Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Waiting For Enterolab

oceangirl

Recommended Posts

oceangirl Collaborator
oceangirl
Posted

Hi Everyone.

I WAS logged in (I thought) as "Laferriere", but as I am machine and computer incompatible, something went VERY wrong and I haven't been able to write in for weeks! Well, now I've changed my log-in name and, hopefully, have figured this out. I thought I would post when I got the results from the Enterolab testing. I, too, have some reservations with the authenticity of Dr. Fine, but I decided to go ahead anyway. I hope to have the gene-testing and other tests back maybe next week. I have scientists in my family-Dad, Uncles, cousins- and know that peer review is essential to good science. If anyone can point the way to more info on Dr. Fine, that'd be great. Thank you all again for your posts. 3 months gluten-free and still nowhere near symptom-free. But MUCH better overall. Still trying to figure it all out. This gluten/food thing is truly an odyssey!

lisa from Maine

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Nancym Enthusiast
Nancym
Posted

He's got a CV on his web site with references to his publications.

oceangirl Collaborator
oceangirl
Posted
  • Author
He's got a CV on his web site with references to his publications.

Thank you. I don't know what a "CV" is, but I'll try to find out. I have been to his website.

lisa

CarlaB Enthusiast
CarlaB
Posted
Thank you. I don't know what a "CV" is, but I'll try to find out. I have been to his website.

lisa

It's the abbreviation for the latin words that basically mean resume. I'd try to write out the latin words, but I'm sure I'd butcher the spelling of them!!

oceangirl Collaborator
oceangirl
Posted
  • Author
It's the abbreviation for the latin words that basically mean resume. I'd try to write out the latin words, but I'm sure I'd butcher the spelling of them!!

Thank you, Carla- I feel a bit stupid about that now! I've found some more stuff on him and am STILL waiting1

lisa

CarlaB Enthusiast
CarlaB
Posted
Thank you, Carla- I feel a bit stupid about that now! I've found some more stuff on him and am STILL waiting1

lisa

Don't feel stupid, until last year, I didn't know what it meant either. My results took less than two weeks.

AndreaB Contributor
AndreaB
Posted

They say they will have them back to you within three weeks...I think our was only two weeks (maybe only 1 1/2 weeks) since we got them back a week earlier than we thought we would.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jabberwife Explorer
jabberwife
Posted

I haven't gotten mine yet. :(

It's been 2 weeks tomorrow.

I'm getting impatient! I feel like the Jeopardy theme should be running in the background!

oceangirl Collaborator
oceangirl
Posted
  • Author
I haven't gotten mine yet. :(

It's been 2 weeks tomorrow.

I'm getting impatient! I feel like the Jeopardy theme should be running in the background!

Thanks, All...yes, I am anxious just to have some more info-maybe. It will be officially 3 wks on July 26, so I guess I should just breathe. Having a very bad week this week and can't find the hidden gluten. Has anyone ever had intestinal reaction to waxed dental floss or suntan lotion?

lisa

CarlaB Enthusiast
CarlaB
Posted
Thanks, All...yes, I am anxious just to have some more info-maybe. It will be officially 3 wks on July 26, so I guess I should just breathe. Having a very bad week this week and can't find the hidden gluten. Has anyone ever had intestinal reaction to waxed dental floss or suntan lotion?

lisa

No, have you been grilling out? I've had reactions to charcoal! Could you have a problem with dairy or soy? I was looking for the hidden gluten and discovered dairy. Keep reading and rereading all your products till you feel better. You'll keep finding stuff that has gluten.

oceangirl Collaborator
oceangirl
Posted
  • Author
No, have you been grilling out? I've had reactions to charcoal! Could you have a problem with dairy or soy? I was looking for the hidden gluten and discovered dairy. Keep reading and rereading all your products till you feel better. You'll keep finding stuff that has gluten.

