Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Got Glutened


Smunkeemom

Recommended Posts

Smunkeemom Enthusiast

I ate some potato cakes from Arby's tonight, the website said they were gluten free, and the manager at the restraunt said they had a dedicated fryer for the gluten free stuff (I think she lied)

I am so sick, dizzy, headache, muscle cramps, and yeah the big D.

the whole time I was eating it hubby kept saying (in this creepy voice) "gluten, gluten, crumbs, cross contamination, gluten"

I think he was right :ph34r:

so in addition to me being sick, I have him gloating about how he was right and I am sick (not much gloating but when I am sick I am oversensitive)

I hate not being able to eat out, I hate it.

:(

I think I am done feeling sorry for myself for today, and I am def. done with Arby's.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor

I know what your are going through. After I was dx'd in August, I spend all my time learning. Lord knows, I still have so much to learn and I make mistakes alot. Even though I have mistakes, the outcome is not nearly as bad as it was in the beginning. I seem to have alot more, alot more control over bathroom marithons. (ie. can I get to the bathroom, when it is six seconds away) Thank goodness, I believe that I am over that stage.

Now on the the new one. Sometimes I get really angry. My husband and I have always enjoy quality restaurant food. I am a very good cook and get no regrets for dinner at my home. But, I have lost that choice of having a very nice meal served to me, tired of asking for the chief, when he is at his busiest time (I know, go at off hours and talk, been there done that)., eating a hamburger without the bun and the infamous friggen baked potato. I get for frustrated, I get mad and I feel sorry for myself.

Then what........your cook for your company and friends, and when you go out you still order the frigging baked damn potato.

This too will pass and on to anothe stage of my life.

Lisa

Ursa Major Collaborator

I am sorry you got sick. Your husband was likely just teasing you at Arby's, too bad he was right. Next time try something more plain than potato cakes. Anything that it made from a batter is iffy and not recommended. I hope you feel better soon.

amybeth Enthusiast

Lisa - you're dead on!

My fiance' works in a fine-dining restaurant - and when he's not eating taco bell, he likes to go out for nice meals :D -- kind of wants to be served after serving others all day...... and I always feel bad that our meals are full of so many questions and clarifications!

He's so patient and understanding (I'm truly blessed)....but as a manager he gets a lot of picky picky people in his restaurant and all complaints come to him, so I know he feels for me when we eat out - but also for the busy busy server AND the manager who doesn't want to risk getting me sick.

I call ahead as much as possible - but it's amazing how much mis-information is out there - even in fine dining restaurants!!!!

Although, I must admit I enjoy the occassional baked potato while out. I'm too lazy to wait for a "real" one at home and the microwave variety aren't nearly as good!!!

Guest greengirl
I ate some potato cakes from Arby's tonight, the website said they were gluten free, and the manager at the restraunt said they had a dedicated fryer for the gluten free stuff (I think she lied)

I am so sick, dizzy, headache, muscle cramps, and yeah the big D.

the whole time I was eating it hubby kept saying (in this creepy voice) "gluten, gluten, crumbs, cross contamination, gluten"

I think he was right :ph34r:

so in addition to me being sick, I have him gloating about how he was right and I am sick (not much gloating but when I am sick I am oversensitive)

I hate not being able to eat out, I hate it.

:(

I think I am done feeling sorry for myself for today, and I am def. done with Arby's.

I am so sorry you got sick! I really had a good laugh, though, when I read what your husband said! It reminds me of my husband!

I was sick last night with horrible abdominal cramps and he was telling me to just throw up already, as if I was prolonging the pain on purpose and as if vomiting would magically make me better! Although, when I finally did throw up I did feel better (not cured, but better) and yes, he gloated!

I was feeling sorry for myself today, too, because as usual after getting sick I just feel blah for a couple days.

Anyway, thanks for the laugh, and I hope your feeling better. BTW, I've gone out to eat twice since I went gluten free in Jan. The first time was a nice restaurant where the chef assured me the food was fine (and I got sick), the second time was at Chipotle and I was fine!!! There was an assembly line of people making the food, but I asked if one person with new gloves on could make mine. They were very nice about it and she even washed her hands before putting on the new gloves. I guess you just take your chances, though, when you go out. It does stink!!

MySuicidalTurtle Enthusiast

I am sorry. You are right to think she lied because Arby's isn't the best restaurant.

Lisa Mentor
Lisa - you're dead on!

My fiance' works in a fine-dining restaurant - and when he's not eating taco bell, he likes to go out for nice meals :D -- kind of wants to be served after serving others all day...... and I always feel bad that our meals are full of so many questions and clarifications!

He's so patient and understanding (I'm truly blessed)....but as a manager he gets a lot of picky picky people in his restaurant and all complaints come to him, so I know he feels for me when we eat out - but also for the busy busy server AND the manager who doesn't want to risk getting me sick.

I call ahead as much as possible - but it's amazing how much mis-information is out there - even in fine dining restaurants!!!!

Although, I must admit I enjoy the occassional baked potato while out. I'm too lazy to wait for a "real" one at home and the microwave variety aren't nearly as good!!!

