Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anyone In Oklahoma?

emcmaster

Recommended Posts

emcmaster Collaborator
emcmaster
Posted

I'd love to have a fellow celiac to meet up with!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


sillyactsue Explorer
sillyactsue
Posted

Ya, I'm in Oklahoma. What part are you from. I am in the south eastern corner a few miles from Beavers Bend State Park.

Lymetoo Contributor
Lymetoo
Posted
Ya, I'm in Oklahoma. What part are you from. I am in the south eastern corner a few miles from Beavers Bend State Park.

I'm your neighbor in Missouri!! Was also your neighbor while growing up in Texas!!

Sue, you're not that far from me. I'm in Branson!

sillyactsue Explorer
sillyactsue
Posted
I'm your neighbor in Missouri!! Was also your neighbor while growing up in Texas!!

Sue, you're not that far from me. I'm in Branson!

Hey neighbor!

I had to look on the map. It looks like Little Rock is about half way between us. I have only been there once when the babe had to go to children's hospital.

Weird, but somehow finding someone close by (who is freindly and understands this stuff) kinda warms the heart.

I hope to hear more from you. :D

emcmaster Collaborator
emcmaster
Posted
  • Author
Ya, I'm in Oklahoma. What part are you from. I am in the south eastern corner a few miles from Beavers Bend State Park.

Hi! I'm in Norman... maybe we all should find a time/place to meet!

sillyactsue Explorer
sillyactsue
Posted
Hi! I'm in Norman... maybe we all should find a time/place to meet!

Sounds great. Isn't there a support group in Norman? I talked to a lady from there when I first found out about celiac disease. I need to give her another call too. Maybe you know her. I'll find her name.

Lymetoo Contributor
Lymetoo
Posted

That would be fun, Sue....I love your screen name, by the way!! :D

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • 3 months later...
Sissy Rookie
Sissy
Posted

Hi Everyone, I live in Cookson on Lake Tenkiller which is in in NE Oklahoma. I just found a support group that meets in Tulsa at St. Francis Hospital and hope to attend one of their meetings soon...I really want to find someone to just talk to about food, recipes and living thru this that will not be critical or just think I am nuts...I am going to post a note on our local health food store in Tahlequah to see if there might be any other Celiacs here. So happy to see there are others from OK...lets keep in touch... Do I sound desperate?? I feel desperate, I was just dx a little over 2 weeks ago and I am really rather overwhelmed.

Sissy

  • 4 weeks later...
SchnauzerMom Rookie
SchnauzerMom
Posted

I'm from Lawton in Southwest Oklahoma. I haven't been diagnosed with celiac but I know from hard experience that if I eat anything with gluten in it I have a bad reaction so my husband and I have been on a gluten free diet since the middle of October. Exept, yesterday. Yesterday I ate a piece of cake that was not gluten free and I am still paying for it.

emcmaster Collaborator
emcmaster
Posted
  • Author
I'm from Lawton in Southwest Oklahoma. I haven't been diagnosed with celiac but I know from hard experience that if I eat anything with gluten in it I have a bad reaction so my husband and I have been on a gluten free diet since the middle of October. Exept, yesterday. Yesterday I ate a piece of cake that was not gluten free and I am still paying for it.

I'm only about an hour from Lawton - in Norman. There's a fantastic OKC Celiac group that meets bimonthly. It'd be about 1-1/2 hours drive each way for you, but I think it would be worth it.

SchnauzerMom Rookie
SchnauzerMom
Posted
I'm only about an hour from Lawton - in Norman. There's a fantastic OKC Celiac group that meets bimonthly. It'd be about 1-1/2 hours drive each way for you, but I think it would be worth it.

Great! I may look into it. Thanks for telling me about it.

Ksmith Contributor
Ksmith
Posted

I'm visiting Norman in the near future--any restaurants good about gluten-free? Thanks!

  • 2 weeks later...
RiceAddict Rookie
RiceAddict
Posted

Hey, Ya'll. I live in Iowa now but am Sooner born, Sooner bred, and when I die I'm Sooner dead! So very good to hear folks talkin' bout places back home. Next time I am down visiting the folks in Edmond or college buds in Tahlequah I'll have to try and make contact.

A

  • 2 months later...
FGFP Newbie
FGFP
Posted

Good morning, I was just looking around and found this. I just registered. I was raised in Ok and go there all the time as I have a daughter who lives in Edmond and goes to OC. I have a lot of family that are still in OK. I actually live in Texas panhandle but still consider myself an Okie.

