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College Food

CBM

By CBM
in Coping with Celiac Disease

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CBM Newbie
CBM
Posted

My daughter is beginning her college search and we have already run into a problem with one school telling us that they may not be able to accomodate her dietary/cooking needs. Does anyone have any ideas on how to handle this or work around it? Any suggestions on small east coast schools that may be suitable?

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Aerin328 Apprentice
Aerin328
Posted

Most colleges have various meal plans. There is probably one available where she will have only very limited access to the college cafeteria but she will save $ ; the extra $ can then be used to buy food to cook at home in a controlled environment where it is easier to abstain from evil gluten.

lorka150 Collaborator
lorka150
Posted

i would recommend getting her an on or off campus apartment with her own kitchen. i never, ever could have had the meal plan.

Clark Bent as Stupor-Man Contributor
Clark Bent as Stupor-Man
Posted

most colleges generally require all freshmen to have a meal plan, but you should be able to pretty easily get an exception to this for medical reasons... my sister had some exceptions made for her as a freshmen since she kept kosher...

kbtoyssni Contributor
kbtoyssni
Posted

My brother goes to the University of Wisconsin - LaCrosse and they have gluten free food for their students. I think there are five celiacs out of the 5000 or so students. There's a fridge in the back stocked with gluten-free food and they can use the microwave to cook it up. Everytime I've visited they've been very accomodating. I wanted scrambled eggs for breakfast and they weren't sure what was in the mix so they gave me my own eggs.

ravenwoodglass Mentor
ravenwoodglass
Posted
My daughter is beginning her college search and we have already run into a problem with one school telling us that they may not be able to accomodate her dietary/cooking needs. Does anyone have any ideas on how to handle this or work around it? Any suggestions on small east coast schools that may be suitable?

My DD goes to NorthEastern in Mass. They put her in senior housing her first year so that she would have her own kitchen and did not charge us for the meal plan. Most colleges will do their best to accomodate if you make your needs clear. Her second year she just moved off campus.

queenofhearts Explorer
queenofhearts
Posted

Ever since I was diagnosed I've been urging my son to get tested, since he's had some symptoms over the years that make me a bit suspicious. He says "What's the point since I'd never be able to eat gluten-free at school anyway?" He's a rising sophomore at UNC. He's not required to have a meal plan this year & I feel sure we could work something out... but he just doesn't want to hear about it.

Neither does my sister, who I would BET is celiac, & it's really weird because she has had a series of food "issues" for years, but that's for another thread...

Leah

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    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      @rei.b,  I understand how frustrating starting a new way of eating can be.  I tried all sorts of gluten-free processed foods and just kept feeling worse.  My health didn't improve until I started the low histamine AIP diet.  It makes a big difference.   Gluten fits into opioid receptors in our bodies.  So, removing gluten can cause withdrawal symptoms and reveals the underlying discomfort.  SIBO can cause digestive symptoms.  SIBO can prevent vitamins from being absorbed by the intestines.  Thiamine insufficiency causes Gastrointestinal Beriberi (bloating, abdominal pain, nausea, diarrhea or constipation).  Thiamine is the B vitamin that runs out first because it can only be stored for two weeks.  We need more thiamine when we're sick or under emotional stress.  Gastric Beriberi is under recognised by doctors.  An Erythrocyte Transketolace Activity test is more accurate than a blood test for thiamine deficiency, but the best way to see if you're low in thiamine is to take it and look for health improvement.  Don't take Thiamine Mononitrate because the body can't utilize it well.  Try Benfotiamine.  Thiamine is water soluble, nontoxic and safe even at high doses.  I thought it was crazy, too, but simple vitamins and minerals are important.  The eight B vitamins work together, so a B Complex, Benfotiamine,  magnesium and Vitamin D really helped get my body to start healing, along with the AIP diet.  Once you heal, you add foods back in, so the AIP diet is worth doing for a few months. I do hope you'll consider the AIP diet and Benfotiamine.
    • captaincrab55
      Finding gluten free ingredients

      By captaincrab55 · Posted

      Imemsm, Most of us have experienced discontinued, not currently available or products that suddenly become seasonal.   My biggest fear about relocating from Maryland to Florida 5 years ago, was being able to find gluten-free foods that fit my restricted diet.  I soon found out that the Win Dixie and Publix supper markets actually has 99% of their gluten-free foods tagged, next to the price.  The gluten-free tags opened up a  lot of foods that aren't actually marked gluten-free by the manufacture.  Now I only need to check for my other dietary restrictions.  Where my son lives in New Hartford, New York there's a Hannaford Supermarket that also has a gluten-free tag next to the price tag.  Hopefully you can locate a Supermarket within a reasonable travel distance that you can learn what foods to check out at a Supermarket close to you.  I have dermatitis herpetiformis too and I'm very sensitive to gluten and the three stores I named were very gluten-free friendly.  Good Luck 
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
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