Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

4 Days Away...


num1habsfan

Recommended Posts

num1habsfan Rising Star

OK so as most of you probably forget, I have a colonoscopy in 4 days (August 14th) and a barium follow-through in 7 days (August 17th)...

I have been keeping my cool about it, but suddenly tonite the nerves and scary feeling has really hit me! Is this normal? Should I be scared/nervous? I've had a colonoscopy before, i know how they work, i know they arent scary...BUT WHY AM I?!

Please everyone calm me down :blink::P

~lisa~


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jerseyangel Proficient

Hi Lisa :)

Your feelings are perfectly normal. I think part of this is that you had to wait so darn long for this procedure. Way too much time for the anxiety to build up!

Everything is going to go fine--try to think positively! Deep breaths--in thru the nose, out thru the mouth :D

Be sure to let us know how everything went :)

taz sharratt Enthusiast
OK so as most of you probably forget, I have a colonoscopy in 4 days (August 14th) and a barium follow-through in 7 days (August 17th)...

I have been keeping my cool about it, but suddenly tonite the nerves and scary feeling has really hit me! Is this normal? Should I be scared/nervous? I've had a colonoscopy before, i know how they work, i know they arent scary...BUT WHY AM I?!

Please everyone calm me down :blink::P

~lisa~

you will be fine. get some rescue remedy for your nerves

ravenwoodglass Mentor
OK so as most of you probably forget, I have a colonoscopy in 4 days (August 14th) and a barium follow-through in 7 days (August 17th)...

I have been keeping my cool about it, but suddenly tonite the nerves and scary feeling has really hit me! Is this normal? Should I be scared/nervous? I've had a colonoscopy before, i know how they work, i know they arent scary...BUT WHY AM I?!

Please everyone calm me down :blink::P

~lisa~

You'll be fine. Please make certain the barium they use on the 17th is gluten-free. Demand they check to be sure and make them put it in writing. As an aside are they doing this procedure to confirm celiac or to check for other problems? If it is to look for celiac they are going in from the wrong end. They need to go to the small intestine to find celiac and even then it's a hit or miss process. The worst part of the colonoscopy is the prep, as you already know. It is normal to get a bit nervous, try to relax as much as you can. If you are doing a gluten challenge, don't know for sure but seem to remember that you are, the gluten could also be contributing to your nerves.

num1habsfan Rising Star
You'll be fine. Please make certain the barium they use on the 17th is gluten-free. Demand they check to be sure and make them put it in writing. As an aside are they doing this procedure to confirm celiac or to check for other problems? If it is to look for celiac they are going in from the wrong end. They need to go to the small intestine to find celiac and even then it's a hit or miss process. The worst part of the colonoscopy is the prep, as you already know. It is normal to get a bit nervous, try to relax as much as you can. If you are doing a gluten challenge, don't know for sure but seem to remember that you are, the gluten could also be contributing to your nerves.

I'm not even what the test is now haha...the sheet just says "SMALL BOWEL FOLLOW THROUGH (Examination may take up to 4 hours to complete)"

The doctor said he wants that one done because he wants to check my small intestine too, not just the large. Its not a test for Celiac, I never had that actually confirmed. If you read in my signature you'll see why :P This is to test for Crohn's. I think I am so nervous/scared because this is my last hope for finding out whats wrong with me...

I know what I need to relax, talk to my closest friend, but who knows if that'll happen..

~lisa~

queenofhearts Explorer

You can do it, Lisa, hang in there... it's not unusual to get butterflies before any medical procedure even if you've been through it before. But you know you'll do fine, & if it helps you get well, it will be so worth the effort.

Leah

sparkles Contributor

As icky as colonoscopies are, one saved my life! I had colon cancer.....HAD being the operative word there. No matter how scary the test, the diagnosis can save your life. Hang in there....whatever they find was there before the test and would be there even if you chose not to have the test. In my humble opinion, it is better to know what you have and deal with it than live with lots of questions and NO answers. Of course, sometimes the diagnosis or lack there of brings on all sorts of other questions. Good luck and hang in there.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jerseyangel Proficient
As icky as colonoscopies are, one saved my life! I had colon cancer.....HAD being the operative word there. No matter how scary the test, the diagnosis can save your life. Hang in there....whatever they find was there before the test and would be there even if you chose not to have the test. In my humble opinion, it is better to know what you have and deal with it than live with lots of questions and NO answers. Of course, sometimes the diagnosis or lack there of brings on all sorts of other questions. Good luck and hang in there.

Hi Sparkles!

I'm so glad you had the test and found out about the cancer at an early stage. :)

The same thing happened with my dad when he was 50--he's 80 now, and doing fine. Anyone afraid of this test needn't be--a little bit of discomfort is worth catching the disease while it's still curable.

num1habsfan Rising Star

well, it is technically Sunday, which means its gonna be one hell of a long/crappy(no pun intended) day!! :blink:

~lisa~

Nantzie Collaborator

HUGS Lisa...

