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July Metroceliacs Meeting!


tanyad

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tanyad Rookie

JULY METROCELIACS MEETING!

Host: Jennifer Price and Tanya Davidson with the MetroCeliacs

Location: Days Inn

644 West Diversey Parkway, Chicago, IL

When: Wednesday, July 26, 6:30pm to 7:30pm

Happy Summer to Celiacs in Chicago!!!

We are very excited to welcome Lara Field, a registered dietician, to our July MetroCeliacs meeting. (This was rescheduled from June)

Do you have any questions about celiac disease or how to accurately follow the gluten free diet? Are there any myths that you would like to prove or dispel? Now that it is grilling season, do you want info regarding cooking on the grill and enjoying bbq sauce? What ingredients are in some of our favorite grilling items (brats? marinades?) that we need to be wary of, if any?

Now would be a great time to come and have your questions answered.

Please RSVP by July 24 by 5:00 to MetroCeliacs@yahoo.com. We are looking to have a larger group so Lara is able to come and help us all out. She is looking forward to answering any questions on ingredients, foods, preparations, living gluten-free...anything you can think of that you have always wondered and not had a forum to discuss. Please join us for this informative event.

INCLUDE YOUR QUESTIONS IN YOUR REPLY so that Lara can prepare accordingly.

As always, friends and family are welcome to join us, celiac or not! And feel free to bring Gluten Free snacks (please include an ingredient list for people with additional allergies). Water and coffee will be provided.

Thanks to Sherwyn's for sponsoring our group. Be sure to check out their ever-growing Gluten Free selection! Gail is always ready to stock suggestions we offer, so go shopping after the meeting or before. She is really great about responding to requests and her gluten-free section is fantastic! It is located across the street from the Days Inn, totally convenient!

The Days Inn is located on Diversey, at Clark & Broadway. It is easy to get to by bus (Clark 22 or Broadway 36) or train (brown line to Diversey and walk 4 blocks west). Parking is difficult. There are meters and a parking garage on Clark at the Century Mall.

We hope you can come. It should be a fun and informative meeting! If you have any additional things to ask us, please email us at MetroCeliacs@yahoo.com

Jen and Tanya

MetroCeliacs

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    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
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