And to make things worse, why would you want to spend $20.00 plus, for an entry with no sauce, not seasoning, no nothing which makes a good meal great. - ohh hhh, uggg - I could go out in my back yard and graze on the grass..........oops, can't do that, it's RYE GRASS. Screw me. :(


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Smunkeemom Enthusiast

geez, I can't believe I glutened myself.... :(

Anyone got a quick fix? (other than be more careful and quit whining? because I have already heard that today)

jerseyangel Proficient
geez, I can't believe I glutened myself.... :(

Anyone got a quick fix? (other than be more careful and quit whining? because I have already heard that today)

I'm not gonna tell you to be more careful and to quit whining, because when I get glutened, I would want to hit anyone who told me that! :D

Unfortunately, I have not found anything that really helps. I try to eat as normally as I can, drink a lot of water, and if I need to go out/be around people other than family, I take Immodium. That has saved my life more than once! If possible, get some extra rest, or even just some time alone--I don't like being around anyone the first day or two (I get very annoyed and anxious) :ph34r:

Hope that you're feeling better soon! :)

eleep Enthusiast

I suppose that staff at Arby's has less of an incentive to really take this stuff seriously anyway -- that's been my thinking about fast food vs. other restaurants. If someone's paid minimum wage to work for a large, impersonal corporation under at least mildly degrading conditions they probably have some frustration to work out -- unfortunately, the customer who's asking them to account for unexpected details is probably an easy target.

KaitiUSA Enthusiast

Sorry to hear you got glutened. I hope that it does not last long for you.

P.S- you should go and complain to the manager or even higher.

Carriefaith Enthusiast

I'm sorry that you got sick :(

I don't eat out anymore.

mmaccartney Explorer
I hate not being able to eat out, I hate it.

Sorry you got sick. I do not eat at or get take out from restaurants. It is a BIG PAIN IN THE A$$, but I like the fact that I know when I eat something that it is safe, and I don't have that lingering worry and fear of "will I get sick"..."well it's been an hour, I'm not sure but I think I feel something"...

I loathe having to cook everything, and having to worry before I go anywhere about what I will eat and when. Will I be gone for lunch? What will I have, etc.

again, sorry you got sick. It reminded me again why I don't do restaurants.

schuyler Apprentice

I hope that you feel better soon.

Smunkeemom Enthusiast

I am actually feeling better today.

I am in a little better of a mood though, we will see how long that lasts, I am going to attempt gluten free lasanga tonight (don't know how to spell it or cook it LOL)

yeah, the brain fog? still here. :(

shai76 Explorer

When I was in college I worked at Arbies and there was no serperate fryer for stuff with wheat in it. There was a fryer for fries and one for chicken...that' about it. I don't trust people enough anymore to go out. I've ended up sick too many times. It sucks, but what can you do? It's either take the risk of being sick, or just bring a packed lunch.

penguin Community Regular

Aren't Arby's curly fries battered? That would account for why their homestyle fries would gluten someone.

I am actually feeling better today.

I am in a little better of a mood though, we will see how long that lasts, I am going to attempt gluten free lasanga tonight (don't know how to spell it or cook it LOL)

yeah, the brain fog? still here. :(

And the layered pasta dish you don't know how to spell or make? It's spelled la-sag-na. Do you know how long it took me to remember how to spell it? Silly italians and their funny letter combinations :P

Here's the recipe I use (the sauce is awesome, and better than my normal sauce recipe!)

Open Original Shared Link

I rated it somewhere...I'll see if I can find it...if you look for it, the name rating it is ekenchels and it was written in January :)

Lollie Enthusiast

I was going to offer up my advice about the lasagna recipe.....I use the rice noodle lasagna noodles and I don't cook them first. I just make sure there is a lot of sauce. It turns out great and the noodles don't turn to mush like they had when I cooked them first! Hope you are feeling better and that it continues!!!!!

Lollie

Katie O'Rourke Rookie

Sorry to hear about that restaurant. Hope you're feeling better now. For stomach problems, inc D, I'd strongly recommend a drug called mebeverine hydrochloride. Alverine citrate is a very similar one, but it is stronger. (Please note these are the chemical names - they may also be known as Colofac, or Spasmonal, among other names). Anyway, they are designed to releve the sypmtoms of IBS, but I find they work very well on gluten symptoms too - it was my doctor that gave me them. Basically they work as anti-spasmodics, so they stop the stomach pain and any D/C. Hope thsi helps, and that you are back to normal soon

maemai Newbie

me too- I ate breakfast out and even asked them to clean the grill. I imagine that's a lot to ask. What makes me angry is that I didn't used to get sick from gluten the way I do now. I guess my body was just really used to it. Now that I don't eat gluten, I can really tell when I accidentally ingest it. I rarely have diarrhea, but poop, a lot. Today I went to the bathroom so much that I think I'm raw from all the wiping. I used to love going out to dinner. I don't like cooking, but now I have to.......

It helps to vent.....

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,327
    • Most Online (within 30 mins)
      7,748

    dnamutant
    Newest Member
    dnamutant
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.