Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Really Bad Joint Pain...


Elizabeth-Elindel

Recommended Posts

Elizabeth-Elindel Rookie

Hey all!

Sometimes I get really bad joint pain in my hands and wrists. I know that I am supposed to be CF, could it beacuse I somehow got some milk (goat's or cow's?). Or is this more commenly from gluten injestion?

How am I supposed to react?? I've been taking liquid advil, but somedays it hurts sooo bad and it seems like it doesn't make a difference for a long time (as in, more than two hours or so). I tried "Tiger Balm" and ice all day today and feel a bit better tonight. I also will use a heating pad if I'm at home and can get to one. Any other ideas?

Elizabeth


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

have you been evaluated for tendonitis, carpal tunnel, and rheumatoid arthritis?

Ursa Major Collaborator

Elizabeth, I used to get debilitating pain in my hands and wrists, often so bad, that I couldn't touch things, was unable to hold a cup with one hand, and felt like screaming. I never get that pain any more now, unless I eat things I shouldn't.

Check out this thread, it might be helpful: Open Original Shared Link

sore joints Apprentice
Hey all!

Sometimes I get really bad joint pain in my hands and wrists. I know that I am supposed to be CF, could it beacuse I somehow got some milk (goat's or cow's?). Or is this more commenly from gluten injestion?

How am I supposed to react?? I've been taking liquid advil, but somedays it hurts sooo bad and it seems like it doesn't make a difference for a long time (as in, more than two hours or so). I tried "Tiger Balm" and ice all day today and feel a bit better tonight. I also will use a heating pad if I'm at home and can get to one. Any other ideas?

Elizabeth

Hi Elizabeth,

I'm still new to this. What is CF. I also suffer from bone and joint pain. This started following my pregnancies. It is usually in my hands, but also in my elbows and shoulders and occasionally jumps to other parts of my body. I feel like I'm going crazy b/c one minute it could be fine and the next quite painful. Are you thinking it is gluten related or milk related. It is so nice to find someone else who has the same syptoms.

Alison

ravenwoodglass Mentor

For myself this pain and the resulting arthritic joint damage came from gluten. I was diagnosed with fibro and chronic fatigue at one point also. It took a few months for the joint and muscle pain to resolve and of course the joint damage itself is permanent but my rather ugly hands are now fully functioning and pain free. The only time I have joint or muscle pain now is when I injest gluten. I wish I could tell you something that would help, I was on many of the arthritis meds, including celebrex and bextra for years before my celiac diagnosis and none of them really did much for the pain or inflammation.

BRUMI1968 Collaborator

I was getting bad pains in my wrist, forearms, hands, etc., especially as they got cold or as I used the mouse on the computer. I finally realized that four momths earlier, I'd had my arm practically pulled out of the socket by a drunken friend of mine who insisted I swing dance with her. (Why do drunk people weigh ten times more than sober people.) I finally figured out I had pinched a nerve...but for me it was only on one side. You might consider something like that if there is something lurking in the recent past that might've started it for you. Any drunken friend swing dancing?

Elizabeth-Elindel Rookie

No, I haven't been swing dancing with drunk friends. :P Not that I'm aware of at least... ;)

I know that arthritis runs in my family. Perhaps that could be the issue.

Any other ideas tho....?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



TCA Contributor

I've had bad joint pains all my life, including in my hands and wrists. I was told they were growing pains by my dr. as a child after the RA test was negative. I still had growing pains at 29. I went gluten-free for my celiac daughter whom I was nursing and after a couple months I noticed the pains had stopped. If I eat gluten accidently they come back with a vengence. I used to take typlenol all the time, do heating pads, etc. It was getting to where I was dropping things all the time. All this has improved gluten-free.

are you gluten-free? if so, how long? It took a long time for my pains to go, so be patient if you are new to the diet. If you're not new, you might want to go to a specialist.

Elizabeth-Elindel Rookie

I've been gluten-free for six months. How long did it take for your pain to go away?

TCA Contributor
I've been gluten-free for six months. How long did it take for your pain to go away?

I know it sounds crazy, but I'm not exactly sure. I never thought I had issues with gluten because I didn't have the typical symptoms. I just realized one day that I didn't need the tylenol anymore. It was probably 3-4 mos. I hope you feel better soon!

tarnalberry Community Regular

If you haven't had this checked on by a doctor, please do. Some conditions - including the ones I listed - get worse without proper treatment. It *could* be exacerbated by gluten, but it might also be something else. Gluten isn't the cause of *everything* that goes wrong with us, though I know sometimes we fall into the trap of thinking that's the case. B)

plantime Contributor

Tiffany is right: you need to have your joints looked at and evaluated by a doctor. I had problems with my left hand that turned out to be a pinched off nerve in my elbow. It took surgery to correct it. For the pain and stiffness in my joints, I use warm water, heat packs, and lots of stretching. Keeping moving helps more than anything else.

lonewolf Collaborator

Getting checked out by a rheumatologist would be a good idea to rule some things out. You might also consider that you have other food intolerances. I had horrible arthritis in my hands and most other body parts and it got better after I eliminated wheat/gluten, dairy, eggs, soy, peanuts, all meat except fish and sugar. Just going gluten-free woldn't have done it for me. A little over 10 years out, I still avoid gluten, dairy, eggs and soy and my joints feel fine.

