Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Does Anyone Else Get Dh At Base Of "crack"

capecodda

By capecodda
in Dermatitis Herpetiformis

Recommended Posts

capecodda Rookie
capecodda
Posted

I have thought all these years that is was my genital herpes. I have had increasing blisters in the past few months along with increased digestive problems that characteristically match Celiac. Sometimes in the past I do remember a cluster of little blisters/pimples on my rear as well. Just always thought it was GH.

  • 4 months later...
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Guest Mattray88
Guest Mattray88
Posted

Yep....pretty much just there, or the ocasional scalp and elbow....

mtdawber Apprentice
mtdawber
Posted
I have thought all these years that is was my genital herpes. I have had increasing blisters in the past few months along with increased digestive problems that characteristically match Celiac. Sometimes in the past I do remember a cluster of little blisters/pimples on my rear as well. Just always thought it was GH.

YES! I get them on my stomach, back (all the way down to the base of my spine), hips, back of thighs, feet, arms, elbows, neck and head.... You should get them biopsied by a dermatologist or try a gluten free diet and see if things improve. Something I am noticing and others with more time in will tell you (I'm still new at this) it takes time to clear the DH.

Eliza13 Contributor
Eliza13
Posted

Yeah...get the DH at the base of bum. LOL.

  • 1 month later...
Granny Garbonzo Apprentice
Granny Garbonzo
Posted

yes

I am nearly 50yrs old and only started getting the rash at all in the last couple of years...and wouldn't you know, it is on my bumb at the crack. I don't have any kind of herpes or anything at all, and at first I thought I had touched some poison oak or ivy while peeing in the woods....but then it returned a couple more times, and I realized maybe it was DH, and I asked here on this site, and got lots of responses saying it was the DH. I don't have insurance so rarely go to doctors, but went a couple of times for the rash as I was afraid I had some horrible disease, and no doctor ever said anything about my celiac disease causing the rash.........they KNOW I have celiac disease and STILL didn't make the connection....and since I hadn't had the rash all my life, I didn't think it was DH.....butt (pun intended) here we are with this blasted rash on the behind. More incentive to stay away from any trace of gluten I guess.

casnco Enthusiast
casnco
Posted
I have thought all these years that is was my genital herpes. I have had increasing blisters in the past few months along with increased digestive problems that characteristically match Celiac. Sometimes in the past I do remember a cluster of little blisters/pimples on my rear as well. Just always thought it was GH.

Oh yes! I don't have GH so I was rather concerned when this started! Found an unusual topical cream. Calmoseptic. Your pharmasist must order it. Very weird, it has menthol in it. I was skeptical at first. This isnt an area I want menthol! But it helps stop the itch. Give it a try.

By the way, do have a good remedy for the itch. I know to stay away from gluten. But this is my first sign when I have been CC'd. Bummer! (pun intended)

ItchyAmber Newbie
ItchyAmber
Posted

Got it!!! the bum itch, that is. My husband of two years has picked on me constantly since we got married about my "crabs". :o .. come to find out after 5 years of this weird, horrid, itch from Hell, it's DH! (I also have it on the base of my neck in my hair line, and on my belly)

I am sorry others feel like I do. It makes me crazy sometimes. Still waiting on Celiac panel results... it's been 12 days now since the tests. ARGH.

I'm going to try that cream! I'll try anything.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


wowzer Community Regular
wowzer
Posted

I seem to get it in the crack along with the female area. I have been tested for herpes, etc. Over the years I've had many itchy rashes, even landed in the hospital covered from head to foot and they didn't catch it. I finally googled rashes and the more I looked at the DH rashes, it looked like many of my breakouts. I'm 52 now. I have a little sister that is a celiac, diagnosed at a year old. My blood panel came out negative. I went gluten free the first of this year. I do seem more sensitive to gluten now. My first sign is blisters on my eyelid. Then the female itching. I don't think I'm eating it, I think because my son works in a pizza place, he is leaving me a gluten trail. I have to work on him.

