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Gerd Sufferers

covsooze

By covsooze
in Related Issues & Disorders

Recommended Posts

covsooze Enthusiast
covsooze
Posted

The first couple of months of being gluten-free, my GERD was much improved, but revently it's got really bed again, to the point that anything I eat makes it worse. I guess my esophegus must have got damaged and needs time to mend. What I'm wondering is, is this a result of being glutened (I was a few weeks ago) or is it from the usual recognised triggers of GERD? (citrus, tomatoes, spice, fat etc). Just wondering what other peoples' experiences are.

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elonwy Enthusiast
elonwy
Posted

My GERD went away completely. I was however, unresponsive to GERD medication, so it was purely a symptom of Celiac, and I only had it for about a year before being diagnosed. It was really bad, but I didn't have that much damage.

Elonwy

chrissy Collaborator
chrissy
Posted

my girls' reflux did not improve when they went gluten-free, in fact, tianna thought she could quit her prevacid, but got symptoms and had to go back on prevacid. she had not had symptoms of reflux before gluten free, we only knew she had esophagitis from her biopsy.

jknnej Collaborator
jknnej
Posted

Sorry to say my GERD did not improve after going gluten-free. Stayed the same, basically. I guess it wasn't a symptom of gluten.

trents Grand Master
trents
Posted

I went on Protonix around the same time that I was Dx with celiac disease. Much improved but I think its due to the proton pump inhibitor med. When I miss a dose, I get indigestion. GERD is an extremely common medical condition in the general population. Not sure we can blame it on celiac disease.

Steve

Guest cassidy
Guest cassidy
Posted

I was about to have surgery a second time for gerd when I was diagnosed with celiac. I was taking aciphex twice a day and feeling miserable. I never thought my gerd would go away because of this diet, but it did. It took a few months initially to go away. Now, if I get glutened I have severe reflux for about two weeks afterwards. It is the symptom that lasts the longest.

Aloe helped calm my stomach down. Also, vinegar really helps with the heartburn. It is counter-intuitive, but some people now think that too little acid causes reflux. If there isn't enough acid to trigger the muscle to shut, then it stays loose and reflux is easier. I tried drinking a few tablespoons of vinegar when I was at my worst and my heartburn was gone in 15 minutes. I have since gotten apple cider vinegar capsules because the taste of the vinegar was too much. I take a few tablets and my heartburn goes away.

kabowman Explorer
kabowman
Posted

Mine did not improve - I still take additional OTC meds (on top of my nexium) when I eat tomatoes. The GI doc recommended this because he said my esophegus was very scarred and any more, no matter how small, heartburn would only increase my chances of cancer.

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covsooze Enthusiast
covsooze
Posted
  • Author

Kate-

you're intolerant to various foods; is GERD your reaction to any of them? Do you avoid any foods because of your GERD? I'm thinking I might have to. Does the way you cook certain foods make any difference?

jayhawkmom Enthusiast
jayhawkmom
Posted

I've always known I had reflux, but I didn't know it was GERD until my endoscopy last week. My esophogus is scarred, and I've been told that I absoultely MUST take Prevacid - and stay away from tomatoes, citrus, chocolate - and anything else that could cause the LES to relax. =(

I'm also gluten-free - officially, as of Thursday. But, since I've never really dealt with the heartburn or other obvious GERD symptoms, I have no idea whether or not it's helping.

kabowman Explorer
kabowman
Posted

I limit my caffine to about 2 cups of coffee each morning and the occasional glass of iced tea in public; we do decaf iced tea at home (unsweetened), have started to limit my alcohol more, and I limit my tomatoes. I haven't noticed a difference with the way they are prepared but don't have as many problems with fresh.

I have it down to less than 1 time each month now...

I can't have any normal OJ since they all have the calcium added which is something I have determined bothers me - I take calcium tablets daily but I don't know what they put in those drinks!!!

covsooze Enthusiast
covsooze
Posted
  • Author
I can't have any normal OJ since they all have the calcium added which is something I have determined bothers me - I take calcium tablets daily but I don't know what they put in those drinks!!!

I've been wondering if the calcium tablets I take every day (which are prescribed by my GP) could be causing problems? :huh:

I try to have tea as little as possible - like chocolate, one cup is never enough! I think it's the tannin in tea that bothers me, as well as the caffeine, as I still get symptoms with caffeine free tea. Citrus is bad news for me. Tomatoes used to be but I'm avoiding them now anyway as they give me mouth ulcers. Choclate is my one vice :ph34r: I've tried gfdf chocolate, but it still irritates my stomach, so I guess I'm going to have to cut it out completely (I really cannot just have one piece!!).

