Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Did You Gain Weight Back?

Guest ~jules~

By Guest ~jules~
in Related Issues & Disorders

Recommended Posts

Guest ~jules~
Guest ~jules~
Posted

When all this started, in one summer I went from a size 9 in jeans, to a size 3. Now, I am wondering have any of you gained any weight back since your loss, and diagnosis? I could stand to gain a few pounds but I'm not looking for anything drastic..Just curious how it happened for others...Julie

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


gfp Enthusiast
gfp
Posted
When all this started, in one summer I went from a size 9 in jeans, to a size 3. Now, I am wondering have any of you gained any weight back since your loss, and diagnosis? I could stand to gain a few pounds but I'm not looking for anything drastic..Just curious how it happened for others...Julie

Gained it back and then some.... and then some more..... and more.

Don't know American sizes but I was a 26" waist and 44" chest and went from that to a 36" waist in about a year...

and about 128 lbs to 190lbs. (male 5'10") in about a year.

The moral is keep tabs on it.... I was just so enthusiastic about being able to eat without being ill I carried on eating what I had before. When I was a kid 14 or so I actually had a special plate (a serving plate) and my mother eventually gave in and gave me two plates for dinner but I was still the 2nd smallest in my class (regardless of school??) and in the bottom 5% for weight. When I was at uni (putting 4" on my chest I used to count my calories ... and I wouldn't gain anything under 9000 a day so I was probably still eating 7000 a day when my villi healed and man did the weight go on fast.

It took a lot of hard work to get down to a 30" waist and in doing so I lost 2-4" of muscle of my chest. (which took a lot of effort to put there in the 1st place) ...

Now whatever I do I cannot get below a 30" waist... which is kinda OK.. but Ive been down to 2% bodyfat (by caliper, not immersion) and still my waist never goes below 30"... having said that my bladder seems to hold a lot more

I would be interested in peoples opinion of this...

Is it possible at 25-26 that I hadn't completely developed internal organs due to undiagnosed celiac or that they were being held in?

If I relax on exersize or diet for a short time my weight shoots back up....

Daxin Explorer
Daxin
Posted

I am only now (4 months in) gaining back SMALL amounts of weight. I lost almost 40 lbs before my dx. It may take more time, and I am usually patient.

I guess we'll see. I hope you begin to gain some back and feel better.

CarlaB Enthusiast
CarlaB
Posted

I'm 5'8" and weighed 136 when I got sick. I dropped 15 pounds, got scared about it and started eating tons of food, about 3 times as much as my 6'2" husband. It was not unusual for me to eat out at a place like Outback, then come home and make myself a second meal ... I still eat much more for my size than I probably would under normal circumstances ... and I now weigh a little under 130. I lift weights, not machines, the free weights as heavy as I can and still get the reps and form right ... I think that helps keep me healthy looking instead of just skinny.

jerseyangel Proficient
jerseyangel
Posted

I've always run about 15-20 lbs over what I would like. Two years ago, when I got very sick, one of the things that particularly worried me was that I lost 15 pounds in a short time--while still eating normally. Normal for me then was a lot of carbs--especially baked things.

When I went back to the doctor for my 2 month follow-up after the biopsy, I had already gained back 10 lbs! The doctor was not surprised in the least. I've gained back a few more, which I'm now in the process of trying to lose gluten-free!

One thing that I'm noticing is that since I've been eating primarily natural foods (very few processed), my weight is slowly going down, but my clothes are fitting better. Yesterday, I tried on a couple pair of jeans--my best barometer!--and they fit so nicely. Last spring, they had been getting a little tight.

Guest ~jules~
Guest ~jules~
Posted

I also work out. I run 3 to 4 times a week, and do light resistence training. I agree that instead of looking like the walking stick I became, I actually defined my muscles, so it wasn't that bad. I also didn't know what was going on with me, so I kept working out. I am glad that I did the whole time I was sick because I truly believe that it helped me with stamina. There were days though where there was no way in the world I was going running! I am starting to feel better now, and I am hoping that I gain about 5 lbs, because I am a bit too thin I think. Besides everyone keeps telling me all the time! Ugh don't you ever get sick of that! I think its incredibly rude to comment on someones weight, thin, or chunky, unless asked. :angry: It just amazed me the weight I dropped, I have been the same size since I was 14 years old, then all the sudden poof! I was a skeleton, it really scared me. :unsure:

CarlaB Enthusiast
CarlaB
Posted

I found that I had to reduce cardio a little in the beginning, but I continued on with weights. If you tried to increase your weight workout and decrease your running till you gained weight back, you may get it back faster. I'm not saying cut it out entirely, but I used to do 40 minutes, and just cut down a bit from there.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Guest ~jules~
Guest ~jules~
Posted

Lol, thats funny I cut back from 45 to 30 just now. After I was dx, I took the whole week off though and rested. I just got started again because I'm feeling better. Thanks for the advice! :D Julie

CarlaB Enthusiast
CarlaB
Posted

Don't get discouraged if you have to take a week off here and there. I was doing cardio and weights regularly, then about 3 weeks ago, had to cut out cardio because I've had NO energy, but continued doing weights for another week. The past two weeks, I haven't been able to do either. It seems that there are ups and downs in the healing process.

Carriefaith Enthusiast
Carriefaith
Posted

I gained most of my weight back within 6 months on the gluten-free diet.

Rikki Tikki Explorer
Rikki Tikki
Posted

My experience is that I was so ill when finally diagnosed, I am 5' 7" and had dropped from about 135 to 115 and looked awful. I went gluten-free and still didn't really put on any weight. Then about 7 months ago I quit smoking and am now up to 132 and looking for it to slow down. Mostly because none of my clothes are fitting! But, yes I did get really tired of people commenting on how thin I was, it was like I knew but people kept mentioning it :angry::angry::angry:

I have been walking between 3 and 4 miles a day but still putting on weight. Before I never exercised and didn't gain a pound. Any ideas on how to firm things up without actually losing any weight?