Guest cdmccool
Guest cdmccool
Posted

I'm in Oklahoma City. :)

CaraLouise Explorer
CaraLouise
Posted

I am in Oklahoma City too! :P

Guest cdmccool
Guest cdmccool
Posted
I am in Oklahoma City too! :P

Hello2u! ^_^

  • 3 months later...
MSM1133 Newbie
MSM1133
Posted

I just found out about this site through my People magazine, but have had celiac since I was born, but was diagnosed when I was about two years old. I am not 26 years old and living a healthy and wonderful life in Tulsa. Would love to talk with others or answer any questions for those that have questions about Celiac.

CaraLouise Explorer
CaraLouise
Posted
I just found out about this site through my People magazine, but have had celiac since I was born, but was diagnosed when I was about two years old. I am not 26 years old and living a healthy and wonderful life in Tulsa. Would love to talk with others or answer any questions for those that have questions about Celiac.

I am 22 and like in OKC not Tulsa, but I would be happy to talk to you and help you out with any questions that you have! :)

  • 3 weeks later...
little d Enthusiast
little d
Posted
I'm from Lawton in Southwest Oklahoma. I haven't been diagnosed with celiac but I know from hard experience that if I eat anything with gluten in it I have a bad reaction so my husband and I have been on a gluten free diet since the middle of October. Exept, yesterday. Yesterday I ate a piece of cake that was not gluten free and I am still paying for it.

Hey, Ya'll. I live in Iowa now but am Sooner born, Sooner bred, and when I die I'm Sooner dead! So very good to hear folks talkin' bout places back home. Next time I am down visiting the folks in Edmond or college buds in Tahlequah I'll have to try and make contact.

A

SchnauzerMom

Hi I am in Texas but have relatives in Broken Arrow, Lake Eufala and in Tulsa. I am currantly living in Arlington that is inbetween Ft Worth and Dallas.

RiceAddict

GO SOONERS, my husband loves them

donna

Guest micah
Guest micah
Posted

I'm in Tulsa! Nice to meet you all!

Micah

  • 3 months later...
McRhonda Newbie
McRhonda
Posted

Hello, I'm in Tulsa as well. :)

Rhonda

  • 3 months later...
glasgirl8 Newbie
glasgirl8
Posted
I just found out about this site through my People magazine, but have had celiac since I was born, but was diagnosed when I was about two years old. I am not 26 years old and living a healthy and wonderful life in Tulsa. Would love to talk with others or answer any questions for those that have questions about Celiac.

Hi, I am new to the site and have a daughter, 6, that I need to get tested and don't know where to start. We have had an upper IG and her Dr. swore that she had celiac but it came back normal (with live villi) so her Dr. is stumpped. Could you help?

  • 5 months later...
googlechef Newbie
googlechef
Posted

Hello! Tulsa here. We have lots of Celiacs come to our restaraunt. We have a Gluten Free Menu and I am the to guide guests and our kitchen staff through your meal.

Dennis

Thyme Bistro

30th place and Harvard

webthyme.net

  • 1 year later...
JenAnderson Rookie
JenAnderson
Posted

I live in Lawton. We're originally from Houston, but have been stationed here most of my husband's career. My 2 kids and I are gluten-free.

(So NOT a Sooner fan...Go Horns!)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      results from 13 day gluten challenge - does this mean I can't have celiac?

      @catnapt, I'm sorry you're having such a rough time. How much wheat germ and how much gluten were you eating? Lectins in beans can be broken down by pressure cooking them. Do you pressure cook your beans? Were you pressure cooking your wheat germ? What drugs are you taking? Some immunosuppressive drugs affect IgA production. Do...
    2. catnapt
      - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      results from 13 day gluten challenge - does this mean I can't have celiac?

      oops my gluten challenge was only 12 days It started Jan 21s and ended Feb 1st worst 12 days of my life Does not help that I also started on a thiazide-like drug for rule in/out renal calcium leak at the exact same time No clue if that could have been symptoms worse 🤔
    3. Wheatwacked
      - Wheatwacked replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      13

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Welcome to the forum @Known1, What reaction were you expecting? Pipingrock.com High Potency Vitamin D3, 2000 IU, 250 Quick Release Softgels $6.89 I've have been taking the 10,000 IU for close to 10 years. When I started with vitamin D I worked my way up to 10000 over several weeks. Even at 8000 I felt no noticeable difference. Then after...
    4. xxnonamexx
      - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      My journey is it gluten or fiber?

