Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Feeling 50% Or Less


chick2ba

Recommended Posts

lindalee Enthusiast
I have very similar frustration and am a bit new to this. I also feel, where all my life I've eaten a very well-rounded, healthy diet, I have eliminated so much it seems there's about 5 things I can tolerate! Meats, salmon, fish and veggies and a little fruit seem okay. Yet things still are unpredictable and although I keep a detailed food log with symptoms on it, I'm still not always sure what caused a problem. And it does seem to have taken over my life. However, a few weeks ago I wrote down ALL the symptoms from big to small that I had been living with, then a couple days ago wrote which had lessened or gone away. I realized I really have improved somewhat and I am terrified to try gluten ever again. I've also had some weird allergic-type reactions in my throat to some things (nuts, soy...) which make me quite nervous of them as well. "Roller-coaster" is a good word for this experience. Please hang in there. Your body may just need more time. Acupuncture helps-it REALLY does.

lisa

I was thinking about trying Acupucture. How did you select who to go to and how did it help you? Thanks, LL


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



rinne Apprentice

It is good to know that healing takes time. I know I keep thinking that if I am not eating any gluten then I should be fine but I know I'm not and then there is the anxiety about what else could be wrong...other than what I already know. :rolleyes:

Ursula could you say a little more about lectins? Or do you have a link to the site you mentioned?

I have found Acupuncture very helpful in connecting me with my body and what my body needs. I am very interested in how others may feel it benefitted them.

Guest laferriere

I was lucky to have a friend who recommended a wonderful acupunturist to me when I just COULD NOT get over a 2- month case of pneumonia a few years ago- she truly helped me. I think because my immune system was just way out of whack. Of course, she's in Portland, Me. and I see you are in Virginia. Ask co-workers or friends if anyone has seen one they like. Of course, you can always try one out and if it's not a good match, try again. I really can't emphasize enough how much I believe in it. I am also lucky to work in High School Spec. Ed program and have very good insurance so I have seen her through referral from my GP for "IBS" for a year or more. Oh yes, about Gatorade- that stuff is full of high fructose corn syrup which is getting a pretty good reputation for being bad for everyone. Why doesn't the food industry just leave our food alone??!!! Good luck to you!

lisa

I realized I forgot to say how it helps! It helps with pain, for sure! And I think just balancing and "quieting" my whole system.

lisa

CarlaB Enthusiast
Hi everyone,

I am in a similar situation, 5 months of diet (tested positive to gluten intolerace with enterolab) and recovering veeery slowly. I've been recently reading a lot of material about heavy metal toxicity especially about dental amalgams, and I was amazed to read how many people discover that their problems are related to the mercury fillings.

Without going too much into details, the mercury contained in those dark grey fillings is slowly released and accumulated in certain organs (liver, kidneys, intestine) and after a number of years it can cause serious problems, it just depends on how strong is your body and immune system.

So I guess people with celiac and/or intolerances should be concerned with this aspect, maybe the fillings are not the cause of our problems but they can seriuosly contribute to depress the immune system and slow down or even paralize the recovery.

It's unbelievable to read that dentists have to take so many cares about handling the mercury: don't touch with hands, keep in ubreakable containers, work in well-ventilated spaces, avoid heating the mercury, preserve the amalgam scrap under water... but then it goes straight in our mouth, where it slowly corrodes in years and it's transported all over! :o:o

I guess it's important to eliminate check and possibly eliminate all the sources of "stress" for our body.

You can find a lot of info around the web and there're also several books on the topic, I can provide links and titles if anyone is interested.

I had my amalgam fillings all replaced about ten years ago. The dentist did half one day, then the other half another day because he didn't want all that mercury released all at once. He had me take various antioxidants to get rid of the metal in my system. I found that if I was away from home and missed the time for the glutathione, I would start feeling sick. I felt like I had a bad case of the flu the first few days. There definately was a detox period with having them removed. I did not know about my gluten intolerance back then, but it did make me feel somewhat better having them removed. He took all kinds of precautions in his office to address all the mercury being released into the air. I am glad I had it done.

Rachel--24 Collaborator
Ursula could you say a little more about lectins? Or do you have a link to the site you mentioned?

I have found Acupuncture very helpful in connecting me with my body and what my body needs. I am very interested in how others may feel it benefitted them.

Rinne,

Ursula has a link to the lectins in her signature...if you scroll up you can see it.

I tried acupuncture but I only went like 3 times and didnt notice anything. I was nervous cuz my mom was paying alot of money to have me go and I didnt want it to be a waste for her if it didnt help so I stopped going. I do believe in it but maybe I needed to see a different accupuncturist or maybe I didnt have enough treatments.

evie Rookie
I was lucky to have a friend who recommended a wonderful acupunturist to me when I just COULD NOT get over a 2- month case of pneumonia a few years ago- she truly helped me. I think because my immune system was just way out of whack. Of course, she's in Portland, Me. and I see you are in Virginia. Ask co-workers or friends if anyone has seen one they like. Of course, you can always try one out and if it's not a good match, try again. I really can't emphasize enough how much I believe in it. I am also lucky to work in High School Spec. Ed program and have very good insurance so I have seen her through referral from my GP for "IBS" for a year or more. Oh yes, about Gatorade- that stuff is full of high fructose corn syrup which is getting a pretty good reputation for being bad for everyone. Why doesn't the food industry just leave our food alone??!!! Good luck to you!

