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Celiac, Chrone's, Ulcerative Ibs

genicol

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genicol Rookie
genicol
Posted

Is there any link between Celiac, Chrone's and Irritable Bowel? My daughter's grandma (dad's side) has Chrone's and had a colostomy about 2 1/2 years ago. Her uncle (again...dad's side) has ulcerative colitis. Both grandma and uncle also have irritable bowel. After reading everything that I have so far, I am completely convinced that my fiance has celiac as well! Do you think the whole family is cursed with problems and do you think that my daughter has a higher chance of developing Chrone's? We are not 100% sure that she has Celiac, but will know better after tomorrow. Blood test was positive, endoscopy in the morning! I know that Celiac is genetic, but no one on her dad's side has every been diagnosed with it, but they have had other problems. Thanks for the help!!!

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evie Rookie
evie
Posted
Is there any link between Celiac, Chrone's and Irritable Bowel? My daughter's grandma (dad's side) has Chrone's and had a colostomy about 2 1/2 years ago. Her uncle (again...dad's side) has ulcerative colitis. Both grandma and uncle also have irritable bowel. After reading everything that I have so far, I am completely convinced that my fiance has celiac as well! Do you think the whole family is cursed with problems and do you think that my daughter has a higher chance of developing Chrone's? We are not 100% sure that she has Celiac, but will know better after tomorrow. Blood test was positive, endoscopy in the morning! I know that Celiac is genetic, but no one on her dad's side has every been diagnosed with it, but they have had other problems. Thanks for the help!!!

Yes,I have heard of people having celiac and chrones + having celiac and IBS. So m,any times with further investigation people will find their IBS is actually celiac disease. If she is found to be celiac and goes gluten free she will get much better and probably would not develop chrons. wish you much luck with your daughters testing!! Living gluten free is so rewarding with better health, I advise it even without a definite diagnosis if a trial of at least a month shows health improvement. :):) evie

Guest Robbin
Guest Robbin
Posted

Hi Gail and welcome. :) A positive blood test is positive. No false positives, only false negatives are possible. The medical community is clueless with this disease for the most part. It sounds like your fiance's relatives have been given the same old labels many of us have had, they probably have celiac or gluten intolerance. I would get to a health food store, get some gluten free cereals and rice pasta and coupled with fresh fruits and veggies and meats, your little one will be feeling so good and healthier than most other kids her age. Get a gluten-free cookbook (there are many check out the recipes/cooking section on here for recommendations) and pm nini for the "newbie survival kit" that she has graciously put together for people who are new to this. There are plenty of gluten free substitutions and you will find it gets much easier over time. She is little and will adapt better than older children do. Take care and keep us posted :)

mart Contributor
mart
Posted
Yes,I have heard of people having celiac and chrones + having celiac and IBS. So m,any times with further investigation people will find their IBS is actually celiac disease. If she is found to be celiac and goes gluten free she will get much better and probably would not develop chrons. wish you much luck with your daughters testing!! Living gluten free is so rewarding with better health, I advise it even without a definite diagnosis if a trial of at least a month shows health improvement. :):) evie

Wow, is it true that she will probably not develop chron's if she goes gluten free?

Nic Collaborator
Nic
Posted

I believe my son has IBS on top of the Celiac. Now that he is gluten free he is much better but about once a month he goes into a cycle where he becomes constipated again and complains that his stomach and "butt" hurt. At first I was worried about accidental glutening but it can't be because it is on a monthly cycle and unfortunately for my family, I don't change anything in our diet (very boring cook). So there is no reason for him to be contaminated once a month and not every week if it were something in his diet. His stomach also acts up when he is nervous or scared. We had a Chuck E Cheese B-Day party last weekend. As soon as he saw the character come out in costume, that was it. He was sick in the bathroom with his stomach the rest of the time. This happens any time we go some where knew where he is not comfortable.

lorka150 Collaborator
lorka150
Posted

the autoimmune gene often is passed along.

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      Positive biopsy

      By knitty kitty · Posted

      In the study linked above, the little girl switched to a gluten free diet and gained enough weight that that fat pad was replenished and surgery was not needed.   Here's the full article link... Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pmc.ncbi.nlm.nih.gov/articles/PMC6476019/
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      Fruits & Veggies

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      Hello, @Jordan Carlson, So glad you're feeling better.   Tecta is a proton pump inhibitor.  PPI's also interfere with the production of the intrinsic factor needed to absorb Vitamin B12.  Increasing the amount of B12 you supplement has helped overcome the lack of intrinsic factor needed to absorb B12. Proton pump inhibitors also reduce the production of digestive juices (stomach acids).  This results in foods not being digested thoroughly.  If foods are not digested sufficiently, the vitamins and other nutrients aren't released from the food, and the body cannot absorb them.  This sets up a vicious cycle. Acid reflux and Gerd are actually symptoms of producing too little stomach acid.  Insufficient stomach acid production is seen with Thiamine and Niacin deficiencies.  PPI's like Tecta also block the transporters that pull Thiamine into cells, preventing absorption of thiamine.  Other symptoms of Thiamine deficiency are difficulty swallowing, gagging, problems with food texture, dysphagia. Other symptoms of Thiamine deficiency are symptoms of ADHD and anxiety.  Vyvanse also blocks thiamine transporters contributing further to Thiamine deficiency.  Pristiq has been shown to work better if thiamine is supplemented at the same time because thiamine is needed to make serotonin.  Doctors don't recognize anxiety and depression and adult onset ADHD as early symptoms of Thiamine deficiency. Stomach acid is needed to digest Vitamin C (ascorbic acid) in fruits and vegetables.  Ascorbic acid left undigested can cause intestinal upsets, anxiety, and heart palpitations.   Yes, a child can be born with nutritional deficiencies if the parents were deficient.  Parents who are thiamine deficient have offspring with fewer thiamine transporters on cell surfaces, making thiamine deficiency easier to develop in the children.  A person can struggle along for years with subclinical vitamin deficiencies.  Been here, done this.  Please consider supplementing with Thiamine in the form TTFD (tetrahydrofurfuryl disulfide) which helps immensely with dysphagia and neurological symptoms like anxiety, depression, and ADHD symptoms.  Benfotiamine helps with improving intestinal health.  A B Complex and NeuroMag (a magnesium supplement), and Vitamin D are needed also.
    • knitty kitty
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      @pothosqueen, Welcome to the tribe! You'll want to get checked for nutritional deficiencies and start on supplementation of B vitamins, especially Thiamine Vitamin B 1.   There's some scientific evidence that the fat pad that buffers the aorta which disappears in SMA is caused by deficiency in Thiamine.   In Thiamine deficiency, the body burns its stored fat as a source of fuel.  That fat pad between the aorta and digestive system gets used as fuel, too. Ask for an Erythrocyte Transketolace Activity test to look for thiamine deficiency.  Correction of thiamine deficiency can help restore that fat pad.   Best wishes for your recovery!   Interesting Reading: Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pubmed.ncbi.nlm.nih.gov/31089433/#:~:text=Affiliations,tissue and results in SMAS.  
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      26F!
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