Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Warning Imodium Liquid Is Not Gluten Free


ms-sillyak-screwed

Recommended Posts

ms-sillyak-screwed Enthusiast

WARNING IMODIUM liquid is NOT GLUTEN FREE

I was reactive to the liquid IMODIUM so I called IOpen Original Shared Link and guess what-- Imodium liquid is NOT free of GLUTEN. BEWARE! It has GLUTEN, SOY in it also has corn and SPLENDA in the liquid.

The woman was very very nice I spoke with, and told me that CORN is what they use as a binder in the pills. And corn is also used in the liquid too.

So for us celiacs that are at the stage of the disease with seconary food allergies to CORN. (Don't kid yourself -We all over time will develop them. It's a fact.) This product although we think it is helping us, we might be doing more unseen damage to our body with the corn.

AND The liquid had GLUTEN! BEWARE!!!

CALL the number yourself and speak up.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mart Contributor

Thanks, this is good to know. I'd called last year about the children's liquid Imodium and they were in the process of testing it. Hope my kids don't get D. :angry:

ms-sillyak-screwed Enthusiast

I'm so troubled by this...

Think about it. Imodium is for many of us what we believe as a life saver. I have trusted them for the last 10-years of my life, and now I find out I'm making myself sicker not knowing. We must stop the madness these big companies are causing us!

This could be the reason we don't get better or we think we do until a relaps...

This is all the more reason why we need to get ingredient labeling on everything! Anything over the counter, Imodium, toothpaste, cosmetics, skin care, the dyes in our pillls, the list goes on.

ms-sillyak-screwed Enthusiast

I want to keep this threat alive. Or perhaps I'm obsessing; I just can't get this off my mind. This is posted on another thread - but I'm going to clearify what my finding were here too.

Open Original Shared Link. I asked the lady the ingredients in the Imodium liquid and then the pills.

She looked up the liquid and said

LIQUID IMODIUM - CONTAINS GLUTEN (from wheat and grains) she said there is also a flavoring that contains gluten. And SPLENDA is the sweetener they use and it IS CROSS CONTAMINATED with SOY.

PILLS IMODIUM - CONTAINS CORN. That was as far as I got. I didn't ask about SOY I was so upset.

I used my time with her educating her on the simple things important to know. And, I went deeper in hopes my converstation was recorded and logged into the "EARS". I asked her to write down a title of a book, that the brains in their labs should read called "DANGEROUS GRAINS..." I told her of a large grass roots movement happening around the USA of people with celiac disease, their families and friends to provoke change and awareness to big business, drug companies and our government.

And how we are going to demand ingredient labels like on food, but for drugs, beauty products, skin care and everything else... just like us not knowing IMODIUM LIQUID has GLUTEN in it.

I spoke to her about how millions and millions of people with celiac disease rely on Imodium, and how we have believe their product to be a safe drug to use with celiac disease when in fact they are making us sick(er).

Think about this long and hard.

Think of the impact this has had on our health.

Tomorrow I'm going to call my compound RX guy and ask if he can make it, caps or liquid without the poison in IMODIUM. Or what else we can take?

Judyin Philly Enthusiast

I've been badgering them since the liquid went 'thicker mint green' took the plain color liquid for 10 years. then they changed to the 'green' called to ask if it was gluten free...they said they hadn't ck'd on that yet as they were busy 'doing the marketing anaylasis of sales. I was livid and said ...why did you change it...

answer..to make it look more like pepto.... :ph34r: Told them i thought their time would be better spent researching the ingred contents rather than marketing stratigies..

I couldn't figure out why after the change to 'mint' green my 'D' was worse after taking it...

she said the tablets were gluten-free...but of course this was before the labeling laws in 2006.

i think we need to really stay on top of this and get the word out b/c many of us use this product all the time as needed....

thanks so much for the post.

judy in philly

ms-sillyak-screwed Enthusiast

You are very welcome...

I'm upset and can't get over it - how we trust them, and they are making it worse.

My experience this time has been with the clear cherry/mint liquid Imodium. I took some Imodium because of a loose stool about 2 TBS in the little cap cup. I noticed within 30 minutes, for me I had the awful smell of steatorrhea (diarrhea) that is how I know I have had wheat gluten in my system. Then within minutes I had the rash of celiac DH, all over my torso, it iched and didn't go away for days it was so bad I changed my body soap. The Imodium worked and bound me up. But the rash I questioned myself on it. I keep a food/body journal and I write eveything down and retraced it to that. So, another set back in my recovery... now I know better!