Actually, Carla, I brought my food to my Mom's birthday barbecue, (this was Sat. the 15th) but decided to go ahead and be brave and eat a couple of roasted zucchini with salt and balsalmic vin. Things were okay that night, but not good since. Last night was THE WORST since April- just about every symptom back. Nights are the worst for me-usually after 2 AM. It's not good 'cause I never really rest! Maybe the barbecue was a bad idea, although I didn't have more than three thick slices of zuc. I am very frustrated and discouraged- I was doing a lot better. Does this happen?

lisa

CarlaB Enthusiast
CarlaB
Posted
Actually, Carla, I brought my food to my Mom's birthday barbecue, (this was Sat. the 15th) but decided to go ahead and be brave and eat a couple of roasted zucchini with salt and balsalmic vin. Things were okay that night, but not good since. Last night was THE WORST since April- just about every symptom back. Nights are the worst for me-usually after 2 AM. It's not good 'cause I never really rest! Maybe the barbecue was a bad idea, although I didn't have more than three thick slices of zuc. I am very frustrated and discouraged- I was doing a lot better. Does this happen?

lisa

Sounds normal. I've been gluten-free for seven months and just got glutened last Friday. My brain-fog let up enough today to do some filing and balance the checkbook, but my energy certainly isn't where it could be.

Be sure to read balsamic vinegar's label. I believe that some of it might have flavorings if it's not real balsamic ... someone correct me if I'm wrong. Also, balsmaic vinagraitte dressing often has soy sauce in it (I read several recipes for it on the internet and discovered this).

Don't get discouraged. It will happen less often as you go on.

kbtoyssni Contributor
kbtoyssni
Posted
Sounds normal. I've been gluten-free for seven months and just got glutened last Friday. My brain-fog let up enough today to do some filing and balance the checkbook, but my energy certainly isn't where it could be.

Be sure to read balsamic vinegar's label. I believe that some of it might have flavorings if it's not real balsamic ... someone correct me if I'm wrong. Also, balsmaic vinagraitte dressing often has soy sauce in it (I read several recipes for it on the internet and discovered this).

Don't get discouraged. It will happen less often as you go on.

Shoot - I get balsamic vinagarette all the time. Maybe this is why I've been feeling yucky recently... Thanks for posting.

I also heard somewhere that some charcoals are made from partical-board type woods, which contain glue, which in turn can contain gluten... I always use foil when BBQing. My mum says that some charcoals will say on the package if it's made from "pure" wood or not, but I haven't actually checked this out myself.

oceangirl Collaborator
oceangirl
Posted
  • Author
Shoot - I get balsamic vinagarette all the time. Maybe this is why I've been feeling yucky recently... Thanks for posting.

I also heard somewhere that some charcoals are made from partical-board type woods, which contain glue, which in turn can contain gluten... I always use foil when BBQing. My mum says that some charcoals will say on the package if it's made from "pure" wood or not, but I haven't actually checked this out myself.

Thanks, Carla- I know from reading this board that all of you seem to have ups and downs- I guess it's the going right back to the beginning that scares me. AND when I can't be sure of the source. I knew the basalmic was iffy and my sister had it in a container, not the original jar, so... I'm trying not to get depressed again. Thank you for your encouragment.

lisa

Thanks, Carla- I know from reading this board that all of you seem to have ups and downs- I guess it's the going right back to the beginning that scares me. AND when I can't be sure of the source. I knew the basalmic was iffy and my sister had it in a container, not the original jar, so... I'm trying not to get depressed again. Thank you for your encouragment.

lisa

and thank you about the charcoal, kbtoyssni!

tarnalberry Community Regular
tarnalberry
Posted

btw, CV = ciriculum vitae, generally used for scientific researchers, professors, and practicing doctors whereas everyone else uses 'resume'

CarlaB Enthusiast
CarlaB
Posted

Natural charcoal is okay and not hard to find. It's actually easier to light, but doesn't burn as long, so be ready when you light it!

mmaccartney Explorer
mmaccartney
Posted
Shoot - I get balsamic vinagarette all the time. Maybe this is why I've been feeling yucky recently... Thanks for posting.