      I don't know if I am getting sufficient Omega Threes. I read about phosphotidyl choline may cause heart issues. I will have o do further research on heathy Omega 3 supplements or from foods. Is there a blood test that can tell you everything level in your system such as Thiamine, Benfotiamine levels etc? Thanks
    5. Scott Adams
      0

      Gluten-Free Cantonese Steamed Fish with Ginger, Scallions, and Sizzling Oil

  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,369
    • Most Online (within 30 mins)
      7,748
    Helen1984
    Newest Member
    Helen1984
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By knitty kitty · Posted

      @catnapt,  I'm sorry you're having such a rough time.   How much wheat germ and how much gluten were you eating? Lectins in beans can be broken down by pressure cooking them.  Do you pressure cook your beans?  Were you pressure cooking your wheat germ? What drugs are you taking?  Some immunosuppressive drugs affect IgA production.  Do you have anemia?
    • catnapt
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By catnapt · Posted

      oops my gluten challenge was only 12 days It started Jan 21s and ended Feb 1st   worst 12 days of my life   Does not help that I also started on a thiazide-like drug for rule in/out renal calcium leak at the exact same time No clue if that could have been symptoms worse 🤔
    • Wheatwacked
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Wheatwacked · Posted

      Welcome to the forum @Known1, What reaction were you expecting? Pipingrock.com High Potency Vitamin D3, 2000 IU, 250 Quick Release Softgels $6.89 I've have been taking the 10,000 IU for close to 10 years. When I started with vitamin D I worked my way up to 10000 over several weeks.  Even at 8000 I felt no noticeable difference.  Then after a few days at 10000 it hit Whoa, sunshine in a bottle.  celiac disease causes malabsorption of dietary D and you've poor UV access.  It took me from 2015 to 2019 to get my 25(OH)D just to 47 ng/ml.  Another two years to get to 80.  70 to 100 ng/ml seems to be the body's natural upper homeostasis  based on lifeguard studies.  Dr. Holick has observed the average lifeguard population usually has a vitamin D 3 level of around 100 ng/ml. Could it be that our normal range is too low given the fact that ¾ or more of the American population is vitamin D deficient? Your Calcium will increase with the vitamin D so don't supplement calcium unless you really need it.  Monitor with PTH  and 25(OH)D tests. Because of your Marsh 3 damage you need to ingest way more than the RDA of any supplement to undo your specific deficiencies. I believe you are in the goiter belt.  Unless you have reason not to, I recommend pipingrock's Liquid Iodine for price and quality.  The RDA is 150 to 1100 mcg.  In Japan the safe upper level is set at 3000 mcg.  Start with one drop 50 mcg to test for adverse response and build up.  I found 600 mcg (12 drops) a day is helping repair my body.  Iodine is necessary to healing.  90% of daily iodine intake is excreted in urine.  A Urine Iodine Concentration (UIC) can tell how much Iodine you got that day.  The thyroid TSH test will not show iodine deficiency unless it is really bad.  
    • xxnonamexx
      My journey is it gluten or fiber?

      By xxnonamexx · Posted

      I don't know if I am getting sufficient Omega Threes. I read about  phosphotidyl choline may cause heart issues. I will have o do further research on heathy Omega 3 supplements or from foods. Is there a blood test that can tell you everything level in your system such as Thiamine, Benfotiamine levels etc? Thanks
    • catnapt
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By catnapt · Posted

      If lectins were my problem, I would react to wheat germ (the highest source of wheat lectins) and beans. I don't. I only react to bread and pasta, which are the highest sources of gluten. Therefore, my issue is wheat-specific (Gluten/ATIs), not a general lectin issue.   I have eaten a supposedly high lectin diet (I say supposedly because lectin content in these foods is greatly reduced by proper cooking and I eat very few of those foods raw, and even then, rarely!!) for years. My health has improved greatly on my whole foods plant forward diet. I have asked all my drs and a registered dietician about my diet, asked if eating such a high amnt of fiber might interfere with the digestion of any other nutrients and the answer has always been NO.     while doing the gluten challenge I did not eat ANY wheat germ (since it doesn't have hardly any gluten, and I was too sick from the bread and pasta to want to eat much anyway) I will NOT put that poison in my body again. That was a horrific experience and if this is what most celiac patients have to deal with, I am very sorry for them I don't care if I have celiac or NCGS I won't intentionally cause myself that much pain and suffering it's not worth it.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.