Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Glutened?


Guest ~jules~

Recommended Posts

Guest ~jules~

Well I woke up today very tired, and in the bathroom if you catch my drift. I ate no gluten yesterday I'm sure of it, and I'm also pretty sure I didn't get contaminated some other way, I've been really careful. The only thing I can think of that was different was the soy sauce I bought yesterday thats gluten free. Ugh!!! But I am also new to this, should I just have "days" like this randomly until I heal? Its really important that I know the ins and outs of this thing, I have a family, and business to run, I'm tired of waking up in the morning one day fine, and the next crappy. :angry: Ok, enough whining...I was wondering if there are anymore extensive test for food allergies that I can request monday when I go in to see my gi doc? I know others here not only have celiac, but many other problems too, I wonder if I do?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



eleep Enthusiast

I've been finding that my mornings like that happen about 36-48 hours after any likely source of gluten (usually cross-contamination), so could this be a more delayed reaction? I also had mornings like that after a day when I'd eaten dairy.

eleep

Nantzie Collaborator

Have you gone gluten-free with your personal care products? Check your haircare products, lip balms, lotions, cosmetics, etc. Does your boyfriend/husband use lip balm, shampoo, lotion that has gluten in it? Anything you touch with gluten in/on it, if you then touch your mouth or eat without washing your hands first, can get into your system.

Also, your food prep items and surfaces. Are you using a cutting board or wooden spoons that were used with gluten items? Nonstick pans that were used with gluten?

Nancy

CarlaB Enthusiast

I had that happen with dairy or when I had eaten away from home. I still seem to have good days and bad.

Guest ~jules~

You know I may have, I didn't even think about pans and spoons. Well I know enough not to cross use them at the time I'm cooking, but it may have been the pan. My hubby will make a grilled cheese for the boys and put it in the oven just wiped out, so its a deffinate possibility. Jeez I guess I have to get my own julie pan, nice <_< Okay so apparently I've been glutened, mostly I have a very foggy head, any suggestions on how to get rid of it? I know my attitude stinks, but I'm not feeling well, and eating is such a pain in the butt these days, I better get used to it huh? :mellow:

CarlaB Enthusiast
You know I may have, I didn't even think about pans and spoons. Well I know enough not to cross use them at the time I'm cooking, but it may have been the pan. My hubby will make a grilled cheese for the boys and put it in the oven just wiped out, so its a deffinate possibility. Jeez I guess I have to get my own julie pan, nice <_< Okay so apparently I've been glutened, mostly I have a very foggy head, any suggestions on how to get rid of it? I know my attitude stinks, but I'm not feeling well, and eating is such a pain in the butt these days, I better get used to it huh? :mellow:

If I knew how to get rid of it, I wouldn't be online right now ... I'd be out doing something!! All you can do is stay hydrated and time takes care of it.

Watch out for wooden spoons, you'll need new ones. I'd get your own pan if that's the method at home, or be sure it starts getting washed.

We just made our whole house gluten-free because I still am not better. It has to be contamination, and I'm pretty obsessive about it.

eleep Enthusiast
You know I may have, I didn't even think about pans and spoons. Well I know enough not to cross use them at the time I'm cooking, but it may have been the pan. My hubby will make a grilled cheese for the boys and put it in the oven just wiped out, so its a deffinate possibility. Jeez I guess I have to get my own julie pan, nice <_< Okay so apparently I've been glutened, mostly I have a very foggy head, any suggestions on how to get rid of it? I know my attitude stinks, but I'm not feeling well, and eating is such a pain in the butt these days, I better get used to it huh? :mellow:

Welcome to the club! You will get used to it.

My basic remedies for my own "bad attitude" have been lots of water and sublingual B-complex, Immodium (I find it helps my moods as well) and whatever exercise I can get (preferably outside). It's better for me to keep eating, so I generally stick with blander stuff. However, I do try to eat fruits, veggies and fibrous stuff.