Please know that you've got prayers and hugs coming your way. You'll do fine.

Just think... this time next week, all the tests will be over with.

B)

Nancy

num1habsfan Rising Star

Hey, everyone. I figured it would be easier to just tell you all about both tests at once, so here it is...

The colonoscopy on Monday wasnt all that bad for me. I wasnt actually scared the test itself, just the results. The stuff I had to drink on Sunday wasnt that bad, I didnt even throw up. Only had to drink it twice, too. I mostly felt sick from not eating for 24 hours, I'm not sure how I survive the last time :lol: (when I had to starve 48 hours!). I nearly passed out a few times! The only thing that bothered me during the colonoscopy was the I.V.! I'm not sure what I hate it so much. Maybe because it hurts like hell? haha. When she put in the anesthetics it hurt even more, but it put me to sleep in about 30 seconds. and I was out of the hospital in like 1.5 hours.

All day Monday/Tuesday I felt very sick from the colonoscopy, felt like I had the flu.. :ph34r:

Wednesday sucked too. Had to starve after 6 pm (it sucks having a huge appetite!) and at 10 pm stopped drinking which sucked, too haha.

Then there was the small bowel follow through yesterday. I had to be at the hospital by 7:50 am (and I was). I personally know one of the nurses at the xray department so she verified for me that the barium was gluten-free (the other 2 nurses I asked said they'd never heard anyone ask that before and that they dont know :rolleyes: ). Then the one nurse tried to rush me to dirnk the stuff. :angry: I told her that if I drank it any faster I would just throw up! The nurse I know told me just take my time and drink it at my own pace, so I did.

They kept sending me for an xray every half hour or so to see how far town my system it went. I started this all at 8 am, and by around 9:45 it was in my gut. And boy, did I know it! my sore spot of the stomach felt like it was on fire!! Then came the xrays with that machine thats got the little ball underneath that compresses the area they are looking at to get a clearer xray. Well, when he pressed on my sore spot (about 4 times) it made me jump and I nearly screamed in pain. :(

When last night I thought maybe having a nap would help it, YEAH RIGHT. By the time I went to bed my side wasnt just burning and hurting, it was THROBBING. I just got up a while ago (after sleeping nearly 12 hours) and its still throbbing me.. :( If it takes 5 days to get out of my system like they said it might, I'll go crazy :P

I might try to get the results with my family doctor in town here. I called to the doctors office of the guy who took this test, and his receptionist didnt answer I question I have, so I still dont know how long its going to take for the results to come back. And then she tried to tell me that she doesnt understand why I want to go to that specialist in Regina in September because the doctor in Yorkton took the scope. blah.

I've had one thing helping me get through this a little. All of my internet friends have been giving me amazing support, I seriously love you all, and on Monday I got a text message from a 'certain guy' saying hi and that hes thinking of me. I hope hes thinking of me right now, too... :D

If both of these tests come back negative, I am completely going to freak out. Because then I'll have no choice but to give up... :wacko:

I'll keep everyone updated.

~Lisa~

debmidge Rising Star

Lisa, Let us know results when you get them.

D.

Nantzie Collaborator

Hugs Lisa. I was thinking about you and I'm glad to hear that you got through this week with no major drama. I hope the tests come back with some answers for you.

:)

Nancy

Nantzie Collaborator

So have you found out when you're getting your results?

Nancy

num1habsfan Rising Star
So have you found out when you're getting your results?

Nancy

Blah, I finally called today (yes, I stalled, but I've been busy moving out and other stuff)...Well, the receptionist said they take about 10 days to get back (so by next week for sure), but Sept. 14th at 4:40 is the soonest I can get to see the family doc I need to :angry:

*sighs* These waiting periods are killing me already! (literally)...

~lisa~

Nantzie Collaborator

You're moving out??? I must have missed something. Details please. :D

That's great. You must be looking forward to having some breathing room.

Nancy

num1habsfan Rising Star
You're moving out??? I must have missed something. Details please. :D

That's great. You must be looking forward to having some breathing room.

Nancy

Yeah, its only to 1/2 hour from here, but good enough I guess. The classes at the college this year will all be night classes...

Monday: 3 - 10 pm

Tuesday: 3 - 9:30 pm

Wednesday: 3 - 9:30 pm

Thursday: 3 - 9:30 pm

Friday: 3 - 8:30 pm

....so too long of days to be living at home. I save myself an extra hour of time this way. Everyone keeps asking if i'm excited or whatever, but I'm more concerned about my health than where I'm located or school...in my mind health always comes first no matter what...

~lisa~

Nantzie Collaborator

That's awesome!!! It's going to be great to have some room to stretch and relax. To be able to hear the sound of your own thoughts is an underrated treasure...

I forget what your major is? Business? Accounting?

Being close to school will be so much easier. Less stress in the commute. More time to just snuggle into the blankets in the morning.

Sorry.... Flashback... I've got a 4yo and an 2yo. Sleeping in for an hour sounds like a distant dream to me...

