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I Was Poisoned By My Body: The Odyssey Of A Doctor Who Reversed Fibromyalgia, Leaky Gut Syndrome, And Multiple Chemical Sensitivity - Naturally!

ms-sillyak-screwed

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ms-sillyak-screwed Enthusiast
ms-sillyak-screwed
Posted

THIS IS A BOOK I STUMBLED UPON.

Open Original Shared Link

ANYONE READ IT?

The book addresses celiac disease.

YOUR REVIEW...

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miamia Rookie
miamia
Posted
THIS IS A BOOK I STUMBLED UPON.

Open Original Shared Link

ANYONE READ IT?

The book addresses celiac disease.

YOUR REVIEW...

I have read it and trhought it was really really informative- I also have leakey gut and have suffered from cadida which the book addresses. I highly recomend it and there is another one of her books as well but I can't remember the name.

Miamia

jerseyangel Proficient
jerseyangel
Posted

This looks like it would be very interesting. Thanks for posting about it, C. I think I will look for it :)

ms-sillyak-screwed Enthusiast
ms-sillyak-screwed
Posted
  • Author

.

miamia Rookie
miamia
Posted
Open Original Shared Link

I found this and it touches upon celiac disease too.

Open Original Shared Link

I find it interesing the books people buy. Were as with Amazon you can see the other books that person also bought. And it appears there are a few new books addressing celiac disease hitting the book stores.

Also Gilbere has her own site and ou can read all the articles shes written and so on. It is really informative. I think what I like best about her books as opposed to other sis shes speaking from her own experience not just that of s medical professional its much easier to process.

Miamia

Green12 Enthusiast
Green12
Posted
I have read it and trhought it was really really informative- I also have leakey gut and have suffered from cadida which the book addresses. I highly recomend it and there is another one of her books as well but I can't remember the name.

Miamia

MiaMia,

Thanks for posting your thoughts on this book, it does sound interesting :lol:

  • 1 month later...
ms-sillyak-screwed Enthusiast
ms-sillyak-screwed
Posted
  • Author

!

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lindalee Enthusiast
lindalee
Posted
I picked up the book last night I can't put it down. It is easy to read and fast with all the "LIGHT BULB MOMENTS" I've been having as I read, why I'm sick and how to fix it.

It's a really good book so far and well worth the time.

Explains the "rotation diet" I've been doing, and how to get the most of it, to turn this around.

I'll be back when I get finished. I only question the use of WHEY...?

Please put this one on your MUST READ LIST!

This is a terrific book. I haven't finished it yet. It is about a doctor who became ill. It explains the symptoms and what she did to get through the illness. She covers it all from the toxic effects of the drugs to the battle to recover from the immune system war to the challenge of socialization and "her foods". You can't help but relate to her!! Linda Lee

rinne Apprentice
rinne
Posted

Here is her web site,

Open Original Shared Link

Thanks for the information about her.

ms-sillyak-screwed Enthusiast
ms-sillyak-screwed
Posted
  • Author

-

lindalee Enthusiast
lindalee
Posted
After reading I'm not sure this book is for all of us here.

Open Original Shared Link & SOY being helpful. Open Original Shared Link I have found it to be the op·po·site. Google the words "Whey Allergy" and see.

In the book she writes about many illnesses but she [never] tells the reader what she was sick from.

One element that was true for me was the MCSS (multiple chemical sensitivity syndrome) as I look back it started for me in 94 with enviromental allergies following surgery in my 30s. And at that time was when I was doing all the colon cleanse and had taken a entirely holistic approach to my life. As I listed in my profile; I did everything other than hycolonics. And the author stands by that it, how it worked for her and goes into detail of the process of detoxing, colon irrigation, colon hydrotherapy, ememas and how helpful these treatments are.

I must confess back in 94 everyone was doing it -- I'm speaking of -- hydrotherapy colonics. My cousin's bestfriend (someone I knew) went and she passed out on the sidewalk in Manhattan following a hycolonic session. She was hospitalized for a week for dehydration. And since my hypersensitivity to everything (in life) I can't or couldn't get past that. ....And then life changed in a big way, the colon cleans and holistic approach I was doing had stopped and no longer had those luxuries with major stress over time by 2000-01 celiac disease grabbed a hold of me.

I do believe; there is many benefits to colon cleaning and some of what she writes about. At this stage for myself I'm reluctant without a professionals help to attempt hycolonics. And the author points that out to the reader.

She writes about glutamine, ginger, aloe, alfalfa, milk thistle, night shade veggies, enzymes digestive and systermic oral enzymes and PARASITES.

She believes in the rotation diet to help.

The best line in the book for me was... when encountering individuals who think [you are neurotic] and present more challanges to you - say to them, " I'M HAPPY YOU HAVE NEVER EXPERIENCED SEVERE ALLERGIES, AND I HOPE YOU NEVER DO." I like it cause it makes all those people we meet, that raise their eyebrow at us, it shifts the thought to them, and gives them something to think of, themselves. I'm going to use it next time.

Has anyone else read the book? What do you think?

Or are doing any of these treatments?