lisa

I realized I forgot to say how it helps! It helps with pain, for sure! And I think just balancing and "quieting" my whole system.

lisa

My dentist is not allowed to do it & I have so many but for last several years I have had composite material put in when an old one need replacing or a new one put in. I like to think it helps. I used to get HEAL magazine (allergies) and writers there sure thought it was worthwhile to have removal of amalgam fillings. I do think could have started a lot of my problems. good day! evie ;)

Guest laferriere

Yes, acupuncture takes more time. A six-week program of once a week is a good beginning.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lindalee Enthusiast
I had my amalgam fillings all replaced about ten years ago. The dentist did half one day, then the other half another day because he didn't want all that mercury released all at once. He had me take various antioxidants to get rid of the metal in my system. I found that if I was away from home and missed the time for the glutathione, I would start feeling sick. I felt like I had a bad case of the flu the first few days. There definately was a detox period with having them removed. I did not know about my gluten intolerance back then, but it did make me feel somewhat better having them removed. He took all kinds of precautions in his office to address all the mercury being released into the air. I am glad I had it done.

Sounds like a really good dentist. Do you remember the antioxidants? Not familiar with glutathione.

loraleena Contributor

Welcome to the board. I myself am almost a year into the diet. I still have ups and downs. I find if I stay away from too much starches and especially processed gluten free food I am usually ok. Like you Lister, I still will have a week with like 5 or 6 good days and 1 or 2 bad ones. But, it used to be 5 bad and 2 good.

I. would suggest that both of you try enzymes before eating. This helps with digestion and gas and bloating.

Chick- I would also look into candida overgrowth, bacteria or parasites. This is quite common with celiacs. The diet you are currently eating would be making you feel much worse if you have any of these things going on. I echo what others have said about meat, veggies and very importantly foods that are processed and have sugar. Good luck and hang in there!

CarlaB Enthusiast
Sounds like a really good dentist. Do you remember the antioxidants? Not familiar with glutathione.

No, I don't remember the antioxidants ... it's been a long time! I just remember glutathione because I had to look all over for it and it was the one that I could tell if I missed it. I believe it's an amino acid.

For those of you in Indiana ... he is Dr. Gary Walton in Indianapolis. I was very pleased with him; if I still lived there, I would still go to him. He gave me a pamphlet that had the list of antioxidants, so I don't know if you could find something like that online.

AndreaB Contributor

For those talking about amalgams...I would like to have my remaining ones removed also. I got 4 crowns last year and I know they use some kind of metal base to secure them. I have 4 more crowns that need to be done and two other fillings aside from that. The crowns should take care of most of the problem, I just don't have the money with getting the enterolab stuff done. Also, I'm breastfeeding and don't want to add even more mercury to the little one who got enough with the last proceedures while I was pregnant.

Rachel--24 Collaborator

I got my amalgams removed 2 years back because I thought maybe it was contributing to my problems but for me it didnt make a difference. I had alot of testing for heavy metal toxicity too but they were all negative. I still wonder sometimes though. <_<

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,166
    • Most Online (within 30 mins)
      7,748

    melindakathleen
    Newest Member
    melindakathleen
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)

    • There are no registered users currently online

  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • DAR girl
      Looking for help sourcing gluten-free products that do not contain potato or corn derived ingredients. I have other autoimmune conditions (Psoriatic Arthritis and Sjogrens) so I’m looking for prepared foods as I have fatigue and cannot devote a lot of time to baking my own treats. 
    • Scott Adams
      I am so sorry you're going through this. It's completely understandable to feel frustrated, stressed, and disregarded after such a long and difficult health journey. It's exhausting to constantly advocate for yourself, especially when you're dealing with so many symptoms and positive diagnoses like SIBO, while still feeling unwell. The fact that you have been diligently following the diet without relief is a clear sign that something else is going on, and your doctors should be investigating other causes or complications, not dismissing your very real suffering. 
    • Oldturdle
      It is just so sad that health care in the United States has come to this.  Health insurance should be available to everyone, not just the healthy or the rich.  My heart goes out to you.  I would not hesitate to have the test and pay for it myself.  My big concern would be how you could keep the results truly private.  I am sure that ultimately, you could not.  A.I. is getting more and more pervasive, and all data is available somewhere.  I don't know if you could give a fake name, or pay for your test with cash.  I certainly would not disclose any positive results on a private insurance application.  As I understand it, for an official diagnosis, an MD needs to review your labs and make the call.  If you end up in the ER, or some other situation, just request a gluten free diet, and say it is because you feel better when you don't eat gluten.      Hang in there, though.  Medicare is not that far away for you, and it will remove a lot of stress from your health care concerns.  You will even be able to "come out of the closet" about being Celiac!
    • plumbago
      Yes, I've posted a few times about two companies: Request a Test and Ulta Labs. Also, pretty much we can all request any test we want (with the possible exception of the N protein Covid test and I'm sure a couple of others) with Lab Corp (or Pixel by Lab Corp) and Quest. I much prefer Lab Corp for their professionalism, ease of service and having it together administratively, at least in DC. And just so you know, Request a Test uses Lab Corp and Quest anyway, while Ulta Labs uses only Quest. Ulta Labs is cheaper than Request a Test, but I am tired of dealing with Quest, so I don't use them so much.
    • Scott Adams
      PS - I think you meant this site, but I don't believe it has been updated in years: http://glutenfreedrugs.com/ so it is best to use: You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
×
×
  • Create New...