Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Newly Diagnosed - Vegan


vfaith

Recommended Posts

vfaith Newbie

Hi everyone,

I was recently diagnosed with celiac. I am still eating gluten because I have to get my endoscopy in a couple of weeks but I am trying to get prepared for the transition. I am 27 years old and I have been a type 1 diabetic since the age of 11.

I have been a vegetarian for 13 years and a vegan for 7. I am wondering if anyone has experience with doing the gluten-free, vegan diet? I am scared that I will never be able to eat out anymore.

Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



celiacgirls Apprentice

I don't have a lot of experience with this but my 8 year old daughter is gluten-free, trialing CF, and is a vegetarian. By eliminating the dairy, she is almost a vegan. I am trying to find other protein sources for her without relying so much on soy because apparently lots of celiacs also have trouble with soy.

When we eat out, she eats a baked potato and a salad. Or beans and rice if they are known to be gluten-free.

We have not tried the vegetarian restaurants here yet but some of them are listed as good places to go for gluten-free dining. My sense is that the vegetarian restaurants may be more accomodating than others.

The sad truth is that with this diagnosis, eating out will probably never be the same. I am also gluten-free and used to love to eat out. While I miss the convenience of being able to eat whatever, I am enjoying the way I feel now and it makes up for the lack of convenience. :)

eKatherine Apprentice
I was recently diagnosed with celiac. I am still eating gluten because I have to get my endoscopy in a couple of weeks but I am trying to get prepared for the transition. I am 27 years old and I have been a type 1 diabetic since the age of 11.

I have been a vegetarian for 13 years and a vegan for 7. I am wondering if anyone has experience with doing the gluten-free, vegan diet? I am scared that I will never be able to eat out anymore.

Why are they telling you you need an endoscopy if they have already given you the celiac diagnosis?

Mango04 Enthusiast
Hi everyone,

I was recently diagnosed with celiac. I am still eating gluten because I have to get my endoscopy in a couple of weeks but I am trying to get prepared for the transition. I am 27 years old and I have been a type 1 diabetic since the age of 11.

I have been a vegetarian for 13 years and a vegan for 7. I am wondering if anyone has experience with doing the gluten-free, vegan diet? I am scared that I will never be able to eat out anymore.

Thanks!

Hi -

I'm not vegan, but vegan restaurants are my favorite. I usually don't have a very hard time getting gluten-free food at vegan restaurants (and I'm soy-free too). There's also an entirely vegan market near me and I love shopping there for gluten-free foods. I especially love raw vegan food.

AndreaB Contributor

Welcome! :D

I was vegan before being diagnosed with allergy and later through enterolab intolerance to gluten and soy. I am also allergic to some beans and my hubby is allergic to pinto and not willing to try others again. Please if you feel you must remain on the vegan diet, don't rely on soy to fill the gap. Soy can cause as much damage to the villi as gluten and it is a cummalative allergen. If you can tolerate any meat at all, please consider buying only the organic or natural meat that hasn't been fed antibiotics or hormones. It is very expensive but worth it for better health. If you don't feel you can go back to eating meat than you will need to rely on beans for your protein with a little soy thrown in. Please be advised that pinto beans are also one of the highest allergenic beans (soy is highest). Also if you don't want to eat meat, maybe you could return to a ovo vegetarian diet and start eating eggs again. Again be picky about what you buy and only buy the cage free, organic eggs. We buy the ones with omega 3 from wild oats. Wild Oats brand and they are also organic.

You will find a wealth of information of this site.

lorka150 Collaborator

i follow a closely related vegan diet (the only non-vegan food i use it honey, and sometimes egg whites in baking and actually find it easier that anything else with eating. because i eat a whole foods diet, i never worry about cross contamination.

regarding eating out, i cannot answer your question as every time i have, i have gotten cross contaminated, however, most vegan restaurants, i am sure, are more diet aware than anywhere else.

BRUMI1968 Collaborator

I have been a vegan eater (except for honey and salmon - I know the salmon is a big one...but other than that I fit the diet well) for two years, vegetarian (except the salmon) for fifteen years.

I did find that when I had to go gluten-free, it was more challenging than if I was a meat/cheese eater. Lots of folks on here would talk about yummy meaty/cheesy things they were eating instead of gluten things...but all I had was veggies, fruits, nuts, etc.

All was fine, actually, until I decided to quit grains and beans altogether, to see if that would help some ongoing problems I was having. Suddenly, I didn't have enough to eat, and especially in the protein department.

I made the choice to TRY eating farm-raised ethically treated chickens and eggs (I visited the farm to check) to see how I felt, both ethically and physically. So far it is going alright, though it's only been a few days.