I am trying to learn more about glutamine, the site says it helps celiac....not sure about whey....milk thistle( I bought some to help the liver-going to start back on that and the probiotics...I am dodging the night shades now...I was scanning Dr. Weil's book last night and he said he takes a sm. can of grapefuit juice with metamucile in the morning first thing and then again before retiring (I find fiber helps me too) I am going to keep the fiber up (even though I eat alot of salads, fruits and veggies)..a client gave me some fresh fish yesterday after church and as I was rinsing it I could smell something...he had marinated it in Italian dressing <_< so the best thing I know to say is "I only eat plain foods"... glutamine- that is what I want to know about....LL

lindalee Enthusiast
lindalee
Posted

sillyak, Did you read what she said about the chop sticks?????? I was wondering what those were really good for!! :lol: LL

ms-sillyak-screwed Enthusiast
ms-sillyak-screwed
Posted
  • Author
:o
penguin Community Regular
penguin
Posted

Konsyl (original) is safe for celiacs, all it has is psyllium. That's the one my GI doc reccommends.

lindalee Enthusiast
lindalee
Posted
I looked up the ingredients in metamucile Open Original Shared Link they have artificial flavors thats Open Original Shared Link a big no no for us. They can hide many things that will make us sick. It has aspartame in it and also Open Original Shared Link and is processed with grains. = CC It might be making you 'go' for another reason?

lindalee -- Yes, the author says :o chop sticks are used to pick your stool apart when inspecting it for parasite and etc... :o

I use Psyllium 100% no sugar (Konsyl) brand and Glucomannan Fiber (Bionutrients) if I am not juicing. I do not reccommend Metamucile ---I just think it is interesting he takes it twice a day.(a fiber). LL

  • 4 weeks later...
ms-sillyak-screwed Enthusiast
ms-sillyak-screwed
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      how much gluten do I need to eat before blood tests?

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      how much gluten do I need to eat before blood tests?

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      how much gluten do I need to eat before blood tests?

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      Accuracy of testing concerns

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    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

      So, essentially all of the nutrition in the food we eat is absorbed through the villous lining of the small bowel. This is the section of the intestinal track that is damaged by celiac disease. This villous lining is composed of billions of finger-like projections that create a huge amount of surface area for absorbing nutrients. For the celiac person, when gluten is consumed, it triggers an autoimmune reaction in this area which, of course, generates inflammation. The antibodies connected with this inflammation is what the celiac blood tests are designed to detect but this inflammation, over time, wears down the finger-like projections of the villous lining. Of course, when this proceeds for an extended period of time, greatly reduces the absorption efficiency of the villous lining and often results in many and various nutrient deficiency-related health issues. Classic examples would be osteoporosis and iron deficiency. But there are many more. Low D3 levels is a well-known celiac-caused nutritional deficiency. So is low B12. All the B vitamins in fact. Magnesium, zinc, etc.  Celiac disease can also cause liver inflammation. You mention elevated ALP levels. Elevated liver enzymes over a period of 13 years was what led to my celiac diagnosis. Within three months of going gluten free my liver enzymes normalized. I had elevated AST and ALT. The development of sensitivities to other food proteins is very common in the celiac population. Most common cross reactive foods are dairy and oats but eggs, soy and corn are also relatively common offenders. Lactose intolerance is also common in the celiac population because of damage to the SB lining.  Eggs when they are scrambled or fried give me a gut ache. But when I poach them, they do not. The steam and heat of poaching causes a hydrolysis process that alters the protein in the egg. They don't bother me in baked goods either so I assume the same process is at work. I bought a plastic poacher on Amazon to make poaching very easy. All this to say that many of the issues you describe could be caused by celiac disease. 
    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      thank you so much for your detailed and extremely helpful reply!! I can say with absolute certainty that the less gluten containing products I've eaten over the past several years, the better I've felt.   I wasn't avoiding gluten, I was avoiding refined grains (and most processed foods) as well as anything that made me feel bad when I ate it. It's the same reason I gave up dairy and eggs- they make me feel ill.  I do have a bit of a sugar addiction lol so a lot of times I wasn't sure if it was the refined grains that I was eating - or the sugar. So from time to time I might have a cookie or something but I've learned how to make wonderful cookies and golden brownies with BEANS!! and no refined sugar - I use date paste instead. Pizza made me so ill- but I thought it was probably the cheese. I gave up pizza and haven't missed it. the one time I tried a slice I felt so bad I knew I'd never touch it again. I stopped eating wheat pasta at least 3 yrs ago- just didn't feel well after eating it. I tried chick pea pasta and a few others and discovered I like the brown rice pasta. I still don't eat a lot of pasta but it's nice for a change when I want something easy. TBH over the years I've wondered sometimes if I might be gluten intolerant but really believed it was not possible for me to have celiac disease. NOW I need to know for sure- because I'm in the middle of a long process of trying to find out why I have a high parathyroid level (NOT the thyroid- but rather the 4 glands that control the calcium balance in your body) I have had a hard time getting my vit D level up, my serum calcium has run on the low side of normal for many years... and now I am losing calcium from my bones and excreting it in my urine (some sort of renal calcium leak) Also have a high ALP since 2014. And now rapidly worsening bone density.  I still do not have a firm diagnosis. Could be secondary HPT (but secondary to what? we need to know) It could be early primary HPT. I am spilling calcium in my urine but is that caused by the high parathyroid hormone or is it the reason my PTH is high>? there are multiple feedback loops for this condition.    so I will keep eating the bread and some wheat germ that does not seem to bother me too much (it hasn't got enough gluten to use just wheat germ)    but I'm curious- if you don't have a strong reaction to a product- like me and wheat germ- does that mean it's ok to eat or is it still causing harm even if you don't have any obvious symptoms? I guess what you are saying about silent celiac makes it likely that you can have no symptoms and still have the harm... but geez! you'd think they'd come up with a way to test for this that didn't require you to consume something that makes you sick! I worry about the complications I've been reading about- different kinds of cancers etc. also wondering- are there degrees of celiac disease?  is there any correlation between symptoms and the amnt of damage to your intestines? I also need a firm diagnosis because I have an identical twin sister ... so if I have celiac, she has it too- or at least the genetic make up for having it. I did have a VERY major stress to my body in 2014-2016 time frame .. lost 50lbs in a short period of time and had severe symptoms from acute protracted withdrawal off an SSRI drug (that I'd been given an unethically high dose of, by a dr who has since lost his license)  Going off the drug was a good thing and in many ways my health improved dramatically- just losing 50lbs was helpful but I also went  off almost a dozen different medications, totally changed my diet and have been doing pretty well except for the past 3-4 yrs when the symptoms related to the parathyroid issue cropped up. It is likely that I had low vit D for some time and that caused me a lot of symptoms. The endo now tells me that low vit D can be caused by celiac disease so I need to know for sure! thank you for all that great and useful information!!! 
    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

