Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celebration!

schuyler

Recommended Posts

schuyler Apprentice
schuyler
Posted

The boys had a drs appt today, and we got good news.

Sean (2 years old) had gained 3 lbs, and now weighs 22 lbs and is 33 inches tall :D !!!! He now outweighs Matthew (who is 3). Matty still weigh's 19.5 lbs, but he has grown 1/5 of an inch. The doc said that's good news because it means he's getting more nutrients.

Nicolas hasn't grown or gained any weight, but he's much happier most of the time. He even made his first friend at school. I'm so proud of him (and the other boys).

The doctor was so impressed with their postitve results that he is going to write a letter to the judge stating that their father is endangering their well being by feeding the gluten during his visitations (although their dad hasn't been taking them for visitations lately because he says he's too busy to see them).

We go to court next week, so hopefully everything will go well.

Even more great news is that the boy's mom will be coming home from Iraq on October 7, which is 1 month sooner than expected. :D:D

We are celebrating everything by having gluten-free/df cake tonight for dessert! :P:P

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jayhawkmom Enthusiast
jayhawkmom
Posted

Congratulations!! What wonderful wonderful news!!!!!!

Ursa Major Collaborator
Ursa Major
Posted

Wow, what great news! That certainly is reason for celebration.

Luvs to Scrap Apprentice
Luvs to Scrap
Posted

What wonderful news! I am so glad the boys are responding to the diet and that their mom is coming home next month. Keep up the great work! :D Kendra

Becky6 Enthusiast
Becky6
Posted

That is great!!!

  • 2 weeks later...
schuyler Apprentice
schuyler
Posted
  • Author

Court went great!

My parents were given custody (which is what we wanted, since I'm really busy). Since I still live at home, I see them all the time and the boys don't know that anything is different.

Their dad was ordered to fully reimburse me for all of the kids expenses, so I should get the $ soon.

The best part is that his visitations were reduced to supervised vitits one day a week for 3 hours. The 4 year old is so happy that he doesn't have to see his dad all the time. I wonder why ;)

The boys have not gained any weight recently, but some of their other symptoms have disappeared. No more bed wetting and night terrors!

My mom may be popping on here at times to ask questions. She's familliar with celiac, but she's having a hard time finding kid friendly gluten-free recipes.

On a sad note, the boys mom was injured in Iraq and has been sent to a hospital in Germany (I believe). She's unstable right now, so they will be keeping her there for at least a few weeks, after that she'll go to a hospital in the US until she's completely better. If all goes well, hopefully she'll be home in a few months.

Guest nini
Guest nini
Posted

sorry to hear about their mom, I hope she's ok soon and get's to come home soon.

good news about court...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


AndreaB Contributor
AndreaB
Posted

Danielle,

That's great news about the boys growth, your parents getting custody, reduced visits from their father.

I'm sorry about their mother getting hurt. Please keep us posted, I'm sure she'll be glad to be back stateside in a couple weeks/months.

jerseyangel Proficient
jerseyangel
Posted

Danielle,

Thamks for the update! I'm so happy that the boys will remain with you and your parents :)

Sorry about their mom--she's your cousin, right? Hope her injuries aren't very serious, and that she'll be able to come home. Keep us posted!

schuyler Apprentice
schuyler
Posted
  • Author

Their mom (my cousin) is doing well. Her injuries are not nearly as severe as the doctors first thought (she just has a punctured lung, broken leg bones, and minor internal bleeding which stopped right away). They are weaning her off of the vent, and she is awake and responsive. Her parents are with her now, and they said it does not appear like she has any brain damage. They are hoping to move her stateside sometime next week :D .

Sean (2 years old) has had a HUGE breakthough recently. He started talking! Prior to going gluten-free, he had not spoken or attempted to speak at all (he just grunted or used simple signs before). Well, last week he walked into my room, pointed the light, said "light" and then smiled and ran away. He now points out every light he sees :D . He has also started to babble and yesterday he said "Hi Dani" as clear as day when I picked him up from pre-school. I am so proud of him! B)

Ursa Major Collaborator
Ursa Major
Posted

That's excellent news about the boy's mother. I am so glad she is going to be alright. And you must be thrilled with the little guy starting to talk, that's great progress!

lonewolf Collaborator
lonewolf
Posted

It's great that the boys are doing well. I will say a little prayer for your cousin, that she can come home to them soon.

You are an amazing young woman to take care of these kids, even with your parents' help, and to be so attentive to their needs. You deserve a medal!

jerseyangel Proficient
jerseyangel
Posted

Thanks for letting us know about the boys' mom! Hope she continues to improve :)

Great news about Sean :D Pretty soon, he'll be talking up a storm!

AndreaB Contributor
AndreaB
Posted

Great news Danielle, on all counts!

TCA Contributor
TCA
Posted

I'm praising God right now for ALL the good news. Please keep us posted. Is there anything we can do to help? The burden is heavy for all of you right now!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. catnapt
      - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      results from 13 day gluten challenge - does this mean I can't have celiac?

      oops my gluten challenge was only 12 days It started Jan 21s and ended Feb 1st worst 12 days of my life Does not help that I also started on a thiazide-like drug for rule in/out renal calcium leak at the exact same time No clue if that could have been symptoms worse 🤔
    2. Wheatwacked
      - Wheatwacked replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      13

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Welcome to the forum @Known1, What reaction were you expecting? Pipingrock.com High Potency Vitamin D3, 2000 IU, 250 Quick Release Softgels $6.89 I've have been taking the 10,000 IU for close to 10 years. When I started with vitamin D I worked my way up to 10000 over several weeks. Even at 8000 I felt no noticeable difference. Then after...
    3. xxnonamexx
      - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      My journey is it gluten or fiber?