This diet is totally DOABLE as a vegan - it just requires more diligence. And I would definitely stay away from soy - whatever you use now for protein that has obviously been working for you for some time, should work the same. I guess the combining to get full amino acid profiles might be an issue. Well, beans and corn make a complete protein, so that's one way. Nuts and seeds of course, and quinoa is a full protein. Plus, not all folks need a huge amount of protein. If you've been at this vegan thing as long as you have, you must be doing alright.

Do you ever get the magazine Herbivore. I LOVE that magazine.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - ShariW commented on Scott Adams's article in Frequently Asked Questions About Celiac Disease
      4

      What are Celiac Disease Symptoms?

    2. - klmgarland replied to klmgarland's topic in Dermatitis Herpetiformis
      2

      Help I’m cross contaminating myself,

    3. - Scott Adams replied to klmgarland's topic in Dermatitis Herpetiformis
      2

      Help I’m cross contaminating myself,

    4. - Scott Adams replied to Jmartes71's topic in Coping with Celiac Disease
      1

      My only proof

    5. - Scott Adams replied to Colleen H's topic in Related Issues & Disorders
      1

      Methylprednisone treatment for inflammation?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,908
    • Most Online (within 30 mins)
      7,748

    ebrown
    Newest Member
    ebrown
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • klmgarland
      Thank you so very much Scott.  Just having someone understand my situation is so very helpful.  If I have one more family member ask me how my little itchy skin thing is going and can't you just take a pill and it will go away and just a little bit of gluten can't hurt you!!!! I think I will scream!!
    • Scott Adams
      It is difficult to do the detective work of tracking down hidden sources of cross-contamination. The scenarios you described—the kiss, the dish towel, the toaster, the grandbaby's fingers—are all classic ways those with dermatitis herpetiformis might get glutened, and it's a brutal learning curve that the medical world rarely prepares you for. It is difficult to have to deal with such hyper-vigilance. The fact that you have made your entire home environment, from makeup to cleaners, gluten-free is a big achievement, but it's clear the external world and shared spaces remain a minefield. Considering Dapsone is a logical and often necessary step for many with DH to break the cycle of itching and allow the skin to heal while you continue your detective work; it is a powerful tool to give you back your quality of life and sleep. You are not failing; you are fighting an incredibly steep battle. For a more specific direction, connecting with a dedicated celiac support group (online or locally) can be invaluable, as members exchange the most current, real-world tips for avoiding cross-contamination that you simply won't find in a pamphlet. You have already done the hardest part by getting a correct diagnosis. Now, the community can help you navigate the rest. If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
    • Scott Adams
      It's very frustrating to be dismissed by medical professionals, especially when you are the one living with the reality of your condition every day. Having to be your own advocate and "fight" for a doctor who will listen is an exhausting burden that no one should have to carry. While that 1998 brochure is a crucial piece of your personal history, it's infuriating that the medical system often requires more contemporary, formal documentation to take a condition seriously. It's a common and deeply unfair situation for those who were diagnosed decades ago, before current record-keeping and testing were standard. You are not alone in this struggle.
    • Scott Adams
      Methylprednisolone is sometimes prescribed for significant inflammation of the stomach and intestines, particularly for conditions like Crohn's disease, certain types of severe colitis, or autoimmune-related gastrointestinal inflammation. As a corticosteroid, it works by powerfully and quickly suppressing the immune system's inflammatory response. For many people, it can be very effective at reducing inflammation and providing rapid relief from symptoms like pain, diarrhea, and bleeding, often serving as a short-term "rescue" treatment to bring a severe flare under control. However, experiences can vary, and its effectiveness depends heavily on the specific cause of the inflammation. It's also important to be aware that while it can work well, it comes with potential side effects, especially with longer-term use, so it's typically used for the shortest duration possible under close medical supervision. It's always best to discuss the potential benefits and risks specific to your situation with your gastroenterologist.
    • Scott Adams
      Based on what you've described, it is absolutely possible you are dealing with non-celiac gluten sensitivity (NCGS).  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.   Your situation is a classic presentation: a negative celiac panel but a clear, recurring pattern of symptoms triggered by gluten. The symptoms you listed—particularly the extreme fatigue, bloating, neurological-psychiatric symptoms like depression and anxiety, and even the skin manifestations like facial flushing—are all well-documented in research on NCGS. It's important to know that you are not alone in experiencing this specific combination of physical and emotional reactions. The only way to know for sure is to commit to a strict, 100% gluten-free diet under the guidance of a doctor or dietitian for a period of several weeks to see if your symptoms significantly improve. It is also crucial to rule out other potential causes, so discussing these symptoms with a gastroenterologist is a very important next step.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.