Do those of you who take nexium take it every day of your life? Or do you just take it as long as you're feeling bad? You may be able to tell that the medical guidance I'm getting on this one is pretty non-existent....

kalanfan Explorer
kalanfan
Posted

First of all..no....and it sux....im still waiting for my GERD to go away

Is nexium that purple pill thats suppose to repair your esophogaus?

I'm on losec right now and it used to work ok.....now mind you i still dont get heartburn but i get alot of acid reflux now....especially at night...it REALLY interferes with getting a good night sleep.....my bed is elevated by a big peice of wood...lol.....i was taking tums until i read they werent gluten free so i started taking rolaids....then my mom heard that malox was really good so i went on that....but then i read that that wasnt gluten free....so i went back on rolaids until i read that they can cause diarreha ( although most of my D went away after going gluten free i still have it in the mourning) so then i just started taking baking soda but now my D is coming back with a vegeance...im at a loss here.....i guess i will just have to add more pillows to my bed...lol

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    • knitty kitty
      Accuracy of testing concerns

      By knitty kitty · Posted

      Welcome to the forum, @McKinleyWY, For a genetic test, you don't have to eat gluten, but this will only show if you have the genes necessary for the development of Celiac disease.  It will not show if you have active Celiac disease.   Eating gluten stimulates the production of antibodies against gluten which mistakenly attack our own bodies.  The antibodies are produced in the small intestines.  Three grams of gluten are enough to make you feel sick and ramp up anti-gluten antibody production and inflammation for two years afterwards.  However, TEN grams of gluten or more per day for two weeks is required to stimulate anti-gluten antibodies' production enough so that the anti-gluten antibodies move out of the intestines and into the bloodstream where they can be measured in blood tests.  This level of anti-gluten antibodies also causes measurable damage to the lining of the intestines as seen on biopsy samples taken during an endoscopy (the "gold standard" of Celiac diagnosis).   Since you have been experimenting with whole wheat bread in the past year or so, possibly getting cross contaminated in a mixed household, and your immune system is still so sensitized to gluten consumption, you may want to go ahead with the gluten challenge.   It can take two years absolutely gluten free for the immune system to quit reacting to gluten exposure.   Avoiding gluten most if the time, but then experimenting with whole wheat bread is a great way to keep your body in a state of inflammation and illness.  A diagnosis would help you stop playing Russian roulette with your and your children's health.      
    • trents
      Accuracy of testing concerns

      By trents · Posted

      Welcome to the celiac.com community, @McKinleyWY! There currently is no testing for celiac disease that does not require you to have been consuming generous amounts of gluten (at least 10g daily, about the amount in 4-6 slices of wheat bread) for at least two weeks and, to be certain of accurate testing, longer than that. This applies to both phases of testing, the blood antibody tests and the endoscopy with biopsy.  There is the option of genetic testing to see if you have one or both of the two genes known to provide the potential to develop celiac disease. It is not really a diagnostic measure, however, as 30-40% of the general population has one or both of these genes whereas only about 1% of the general population actually develops celiac disease. But genetic testing is valuable as a rule out measure. If you don't have either of the genes, it is highly unlikely that you can have celiac disease. Having said all that, even if you don't have celiac disease you can have NCGS (Non Celiac Gluten Sensitivity) which shares many of the same symptoms as celiac disease but does not involve and autoimmune reaction that damages the lining of the small bowel as does celiac disease. Both conditions call for the complete elimination of gluten from the diet. I hope this brings some clarity to your questions.
    • McKinleyWY
      Accuracy of testing concerns

      By McKinleyWY · Posted

      Hello all, I was diagnosed at the age of 2 as being allergic to yeast.  All my life I have avoided bread and most products containing enriched flour as they  contain yeast (when making the man made vitamins to add back in to the flour).  Within the last year or so, we discovered that even whole wheat products bother me but strangely enough I can eat gluten free bread with yeast and have no reactions.  Obviously, we have come to believe the issue is gluten not yeast.  Times continues to reinforce this as we are transitioning to a gluten free home and family.  I become quite ill when I consume even the smallest amount of gluten. How will my not having consumed breads/yeast/gluten for the better part of decades impact a biopsy or blood work?  I would love to know if it is a gluten intolerance or a genetic issue for family members but unsure of the results given my history of limited gluten intake.   I appreciate the input from those who have gone before me in experience and knowledge. Thank you all!
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      By trents · Posted

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