Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Probiotics


L.A.

Recommended Posts

L.A. Contributor

Has anyone tried probiotics? What were your experiences? B)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lovegrov Collaborator

I never did use them but I know that Cynthia Rudert (sp??), considered one of the top celiac doctors in the country, recommends all new patients take probiotics for a while. She's even had cases where other doctors diagnosed refractory sprue and the probiotics solved the problem.

richard

Guest cassidy

I take them and have noticed a huge difference. I had a stool test done and it showed that I didn't have any good bacteria. I was feeling much better after going gluten-free, but I was still going to the bathroom several times a day and it wasn't always fully formed - sorry to be gross.

Now, I really don't have any bathroom issues unless I get glutened. I took a strong, expensive one for a month and then backed down. I still take one a day. I also drink kefir which is like liquid yogurt with lots more probiotics.

I really feel that they have helped me.

kbtoyssni Contributor

I take them and it's the one thing that really helped me. (NOTE, at the time I was diagnosed with fibromyalgia and was taking so many different things to see if anything would help). I went to england for two weeks and didn't take my probiotics with and my guts hated me. Now I think my intestines are healed so I'm not sure if I need them any more, but when I was first healing they helped a lot.

dionnek Enthusiast

What kind (brand) do you recommend and do you have to get them at a health store like GNC, or can you just get them at the drug/grocery store? I've been thinking about taking these myself. Been eating the Activa yogurt but I think dairy is a problem....

lorka150 Collaborator

I use Bio-K Dairy free, and love it.

taz sharratt Enthusiast
I use Bio-K Dairy free, and love it.

what about asidofolis, if you cant find yogurt DF then this is a goodreplacement, it gives good bacteria back into your tummy. sometimes when ive felt the thrush coming on ive downed a few for a couple of days and sometimes i manage to fend it off.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



elye Community Regular

Yep, I take acidophilus every day (a cheaper brand but you have to make sure you're getting six billion active cells), and if I ever feel the start of a yeast infection starting, I triple the dose and it always goes away. :)

L.A. Contributor

Thanks for the input, as always, everyone is most helpful :) I contacted my health food store and they have two probiotics that are gluten free--here i come. Thanks again.

Guest cassidy
What kind (brand) do you recommend and do you have to get them at a health store like GNC, or can you just get them at the drug/grocery store? I've been thinking about taking these myself. Been eating the Activa yogurt but I think dairy is a problem....

I don't think activia is gluten-free. If you search for it on here you will see that someone called the company and they said that no activia yogurts are gluten-free. Maybe that is whey you aren't doing so well eating it.

kbtoyssni Contributor

I think the brand of acidopholis I take is Pro Flora. I'll have to check when I get home, though. The label does say gluten-free. I get mine at the health food store, but my old pharmacy also carried it. I got a different brand of acidopholis from my new pharmacy, and I don't think it's gluten-free. I kept getting sick and that was the only thing I changed in my diet. The company couldn't tell me if it contained gluten - they only had information on the active ingredients so I stopped taking it. I'll post the brand later.

ebrbetty Rising Star

Am I the only one who has problems with them? my stomach hurt more when I was on them

gfp Enthusiast
Am I the only one who has problems with them? my stomach hurt more when I was on them

That might not be a bad thing, think of it like adding antiseptic to a cut.

If you add antiseptic and it stings its because its killing the germs....

If your stomach is full of bad bacteria then it makes sense it would be a bit upset and hurt while they wage thier little war?

kbtoyssni Contributor

The brand that I take is Florajen. The brand that I think is NOT gluten-free is BC Lactinex.

acousticmom Explorer

I don't have any experience with probiotics, but I just read this in a book about food intolerance (Food Allergies and Food Intolerance, by Jonathan Brostoff, MD and Linda Gamlin, 2000):

"Some of these [commercial preparations of bacteria intended to restore normal gut flora] have been tested and a crucial difference was found between those bought in health food stores or drug stores and those purchased through mail order. The former had often been stored for long periods at room temperature, and, not surprisingly, researchers found very few live bacteria in them. The bacterial replacers bought by mail order had only spend two to three days in nonrefrigerated conditions and were as rich in bacteria as the manufacturers claimed."

Also:

"If you choose yogurt, you can make sure the brand you are buying really is live by adding a spoonful to some warm milk that has been heated to boiling and then allowed to cool. Keep the mixture in a thermos for six to eight hours. If it has not turned to yogurt, then the original yogurt was not live. The best way of ensuring that your yogurt is live is to make your own--starter cultures are available from some health food stores, or by mail."

I can't vouch for the accuracy of these statements, but the rest of the book has helped me a lot. The authors address the medical controversies surrounding food intolerance and candida issues in a pretty evenhanded way. And they give much more detailed info on doing an elimination diet than my dr. provided. (When I asked her about their advice, she agreed on every point. I was too polite to ask why she didn't tell me all that in the first place!)

