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What Do You Miss?

Guest ~jules~

By Guest ~jules~
in Coping with Celiac Disease

Recommended Posts

CarlaB Enthusiast
CarlaB
Posted
I haven't tried ghee, but I'd like to. Do you make your own, or is there a good brand I should look for?

I can't, unfortunately, use coconut oil because I'm intolerant to coconut. :angry:

I thought the brand was Ghee :lol: I just buy it in a glass jar at the Wild Oats. I am afraid to make my own since it's mechanically separated, I figure that the machines are more more accurate than I would be. I don't use it often, usually just for popcorn.

In the same way that Ghee doesn't have casein, I have read that coconut oil does not have the protein in coconut so it usually doesn't bother those allergic to coconut. I thought of you when I read that. Don't go on my word ... it was just something I read the other day ... but it might be worth researching.

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jerseyangel Proficient
jerseyangel
Posted

:lol: Ghee!

Interesting about the coconut oils. I'm not allergic (that I know of), just intolerant. I know that there is coconut in most natural soaps and shampoos, and those don't cause me any obvious problems.

I am also soy intolerant, and soy oil bothers me, but a small amount of soy lecithin does not :blink:

CarlaB Enthusiast
CarlaB
Posted

The article may have said intolerant, I can't remember. I guess it's up to you if you'd want to risk discomfort to see if the oil bothers you or not. Some things are worth the risk ... others are not!

Rusla Enthusiast
Rusla
Posted
I miss being able to go to any restaurant and eat with everyone else. I always try and recreate the foods I miss myself in a gluten-free and casein free way.

Excuse me for being off topic,but Carrie, your wedding gown is so gorgeous. You look positively enchanting in it, I didn't realize the big day had already gone by. Congratulations.

ianm Apprentice
ianm
Posted

New Castle Brown Ale, Guiness Stout and Two Hearted Ale. New Grist is good but it is not the same. I miss all of the other gluten foods like a big giant hole in the head.

Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted

Sorry if this has already been suggested, but there are some unbelievable good recipes in Annalise Roberts' GLuten-Free Baking Classics. There is somethign she calls Submarine Sandwich Bread which tastes to ME like the artisanal bakery breads, and the sandwich bread leaves Kinnikinnick's in the dust! The Sub bread is made in a French bread pan (with little holes like a pizza pan), and the crust is crispy and the bread is chewy and it kept for over a week in my fridge (wrappeed tightly in plastic wrap and then foil) and it reheated beautifully in the toaster oven....the sandwich bread is good enough for a PBJ sandwich.

Her cakes and cookies are amazing, too--I thought the chocolate chip cookies tasted almost exactly like Tollhouse cookies, and the coconut cake was better than any gluten cake I'd ever made before, scratch or mix! (And I love to bake!)

The nicest part is, the good taste totally satisfies the cravings--but the fact that they don't contain gluten means that these recipes don't bring back the cravings after you've eaten the bread (or cakes or cookies), so you don't get trapped in that wanting more andmore andmore cycle.

  • 2 weeks later...
CMarente Newbie
CMarente
Posted

Dear All,

On the pizza genre, if you live in Colorado, Beau Jo's pizza now has a gluten free menu, and their gluten-free prairie pies (pizzas) have a crust that tastes just like Pizza Hut's!

On another note, a lot of the recipes I've seen suggest using Xantham gum to keep gluten free flours together and also to keep them from getting crumbly. It suggests putting the Xantham gum in before butter. Hope this helps someone!

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Mango04 Enthusiast
Mango04
Posted

Does anyone have the Smart Squeeze Ingredients?

Adelle Enthusiast
Adelle
Posted

OREOS!!! I miss oreos like crazy!!! I'm still looking for a decent replacement. Going crazy for it. Oreo's were my favorite junk food!! Didn't get them very often, but I miss them terribly!!

Canadian Karen Community Regular
Canadian Karen
Posted

Oh, this is so easy......

