arthritis in both knees ( need to have knee replacement surgery) and my right foot "has issues" (tolong to describe but have already had 2 surgeries).

Warrior Woman Rookie
Before anyone else says it , I know it's better to be healthy than thin. That being said, the weight gain after going gluten-free has me wondering in (fleeting moments)if it's all worth it. Watching the lbs. go up is also as depressing as being sick all the time. I have always been an active person. I workout 2 hrs a day. always watch what I eat and it has made no difference. My weight keeps creeping up. :(

You dont mention what it is your eating or what your workout is.

Are you eating too many carbs? Are you eating enough lean protein? Are you getting enough good fat to feel full? Are you getting enough nutrients? How much fruit and veggies are you eating? Are you taking a multi vitamin?

Just because you are eating gluten-free doesnt mean it is healthy per se. A lot of the gluten-free replacements are high calorie. And if you arent drinking enough water, you may be dehydrated and not hungry. Have you tried writing down everything you eat for a week or so and see where you calories are coming from? To help find this out you can go to www.fitday.com. It is free and tracks your calories, the protein/fat/carb make up of what you are eating, the nutrients you are getting and tracks the xercise you do. That would help considerably in find out more informatiopn to your problem.

What does your workout consist of? Do you change it up? Do you have rest days or weeks built in? Why are you working out for two hours a day?

If you are working out too much, your body could be holding on to the calories that you are eating. Or if your routine is the same day in and day out, your body beciase accustomed to the workout and you arent getting the full benefit.

There are many variables to your problem. Eating gluten is not the answer. You may have to consult a nutritionist and/or a coach.

Lorraine

Guest nini

I was overweight before going gluten-free, and I've managed to lose 105 lbs in over 3 years... I've found that I have to stay away from a lot of the gluten-free substitute products and stick with foods that are naturally gluten-free. I also eat more frequent meals/snacks throughout the day so my body doesn't go back into starvation mode and hold onto the fat. I watch my portion sizes and allow myself treats in small quantities. If I want something (gluten-free of course) I allow myself to have it, just in small portions. I try to not focus on losing weight at all, but just in eating healthy. Sometimes I hit a plateau for a while and don't lose anything and even gain up to five pounds back, but after a few weeks things level back out and I start losing again. I still need to lose about 30 more pounds but I'm not stressing about it. (Can't afford to go buy another new wardrobe right now!)

Lister Rising Star

keep working at it and you will shed the pounds. i had the exact opisite from going gluten-free, withen the first 3 weeks i lost 100 pounds and have only gained back 3 so far

  • 2 weeks later...
NiqueP Rookie

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,859
    • Most Online (within 30 mins)
      7,748

