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I Can't Drink This Stuff!


Chelle15

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flagbabyds Collaborator

you would NOT like to be me then!

I have blood tests to monitor my thyroid every week at least cause my thyroid gets thrown off by such a little thing and makes me horibbly sick. So i am used to blood tests esp. cause it usually takes them about 5 pokes before they get my vein.


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wonkabar Contributor
Who thinks the IV is hard? I didn't feel anything more than when they take blood....just a little pinch and that was it!

I was more afraid of having an IV than being in labor...honest to God! No one can ever find my veins and my hand or arm is always swollen and killing me before, during and after. It usually takes a few sticks and different nurses b/f they can run the IV...yuck! I'm making a face just thingking about it! :o

CarlaB Enthusiast

They never have trouble finding my vein, it's very obvious. They don't have trouble getting it either, but for some reason, I still get huge bruises.

Nancym Enthusiast

Oh dear, the worst part for me wasn't the taste, it was the endless drinking and feeling like if I took another sip I'd throw it all up. No wait, the worst part was being up all night pooping. No wait.... the worst part was the time I didn't wake up in time.

Chelle15 Apprentice

I had mine done today. Thank god it is over. I was so worried about gagging. They sprayed the stuff in my throat, and I was pretty much out of it for that. The colonoscopy, though, I was awake for most of it. I watched it on the screen. It was a tad uncomfortable, but I was relieved at how smoothly it went. I did not want to be awake at all, but I was. However, I still go to the bathroom alot...

The doctor didn't talk to me cuz she another procedure she was in went over. I was told everything looked normal but I will get the biopsies back in 10 to 14 days. Any chance if everything looks normal that the biopsies could still show damage?

CarlaB Enthusiast

The damage can be microscopic.

Both my biosies and my blood tests were negative, but I went to Enterolab, whose testing is more sensitive, and got positive results.

Glad you got it over with!

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    • knitty kitty
      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
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      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
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      Food and environmental allergies involve IgE antibodies.  IgE antibodies provoke histamine release from mast cells.   Celiac disease is not always visible to the naked eye during endoscopy.  Much of the damage is microscopic and patchy or out of reach of the scope.  Did they take any biopsies of your small intestine for a pathologist to examine?  Were you given a Marsh score? Why do you say you "don't have intestinal damage to correlate with lifelong undiagnosed celiac disease"?   Just curious.  
    • rei.b
      I was tested for food allergies and environmental allergies about 7 months before I started taking Naltrexone, so I don't think that is the cause for me, but that's interesting!  The main thing with the celiac thing that is throwing me off is these symptoms are lifelong, but I don't have intestinal damage to correlate with lifelong undiagnosed celiac disease.
    • trents
      Welcome to the forum, @Kara S! Warrior bread is a grain free bread product. Google it. There are commercial mixes available, I believe, Youtube videos and many recipes. 
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