The thing I miss the most is my chinese food feasts..... Nothing beat a night of ordering chinese food from our favourite Szchewan restaurant. Szchewan beef, Szchewan shrimp with peanuts, curry vegetables, beef fried rice smothered in soy sauce, spring rolls, sweet and sour chicken balls.......

Wow! If I could only have that one more time....... :(

Karen

tiredofdoctors Enthusiast
tiredofdoctors
Posted

Same thing, always. Krispy Kreme doughnuts. When the "Hot Doughnuts" light is on, and you can get them boxed right off the conveyor belt. If I bought them now, I would probably eat the WHOLE dozen while they were hot. Mmmmmm........

I also miss Black & Tan beer. When we would go to Maryland, we'd have steamed crabs, spend the entire DAY cracking those babies, drinking Black & Tan beer.

I also miss the marshmallow doughnuts from the little corner German bakery there. They're not glazed, like some doughnuts are. They're just . . . great. The marshmallow filling is home-made. And Smircase (sp?) cake from there . . .

And King Fish fried white fish sandwiches . . . I ate a TON of them when I was pregnant with Ashley!

Guest ~jules~
Guest ~jules~
Posted

Okay, Okay I'm getting hungry. We ate out tonight at one of "their places" their meaning the rest of my family, and I was just watching my husband eat this big sloppy taco salad with nacho cheese, Ugh some days are just harder than others. Oh and has anyone had the bread dream? You know your sitting at the table in a restaraunt eating the bread out of the basket, then you realize its bread and panick?

What happened to the normal nightmares I used to have like falling, or running? LOL....Oh well :D

Nooner Newbie
Nooner
Posted

Oh my gosh!!! I have gluten nightmares too!!! Waking up in a cold sweat, thinking you've just eaten bread or pizza or pasta... :o

My husband thinks I'm crazy...okay maybe I am, but not in this case!

~Li

shai76 Explorer
shai76
Posted

I can live without gluten, but I really miss dairy. I want a piece of cheese so bad, and maybe some real ice cream. Creamy mushroom soup, or pumpkin pie. I'd like to be able to eat turkey on thanks giving, but since I'm allergic to turkey I can't. I miss the convienence of dining out.

TriticusToxicum Explorer
TriticusToxicum
Posted
Oh my gosh!!! I have gluten nightmares too!!! Waking up in a cold sweat, thinking you've just eaten bread or pizza or pasta... :o

My husband thinks I'm crazy...okay maybe I am, but not in this case!

~Li

Weird, the same thing happened to me last night! I startled myself awake thinking I had just eaten a bowl of Campbells Chicken Noodle Soup. The only expalnation I have is that my wife has the flu, so I was just being a good husband in my sleep?

taz sharratt Enthusiast
taz sharratt
Posted
I am trying to figure out what food I miss the most. I have never had any problems with eating or food, fortunetly enough. I have always been a very healthy eater, and consider myself fortunate not to have a "picky" problem like my hubby, or an eating disorder of any kind. I've always eaten right, and splurged occasionally....I am having trouble with the freedom I have lost to eat what I want when I want I guess, even though 9 times out of 10 I wouldn't have eaten it anyway! But, I can say I will miss the occasional old fashioned glazed donut, Kentuky Fried Chicken, and anything salty when I felt like splurging before. So what is your most missed? (and how do I make it now?) recipes wanted... :D

i miss pasta a lot.

valerieann Newbie
valerieann
Posted
I am trying to figure out what food I miss the most. I have never had any problems with eating or food, fortunetly enough. I have always been a very healthy eater, and consider myself fortunate not to have a "picky" problem like my hubby, or an eating disorder of any kind. I've always eaten right, and splurged occasionally....I am having trouble with the freedom I have lost to eat what I want when I want I guess, even though 9 times out of 10 I wouldn't have eaten it anyway! But, I can say I will miss the occasional old fashioned glazed donut, Kentuky Fried Chicken, and anything salty when I felt like splurging before. So what is your most missed? (and how do I make it now?) recipes wanted... :D

Pikelets, real sandwiches, ice-cream, cream buns, doughnuts, hot cross buns, fried runny eggs, sausages, POTATOES, milky drinks, fast food, cappochinos, chocolate, and so on and so on.

prinsessa Contributor
prinsessa
Posted
I can live without gluten, but I really miss dairy. I want a piece of cheese so bad, and maybe some real ice cream. Creamy mushroom soup, or pumpkin pie. I'd like to be able to eat turkey on thanks giving, but since I'm allergic to turkey I can't. I miss the convienence of dining out.