ravenwoodglass Mentor
ravenwoodglass
Posted
I seem to get it in the crack along with the female area. I have been tested for herpes, etc. Over the years I've had many itchy rashes, even landed in the hospital covered from head to foot and they didn't catch it. I finally googled rashes and the more I looked at the DH rashes, it looked like many of my breakouts. I'm 52 now. I have a little sister that is a celiac, diagnosed at a year old. My blood panel came out negative. I went gluten free the first of this year. I do seem more sensitive to gluten now. My first sign is blisters on my eyelid. Then the female itching. I don't think I'm eating it, I think because my son works in a pizza place, he is leaving me a gluten trail. I have to work on him.

I have to say yes to this. I get that type of rash not just when I eat gluten but also when I use most panty liners. Especially the scented kind. I have had DH since childhood and interestingly enough I also have had consistently negative panels. But I was very serious ill before I knew those panels were wrong. I haven't found anything that helps with the rash unfortunately, other than time.

Granny Garbonzo Apprentice
Granny Garbonzo
Posted

Amber

Don't bother with the tests for celiac disease....I think the medical community is making a killing off testing and retesting...

I and my family don't have health insurance, so we "test" ourselves....we just stopped eating gluten for about 3 months, strictly. We know it is celiac disease because, first other members of the family had it and it is genetic, second we stopped having most our symptoms when we stopped eating gluten. Just makes too much sense for most people to grasp that they just don't need to spend a lot of time and money on doctors. Just educate yourself and get control of your own health...the doctors are in it for the money and their by the book following of accepted practices....they are not caring for your health, they are managing symptoms with pharmacuticals or surgery. There are no drugs or chemicals that we need for celiac disease, we just need to stop eating gluten. See a doctor when you really need one.

Sorry, I get frustrated with this doctor business. If I would have listened to doctors they would have removed my gall bladder and said I don't have celiac disease....now 20 years later, I still have my gall bladder and it is working fine, and I just stay away from gluten and all is well....same with my kids and grand kids. So there is the possibility that you may just feel better eating a gluten free diet and you don't really have celiac disease and you may have something else....but what does it hurt to try going gluten free? Easy.

heathen Apprentice
heathen
Posted

yes, i thought it was shingles. it drives me nuts. and it's so unattractive. ironically, it didn't start until after i went gluten-free.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. catnapt
      - catnapt posted a topic in Related Issues & Disorders
      0

      anyone here diagnosed with a PARAthyroid disorder? (NOT the thyroid) the calcium controlling glands

      learned I had a high PTH level in 2022 suspected to be due to low vit D got my vit D level up a bit but still have high PTH I am 70 yrs old (today in fact) I am looking for someone who also has hyperparathyroidism that might be caused by malabsorption
    2. catnapt
      - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      how much gluten do I need to eat before blood tests?

      I am on day 13 of eating gluten and have decided to have the celiac panel done tomorrow instead of Wed. (and instead of extending it a few more weeks) because I am SO incredibly sick. I have almost no appetite and am not able to consume the required daily intake of calcium to try to keep up with the loss of calcium from the high parathyroid hormone...
    3. Jmartes71
      - Jmartes71 posted a topic in Coping with Celiac Disease
      0

      Curious question

      So I've been dealing with chasing the name celiac because of my body actively dealing with health issues related to celiac though not eating. Diagnosed in 1994 before foods eliminated from diet. After 25 years with former pcp I googled celiac specialist and she wasn't because of what ive been through. I wanted my results to be sent to my pcp but nothing was...
    4. Amy Barnett
      - Amy Barnett posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Question

      What is the best liquid multivitamin for celiac disease?
    5. Scott Adams
      0

      Quick Gluten-Free Shrimp Stir-Fry With Crisp Vegetables

  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,322
    • Most Online (within 30 mins)
      7,748
    avery144
    Newest Member
    avery144
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • catnapt
      anyone here diagnosed with a PARAthyroid disorder? (NOT the thyroid) the calcium controlling glands

