Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Any Celiacs From Gainesville, Florida?

eleep

Recommended Posts

eleep Enthusiast
eleep
Posted

There used to be a Gainesville celiac group, but it is apparently defunct. I'm a UF graduate student, so I'm thinking about starting one through UF (if there are a bunch of students) or just in Gainesville itself.

Let me know if anyone's interested -- I want to get a sense of how many people there might be before I take this on (otherwise, it's not a productive procrastination tool for me as I should be writing my dissertation).

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


samking72 Rookie
samking72
Posted

I'm in Orlando... kind of far :(

  • 4 weeks later...
Jace006 Newbie
Jace006
Posted

I am a student at SFCC, is that good enough?

I have been looking for a local support group and have been unsuccessful so far, so I would be interested in starting one, or at least attending.

Let me know.

eleep Enthusiast
eleep
Posted
  • Author

SFCC is definitely close enough -- and there's one other UF graduate student celiac on this listserv as well! I'm not in a great position for the next few weeks to get something started (turning in a major draft to my advisor soon), but perhaps sometime in September we could set something up?

beaglemania Rookie
beaglemania
Posted

I live in Sout Florida. :( far from Gainesville

*South*

floridanative Community Regular
floridanative
Posted

I'm surprised they dont' have a group there. I go there to see DH's family every year and I'd always ask local groups where I should eat in their town. We almost always go to Hops and some place called Ashleys which is sort of a dive but I've been to neither since my dx. I think you can get help starting a group from www.csa.org (not sure of address). Best of luck to you!

  • 11 months later...
laurelfla Enthusiast
laurelfla
Posted

hi!

i'm very interested in getting together... you guys still up for it?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


beaglemania Rookie
beaglemania
Posted

I live in south florida. martin county. maybe in a couple of years I might be a gator though.

beaglemania Rookie
beaglemania
Posted

Florida is much to big of a state. everybody lives everywhere!! I just went on vacation and we drove from Ma to Connecticut and I was like, such a short ride to a completely different state!! We also had to drive through Rhode Island. You could drive for hours and never get out of Florida at the end of the day, depending on where you start from. boring, flat, swampland. That's where we live. Go FLORI-DUH. (I discovered from my cousins thats how they pronounce Florida in California.) Nice, huh? :lol:

  • 1 month later...
lj333 Newbie
lj333
Posted

hey,

I am currently a student at UF and was wondering about a support group. If you did start one, I would be more than interested! Let me know your progress!

Thanks!

  • 4 months later...
grantj Newbie
grantj
Posted

Hey, I'm a UF law student and I'd be interested in starting an SG-sponsored Celiac/gluten-free awareness group here at the university with you guys. Send me an e-mail if you are interested, or look me up on facebook.

-Grant Johnson

  • 1 month later...
Katherine Daly, Ph.D. Newbie
Katherine Daly, Ph.D.
Posted

Hi,

I am a PhD student in psychology at UF. I was diagnosed with a pretty severe case of Celiac Disease in 2002 and still struggle to maintain a healthy weight. Besides the weight issue, I am finally feeling that I am able to stick to a 100% gluten free diet and exercise four times a week, which makes me feel very healthy. I also struggle with the skin condition associated with Celiac Disease when I am very ill and that has been pretty devastating. I would love to join a support group in Gainesville if one has been started. If not, I would also be willing to start a group.

Katie

p.s. try Pamela's pecan shortbread and chocolate chunk cookies...they are phenomenal!!

  • 1 month later...
laurelfla Enthusiast
laurelfla
Posted

Hi, Gainesville Celiacs!

Let's get together!! For our first meeting, we could go to dinner somewhere.... Outback? Carrabbas? or just meet at Starbucks or Maude's or somewhere and toss around ideas. I tried to find out about a group here when I was diagnosed Aug 2005, but the "contact person" said she was too busy. So then I went to Jacksonville for months after that to their support group, but it fell apart too! :( I would love to get together, please, please, please, let's do it! :D

  • 2 weeks later...
MJS Rookie
MJS
Posted

i don't have much time to work on getting a group together, but i would also love to attend a meeting. i live in gainesville as well.

  • 2 weeks later...
CarolAnne Apprentice
CarolAnne
Posted

Hello! My name is Carolanne...and I've lived in Florida for over 20 years. I am a Celiac, and I've been Wheat-Free for 20 years, and Gluten-Free for over 3 years. I'm trying to locate people who live Gluten Free here in Florida...and it's not been easy. Most of the links I've found have been disconnected or discontinued...and I'm having a devil of time finding people to connect to. I'd really like to find others who are interested in getting together...and I understand that I am not alone. I've read several posts from people looking for help, Doctors, restaurants, support groups, meetups and such here in Florida.

GlutenFreeInFlorida-subscribe@yahoogroups.com

I've created a Yahoo Group in the hopes of connecting with other people here in the Sunshine State...and to help others connect as well. I'd like to know if anyone is interested in something that will enable you to contact others in your own local area. I'd like to make more information available to people who are living Gluten-Free in Florida.