      I don't know if I am getting sufficient Omega Threes. I read about phosphotidyl choline may cause heart issues. I will have o do further research on heathy Omega 3 supplements or from foods. Is there a blood test that can tell you everything level in your system such as Thiamine, Benfotiamine levels etc? Thanks
    4. Scott Adams
      0

      Gluten-Free Cantonese Steamed Fish with Ginger, Scallions, and Sizzling Oil

    5. catnapt
      - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      results from 13 day gluten challenge - does this mean I can't have celiac?

      If lectins were my problem, I would react to wheat germ (the highest source of wheat lectins) and beans. I don't. I only react to bread and pasta, which are the highest sources of gluten. Therefore, my issue is wheat-specific (Gluten/ATIs), not a general lectin issue. I have eaten a supposedly high lectin diet (I say supposedly because lectin...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,368
    • Most Online (within 30 mins)
      7,748
    Klairep
    Newest Member
    Klairep
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • catnapt
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By catnapt · Posted

      oops my gluten challenge was only 12 days It started Jan 21s and ended Feb 1st   worst 12 days of my life   Does not help that I also started on a thiazide-like drug for rule in/out renal calcium leak at the exact same time No clue if that could have been symptoms worse 🤔
    • Wheatwacked
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Wheatwacked · Posted

      Welcome to the forum @Known1, What reaction were you expecting? Pipingrock.com High Potency Vitamin D3, 2000 IU, 250 Quick Release Softgels $6.89 I've have been taking the 10,000 IU for close to 10 years. When I started with vitamin D I worked my way up to 10000 over several weeks.  Even at 8000 I felt no noticeable difference.  Then after a few days at 10000 it hit Whoa, sunshine in a bottle.  celiac disease causes malabsorption of dietary D and you've poor UV access.  It took me from 2015 to 2019 to get my 25(OH)D just to 47 ng/ml.  Another two years to get to 80.  70 to 100 ng/ml seems to be the body's natural upper homeostasis  based on lifeguard studies.  Dr. Holick has observed the average lifeguard population usually has a vitamin D 3 level of around 100 ng/ml. Could it be that our normal range is too low given the fact that ¾ or more of the American population is vitamin D deficient? Your Calcium will increase with the vitamin D so don't supplement calcium unless you really need it.  Monitor with PTH  and 25(OH)D tests. Because of your Marsh 3 damage you need to ingest way more than the RDA of any supplement to undo your specific deficiencies. I believe you are in the goiter belt.  Unless you have reason not to, I recommend pipingrock's Liquid Iodine for price and quality.  The RDA is 150 to 1100 mcg.  In Japan the safe upper level is set at 3000 mcg.  Start with one drop 50 mcg to test for adverse response and build up.  I found 600 mcg (12 drops) a day is helping repair my body.  Iodine is necessary to healing.  90% of daily iodine intake is excreted in urine.  A Urine Iodine Concentration (UIC) can tell how much Iodine you got that day.  The thyroid TSH test will not show iodine deficiency unless it is really bad.  
    • xxnonamexx
      My journey is it gluten or fiber?

      By xxnonamexx · Posted

      I don't know if I am getting sufficient Omega Threes. I read about  phosphotidyl choline may cause heart issues. I will have o do further research on heathy Omega 3 supplements or from foods. Is there a blood test that can tell you everything level in your system such as Thiamine, Benfotiamine levels etc? Thanks
    • catnapt
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By catnapt · Posted

      If lectins were my problem, I would react to wheat germ (the highest source of wheat lectins) and beans. I don't. I only react to bread and pasta, which are the highest sources of gluten. Therefore, my issue is wheat-specific (Gluten/ATIs), not a general lectin issue.   I have eaten a supposedly high lectin diet (I say supposedly because lectin content in these foods is greatly reduced by proper cooking and I eat very few of those foods raw, and even then, rarely!!) for years. My health has improved greatly on my whole foods plant forward diet. I have asked all my drs and a registered dietician about my diet, asked if eating such a high amnt of fiber might interfere with the digestion of any other nutrients and the answer has always been NO.     while doing the gluten challenge I did not eat ANY wheat germ (since it doesn't have hardly any gluten, and I was too sick from the bread and pasta to want to eat much anyway) I will NOT put that poison in my body again. That was a horrific experience and if this is what most celiac patients have to deal with, I am very sorry for them I don't care if I have celiac or NCGS I won't intentionally cause myself that much pain and suffering it's not worth it.  
    • knitty kitty
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By knitty kitty · Posted

      @catnapt,  Wheat germ contains high amounts of lectins which are really hard to digest and can be irritating to the digestive tract.  They can stimulate IgG antibody production as your blood test shows.   Even beans have lectins.  You've simply eaten too many lectins and irritated your digestive tract.   You may want to allow your digestive tract to rest for a week, then start on gluten in "normal" food, not in concentrated vital wheat gluten. This explains it well: Lectins, agglutinins, and their roles in autoimmune reactivities https://pubmed.ncbi.nlm.nih.gov/25599185/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.