      By catnapt · Posted

      learned I had a high PTH level in 2022 suspected to be due to low vit D  got my vit D level up a bit but still have high PTH   I am 70 yrs old (today in fact) I am looking for someone who also has hyperparathyroidism that might be caused by malabsorption    
    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      I am on day 13 of eating gluten  and have decided to have the celiac panel done tomorrow instead of Wed. (and instead of extending it a few more weeks) because I am SO incredibly sick. I have almost no appetite and am not able to consume the required daily intake of calcium to try to keep up with the loss of calcium from the high parathyroid hormone and/or the renal calcium leak.    I have spent the past 15 years working hard to improve my health. I lost 50lbs, got off handfuls of medications, lowered my cholesterol to enviable levels, and in spite of having end stage osteoarthritis in both knees, with a good diet and keeping active I have NO pain in those joints- til now.  Almost all of my joints hurt now I feel like someone has repeatedly punched me all over my torso- even my ribs hurt- I have nausea, gas, bloating, headache, mood swings, irritability, horrid flatulence (afraid to leave the house or be in any enclosed spaces with other people- the smell would knock them off their feet) I was so sure that I wanted a firm diagnosis but now- I'm asking myself is THIS worth it? esp over the past 2 yrs I have been feeling better and better the more I adjusted my diet to exclude highly refined grains and processed foods. I didn't purposely avoid gluten, but it just happened that not eating gluten has made me feel better.   I don't know what I would have to gain by getting a definitive diagnosis. I think possibly the only advantage to a DX would be that I could insist on gluten-free foods in settings where I am unable to have access to foods of my choice (hospital, rehab, nursing home)  and maybe having a medical reason to see a dietician?   please let me know if it's reasonable to just go back to the way I was eating.  Actually I do plan to buy certified gluten-free oats as that is the only grain I consume (and really like) so there will be some minor tweaks I hope and pray that I heal quickly from any possible damage that may have been done from 13 days of eating gluten.    
    • Jmartes71
      Curious question

      By Jmartes71 · Posted

      So I've been dealing with chasing the name celiac because of my body actively dealing with health issues related to celiac though not eating. Diagnosed in 1994 before foods eliminated from diet. After 25 years with former pcp I googled celiac specialist and she wasn't because of what ive been through. I wanted my results to be sent to my pcp but nothing was sent.I have email copies.I did one zoom call with np with team member from celiac specialist in Nov 2025 and she asked me why I wanted to know why I wanted the celiac diagnosis so bad, I sad I don't, its my life and I need revalidaion because its affecting me.KB stated well it shows you are.I asked then why am I going through all this.I was labeled unruly. Its been a celiac circus and medical has caused anxiety and depression no fault to my own other than being born with bad genetics. How is it legal for medical professionals to gaslight patients that are with an ailment coming for help to be downplayed? KB put in my records that she personally spent 120min with me and I think the zoom call was discussing celiac 80 min ONE ZOOM call.SHE is responsible for not explaining to my pcp about celiac disease am I right?
    • Amy Barnett
      Question

      By Amy Barnett · Posted

      What is the best liquid multivitamin for celiac disease?
    • Jmartes71
      Alarming

      By Jmartes71 · Posted

      I've noticed with my age and menopause my smell for bread gives me severe migraines and I know this.Its alarming that there are all these fabulous bakeries, sandwich places pizza places popping up in confined areas.Just the other day I suffered a migraine after I got done with my mri when a guy with a brown paper bag walk in front of me and I smelled that fresh dough bread with tuna, I got a migraine when we got home.I hate im that sensitive. Its alarming these places are popping up in airports as well.I just saw on the news that the airport ( can't remember which  one)was going to have a fabulous smelling bakery. Not for sensitive celiacs, this can alter their health during their travel which isn't safe. More awareness really NEEDS to be promoted, so much more than just a food consumption!FYI I did write to Stanislaus to let them know my thoughts on the medical field not knowing much about celiac and how it affects one.I also did message my gi the 3 specialist names that was given on previous post on questions on celiac. I pray its not on deaf door.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.