Newmans Own Balsamic Vinagrette is gluten-free and Dairy Free. It is good and should be widely available.

Open Original Shared Link

oceangirl Collaborator
oceangirl
Posted
  • Author
Natural charcoal is okay and not hard to find. It's actually easier to light, but doesn't burn as long, so be ready when you light it!

Carla and all,

Thank you again for your posts. I did just get the Enterolab results and while I don't have the two celiac genes- Yay!- I have two genes predisposing to gluten sensitivity and apparently the Antigliadin shows I'm still reacting to gluten as of two weeks ago! So I guess I haven't found all the places it's hiding. They say because I got one gene from each parent so I gave one to all (both) my kids. So I guess they'll know and I'll know to pay attention to that. Yesterday I cut out a few more things- a ginger spice that I can't get confirmation of gluten-free and some candied ginger (my only sweet!) It was a better day but I'm very hungry and I can't afford to lose any weight. Carla, I've seen you post that Ruffles potato chips are okay. I stopped Cape Cod because I realized they have corn oil and I'm not eating corn. I'm scared to try anything new right now- particularly processed food of which I eat almost none except the chips and my rice cereal. I'm going on... Take care all and good health to all!

lisa

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. cristiana
      - cristiana replied to Dizzyma's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Newly diagnosed mam to coeliac 11 year old

      Hi @Dizzyma I note what @trents has commented about you possibly posting from the UK. Just to let you know that am a coeliac based in the UK, so if that is the case, do let me know if can help you with any questions on the NHS provision for coeliacs. If you are indeed based in the UK, and coeliac disease is confirmed, I would thoroughly recommend...
    2. trents
      - trents replied to Dizzyma's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Newly diagnosed mam to coeliac 11 year old

      Welcome to the celic.com community @Dizzyma! I'm assuming you are in the U.K. since you speak of your daughter's celiac disease blood tests as "her bloods". Has her physician officially diagnosed her has having celiac disease on the results of her blood tests alone? Normally, if the ttg-iga blood test results are positive, a follow-up endoscopy...
    3. Dizzyma
      - Dizzyma posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Newly diagnosed mam to coeliac 11 year old

      Hi all, I have so many questions and feel like google is giving me very different information. Hoping I may get some more definite answers here. ok, my daughter has been diagnosed as a coeliac as her bloods show anti TTG antibodies are over 128. We have started her on a full gluten free diet. my concerns are that she wasn’t actually physically s...
    4. Scott Adams
      0

      Better-Than-Takeout Gluten-Free Chicken Fried Rice

    5. Kimmy88
      - Kimmy88 commented on Scott Adams's article in Winter 2026 Issue
      2

      Gut Healing After a Celiac Diagnosis: What Science Says About Recovery Time (+Video)

      Excellent article!! I shared with my family, so they would understand!
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,921
    • Most Online (within 30 mins)
      7,748
    Rusty49
    Newest Member
    Rusty49
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • cristiana
      Newly diagnosed mam to coeliac 11 year old

      By cristiana · Posted

      Hi @Dizzyma I note what @trents has commented about you possibly posting from the UK.  Just to let you know that am a coeliac based in the UK, so if that is the case, do let me know if can help you with any questions on the NHS provision for coeliacs.    If you are indeed based in the UK, and coeliac disease is confirmed, I would thoroughly recommend you join Coeliac UK, as they provide a printed food and drink guide and also a phone app which you can take shopping with you so you can find out if a product is gluten free or not. But one thing I would like to say to you, no matter where you live, is you mention that your daughter is anxious.  I was always a bit of a nervous, anxious child but before my diagnosis in mid-life my anxiety levels were through the roof.   My anxiety got steadily better when I followed the gluten-free diet and vitamin and mineral deficiencies were addressed.  Anxiety is very common at diagnosis, you may well find that her anxiety will improve once your daughter follows a strict gluten-free diet. Cristiana 
    • trents
      Newly diagnosed mam to coeliac 11 year old

