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Crazy Celiac Here!

sweetp

By sweetp
in Coping with Celiac Disease

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sweetp Rookie
sweetp
Posted

so, is it just me, or does anyone else feel like they are the ONLY person in the entire universe that has celiac disease!?? I mean...yah... you all have it (lol) but i mean like in "the real world" the people you meet in everyday life... (sigh)..... no one gets it... yesterday, this girl at my church ( trying so hard to be sweet!!)) said "i made some bread that you can have... it's called oat maple bread and it doesnt have WHOLE wheat flour..." i said.. wow, yah, thanks! :) um... i can't really have oats and i can't have any flour... she used bleached flour and thought it was okay.... :( anyways... so sometimes when i'm home alone, or even when i'm at a church potluck, but mostly when i'm home alone... i just want to tear into a loaf of great harvest honey whole wheat bread, ( i don't know why i buy it for my hubby-i torture myself!!!) anyways... i want to chuck the stupid "rice LOAF" that's so dense-and-hard-it-could-seriously-injure-someone-if-you-used-it-as-a-weapon, out the window and dump the soggy quinoa spiral noodles in the toilet where they belong and eat some good old top ramen! ai yai yai... i feel crazy sometimes, like this disease is not real and that if i believe that hard enough that i can go back to eating like a "normal person" i mean, i've been SOOOO stinkin good for SOOO long, it's been a while since i've had a bad reaction, and a few years since i've been constantly sick...i feel so healthy now!! :) i think i almost need to be glutened once in a while so i don't feel so deprived....anyhoo...so here i am home alone....barry left some cookies on the counter....RarrrRrr..

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VegasCeliacBuckeye Collaborator
VegasCeliacBuckeye
Posted

Sweetp,

try Kinnikinnick bread (www.kinnikinnick.com) for online ordering and Tinkyada noodles (taste like regular noodles)

hez Enthusiast
hez
Posted

I think all of us feel at times as if no one else has this disease. That is why we come here, there is comfort in numbers :)

sweetp-You need do dump the quinoa noodles. IMHO they are just nasty. Try tinkyada (I know I mispelled that) it tastes like real pasta and does not fall apart. I can not stand the rice loaf bread. I enjoy the Whole Foods bread toasted, I like Anna's bread from gluten evolution, and I tried Pamela's in my bread maker and that was good.

Sorry Barry left the cookies on the counter :( Make sure you have goodies for yourself for times like these.

Hez

Rachel--24 Collaborator
Rachel--24
Posted

I'm with everyone else on the Tinkyada.....get rid of the quinoa stuff...Tinkyada tatses like real pasta. Your hubby would probably like it too.

sparkles Contributor
sparkles
Posted

Sorry to hear that you are going crazy...but glad to hear that I am not alone. It does get to be overwhelming sometimes...and depressing....and I must admit, I am tired of explaining for the zillionith time this darn diet and why I can't just cheat "a little". Right now the whole celiac thing is really getting to me... I am supposed to go to a banquet on Sunday night and am dreading it because it will be typical banquet food.... and then there will be all the questions from those around me as to why I can't eat this or that and why would just a little hurt....etc..... I need a constructive outlet for these frustrations.... I wish I could run away!

Soo B Newbie
Soo B
Posted

The first celiac conference I went to, the thing I was most excited about wasn't the educational value -- I was excited to physically see other people (outside immediate family) with celiac disease. There was something SO comforting about being in a room full of human beings who go through the same things as me every day. I just wanted to hug everybody.

Guest nini
Guest nini
Posted

is there a local support group in your area? I find that is one of the most helpful things for me is to get together with local Celiacs and enjoy each others company and good food!

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kabowman Explorer
kabowman
Posted

I know - I am the only one, oh wait, my dental hygentist and her daughter have food issues but I see her once every 6 months and my mouth is full of her hands so I can't really chat back, but other than that, people just don't get it and there is only me.

I love this MB and would have issues without it.

loraleena Contributor
loraleena
Posted

I hear you. You should buy and make Manna from Anna bread. It is on the web. It is crusty chewy and yummy like a real loaf!!

Green12 Enthusiast
Green12
Posted

I don't know about anybody else, but I feel now that I am aware of celiac and after a year and a half or so of eating a gluten-free diet it seems like more and more people I know are having digestive difficulties and exhibit signs and symptoms of celiac. Maybe it's just me though.

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    • trents
      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

      By trents · Posted

      This is a common experience across the board with various brands of gluten-free bread products. Prices go up, size goes down. Removal of the egg component may be for the purpose of cost-cutting related to bird flu supply shortages or it may be catering to those with egg allergy/sensitivity, fairly common in the celiac community.
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      Living with Coeliac Disease since birth, Bread has always been an issue, never too nice, small slices and always overpriced, But Sainsbury's Free From White Sliced Bread seemed to me to be an exception with it's large uniform 12 x 12cm slices that had the bounce, texture and taste of white bread even after toasting with no issue that it was also Milk Free. Unfortunately Sainsbury's have changed the recipe and have made it 'Egg Free' too and it has lost everything that made the original loaf so unique. Now the loaf is unevenly risen with 8 x 8cm slices at best, having lost it's bounce with the texture dense and cake like after toasting resembling nothing like White Bread anymore. Unsure as to why they have had to make it 'Egg Free' as the price is the same at £1.90 a loaf. Anyone else experiencing the same issue with it? - also any recommendations for White Bread that isn't prescription? / Tesco's / Asda's are ok but Sainsbury's was superior.
    • Mari
      My only proof

      By Mari · Posted

      Years  ago a friend and I drove north into Canada hoping to find a ski resort open in late spring,We were in my VW and found a small ski area near a small town and started up this gravelled road up a mountain. We  got about halfway up and got stuck in the mud. We tried everything we could think of but an hour later we were still stuck. Finally a pickup came down the road, laughed at our situation, then pulled the VW free of the mud. We followed him back to the ski area where where he started up the rope ski lift and we had an enjoyable hour of skiing and gave us a shot of aquavit  before we left.It was a great rescue.  In some ways this reminds me of your situation. You are waiting for a rescue and you have chosen medical practitioners to do it now or as soon as possible. As you have found out the med. experts have not learned how to help you. You face years of continuing to feel horrible, frustrated searching for your rescuer to save you. You can break away from from this pattern of thinking and you have begun breaking  away by using some herbs and supplements from doTerra. Now you can start trying some of the suggestions thatother Celiacs have written to your original posts.  You live with other people who eat gluten foods. Cross contamination is very possible. Are you sure that their food is completely separate from their food. It  is not only the gluten grains you need to avoid (wheat, barley, rye) but possibly oats, cows milk also. Whenever you fall back into that angry and frustrated way of thinking get up and walk around for a whild. You will learn ways to break that way of thinking about your problems.  Best wishes for your future. May you enjpy a better life.  
    • marion wheaton
      Are Lindt chocolate balls gluten free?

      By marion wheaton · Posted

      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      Are Lindt chocolate balls gluten free?

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      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
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