  • 3 weeks later...
upearly-shelly Newbie
upearly-shelly
Posted
There used to be a Gainesville celiac group, but it is apparently defunct. I'm a UF graduate student, so I'm thinking about starting one through UF (if there are a bunch of students) or just in Gainesville itself.

Let me know if anyone's interested -- I want to get a sense of how many people there might be before I take this on (otherwise, it's not a productive procrastination tool for me as I should be writing my dissertation).

Hi there. My name is Michele. I believe I suffer from either an intolerance or sensitivity towards gluten. I live in G-ville as well. I attended SFCC several years ago, then I moved to go to a diff college (nothing personal towards UF) then I moved back. Anyhow, I am interested in getting together.

I was also hoping to find some info on a G-ville doc to test whether there's truth to my personal gluten theory, but I

  • 2 weeks later...
adoty Newbie
adoty
Posted

Michele,

I live in Gainesville also. Through diet elimination I have determined I have gluten intolerance. I searched through the Shands directory and all the doctors in Gainesville hoping to find one that was familiar with Celiacs; I did not. I ended up going to Digestive Disease Associates of America. Since it was at least 3 months until the next doctor was available, I ended up seeing an ARNP. She seemed to have an understanding of Celiacs. I have not been eating gluten for 1.5 years, so she will not do a blood test on me until I eaten gluten for 20 days. The thought of eating gluten for that amount of time makes me what to cry, so I am not sure if I will be returning. I wish I knew of a great doctor in Gainesville, but I can't say that I do. Nevertheless, I hope this information helps. Below is the link for Digestive Disease Associates. The website has the address, phone number, and a brief biography of all the doctors. Let me know if I can do anything else to help.

Open Original Shared Link

Best,

Andrea

laurelfla Enthusiast
laurelfla
Posted

I went to Digestive Disease and that is where I got my diagnosis. I just told them my symptoms and a PA ordered a bunch of blood tests, Celiac among them. They were not too helpful with the diet (I got the standard handout ordering me not to eat any gums and no vinegar -- so that was confusing for a while) but I am grateful to have been diagnosed so quickly. I can't remember the PA's name (Patricia, maybe?), but my Dr. is Leibach and I liked him all right.

Good luck!

As for the support group, I'm definitely open to getting together. I feel like a broken record when I say that ;) because I keep saying it but nothing ever happens! Andrea, Michele and Shelly -- if you want to get coffee sometime or something, let me know! :)

  • 1 year later...
murfsgirl Newbie
murfsgirl
Posted

Hi Michele,

I know these posts are old, but in case you never found anyone (or for any other new people from Gainesville) I figured I'd post. I went to Dr. Dean Kramer. He's located near North Florida Hospital, and while he did want to diagnose me with IBS, he did agree to do the bloodwork for gluten for me when I asked him to. I haven't been back to him because he cost way too much with my bad insurance, but he did send me a letter stating my bloodwork results were postive for celiac and I've been gluten free for a few weeks now.

Also, did anything ever happen with a support group or meeting up? I'm interested, and I need help! :)

  • 1 year later...
JohnL Newbie
JohnL
Posted

I was also wondering if a group ever got started up because I would definitely be interested in joining. I was diagnosed not too long ago. I'm a grad student at UF so I would be interested in one on campus or off.

Hi Michele,

I know these posts are old, but in case you never found anyone (or for any other new people from Gainesville) I figured I'd post. I went to Dr. Dean Kramer. He's located near North Florida Hospital, and while he did want to diagnose me with IBS, he did agree to do the bloodwork for gluten for me when I asked him to. I haven't been back to him because he cost way too much with my bad insurance, but he did send me a letter stating my bloodwork results were postive for celiac and I've been gluten free for a few weeks now.

Also, did anything ever happen with a support group or meeting up? I'm interested, and I need help! :)

  • 10 months later...
archaeo in FL Apprentice
archaeo in FL
Posted

Hello, I was just diagnosed and am in Gainesville. Would love to learn resources, pool local knowledge - did this group get off the ground? Any interest in getting one together, if not?

squirmingitch Veteran
squirmingitch
Posted

This is all I was able to find:

Open Original Shared Link

Open Original Shared Link

Honestly, it doesn't look like much is going on.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Ginger38
      - Ginger38 replied to Ginger38's topic in Related Issues & Disorders
      4

      Shingles - Could It Be Related to Gluten/ Celiac

      It has been the most terrible illness ever! Going on 3 weeks now… I had chicken pox as a kid… crazy how much havoc this dormant virus has caused after being reactivated! No idea what even caused it to fire back up. I’m scared this pain and sensitivity is just never going to improve or go away
    2. Mari
      - Mari replied to Jmartes71's topic in Related Issues & Disorders
      18

      My only proof

      OKJmartes. Skin and eyes. Also anxiety and frustration. I have read that Celiacs have more skin problems than people who do not have Celiacs. I take increased levels of Vit. D3, very high levels of B12 and an eating part of an avocado every day. KnittyKitty and others here can add what they take for skin health. A Dermatologist might identify the type of...
    3. Ginger38
      - Ginger38 replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Challenges eating gluten before biopsy