CarlaB Enthusiast
CarlaB
Posted
Any ideas on how to firm things up without actually losing any weight?

Weight lifting. You can get a personal trainer for a session or two to get you started.

jerseyangel Proficient
jerseyangel
Posted
Any ideas on how to firm things up without actually losing any weight?

Pilates is also very good. :)

CarlaB Enthusiast
CarlaB
Posted
Pilates is also very good. :)

Yea, I mix that in on "core" day.

Kaycee Collaborator
Kaycee
Posted

We are all different. I would love to loose a bit of weight. Are there any takers?

But on the positive side, I have not gained any since going gluten free, and that makes me happy.

Cathy

Guest ~jules~
Guest ~jules~
Posted

I'll second the weight lifting, and you don't have to join a gym to do so. Just go to your local sports equip. store and start with some 5 and 8 lb free weights. After awhile you can increase the weight if you want more bulk, I have been using those two sizes for a long time now, I like being toned, not buff! lol.. For my legs I do lunges and squats, and some legs lifts, this all works for me....

eleep Enthusiast
eleep
Posted

I had to cut out cardio for a while as well. What helped quite a bit was substituting more Ashtanga yoga than usual -- although I stuck with doing it at home because I wanted to stick to the pace that was best for my body and not have to worry about keeping up with a class.

eleep

KaitiUSA Enthusiast
KaitiUSA
Posted

I was able to gain it back but it took a while

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,914
    • Most Online (within 30 mins)
      7,748
    ChrisMary
    Newest Member
    ChrisMary
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Rogol72
      Help I’m cross contaminating myself,

      By Rogol72 · Posted

      @klmgarland, My dermatitis herpetiformis didn't clear up until I became meticulous about cross contamination. I cut out gluten-free oats and all gluten-free foods, dairy and gluten-free rice. Additionally, getting the right amount of protein for my body weight helped significantly in my body's healing process ... along with supplementing with enough of all the vitamins and minerals ... especially Zinc and Magnesium. I went from 70kg to 82kg in a year. Protein with each meal 3 times daily, especially eggs at breakfast made the difference. I'm not sure whether iodine was a problem for me, but I can tolerate iodine no problem now. I'm off Dapsone and feel great. Not a sign of an itch. So there is hope. I'm not advocating for the use of Dapsone, but it can bring a huge amount of relief despite it's effect on red blood cells. The itch is so distracting and debilitating. I tried many times to get off it, it wasn't until I implemented the changes above and was consistent that I got off it. Dermatitis Herpetiformis is horrible, I wouldn't wish it on anyone.  
    • klmgarland
      Help I’m cross contaminating myself,

      By klmgarland · Posted

      Thank you so very much Scott.  Just having someone understand my situation is so very helpful.  If I have one more family member ask me how my little itchy skin thing is going and can't you just take a pill and it will go away and just a little bit of gluten can't hurt you!!!! I think I will scream!!
    • Scott Adams
      Help I’m cross contaminating myself,

      By Scott Adams · Posted

      It is difficult to do the detective work of tracking down hidden sources of cross-contamination. The scenarios you described—the kiss, the dish towel, the toaster, the grandbaby's fingers—are all classic ways those with dermatitis herpetiformis might get glutened, and it's a brutal learning curve that the medical world rarely prepares you for. It is difficult to have to deal with such hyper-vigilance. The fact that you have made your entire home environment, from makeup to cleaners, gluten-free is a big achievement, but it's clear the external world and shared spaces remain a minefield. Considering Dapsone is a logical and often necessary step for many with DH to break the cycle of itching and allow the skin to heal while you continue your detective work; it is a powerful tool to give you back your quality of life and sleep. You are not failing; you are fighting an incredibly steep battle. For a more specific direction, connecting with a dedicated celiac support group (online or locally) can be invaluable, as members exchange the most current, real-world tips for avoiding cross-contamination that you simply won't find in a pamphlet. You have already done the hardest part by getting a correct diagnosis. Now, the community can help you navigate the rest. If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
    • Scott Adams
      My only proof

      By Scott Adams · Posted

      It's very frustrating to be dismissed by medical professionals, especially when you are the one living with the reality of your condition every day. Having to be your own advocate and "fight" for a doctor who will listen is an exhausting burden that no one should have to carry. While that 1998 brochure is a crucial piece of your personal history, it's infuriating that the medical system often requires more contemporary, formal documentation to take a condition seriously. It's a common and deeply unfair situation for those who were diagnosed decades ago, before current record-keeping and testing were standard. You are not alone in this struggle.
    • Scott Adams
      Methylprednisone treatment for inflammation?

      By Scott Adams · Posted

      Methylprednisolone is sometimes prescribed for significant inflammation of the stomach and intestines, particularly for conditions like Crohn's disease, certain types of severe colitis, or autoimmune-related gastrointestinal inflammation. As a corticosteroid, it works by powerfully and quickly suppressing the immune system's inflammatory response. For many people, it can be very effective at reducing inflammation and providing rapid relief from symptoms like pain, diarrhea, and bleeding, often serving as a short-term "rescue" treatment to bring a severe flare under control. However, experiences can vary, and its effectiveness depends heavily on the specific cause of the inflammation. It's also important to be aware that while it can work well, it comes with potential side effects, especially with longer-term use, so it's typically used for the shortest duration possible under close medical supervision. It's always best to discuss the potential benefits and risks specific to your situation with your gastroenterologist.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.