Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Getting A Little Scared Now...


JerryK

Recommended Posts

JerryK Community Regular

So on Thursday and Friday, I felt so well that I smugly thought no way can I be Celiac, I feel too

well.

On Saturday I was a terrible Gluteneater. The wife and I stopped at Krispy Kream and bought doughnuts. Then we had pizza with the kids for dinner( I ate two pieces). Then later I ate some Chinese food...You know...deep fried Shrimp....Cashew Chicken, Orange Chicken..all covered with...flour of course...

Sunday I was sick as a dog...cramps.....bloating...nausea....Diareaha. I even got sick during my morning run, which never happens. It's Monday morning and I'm feeling a little better, but my back still hurts.

Is it the Gluten?

I don't know what to do. We're going on an Alaska cruise in two weeks. I'm so freaked out now, I'm going to be afraid to eat anything except meat and potatos. But then if I do that and I really am Celiac, when I go to get tested, it'll come out negative....

Any advice...what should I do? Should I just pack the immodium and go on about my business or do I eat carefully.....This is so frustrating.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



penguin Community Regular

I'm sorry you're feeling so bad :(

If you're going to persue testing, pack the immodium and do the best you can. Eat all of the gluten you can stand. I'm mid-challenge right now and I'm to the point of being afraid to drive. It's a lot easier to put up with it for a few more weeks than to be gluten-free for months and have to go back on gluten for another 3 months.

I find that red bull perks me back up the fastest without burning me out. Some phayzyme might be a good idea for you at this time, as well.

Good luck!

KaitiUSA Enthusiast

Sorry you are feeling bad. Yes, it is likely the gluten causing that and you should not go gluten free before testing unless the testing means nothing to you. If you know that your body reacts this way doesn't it make sense to eliminate it so you feel better? I mean I know it's a pain in the butt and may be hard if you do not know for sure but think about it...something is obviously in that food causing your body alot of problems.

If you know the only way you can stay gluten free is with a positive test result then I suggest taking some pepto or something along on the trip.

ravenwoodglass Mentor
So on Thursday and Friday, I felt so well that I smugly thought no way can I be Celiac, I feel too

well.

On Saturday I was a terrible Gluteneater. The wife and I stopped at Krispy Kream and bought doughnuts. Then we had pizza with the kids for dinner( I ate two pieces). Then later I ate some Chinese food...You know...deep fried Shrimp....Cashew Chicken, Orange Chicken..all covered with...flour of course...

Sunday I was sick as a dog...cramps.....bloating...nausea....Diareaha. I even got sick during my morning run, which never happens. It's Monday morning and I'm feeling a little better, but my back still hurts.

Is it the Gluten?

I don't know what to do. We're going on an Alaska cruise in two weeks. I'm so freaked out now, I'm going to be afraid to eat anything except meat and potatos. But then if I do that and I really am Celiac, when I go to get tested, it'll come out negative....

Any advice...what should I do? Should I just pack the immodium and go on about my business or do I eat carefully.....This is so frustrating.

I think you already have your answer to the gluten question, your body told you. As to the trip I would go but I would eat as gluten free as I could so I would have a good trip. Even if that meant steak and baked potato every night, only wine to drink and salads and fruit. I would also pack immodium even though I am not a fan of keeping toxins in our systems. The D is your body trying to get the poison out. You do know also that there are some of us that come up negative in testing even with full blown celiac. I tested negative for years but that certainly didn't mean that wasn't the problem. My recovery from a living death after going gluten-free has been miraculous.

mouse Enthusiast

I am sorry that you are feeling sick. But, there is nothing to fear from the diagnosis of Celiac, unless you continue eating gluten and then cause a lot more damage to the body. Some people need the diagnosis or after awhile of being gluten-free, they think it was all in their minds and then they go back on gluten. In that case a diagnosis is necessary. This is your call and only you can decide. If you decide to pursue the testing then you have to continue to eat gluten. I hope your trip goes well no matter your decision.

CarlaB Enthusiast

Sounds like the typical gluten-challenge for someone who has a gluten intolerance to me! I also had that problem, but more c than d during the challenge. By the end, I was like Chelsea and didn't feel safe driving. Now I joke that I don't need alcohol, I can get drunk of a dinner roll and have a hangover for five days! (I'm actually a very lite drinker, so it's funny to my friends).

It's up to you whether you need the testing. I felt like I needed it, so kept up the challenge. Unfortunately for me, my results were negative. Or, should I say, not positive since negative cannot rule out celiac. I ended up going to Enterolab.

JerryK Community Regular

Thanks for your responses. I couldn't even work yesterday. Today I feel much better. I had meat and potatos yesterday....


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guhlia Rising Star

Jerry, why don't you get tested before the cruise? It seems to me that you likely won't have a good time on vacation if you're sick all the time. Better to know early than continue causing serious damage to your body.

JerryK Community Regular
Jerry, why don't you get tested before the cruise? It seems to me that you likely won't have a good time on vacation if you're sick all the time. Better to know early than continue causing serious damage to your body.

Now that I feel better today and can think more clearly, that is what I should do. Provided my

doctor agrees...

penguin Community Regular
Now that I feel better today and can think more clearly, that is what I should do. Provided my

doctor agrees...

Beware that if you haven't been eating at least the equivalent of 4 slices of bread a day for the last 3 months, it may skew your tests. Just a thought.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,835
    • Most Online (within 30 mins)
      7,748

    Cher3d
    Newest Member
    Cher3d
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      if you have already learned that Gluten is the cause of your symptoms, of course there is no need to add it back into your diet— your decision could save you a lot of needless suffering. One thing to consider is that if you do have celiac disease, your first- degree relatives may also need to get screened for it, because, like diabetes the disease is genetic, although many of its triggers seem to be environmental factors. You may want to consider getting a genetic test for celiac disease, so you can at least warn your relatives if it turns out that you do carry a celiac gene.
    • lookingforanswersone
      Thanks everyone. I've decided to do a gluten challenge (4 slices of bread a day for 3 months) and then do a full gluten panel of all the tests that can be done, just to rule it in or out for sure. I think otherwise psychologically it will keep bothering me 
    • Suze046
      Thanks Scott. Those articles are really interesting. I’m cutting out gluten for 6 weeks but honestly I’m not sure I even want to reintroduce it! I ate at a restaurant for the first time on Wednesday and then Thursday was really uncomfortable and had a few trips to the loo.. wonder if there was some cross contamination 🤷‍♀️ if that’s how my body reacts after not eating it for 3 weeks I’m not sure it’s worth reintroducing it and re testing for celiac! It might have been a coincidence I realise that I’m not going to feel better all of a sudden and my gut is probably still trying to heal. Thanks for your supportive message! 
    • RMJ
      Reference range 0.00 to 10.00 means that within that range is normal, so not celiac. There are other antibodies that can be present in celiac disease and they don’t all have to be positive to have celiac.  I’m sure someone else will post a link to an article describing them! Plus, if you are IgA deficient the celiac IgA tests won’t be accurate.
    • cristiana
      Great to have another UK person on the forum!   Re: blood tests, it sounds as if you are being well monitored but if you have any further concerns about blood tests or anything else, do not hesitate to start a new thread. Cristiana  
×
×
  • Create New...