      By trents · Posted

      Welcome to the celic.com community @Dizzyma! I'm assuming you are in the U.K. since you speak of your daughter's celiac disease blood tests as "her bloods".  Has her physician officially diagnosed her has having celiac disease on the results of her blood tests alone? Normally, if the ttg-iga blood test results are positive, a follow-up endoscopy with biopsy of the small bowel lining to check for damage would be ordered to confirm the results of "the bloods". However if the ttg-iga test score is 10x normal or greater, some physicians, particularly in the U.K., will dispense with the endoscopy/biopsy. If there is to be an endoscopy/biopsy, your daughter should not yet begin the gluten free diet as doing so would allow healing of the small bowel lining to commence which may result in a biopsy finding having results that conflict with the blood work. Do you know if an endoscopy/biopsy is planned? Celiac disease can have onset at any stage of life, from infancy to old age. It has a genetic base but the genes remain dormant until and unless triggered by some stress event. The stress event can be many things but it is often a viral infection. About 40% of the general population have the genetic potential to develop celiac disease but only about 1% actually develop celiac disease. So, for most, the genes remain dormant.  Celiac disease is by nature an autoimmune disorder. That is to say, gluten ingestion triggers an immune response that causes the body to attack its own tissues. In this case, the attack happens in he lining of the small bowel, at least classically, though we now know there are other body systems that can sometimes be affected. So, for a person with celiac disease, when they ingest gluten, the body sends attacking cells to battle the gluten which causes inflammation as the gluten is being absorbed into the cells that make up the lining of the small bowel. This causes damage to the cells and over time, wears them down. This lining is composed of billions of tiny finger-like projections and which creates a tremendous surface area for absorbing nutrients from the food we eat. This area of the intestinal track is where all of our nutrition is absorbed. As these finger-like projections get worn down by the constant inflammation from continued gluten consumption before diagnosis (or after diagnosis in the case of those who are noncompliant) the efficiency of nutrient absorption from what we eat can be drastically reduced. This is why iron deficiency anemia and other nutrient deficiency related medical problems are so common in the celiac population. So, to answer your question about the wisdom of allowing your daughter to consume gluten on a limited basis to retain some tolerance to it, that would not be a sound approach because it would prevent healing of the lining of her small bowel. It would keep the fires of inflammation smoldering. The only wise course is strict adherence to a gluten free diet, once all tests to confirm celiac disease are complete.
    • Dizzyma
      Newly diagnosed mam to coeliac 11 year old

      By Dizzyma · Posted

      Hi all, I have so many questions and feel like google is giving me very different information. Hoping I may get some more definite answers here. ok, my daughter has been diagnosed as a coeliac as her bloods show anti TTG antibodies are over 128. We have started her  on a full gluten free diet. my concerns are that she wasn’t actually physically sick on her regular diet, she had tummy issues and skin sores. My fear is that she will build up a complete intolerance to gluten and become physically sick if she has gluten. Is there anything to be said for keeping a small bit of gluten in the diet to stop her from developing a total intolerance?  also, she would be an anxious type of person, is it possible that stress is the reason she has become coeliac? I read that diagnosis later in childhood could be following a sickness or stress. How can she have been fine for the first 10 years and then become coeliac? sorry, I’m just very confused and really want to do right by her. I know a coeliac and she has a terrible time after she gets gluttened so just want to make sure going down a total gluten free road is the right choice. thank you for any help or advise xx 
    • xxnonamexx
      Fermented foods, Kefir, Kombucha?

      By xxnonamexx · Posted

      very interesting thanks for the info  
    • Florence Lillian
      gluten free cookie recipes

      By Florence Lillian · Posted

      More cookie recipes ...thanks so much for the heads-up Scott.  One can never have too many.  Cheers, Florence.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.