      I refused to do the gluten challenge for a long time because I knew how sick I would be: I have always had and still have positive antibodies and have so many symptoms my GI was 💯 sure I would have a positive biopsy. I didn’t want to make myself sick to get a negative biopsy and be more confused by all this. He couldn’t guarantee me a negative biopsy meant ...
    4. Scott Adams
      - Scott Adams replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Challenges eating gluten before biopsy

      It's completely understandable to struggle with the gluten challenge, especially when it impacts your health and studies so significantly. Your experience of feeling dramatically better without gluten is a powerful clue, whether it points to celiac disease or non-celiac gluten sensitivity. It's very wise of you and your doctor to pause the challenge until...
    5. Scott Adams
      - Scott Adams replied to emzie's topic in Related Issues & Disorders
      2

      Stomach hurts with movement

      It's smart that you're seeing the gastroenterologist tomorrow. While it's possible this is a severe and persistent inflammatory reaction to gluten, the fact that the pain is movement-dependent and localized with tenderness is important for your specialist to hear. It could indeed be significant inflammation, but it's also worth ruling out other overlapping...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,471
    • Most Online (within 30 mins)
      7,748
    Lynda Gibbons
    Newest Member
    Lynda Gibbons
    Joined
  • Celiac.com Sponsor (A20):

  • Celiac.com Sponsor (A22):



  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Ginger38
      Shingles - Could It Be Related to Gluten/ Celiac

      By Ginger38 · Posted

      It has been the most terrible illness ever! Going on 3 weeks now… I had chicken pox as a kid… crazy how much havoc this dormant virus has caused after being reactivated! No idea what even caused it to fire back up. I’m scared this pain and sensitivity is just never going to improve or go away 
    • Mari
      My only proof

      By Mari · Posted

      OKJmartes. Skin and eyes. Also anxiety and frustration. I have read that Celiacs have more skin problems than people who do not have Celiacs. I take increased levels of Vit. D3, very high levels of B12 and an eating part of an avocado every day. KnittyKitty and others here can add what they take for skin health. A Dermatologist might identify the type of skin condition. By eyes you may mean eyesight problems not just irritated, red eyes. It is not very difficult to get a diagnosis of which eye condition is affecting your vision but much more difficult to find an effective remedy. The ophthalmologists I have seen have been only a little helpful. There seems to have been some advances in eye treatments that most of them are completely ignorant of or just won't add to their treatment plans.  Forcertain you may as well buy some remedy from a facebook ad but that is obviously risky and may actually damafe your eyes. However it is known that certain supplements , taken at the effectivelevels do help with eyesight. Two of them are Luten and zanthamin (spelling?)and certain anti-oxidants such as bilberry..    Hope this helps.
    • Ginger38
      Challenges eating gluten before biopsy

      By Ginger38 · Posted

      I refused to do the gluten challenge for a long time because I knew how sick I would be: I have always had and still have positive antibodies and have so many symptoms my  GI was 💯 sure I would have a positive biopsy. I didn’t want to make myself sick to get a negative biopsy and be more confused by all this.  He couldn’t guarantee me a negative biopsy meant no celiac bc there may not be damage yet or it’s possible to miss biopsies where there’s damage but he was so sure and convinced me I needed that biopsy I went back on gluten. It was a terrible experience! I took pictures of the bloating and swelling and weight gain during the challenge. I gained 9 pounds, looked pregnant, was in pain , couldn’t work or function without long naps and the brain fog was debilitating. And in the end he didn’t get a positive biopsy… so I wish I had never wasted my time or health going through it. I haven’t been truly straightened  out since and I am currently battling a shingles infection at 43 and I can’t help but wonder if the stress I put my body under to try and get an official diagnosis has caused all this. Best of luck to you - whatever you decide. It’s not a fun thing to go through and I still don’t have the answers I was looking for 
    • Scott Adams
      Challenges eating gluten before biopsy

      By Scott Adams · Posted

      It's completely understandable to struggle with the gluten challenge, especially when it impacts your health and studies so significantly. Your experience of feeling dramatically better without gluten is a powerful clue, whether it points to celiac disease or non-celiac gluten sensitivity. It's very wise of you and your doctor to pause the challenge until your holidays, prioritizing your immediate well-being and exams. To answer your questions, yes, it is possible for blood tests to be negative initially and become positive later as the disease progresses, which is why the biopsy remains the gold standard. Many, many people find the gluten challenge incredibly difficult due to the return of debilitating symptoms, so you are certainly not alone in that struggle. Wishing you the best for your exams and for obtaining clearer answers when you're able to proceed.
    • Scott Adams
      Stomach hurts with movement

      By Scott Adams · Posted

      It's smart that you're seeing the gastroenterologist tomorrow. While it's possible this is a severe and persistent inflammatory reaction to gluten, the fact that the pain is movement-dependent and localized with tenderness is important for your specialist to hear. It could indeed be significant inflammation, but it's also worth ruling out other overlapping issues that can affect those with celiac disease. Is it possible you got some gluten in your diet somehow? This could be a possible trigger. Hopefully, tomorrow's appointment will provide clearer answers and a path to relief so you can get back to your lectures and enjoy your weekend. Wishing you all the best for the consultation.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.