Nancym Enthusiast

There are all kinds of autoimmune arthritises that flare up. Getting evaluated by a good rhumatoligist is a good idea. I found out I have Akylosing Spondylitis and I'm on a med to treat that. It has helped a lot.

Elizabeth-Elindel Rookie

thanks so much for all your help! :)

I shall go see a doctor soon about this stuff.

:)

Elizabeth

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,797
    • Most Online (within 30 mins)
      7,748

    MelodyDF
    Newest Member
    MelodyDF
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Waterdance
      Thank you for saying that. That doctor diagnosed me with IBS with no follow-up so the relationship is already concluded. If I pursue diagnosis further I'll request someone else. 
    • Rejoicephd
      Hey everyone. Thanks again for your suggestions. I wanted to give an update and ask for some follow-up suggestions from you all.  So I did go through all of my food items and stopped eating things that were “gluten free” and switched over to the “certified gluten free” ones (the ones with the g symbol). I also stayed away from restaurants except once and there I ordered something raw vegan and gluten free hoping for the best. I also stayed away from oats and soy and dairy. I've also been increasing my vitamin B complex. I've been doing this for about 12 days and while I know that's not that long, I'm still getting sick. Sometimes having diarrhea. Sometimes getting headaches and having necklaces. Sometimes waking up feeling horrible brain fog. I did go to my GI doc and they did a blood test and found my TtG-IgA was in the negative range (and a lower number than I'd had before). I also had normal levels of CRP. My stool showed no elevation of calprotectin and no pathogens. My GI doc said the symptoms could be related to a gluten exposure or to IBS. I'm keeping a food diary to see if I can narrow down whats going on. I know I have good days and bad days and Im trying to isolate what makes a good day versus a bad day. Generally so far it looks like if it eat something super cautious like raw vegetables that I chopped myself into a salad and almonds, im fine but if I eat something more complex including, say, chicken and rice (even if packaged and certified gluten free or made by me with gluten free ingredients), it may not go so well. I may end up with either a headache, neck tension, brain fog, and/or diarrhea that day or the morning after. Any other thoughts or suggestions? I am planning to start tracking my foods again but I wanted to do it in more detail this time (maybe down to the ingredient level) so are there any common ingredients that celiacs have issues with that you all know of that I should track? I've got dairy, oats, soy, eggs, corn, peas, lentils on my “watch list”. Other things I should add? I'm hoping if I track for another two weeks I can maybe pin down some sensitivities. Appreciate the help and tips. Thank you so much!!
    • trents
      "My GI doctor ruled out gluten celiac entirely because I didn't have skin rash." Are you serious? The overwhelming majority of people with confirmed celiac disease do not have the rash. It's called dermatitis herpetiformis. It is found in only about 10-15% of those with celiac disease: https://www.celiac.ca/gluten-related-disorders/dermatitis-herpetiformis/ If your GI doc is operating on that piece of misinformation, I would start looking for a new GI doc because I wouldn't trust him/her in general. 
    • Waterdance
      Thank you so much for your informative reply. My GI doctor ruled out gluten celiac entirely because I didn't have skin rash. I had a histamine response to wheat and milk by scratch test by an allergist. I'm not always symptomatic but the older I get the worse it gets. I've found through trial and error that I can react to all grains. Buckwheat and corn included. I tolerate some rice but I wouldn't want to eat it every day. Potato is pretty good for me but I can't eat it every day either. I compromise with squash. I tolerate it well. The Best I feel is while fasting. When I'm in pain and discomfort it's easy to fast even long term, it helps. The problem I'm having is I'm great with my diet for 3-6 months then I start to cheat again. When I don't get immediate symptoms I get this foolish false security. I react then go back to my diet. Rinse and repeat. I suppose discipline is my real issue. I'm very tired of perusing a diagnosis. The constant gaslighting and dismissal is exhausting. Thanks for your suggestion of the autoimmune protocol. I will give it a try. Perhaps the guidelines will help me to navigate better.   Thanks again.
    • Scott Adams
      This isn't the first potential celiac disease treatment in the pipeline that failed. There have been others...
×
×
  • Create New...