Judyin Philly -- You are so right we need to tell everyone.

gfp Enthusiast

Personally I have no problems with corn, after all they need some food grade binder to make tablets and if it wasn't corn based it would be another food deriviative which is potentially going to upset someone.

However the easiest thing is to try and find other loperamide manufacturers that use something you are not intolerant to.

Its a shame they can't just put this on the packets?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ursa Major Collaborator

Well, another reason why Immodium made me so much sicker last summer! I took the pills, and I am intolerant to corn (all grains).

I agree, ALL medications, over-the-counter as well as prescription should have ALL ingredients listed, whether they are active or inactive (as in binders) makes no difference (and I mean, even very small amounts).

ravenwoodglass Mentor

This made me want to cry. I lived off multiple daily doses of the stuff for 15 years. I had to to be able to work. The last 5 years I needed it just to go to the store. Sometimes I wonder, cynic that I am if they put this stuff in stomach preperations on purpose. It gets rid of the symptoms temporarily but insures you'll need it again in a couple day. And my doctor wonders why I refuse all meds.

ms-sillyak-screwed Enthusiast

Yes, I do believe it is a conspiracy.

Look at the billions spent every year on di·ar·rhe·a -- what does it tell us. They want us to be sick and keep coming back. They'll learn when someone sues then like the families did to Mc Donalds for being liars about what was really in the product.

This is why many of us are getting sicker, and not better unknowingly -talking Imodium.

Open Original Shared Link Medical Breakthroughs. I watched it at 3 a.m. it was worth it. He had on several types of brains in the medical community. Worth reading the transcripts. They have found a link to a high fiber diet and colon cancer. Hello celiac disease! They talked about breastfeed babies don't get di·ar·rhe·a, hello again!

  • 2 months later...
DOCKLEARFAN Apprentice

I just got a perscription for Loperamide Caplets manufactured by Mylan.

Has anyone checked these caplets out to see if there gluten free? I read another thread

here and she said that it was gluten free EXCEPT it was from a DIFFERENT manufacturer:(

I guess my only recourse is to email Mylan and hope for a response.

Moongirl Community Regular
I just got a perscription for Loperamide Caplets manufactured by Mylan.

Has anyone checked these caplets out to see if there gluten free? I read another thread

here and she said that it was gluten free EXCEPT it was from a DIFFERENT manufacturer:(

I guess my only recourse is to email Mylan and hope for a response.

If my memory serves correctly, Mylan Pham. does not make any meds that contain gluten....

DOCKLEARFAN Apprentice
If my memory serves correctly, Mylan Pham. does not make any meds that contain gluten....

Can anyone confirm this? I need to be positive...

btw thanks moongirl!!

penguin Community Regular
Can anyone confirm this? I need to be positive...

btw thanks moongirl!!

The only way to confirm is to call the company yourself. You never know when other people called or what they were calling about.

DOCKLEARFAN Apprentice

I just called Mylan and they said the following.

"ALL products manufactured by Mylan are Gluten Free. There isn't Wheat, Oats, Barley, Rye, Spelt in the manufacturing process."

So to recap Loperamide (generic for Imodium) is GLUTEN FREE !!!!!!!!

mle-ii Explorer
I just called Mylan and they said the following.

"ALL products manufactured by Mylan are Gluten Free. There isn't Wheat, Oats, Barley, Rye, Spelt in the manufacturing process."

So to recap Loperamide (generic for Imodium) is GLUTEN FREE !!!!!!!!

On that note, I have have yet to see any confirmation that Imodium contains gluten. Where did someone find this information?

ravenwoodglass Mentor
On that note, I have have yet to see any confirmation that Imodium contains gluten. Where did someone find this information?