:D

Nancy

  • 2 weeks later...
num1habsfan Rising Star
That's awesome!!! It's going to be great to have some room to stretch and relax. To be able to hear the sound of your own thoughts is an underrated treasure...

I forget what your major is? Business? Accounting?

Being close to school will be so much easier. Less stress in the commute. More time to just snuggle into the blankets in the morning.

Sorry.... Flashback... I've got a 4yo and an 2yo. Sleeping in for an hour sounds like a distant dream to me...

:D

Nancy

Oops, I didnt see this post of yours until today lol

You remembered correctly: I am majoring in Accounting...

Its been quite...interesting...so far! They keep changing the schedule around, so we've already missed 6 days of classes :blink: They are trying to work the schedule around the TEACHERS not us 7 students, its just stressful about how we're going to try and catch up!!

But its going ok so far :) The only class I DONT like is Auditing haha

Its ok being on my own, honestly with my health and everything i'm not jumping around for joy or anything :P But its nice to be able to do my homework and work on assignments with classmates...

~lisa~

penguin Community Regular

So....what were the results of your tests?

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,855
    • Most Online (within 30 mins)
      7,748

    Tara M
    Newest Member
    Tara M
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cristiana
      @Colleen H   I am just curious,  when you were tested for coeliac disease, did the doctors find out if you had any deficiencies? Sometimes muscle pain can be caused by certain deficiencies, for example, magnesium, vitamin D, calcium, and potassium.   Might be worth looking into having some more tests.  Pins and needles can be neuropathy, again caused by deficiencies, such as iron and B12,  which can be reversed if these deficiencies are addressed. In the UK where I live we are usually only tested for iron, B12 and vitamin D deficiencies at diagnosis.   I was very iron anemic and supplementation made a big difference.  B12 was low normal, but in other countries the UK's low normal would be considered a deficiency.  My vitamin D was low normal, and I've been supplementing ever since (when I remember to take it!) My pins and needles definitely started to improve when my known deficiencies were addressed.  My nutritionist also gave me a broad spectrum supplement which really helped, because I suspect I wasn't just deficient in what I mention above but in many other vitamins and minerals.  But a word of warning, don't take iron unless blood tests reveal you actually need it, and if you are taking it your levels must be regularly monitored because too much can make you ill.  (And if you are currently taking iron, that might actually be making your stomach sore - it did mine, so my GP changed my iron supplementation to a gentler form, ferrous gluconate). Lastly, have you been trying to take anything to lessen the pain in your gut?  I get a sore stomach periodically, usually when I've had too much rich food, or when I have had to take an aspirin or certain antibiotics, or after glutening.  When this happens, I take for just a few days a small daily dose of OTC omeprazole.  I also follow a reflux or gastritis diet. There are lots online but the common denominators to these diets is you need to cut out caffeine, alcohol, rich, spicy, acidic food etc and eat small regularly spaced meals.   When I get a sore stomach, I also find it helpful to drink lots of water.  I also find hot water with a few slices of ginger very soothing to sip, or camomile tea.  A wedge pillow at night is good for reflux. Also,  best not to eat a meal 2-3 hours before going to bed. If the stomach pain is getting worse, though, it would be wise to see the doctor again. I hope some of this helps. Cristiana    
    • Me,Sue
      I was diagnosed with coeliac disease a couple of years ago [ish]. I love my food and a variety of food, so it's been hard, as it is with everyone. I try and ensure everything I eat doesn't contain gluten, but occasionally I think something must have got through that has gluten in. Mainly I know because I have to dash to the loo, but recently I have noticed that I feel nauseous after possibly being glutened. I think the thing that I have got better at is knowing what to do when I feel wiped out after a gluten 'episode'. I drink loads of water, and have just started drinking peppermint tea. I also have rehydration powders to drink. I don't feel like eating much, but eventually feel like I need to eat. Gluten free flapjacks, or gluten free cereal, or a small gluten free kids meal are my go to. I am retired, so luckily I can rest, sometimes even going to bed when nothing else works. So I feel that I am getting better at knowing how to try and get back on track. I am also trying to stick to a simpler menu and eat mostly at home so that I can be more confident about what I am eating. THANKS TO THOSE WHO REPLIED ABOUT THE NAUSEA .
    • Francis M
      Thanks. Since the back and forth and promises of review and general stalling went on for more than six months, the credit company will no longer investigate. They have a cutoff of maybe six months.
    • Scott Adams
      Is this the same restaurant? https://www.facebook.com/TheHappyTartFallsChurch/ Is it too late to take this up with your credit card company? Normally you have a few months to do a chargeback with them. It seems very odd that they are taking this approach with someone who is likely to be a regular customer--not a good business-minded way of handling things!
    • Scott Adams
      Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Because of this it took me decades to overcome a few long-standing issues I had that were associated with gluten ataxia, for example numbness and tingling in my feet, and muscle knots--especially in my shoulders an neck. Only long term extensive supplementation has helped me to resolve these issues.        
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.