Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Bed Wetting


skipper30

Recommended Posts

skipper30 Enthusiast

Did any of your children have problems with bedwetting...long after being potty trained?? :blink:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



elonwy Enthusiast

I don't have kids, but I wet the bed until I was nine, and they could never figure out why, said it was "physchological". Fffffft.

Elonwy

manja Apprentice
Did any of your children have problems with bedwetting...long after being potty trained?? :blink:

Yes, my daughter Anna got diagnosed with gluten sensitivity on Monday.

I am sensitive to gluten too.

She is 2 and a half years old and was fully potty trained at 25 months.

Anna is wetting her bed for about 10 days now. She does not have a UTI.

We got it checked twice within the last 10 days.

They also did a negative test for diabetes.

My doctor thinks it is behavioral. I disagree.

She is off gluten since Monday, on Tuesday and Wednesday she did not pee in her bed during nap time. She also has not had an accident at the playground. She still wetts at night though.

skipper30 Enthusiast

Here is my thinking on this...He is 6...has been potty trained since he was 4. Hardly any accidents after that time. Now all of the sudden he had started wetting the bed at night-easily 5 out of the last 7. He isnot our dx'd kid but we have been thinking of things that have happened in past and wondered if it might be in fact celiac. As a toddler, he would get so constipated that he would also throw-up when he had a bm. Then about 2 years ago he started up with these tics. They come and go. They have returned with a vengance and he complains off and on of his tummy hurting, he has lots of anxiety also....We talked at length with him tonight and he agreed to go gluten-free like younger brother for a while and see if things don't get better.

Then boy #3 has broken out with what I THINK is a very similar "rash"(lost's of little bumps) all over the right side of his tummy -that look a lot like what out dx'ed son get when he has been glutened.

I guess what I am wanting to know is do I sound like a fruit loop and wigging out over nothing?? I don't want to assume that they all have celiac everytime something new or odd comes up. :unsure:

2kids4me Contributor

yes! my son was 10 when he was diagnosed with celiac, he had been a chronic bedwetter and the family doc said "oh he'll grow out of it, its common in boys".

Well lo and behold, within 2 months of the diagnosis and eating gluten-free, he was dry every night!! We were all thrilled as there is nothing worse than waking up cold and wet - esp when you are 10.

I then had the opportunity to discuss it with a camp co-ordinator (for a celiac camp) - she said - that it is because of the damaged gut, and the loose molecules (amine and sulfer) that get into the blood stream relaxes the bladder.

Bedwetting has been linked to food allergies too.

The site I will include is one about autism and the high number of autistic children with gluten/casein intolerance (or celiac) and how low enzyme levels can cause behavioral problems. It is of interest because with my son - gluten-free diet stopped the bedwetting and the gluten-free diet dramatically improved my daughter's school performance and social behavior. The information from articles on celiac and autism helped me understand why this occurred.

Open Original Shared Link

skipper30 Enthusiast

Thanks..I will check that site out!!

I REALLY think that there is a connection here!

schuyler Apprentice

That's really interesting; I never thought about there being a connection between celiac and bedwetting. I am going to pass this info along to my cousin because her 2 oldest sons (ages 4 and 3) have been potty trained during the day since they were 18 months old, but they have to wear diapers to bed because they have so many accidents. This is something else to add to the boys' long list of symptoms.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



prinsessa Contributor

I dont' know about bed wetting, but when I eat something with gluten I have to pee almost every hour. I don't know why. It might be my body trying to rid itself of toxins. I could see kids having the same problem. I had to get up sometimes in the middle of the night to use the bathroom.

  • 1 year later...
RIMom Newbie

we are going to do the enterolab genetic test on our negative blood test daughter for that exact reason. We just want to know. We are going to do it privately (I know it's expensive), so it won't go on her insurance record, or medical record. They give discounts for family members. That way we will know if her weird things are just weird things, or if it's actually possibly the celiac raising its head finally.

Good luck

RIMom Newbie

sometimes it's just bedwetting though. My 5 yr old daughter has been gluten free/symptom free for 9 months now and still wets the bed. We wake her between 10 and 11 when we go to bed and have her pee, it doesn't matter, she still wakes up wet. she is a deep sleeper. We are working on it, but she just may not be ready.

Merika Contributor

Ds will have pee accidents within hours of ingesting soy, which he is also allergic to. it's the first symptom of many including behavior after ingesting the stuff. he's been potty trained for 4 years now and it can still happen.

merika

RIMom Newbie

interesting, she eats very little soy and never has accidents during the day. She is wet every night and always has been. (2 dry nights in her life, not in same week).

gfpaperdoll Rookie

I think bed wetting is associated with dairy - take out the dairy & I think it will go away.

there has been papers published on this - or so it seems I remember from an old brain talk post, or it might have been just some moms that figured it out...

goldyjlox Contributor

My daughter is 3 1/2 and potty trained for about a year but she still wears a pull up to bed and the last couple of months she has been peeing in her pants ,all the time. She and her 12 month old brother have had bloodtests a week and a half ago so we are waitng for the resuls. She is the one that I a more concerned about.

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,338
    • Most Online (within 30 mins)
      7,748

    Erica Johnson
    Newest Member
    Erica Johnson
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • par18
      Been off this forum for years. Is it that important that you get an official diagnosis of something? It appears like you had a trigger (wheat, gluten, whatever) and removing it has resolved your symptom. I can't speak for you, but I had known what my trigger was (gluten) years before my diagnosis I would just stay gluten-free and get on with my symptom free condition. I was diagnosed over 20 years ago and have been symptom free only excluding wheat, rye and barley. I tolerate all naturally gluten free whole foods including things like beans which actually helps to form the stools. 
    • trents
      No coincidence. Recent revisions to gluten challenge guidelines call for the daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat bread) for a minimum of 3 weeks. If possible, I would extend that two weeks to ensure valid testing.
    • SilkieFairy
      Thank you both for the replies. I decided to bring back gluten so I can do the blood test. Today is Day #2 of the Challenge. Yesterday I had about 3 slices of whole wheat bread and I woke up with urgent diarrhea this morning. It was orange, sandy and had the distinctive smell that I did not have when I was briefly gluten free. I don't know if it's a coincidence, but the brain fog is back and I feel very tired.   
    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.