    Lesley-Anne
    Newest Member
    Lesley-Anne
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Rogol72
      Some interesting articles regarding the use of Zinc Carnosine to help heal gastric ulcers, gastritis and intestinal permeability. I would consult a medical professional about it's use. https://www.nature.com/articles/ncpgasthep0778 https://www.rupahealth.com/post/clinical-applications-of-zinc-carnosine---evidence-review https://pmc.ncbi.nlm.nih.gov/articles/PMC7146259/ https://www.fallbrookmedicalcenter.com/zinc-l-carnosine-benefits-dosage-and-safety/
    • Jillian83
      He is. Which makes everything even more difficult. I’m not a believer in “staying for the kids” but I have nowhere to go and it’s not just me, it’s me plus my babies. We live in a beautiful place, lots of land in the country and me and the kids love the place we’ve called home for their entire lives. But Im seeing that he’ll never change, that my kids deserve a happy healthy Momma, and that staying in this as is will be the early death of me. Then I look at the scars covering my entire body…this disease and the chronic stress I’ve been enduring for years that tell me I’m no longer beautiful and no one will ever look at me with interest again. I try self care, try to give myself grace so I can just start loving myself enough to gain strength but the slightest sparkle in my eye and skip in my step attracts his wrath and it all comes crashing ten fold. Life is just absolutely railing me from every single direction leaving me wanting to wave that white flag bc I don’t feel like there’s much hope no matter what happens. 
    • trents
    • Jillian83
      Hi, I was recently diagnosed with Celiac and dermatitis herpetiformis after years of suffering without answers. I lost my mind. I lost my job. I lost so much time. I lost Me. Conventional doctors are opulent come near me and the one who did sat across the room, misdiagnosed me, pumped me full of steroids which collapsed my entire hip for 6 months. So without answers I began my holistic journey. Fast forward a couple of years and still struggling with a mysterious whole body itchy, crawling “skin hell”, perfect teeth now deteriorating, thick hair now thinning rapidly and no more than a day or 2 at most relief….An acquaintance opened up a functional medicine practice. Cash only, I found a way. Within a month tests clearly showing my off the charts gluten allergy/sensitivity as well as the depletion of vital nutrients due to leaky gut and intestinal damage. dermatitis herpetiformis was more than likely what I was experiencing with my skin. I was happy. I thought this is easy, eat healthy Whole Foods, follow the diet restrictions and I finally get to heal and feel confident and like myself again very soon! 😔 Supplements are very pricey but I got them and began my healing. Which leads to the other major issue: not working, stay at home Mom of young kids, entirely financially dependent on my man of 7 plus years. He’s never been supportive of anything I’ve ever done or been thru. He controls everything. I’m not given much money ever at a time and when he does leave money it’s only enough to possibly get gas. His excuse is that I’ll spend it on other things. So my “allowance” is inconsistent and has conditions. He withholds money from me as punishment for anything he wants. Since being diagnosed, he’s gained a new control tactic to use as punishment. He now is in control of when I get to eat. He asked for proof of my diagnosis and diet bc he said I made it up just to be able to eat expensive organic foods. Then after I sent him my file from my doctor he then said she wasn’t a real doctor. 😡. I go days upon days starving, sometimes breaking down and eating things I shouldn’t bc I’m so sick then I pay horribly while he gets annoyed and angry bc I’m not keeping up with all the duties I’m supposed to be doing. His abuse turns full on when I’m down and it’s in these desperate times when I need his support and care the most that I’m punished with silence, being starved, ignored, belittled. He will create more of a mess just bc I’m unable to get up and clean so that when I am better, I’m so overwhelmed with chores to catch up that the stress causes me to go right back into a flare from hell and the cycle repeats. I’m punished for being sick. I’m belittled for starving and asking for healthy clean water. I’m purposely left out of his life. He won’t even tell me he’s going to the grocery or to get dinner bc he doesn’t want me to ask him for anything. I have no one. I have nothing. Im not better. My supplements ran out and I desperately need Vitamin D3 and a methylated B complex at the very minimal just to function….he stares at me blankly…no, a slight smirk, no words. He’s happiest when im miserable and I am miserable.  this is so long and im condensing as much as I can but this situation is so complicated and disgusting. And it’s currently my life. The “IT” girl, the healthy, beautiful, perfect skin, perfect teeth, thick and curly locks for days, creative and talented IT girl….now I won’t even leave this house bc Im ashamed of what this has dont to my body, my skin. Im disgusted. The stress is keeping me from healing and I think he knows that and that’s why he continues to keep me in that state. He doesn’t want me confident or successful. He doesn’t want me healed and healthy bc then how would he put the blame of all his problems on me? This journey has been hell and I’ve been in Hell before. I’ve been killed by an ex, I’ve been raped, robbed, held hostage, abused beyond nightmares but the cruelty I’ve experienced from him bc of this disease is the coldest I’ve ever experienced. I’ve wanted to give up. Starving and in tears, desperate…I found a local food pantry in our small town so I reached out just saying I had Celiac and was on hard times. This woman is blessing me daily with prepared gluten free meals, donations, educational info, people who know this disease and how they manage life and the blessings just keep coming. But it’s overwhelming and I feel like I don’t deserve it at all. He just glared and I know he’s going to sabotage it somehow. I don’t even know what to do anymore. I’m so broken and just want peace and healing. 
    • cristiana
      @Colleen H   I am just curious,  when you were tested for coeliac disease, did the doctors find out if you had any deficiencies? Sometimes muscle pain can be caused by certain deficiencies, for example, magnesium, vitamin D, calcium, and potassium.   Might be worth looking into having some more tests.  Pins and needles can be neuropathy, again caused by deficiencies, such as iron and B12,  which can be reversed if these deficiencies are addressed. In the UK where I live we are usually only tested for iron, B12 and vitamin D deficiencies at diagnosis.   I was very iron anemic and supplementation made a big difference.  B12 was low normal, but in other countries the UK's low normal would be considered a deficiency.  My vitamin D was low normal, and I've been supplementing ever since (when I remember to take it!) My pins and needles definitely started to improve when my known deficiencies were addressed.  My nutritionist also gave me a broad spectrum supplement which really helped, because I suspect I wasn't just deficient in what I mention above but in many other vitamins and minerals.  But a word of warning, don't take iron unless blood tests reveal you actually need it, and if you are taking it your levels must be regularly monitored because too much can make you ill.  (And if you are currently taking iron, that might actually be making your stomach sore - it did mine, so my GP changed my iron supplementation to a gentler form, ferrous gluconate). Lastly, have you been trying to take anything to lessen the pain in your gut?  I get a sore stomach periodically, usually when I've had too much rich food, or when I have had to take an aspirin or certain antibiotics, or after glutening.  When this happens, I take for just a few days a small daily dose of OTC omeprazole.  I also follow a reflux or gastritis diet. There are lots online but the common denominators to these diets is you need to cut out caffeine, alcohol, rich, spicy, acidic food etc and eat small regularly spaced meals.   When I get a sore stomach, I also find it helpful to drink lots of water.  I also find hot water with a few slices of ginger very soothing to sip, or camomile tea.  A wedge pillow at night is good for reflux. Also,  best not to eat a meal 2-3 hours before going to bed. If the stomach pain is getting worse, though, it would be wise to see the doctor again. I hope some of this helps. Cristiana    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.