Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Crazy Idea Re: Casein Intolerance


Felidae

Recommended Posts

Felidae Enthusiast

I know this sounds crazy, but I am determined to try everything when it comes to cheese. I am eating a little piece of cheese everyday to see if I can build up a tolerance. Just so you know, I would never do this with gluten! I will keep you guys posted as to if my little experiment works.

It must be my science background coming out, sample size of one is pretty bad though. I'm convocating next week with a BSc degree. Yay me.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Girl Ninja Newbie

Yay for your degree! Good luck with the cheese. Can that really work?

gfp Enthusiast

I would think that if your doing this to try and build up a tolerance to similar proteins using sheeps and goats cheeses... and then add a little casein ...

just my 2c

tarnalberry Community Regular

Goats milk and sheeps milk both contain casein - even the forms of casein that are most highly prevalent in cows milk, though at a lower percentage. Still worth a try, but you're not avoiding casein that way. (You might also try buffalo milk cheese.)

eKatherine Apprentice

It looks like I have no trouble eating goat's milk cheese, but sheep's milk cheese seems to bother me. Try goat's milk cheese. If it doesn't bother you, then just eat it instead.

gfp Enthusiast
Goats milk and sheeps milk both contain casein - even the forms of casein that are most highly prevalent in cows milk, though at a lower percentage. Still worth a try, but you're not avoiding casein that way. (You might also try buffalo milk cheese.)

oops sorry, i meant to be specific about cow casein since many people seem to have the issue with cow milk and not goat or sheep.

Summer is here and you have a selection from feta through goats cheeses in salads not to mention the buffalo mozerella ... and many sheep cheeses too ...

mouse Enthusiast

I am allergic to casein. But, I can eat hard cheddar goat cheese, but not the regular goat cheese. I don't remember who posted that the hard cheddar goat cheese does not have casein (Rachel?) But, I find that I can tolerate the hard cheddar. Of course I really have it very seldom, like maybe once a month.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



AndreaB Contributor

I seem to have a mild allergy to all dairy except cheddar cheese. Don't know why that is, maybe because of the aging. I have added butter back into my diet though and will be using nonfat milk powder in recipes that call for it. Thinking this allergy (hoping) will go away since I'm on the gluten free diet now. I'm also allergic to goats milk but I didn't like that anyway.

Mango04 Enthusiast

Careful while you reintroduce that stuff. I did the same thing and was fine with it for a while...then out of the blue one day I had a crazy intense reaction and almost lost my ability to breathe. I don't think we really build up a tolerance. I think it just kind of builds up in our body until it starts to do harm again. That's what happened to me anyway.

I am allergic to casein. But, I can eat hard cheddar goat cheese, but not the regular goat cheese. I don't remember who posted that the hard cheddar goat cheese does not have casein (Rachel?) But, I find that I can tolerate the hard cheddar. Of course I really have it very seldom, like maybe once a month.

Do you know what kind of goat cheddar? I thought the hard goat cheddar didn't have lactose. I tried hard goat cheddar and I had a cray casein reaction, but maybe I got the wrong kind.

Felidae Enthusiast

Well, I'm still eating Kraft swiss cheese everyday and I haven't had a problem yet. It could be that possible that I'm not casein intolerant anymore. One can always hope.

I tried goats cheese in the past and I got quite sick from it. But I may be okay with it now.

Nancym Enthusiast
Well, I'm still eating Kraft swiss cheese everyday and I haven't had a problem yet.

I think it is because they make it from petroleum products, not milk. :P At least, that's how it always tasted to me!

corinne Apprentice

Cheese is casein! Rennet or other enzymes are used to convert caseinogen, a protein in milk, to casein which is water insoluble, and then separates out as curds from the liquid (whey). The curds (or collected casein) is then pressed to form cheese.

Hard cheese is very low in lactose which is why it is sometimes more digestible.

Guest Robbin

Glad you started this thread. The gluten free diet is much easier for me than the dairy. I have wondered about maybe trying the fat-type dairy products that don't have as much protein like whipped cream, butter, and sour cream. I don't think I've healed enough to "rock the boat" yet, though. I am interested in your progress in this experiment. Keep us posted!! Congratulations on the degree too! :)

taz sharratt Enthusiast
Glad you started this thread. The gluten free diet is much easier for me than the dairy. I have wondered about maybe trying the fat-type dairy products that don't have as much protein like whipped cream, butter, and sour cream. I don't think I've healed enough to "rock the boat" yet, though. I am interested in your progress in this experiment. Keep us posted!! Congratulations on the degree too! :)

im glad you started this thread, im also lactose inolerant and confused about what i can and cant eat, i thought all dairy was out but now it sounds like i may be able to have hard cheese, i miss strong mature hard cheese, but tell me is casien the same as lactose its unclear from the thread?

eKatherine Apprentice
im glad you started this thread, im also lactose inolerant and confused about what i can and cant eat, i thought all dairy was out but now it sounds like i may be able to have hard cheese, i miss strong mature hard cheese, but tell me is casien the same as lactose its unclear from the thread?

Casein is milk protein. Lactose is milk sugar. Most lactose drains away in the making of cheese, and the rest may go away in the aging of it, but casein is forever. Try it and see if it works for you.

StrongerToday Enthusiast

I'm proud to say I've been dabbling w/ dairy for a little bit now and seem to be doing ok. I eat the garlic/basil goat cheese on Knickknick pizza - YUM! :P and I found a goat's milk cheddar (reminds me of a Vermont Sharp White Cheddar that's good too. I've had a little dairy (garlic mashed potatoes at a restaraunt) and a piece of American cheese on my eggs... forgotton how much I'd missed that!

Next step: real cheddar or maybe mozzerella... already drooling!

Felidae Enthusiast
im glad you started this thread, im also lactose inolerant and confused about what i can and cant eat, i thought all dairy was out but now it sounds like i may be able to have hard cheese, i miss strong mature hard cheese, but tell me is casien the same as lactose its unclear from the thread?

Casein is in all dairy. Lactose is very low or absent in hard cheeses. So if you eat hard cheese with no ill effects you may be only lactose intolerant.

It's been one year since I went gluten-free, so it could be that I have simply healed enough to handle cheese again. Time will tell, but so far so good. I'm not ready to try any other brand or type of cheese yet (just in case).

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,569
    • Most Online (within 30 mins)
      7,748

    lizz Z
    Newest Member
    lizz Z
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cristiana
      That's great news, you can do this.  Let us know how things go and don't hesitate to ask if you have any more questions. Cristiana 😊
    • petitojou
      Thank you so much for sharing your experience and I found myself giggling with happiness as I read how your body reached such spring! And I hope that your current journey is also successful!! Definitely starting the food diary! So many amazing advices. And it’s very scary. It really hits all our soft spots as well as our confidence system. Most doctors I went thought I was underage despite being in my late 20s. Right now I look like am I twelve, but is also this body that’s taking so much, so I might as well love it too! Going to make the necessary changes and stay in this path. Thank you again! 🫶
    • petitojou
      Thank you so much for the information and kind message! Reading this transformed how I’ve been viewing my efforts and progress. Guess there’s still a lot to celebrate and also heal 😌  Yes, I’ve been taking it! Just recently started taking a multivitamin supplement and separated vitamin D! I also took chewable Iron polymaltose for ferritin deficiency 2 months ago but was unable to absorb any of it.  Thank you again! Hearing such gentle words from the community makes my body and heart more patient and excited for the future. 
    • ckeyser88
      I am looking for a roomie in Chicago, Denver or Nashville! 
    • Scott Adams
      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.