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Why Does My Stomach Hurt?


DrMom

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DrMom Apprentice

I was recently scoped from both ends. GI Dr suspects Celiac Sprue, but blood work has not come back yet. I have done lots of reading here and other places about the problems with the villa in the small intestine. My question is why my stomach hurts. Is it also involved? I have not even heard this mentioned. Maybe I have missed it somewhere. I also have lots of other immune stuff going on and will post them at a later time. For now, someone please tell me why I don't want to eat, get full quickly, have dry heaves, etc. This has been going on for months. Have had CT scans and GI series. Please help.

DrMom


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jerseyangel Proficient

Hi DrMom (love that name!) and welcome to the board :)

Nausea and stomach pain are both symptoms of Celiac. Nausea was my very first (and for a long time the only) symptom. Even now when I get a gluten reaction, I will get nausea and pain, in addition to the D. The damage that happens in Celiac Disease happens in the small intestine, but we can have pain anywhere along the digestive tract.

mouse Enthusiast

For many years (pre-diagnosis of Celiac), I used to get what I called mini flu's. Stomach pains, nausea and throwing up. They did not last long.

indyceliac Newbie

My stomach always hurt pre-diagnosis....for weeks or even months at a time..then would away.

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    • xxnonamexx
      What about digestive enzymes that I hear help? I take align 5x probiotics daily.
    • Samanthaeileen1
      thank you RMJ! That is very helpful advice. Good to know we aren’t crazy if we don’t do the endoscopy. We are going to try the gluten free and see how symptoms and levels improve.    thank you Wheatwacked (love the username lol) that is also reassuring. Thankfully she has an amazing and experienced pediatrician. And yesss I forgot to mention the poop! She has the weirdest poop issues.    How long did it take y'all to start seeing improvement in symptoms? 
    • Wheatwacked
      My son was diagnosed when he was weaned in 1976 after several endoscopies.  Given your two year old's symptoms and your family history and your pediatrition advocating for the dx, I would agree.  Whether an endoscopy is positive or negative is irrelevant.   That may happen even with endoscopy.  Pick your doctors with that in mind. In the end you save the potential trauma of the endoscopy for your baby.   Mine also had really nasty poop.  His doctor started him on Nutramigen Infant because at the time it was the only product that was hypo allergenic and had complete nutrition. The improvement was immediate.
    • RMJ
      So her tissue transglutaminase antibody is almost 4x the upper end of the normal range - likely a real result. The other things you can do besides an endoscopy would be: 1.  Genetic testing.  Unfortunately a large proportion of the population has genes permissive for celiac disease, but only a small proportion of those with the genes have it. With family history it is likely she has the genes. 2.  Try a gluten free diet and see if the symptoms go away AND the antibody levels return to normal. (This is what I would do). Endoscopies aren’t always accurate in patients as young as your daughter. Unfortunately, without an endoscopy, some doctor later in her life may question whether she really has celiac disease or not, and you’ll need to be a fierce mama bear to defend the diagnosis! Be sure you have a good written record of her current pediatrician’s diagnosis. Doing a gluten challenge for an endoscopy later in life could cause a very uncomfortable level of symptoms.   Having yourself, your husband and your son tested would be a great idea.  
    • Samanthaeileen1
      here are the lab ranges.  Normal ranges for tissue transglutaminase are: <15.0 Antibody not detected > or = 15.0 Antibody detected normal for endomysial antibody is < 1.5. So she is barely positive but still positive. 
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