I have headed what looked to be one very bad insomnia-provoking glutening off at the pass with activated charcoal, but still felt foggy for a few days afterwards. The activated charcoal will absorb nutrients as well as toxins, so don't take it within four hours or so of taking supplements or anything like that (sublingual vitamins, of course, won't be affected).

eleep


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest ~jules~

I am getting the diet down, but It seems the cross contamination is going to be an issue. I love my husband to death, but I'm still nagging him for bad habits from 5 years ago! Okay, tonight we talk about becoming a gluten free household, he already offered, so I may as well do it. Thanks for the support everyone, ugh I need a nap! :blink: (at least they like the bread I make now :P )

Nantzie Collaborator

Yep, cross contamination is what kicks your booty. Not eating the bread or whatever is the easy part.

I ended up switching over to stainless steel pans. They're actually way easier to deal with than nonstick or anything else. Nonstick gets scratched up SO easily. With stainless, I've found that it's even easier to clean. You can just scrub the heck out of it if you need to (I've found that that's rare), and when you're done it looks as perfect as the day you got it. And gluten doesn't stick to it. So you can use it for gluten and gluten-free cooking. Just making sure you clean it thoroughly between the two. You might want to buy a small saute pan or something to try it out and see if you like it. I really didn't think I would, and now I wish I had gotten stainless a long time ago.

My husband is the same way. He's slowly gotten better. But a few weeks ago, he opened up his gluten-spaghetti leftover container next to my gluten-free cutting board and ended up dropping a piece of spaghetti and sauce right on my cutting board. I didn't know until an hour later, so the sauce had soaked into the grain. I bought a new cutting board the next day. Taking a chance with getting glutened isn't worth an item that I can replace for less than $10.

Nancy

Guest ~jules~

Ya, I'm headed to wally-world today to buy pans, cutting board, toaster, etc...I'm really glad I joined this group, my gi doc sent me home with a diagnosis, and "begin gluten free diet" I have no idea what I'm doing, I feel like I'm walking blindfolded through a minefield, not fun so far, nopers.... ;)

jerseyangel Proficient
Ya, I'm headed to wally-world today to buy pans, cutting board, toaster, etc...I'm really glad I joined this group, my gi doc sent me home with a diagnosis, and "begin gluten free diet" I have no idea what I'm doing, I feel like I'm walking blindfolded through a minefield, not fun so far, nopers.... ;)

Ha--my doctor did the same thing--14 months ago!

When I stumbled onto this board a couple months later, I learned more than I could have ever imagined about this disease. I'm glad you found us--you'll do fine :)

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,569
    • Most Online (within 30 mins)
      7,748

    Moody
    Newest Member
    Moody
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cristiana
      That's great news, you can do this.  Let us know how things go and don't hesitate to ask if you have any more questions. Cristiana 😊
    • petitojou
      Thank you so much for sharing your experience and I found myself giggling with happiness as I read how your body reached such spring! And I hope that your current journey is also successful!! Definitely starting the food diary! So many amazing advices. And it’s very scary. It really hits all our soft spots as well as our confidence system. Most doctors I went thought I was underage despite being in my late 20s. Right now I look like am I twelve, but is also this body that’s taking so much, so I might as well love it too! Going to make the necessary changes and stay in this path. Thank you again! 🫶
    • petitojou
      Thank you so much for the information and kind message! Reading this transformed how I’ve been viewing my efforts and progress. Guess there’s still a lot to celebrate and also heal 😌  Yes, I’ve been taking it! Just recently started taking a multivitamin supplement and separated vitamin D! I also took chewable Iron polymaltose for ferritin deficiency 2 months ago but was unable to absorb any of it.  Thank you again! Hearing such gentle words from the community makes my body and heart more patient and excited for the future. 
    • ckeyser88
      I am looking for a roomie in Chicago, Denver or Nashville! 
    • Scott Adams
      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.