      Welcome, @catnapt! The most recent guidelines are the daily consumption of a minimum of 10g of gluten (about the amount found in 4-6 slices of wheat bread) for a minimum of two weeks. But if possible stretching that out even more would enhance the chances of getting valid test results. These guidelines are for those who have been eating gluten free for a significant amount of time. It's called the "gluten challenge".  Yes, you can develop celiac disease at any stage of life. There is a genetic component but also a stress trigger that is needed to activate the celiac genes. About 30-40% of the general population possesses the genetic potential to develop celiac disease but only about 1% of the general population actually develop celiac disease. For most with the potential, the triggering stress event doesn't happen. It can be many things but often it is a viral infection. Having said that, it is also the case that many, many people who eventually are diagnosed with celiac disease probably experienced the actual onset years before. Many celiacs are of the "silent" type, meaning that symptoms are largely missing or very minor and get overlooked until damage to the small bowel lining becomes advanced or they develop iron deficiency anemia or some other medical problem associated with celiac disease. Many, many are never diagnosed or are diagnosed later in life because they did not experience classic symptoms. And many physicians are only looking for classic symptoms. We now know that there are over 200 symptoms/medical problems associated with celiac disease but many docs are only looking for things like boating, gas, diarrhea. I certainly understand your concerns about not wanting to damage your body by taking on a gluten challenge. Your other option is to totally commit to gluten free eating and see if your symptoms improve. It can take two years or more for complete healing of the small bowel lining once going gluten free but usually people experience significant improvement well before then. If their is significant improvement in your symptoms when going seriously gluten free, then you likely have your answer. You would either have celiac disease or NCGS (Non Celiac Gluten Sensitivity).
    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      after several years of issues with a para-gland issue, my endo has decided it's a good idea for me to be tested for celiac disease. I am 70 yrs old and stunned to learn that you can get celiac this late in life. I have just gradually stopped eating most foods that contain gluten over the past several years- they just make me feel ill- although I attributed it to other things like bread spiking blood sugar- or to the things I ate *with* the bread or crackers etc   I went to a party in Nov and ate a LOT of a vegan roast made with vital wheat gluten- as well as stuffing, rolls and pie crust... and OMG I was so sick! the pain, the bloating, the gas, the nausea... I didn't think it would ever end (but it did) and I was ready to go the ER but it finally subsided.   I mentioned this to my endo and now she wants me to be tested for celiac after 2 weeks of being on gluten foods. She has kind of flip flopped on how much gluten I should eat, telling me that if the symptoms are severe I can stop. I am eating 2-3 thin slices of bread per day (or english muffins) and wow- it does make me feel awful. But not as bad as when I ate that massive amnt of vital wheat gluten. so I will continue on if I have to... but what bothers me is - if it IS celiac, it seems stupid for lack of a better word, to intentionally cause more damage to my body... but I am also worried, on the other hand, that this is not a long enough challenge to make the blood work results valid.   can you give me any insight into this please?   thank you
    • trents
      Accuracy of testing concerns

      By trents · Posted

      The biopsy looks for damage to the mucosal lining of the small bowel from the inflammation caused by celiac disease when gluten is ingested. Once you remove gluten from the diet, inflammation subsides and the mucosal lining begins to heal. 
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