Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Ferritin Level To High After Iv! Help!


jesscarmel

Recommended Posts

jesscarmel Enthusiast

Hi

about a month ago i had an iron transfusion (iv) because of my anemia. my ferritin was 3.2. normal feritin is between 13 and 150. i got my ferritin tested again today but the results just came in ( i can check them online) and it says 214. this makes me really nervous since i know the doctor didnt see it before he left and i cant ask a doctor until monday.

does anyone know if this is dangerous??? im really feeling anxious about it

Thanks

Jess


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



DingoGirl Enthusiast

HI Jess, and welcome. Gosh, our ferritin levels were about the same....mine was 2.2 last January. It was up to 6 :) at my four-month checkup. But, your level is really high. I don't think it can be good - - can you call your doctor? You need to contact someone about it, I think.....I don't know what this can do to the body - - short-term you may be okay, but I honestly don't know. There are brilliant people on this board, I pray someone steps forward with the answer.

Hugs -

ravenwoodglass Mentor
Hi

about a month ago i had an iron transfusion (iv) because of my anemia. my ferritin was 3.2. normal feritin is between 13 and 150. i got my ferritin tested again today but the results just came in ( i can check them online) and it says 214. this makes me really nervous since i know the doctor didnt see it before he left and i cant ask a doctor until monday.

does anyone know if this is dangerous??? im really feeling anxious about it

Thanks

Jess

This is quite high but you don't need to worry too much about it until you talk to your doctor on Monday. One thing I would suggest is that if you are taking a vitamin with iron in it that you discontinue that at least until you talk to the doctor. There are folks that have a genetic predisposition to very high iron levels and they are treated by simply having blood drawn in the same way they would do it for a blood donation. The good thing is you know you certainly absorbed the iron they gave you. I am not a medical professional but I suspect that this will not overly concern your doctor.

jesscarmel Enthusiast

thank you susan and ravenwoodglass. that makes me feel better. i get really nervous about everything and when i saw that on the computer i was like oh my goodness. i will call the dr on monday. i think i could page him earlier but i feel bad bothering him when its not really an emergency.....

Jess

Ursa Major Collaborator

Normal ferretin levels are between 50 and 300. Therefore, your level is still considered normal. Mind you, I think it is on the high side. But since it's not likely to stay there for long, I wouldn't worry about it. But the advice of not supplementing with iron right now is sound.

jenvan Collaborator

Jess-

Don't worry...that makes perfect sense after an infusion. Mine were higher than yours post infusion and still normal. Most likely, the number will drop and "even out" over the coming months.

penguin Community Regular

The ferritin tests from the lab my dr. uses (and everyone else in town) says the normal range is 10 to 220, FWIW.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



andrew1234 Newbie

Ferritin is a protein which carries iron in the blood. Increased ferritin means that you have slightly increased iron in your blood. Having ferritin levels slightly higher than the reference range is completely normal. Your body will quickly adjust to it by decreasing intestinal absorption of iron . The only problem that could arise is if you have many IV iron infusion or people who have multiple blood transfusion over many years. This produces a condition called secondary hemochromatosis. But to get that you'd need to have multiple transfusions says every 3 weeks over 5 years.

jesscarmel Enthusiast

thank you so much to everyone who replied. it made me feel better to know all this information!

i called the dr today, (who made me feel like i was crazy for even asking) and he said it was okay.

Jess

  • 12 years later...
Keerthana Newbie

Hi I have a similar situation. My ferritin level is 270 one month after infusion. However my doctor says it normal. My Hb Level was 11.9 before and 13 now. However I am still worried as in many sites it is mentioned that iron overload may result in liver cirrhosis or carcinoma. I recently lost my brother for cancer. I am also consuming iron rich food like millers, spinach, dates, apple on a daily basis. Should I discontinue this as well? Is this normal?

GFinDC Veteran
58 minutes ago, Keerthana said:

Hi I have a similar situation. My ferritin level is 270 one month after infusion. However my doctor says it normal. My Hb Level was 11.9 before and 13 now. However I am still worried as in many sites it is mentioned that iron overload may result in liver cirrhosis or carcinoma. I recently lost my brother for cancer. I am also consuming iron rich food like millers, spinach, dates, apple on a daily basis. Should I discontinue this as well? Is this normal?

I doubt you have a problem from the veggies you are eating.  The iron in veggies is not well absorbed.  If you are really concerned make an appointment to give blood.  That will lower your iron levels.  But I don't recommend it since it is probably entirely ok as is.

Vitamin C help us absorb iron.  So you can cut down on citrus or other vit C sources also.

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,204
    • Most Online (within 30 mins)
      7,748

    JaymeC
    Newest Member
    JaymeC
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      Celiac disease is the most likely cause, but here are articles about the other possible causes:    
    • xxnonamexx
      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
    • cristiana
      Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result.  I am interested to know, is your gastroenterologist concerned?  Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous damage, too! In my own case, my consultant wasn't remotely concerned - in fact, he said I might still get this result even if all I ever did was eat nothing but rice and water.   My coeliac blood tests were still steadily improving, albeit slowly, which was reassuring.
    • trents
      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease or gluten/oats exposure. See attachment. But you might try eliminating oats to start with and possibly dairy for a few months and then seek another endoscopy/biopsy to see if there was a reduction in lymphocyte counts. 
    • Scott Adams
      This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especially since Eden has a long-standing reputation for transparency. While the lack of gluten labeling can understandably give pause, manufacturer confirmation like this is often what people rely on for traditionally fermented products. As always, trusting your body after trying it is reasonable, but based on the information you gathered, your conclusion makes sense.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.