Hope some of this is helpful.

Carol

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jhona's topic in Introduce Yourself / Share Stuff
      32

      Does anyone here also have Afib

    2. - knitty kitty replied to lehum's topic in Super Sensitive People
      9

      4.5 years into diagnosis, eating gluten-free and still struggling: would love support, tips, & stories

    3. - Scott Adams replied to Hmart's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Is this celiac?

    4. - Theresa2407 replied to Hmart's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Is this celiac?

    5. - Hmart replied to Hmart's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Is this celiac?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,939
    • Most Online (within 30 mins)
      7,748

    Michelle C.
    Newest Member
    Michelle C.
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      @DebJ14, You said "husband has low platelets, bruises easily and gets bloody noses just from Fish Oil  He suggested he take Black Cumin Seed Oil for inflammation.  He discovered that by taking the Black Seed oil, he can eat carbs and not go into A Fib, since it does such a good job of reducing inflammation."   I don't think black seed oil is lowering inflammation.  It's lowering blood glucose levels. Black cumin seed lowers blood glucose levels.  There's a connection between high blood glucose levels and Afib.    Has your husband been checked for diabetes?   Must Read: Associations of high-normal blood pressure and impaired fasting glucose with atrial fibrillation https://pubmed.ncbi.nlm.nih.gov/36750354/  
    • knitty kitty
      Healthy Omega Three fats.  Olive oil or flaxseed oil, oily fish, fatty cuts of meat.   Our bodies run much better on burning fats as fuel.  Diets based on carbohydrates require an increased amount of thiamine to process the carbs into fuel for the body.  Unfortunately, thiamine mononitrate is used to enrich rice.  Thiamine mononitrate is relatively unusable in the body.  So a high carb diet can further decrease thiamine stores in the body.  Insufficient thiamine in the body causes the body to burn body fat and muscle for fuel, so weight loss and muscle wasting occurs.  Those extra carbohydrates can lead to Candida (often confused with mold toxicity) and SIBO (Small Intestinal Bacterial Overgrowth).   Losing weight quickly is a symptom of thiamine insufficiency.  Muscle wasting is a symptom of thiamine insufficiency.  I lost sixty pounds in a month.   Having difficulty putting weight on and keeping it on is a symptom of thiamine insufficiency.   The AIP diet works because it eliminates all grains and grasses, rice, quinoa, all the carbs.  Without the carbs, the Candida and SIBO get starved and die off.  Easy way to change your microbiome is to change what you feed it.  With the rowdy neighbors gone, the intestine can heal and absorb more nutrients.   Supplementing with essential vitamins and minerals is beneficial.  Talk to your doctor and nutritionist.  Benfotiamine is a form of thiamine that promotes intestinal healing.  The eight B vitamins are water soluble, so if you don't need them, they can be gotten rid of easily.   Night shades are excluded on the AIP diet.  Potatoes, tomatoes, peppers and eggplant are not allowed on the AIP diet.  They contain alkaloids that promote "a leaky gut".  Benfotiamine can help here. Sweet potatoes are avoided because they contain thiaminases, chemicals that break thiamine so that the body cannot use it.   The AIP diet has helped me.
    • Scott Adams
      The reaction one gets when they get glutened varies a lot from person to person.  This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
    • Theresa2407
      A gluten ingestion can last for many months.  Many years ago there was a celiac conference in Fl.  Everyone there got contaminated with some having difficulty 6 months to recover.  It will hit your Lympatic system and spread  through the body and effect your nevous system as well. Most times when I get glutened it is from a prescription med that wasn't checked close enough.  the Pharmacuticals change vendors all the time.
    • Hmart
      Thank you so much for the responses. Every piece of information helps.  I only knowingly ate gluten once, that was four days ago. I had the reaction about 3-4 hours after consuming it. I’m concerned that after 4 days the symptoms aren’t abating and almost seem worse today than yesterday.  I haven’t had either breath test. I did ask about additional testing but the PA recommended me to a celiac specialist. Unfortunately the first available is mid-December.  As far as diet, I am a pescatarian (have been for 25+ years) and I stopped eating dairy mid-last week as my stomach discomfort continued. Right now, I’m having trouble eating anything. Have mostly been focused on bananas, grapes, nut butters, DF yogurt, eggs, veggie broth.   I ordered some gluten-free meal replacements to help.  But I’ll get all the items (thank goodness for Instacart) and try the diet you recommended to get me past this period of feeling completely awful.  Yes, my doctor diagnosed celiac. I was concerned it wasn’t right based on the negative blood test and my continued symptoms.  Even if you are ‘glutened’ it shouldn’t last forever, right? Is four days too long?   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.