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What...did I Miss Something?

skipper30

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skipper30 Enthusiast
skipper30
Posted

Ok...I just called on the last set of blood work done...since no one seemed it necessary to call us...and found out that all they did was a CBC and a LFT.....I am SO aggravated at myself for not making sure that we were going to do the serology to check things out.....maybe this is normal and I am still so new to this that I do not know what goes on at these follow-ups. :blink:

Any insight from any ony out there....Am I mistaken or should we have done more than the "normal" bloodwork? I just hate to think of taking Cooper back in for another draw but will totally call our PCP if is is needed.

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Nic Collaborator
Nic
Posted

They should have done a Celiac Panel. This actually happened to me when I tried to get myself test. What kind of doctor ran the test, was it a GI? If it was, you would think they would know how to test for Celiac.

Nicole

skipper30 Enthusiast
skipper30
Posted
  • Author

This was a follow up with his GI...well one of the drs in the office(ours is on sick leave) He has already been diagnosed at the end Dec. '05. I just thought that if we know he has celiac...then that should have been what we were checking on....I mean if a CBC and a LFT didn't show anything BEFORE he was diagnosed...why are we looking at that as a marker for how he is doing on the diet??

Am I wrong??

Makes me wonder if anone else in that office knows what is going on??

happygirl Collaborator
happygirl
Posted

Unfortunately, many....and by many, I mean most.....GIs and GPs are not educated about Celiac. Good for you for following up---and yes, you want the FULL celiac panel run. I'm sorry he'll have to have blood drawn again. :(

skipper30 Enthusiast
skipper30
Posted
  • Author

Thanks so much for your insight! We still feel so new to all this and this being our first follow up...I just assumed (duh on our part) that the doc knew what he was doing!! I will sure be glad when our GI gets back...

Thanks again for taking the time to help us!!

Aerin328 Apprentice
Aerin328
Posted

Just a thought to also perhaps consider testing with Enterolab (www.enterolab.com). They specialize in gluten-intolerance testing and I hear it can be more sensitive than blood testing. Just a note!

Nic Collaborator
Nic
Posted
Thanks so much for your insight! We still feel so new to all this and this being our first follow up...I just assumed (duh on our part) that the doc knew what he was doing!! I will sure be glad when our GI gets back...

Thanks again for taking the time to help us!!

Isn't it sad when we as parents know more about our kids disease than the doctors that are not only diagnosing them but overseeing their recovery?

Nicole

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