I think my MIL makes cream of mushroom soup without using cream. I asked her how she makes it (because it is really good) and she said she just blends the mushrooms in the blender after cooking them. I thought for sure she used cream. I will try to get the recipe from her. She is one of those people that doesn't use recipes though, so I'm not sure if she knows exact ingredients.

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    • knitty kitty
      My only proof

      By knitty kitty · Posted

      You're right, doctors usually only test Vitamin D and B12.  Both are really important, but they're not good indicators of deficiencies in the other B vitamins.  Our bodies are able to store Vitamin B12 and Vitamin D in the liver for up to a year or longer.  The other B vitamins can only be stored for much shorter periods of time.  Pyridoxine B 6 can be stored for several months, but the others only a month or two at the longest.  Thiamine stores can be depleted in as little as three days.  There's no correlation between B12 levels and the other B vitamins' levels.  Blood tests can't measure the amount of vitamins stored inside cells where they are used.  There's disagreement as to what optimal vitamin levels are.  The Recommended Daily Allowance is based on the minimum daily amount needed to prevent disease set back in the forties when people ate a totally different diet and gruesome experiments were done on people.  Folate  requirements had to be updated in the nineties after spina bifida increased and synthetic folic acid was mandated to be added to grain products.  Vitamin D requirements have been updated only in the past few years.   Doctors aren't required to take as many hours of nutritional education as in the past.  They're educated in learning institutions funded by pharmaceutical corporations.  Natural substances like vitamins can't be patented, so there's more money to be made prescribing pharmaceuticals than vitamins.   Also, look into the Autoimmune Protocol Diet, developed by Dr. Sarah Ballantyne, a Celiac herself.  Her book The Paleo Approach has been most helpful to me.  You're very welcome.  I'm glad I can help you around some stumbling blocks while on this journey.    Keep me posted on your progress!  Best wishes! P.S.  interesting reading: Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/
    • NanceK
      My only proof

      By NanceK · Posted

      So interesting that you stated you had sub clinical vitamin deficiencies. When I was first diagnosed with celiac disease (silent), the vitamin levels my doctor did test for were mostly within normal range (lower end) with the exception of vitamin D. I believe he tested D, B12, magnesium, and iron.  I wondered how it was possible that I had celiac disease without being deficient in everything!  I’m wondering now if I have subclinical vitamin deficiencies as well, because even though I remain gluten free, I struggle with insomnia, low energy, body aches, etc.  It’s truly frustrating when you stay true to the gluten-free diet, yet feel fatigued most days. I’ll definitely try the B-complex, and the Benfotiamine again, and will keep you posted. Thanks once again!
    • knitty kitty
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By knitty kitty · Posted

      Segments of the protein Casein are the same as segments of the protein strands of gluten, the 33-mer segment.   The cow's body builds that Casein protein.  It doesn't come from wheat.   Casein can trigger the same reaction as being exposed to gluten in some people.   This is not a dairy allergy (IGE mediated response).  It is not lactose intolerance.  
    • trents
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By trents · Posted

      Wheatwacked, what exactly did you intend when you stated that wheat is incorporated into the milk of cows fed wheat? Obviously, the gluten would be broken down by digestion and is too large a molecule anyway to cross the intestinal membrane and get into the bloodstream of the cow. What is it from the wheat that you are saying becomes incorporated into the milk protein?
    • Scott Adams
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By Scott Adams · Posted

      Wheat in cow feed would not equal gluten in the milk, @Wheatwacked, please back up extraordinary claims like this with some scientific backing, as I've never heard that cow's milk could contain gluten due to what the cow eats.
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