I confirmed it by calling the company when I first read this post. The answer from the immodium rep on the phone was that yes it had gluten and the other products other than the caplets had not been tested yet. I told her how much I appretiated their product containing this poison, and I am afraid I wasn't very nice. When I asked her if they realized that they were making gluten intolerant folks who relied on their product sick her response was that "We don't know of any instances of our product causing problems" Perhaps others might want to email or call the company also.

mle-ii Explorer
I confirmed it by calling the company when I first read this post. The answer from the immodium rep on the phone was that yes it had gluten and the other products other than the caplets had not been tested yet. I told her how much I appretiated their product containing this poison, and I am afraid I wasn't very nice. When I asked her if they realized that they were making gluten intolerant folks who relied on their product sick her response was that "We don't know of any instances of our product causing problems" Perhaps others might want to email or call the company also.

Very strange indeed. As I called them and they said that all products were gluten free. The only one that they didn't know about was the new formula liquid imodium. They didn't say it did or did not contain gluten only that it hadn't been tested yet, so he recommended going to the tablet version.

I guess I'll have to call again.

ravenwoodglass Mentor
Very strange indeed. As I called them and they said that all products were gluten free. The only one that they didn't know about was the new formula liquid imodium. They didn't say it did or did not contain gluten only that it hadn't been tested yet, so he recommended going to the tablet version.

I guess I'll have to call again.

I think with the issue with the liquid calling again may be the way to go. I called in July because I wanted to take a dose before a long car ride. Body didn't need it but my mind did :( If the product does or did contain gluten I would imagine they would be working to remove it. The more calls with questions the more quickly they will do this. The rep did state that they are now in the process of clinically testing their products and at that point could only tell me for sure that the AD caplets were okay. I expect testing would be completed on the others perhaps by now.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - cristiana replied to KathyR37's topic in Coping with Celiac Disease
      4

      New here

    2. - trents replied to KathyR37's topic in Coping with Celiac Disease
      4

      New here

    3. - Theresa2407 replied to Theresa2407's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Probiotics

    4. - KathyR37 replied to KathyR37's topic in Coping with Celiac Disease
      4

      New here

    5. - Scott Adams replied to KathyR37's topic in Coping with Celiac Disease
      4

      New here


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,816
    • Most Online (within 30 mins)
      7,748

    KTH
    Newest Member
    KTH
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cristiana
      Hi @KathyR37 and a very warm welcome here.  I am so very sorry that you are going through all of this. I just wanted to check, have you ever been tested for any other gastrointestinal conditions? Cristiana  
    • trents
      @KathyR37, I would suspect that in addition to gluten intolerance, you have other food intolerances/sensitivities. This is very common in the celiac community. The most common offenders are oats, dairy, soy, corn and eggs with dairy and oats being the big two. Have you considered this? Have you tried keeping a food diary to detect patterns?
    • Theresa2407
      thank you for your advice.   I have always taken them and I use Stonehedge because they are in a glass bottle, but don't have to be refrigerated.  I also like they are 3rd party tested and state gluten free. But you never know if something better has come alone over the years.
    • KathyR37
      Thank you for your response. I have already learned about the info you sent but i appreciate your effort. I am the only one in my family cursed by this disease. I have to cook for them too. I make sure that my utensils are free of gluten and clean after using them for other food. I use non-porous pots and pans and  gloves when cooking for them. One huge problem I have is a gag reflex out of this world and if something doesn't taste good it is not going down. Most commercially made breads and such taste like old cardboard.Pastas are about the same. I did find one flour that I like and use it regularly, but it is so expensive! All gluten free food is way more expensive. I only eat twice a day because I cannot afford to buy all that. We live on a very low income so my food purchases are quite limited.
    • Scott Adams
      What you've described—the severe weight loss, the cycle of medications making things worse, and the profound fear of eating before leaving the house—is a heavy burden to carry for 15 years. It is absolutely not your fault. While everyone's journey with celiac is different, the struggles with the learning curve, social isolation, and dietary grief are feelings many in the community know all too well. Your question about whether you should just eat what you want and manage the symptoms is a heartbreaking one, born from years of frustration. It's crucial to know that the diarrhea is a sign of ongoing damage to your small intestine from gluten, and simply managing the symptom with Imodium doesn't stop that internal harm or the risk of other complications. The fact that you are still getting sick within an hour of eating, even while trying to be gluten-free, is a huge red flag that something isn't right. This could be due to cross-contamination in your kitchen (e.g., using a shared toaster, colander, or condiment jars), hidden gluten in foods, or the possibility of another concurrent condition like refractory celiac disease. Don't give up!  This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.