Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

When Will It Finally Sink It?

prinsessa

By prinsessa
in Coping with Celiac Disease

Recommended Posts

prinsessa Contributor
prinsessa
Posted

I can't believe I keep glutening myself in stupid ways. Yesterday I was eating some herring that my husband bought. As I was eating it, I kept thinking to myself "you should check the ingredients first". So after eating 4 or 5 pieces, I check the ingredients. Of course it say "Contains Wheat" in bold print. I did the same thing last week. Why can't I get it in my head that I should ALWAYS check labels before eating? How long did take for everyone else to remember to always check labels? I'm so mad at myself right now.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


hez Enthusiast
hez
Posted

For me it took six months of not feeling better on the gluten-free diet. I then became very diligent about reading everything. It became a habit like washing hands before eating. It will become part of your life, just give it time.

Hez

2kids4me Contributor
2kids4me
Posted

Took me a while too. Kids have been gluten-free since 2004 and just this spring I bought them skittles littles (after all the regular skittles are gluten-free, right?).

It was my son that noticed the wheat in the ingredients - after they ate some.

They didnt get sick and now I may know why - just noticed the thread about wheat starch....hmm still wont take the chance though and will stick to regular skittles

katrinamaria Explorer
katrinamaria
Posted

i know exactly what you mean! i'm so mad at myself (and sick) right now because i did the same thing...i grabbed a little sleeve of trail mix with nuts, rainsin, and generic m & m's --thinking what could be wrong with that? AFTER i finished the bag i lazily read the ingredients...wheat...my heart sunk cause i knew what was coming... now i'm trying to drag my sick, miserable self around campus mad for not being more diligent....grrr this is so frustrating sometimes....

.....sorry, needed to vent............

spunky Contributor
spunky
Posted

You really have to stay on your toes with this. I usually stand in the store reading labels for quite a while, but then read the labels again at home before eating anything. I keep a list of safe ingredients and forbidden ingredients on the fridge with magnets so I can easily double check anything doubtful in the kitchen. Even as careful as I feel I am, almost everytime I go shopping, it seems I end up with at least one thing that I am afraid to eat after I double check it at home before eating it.

The last time I messed up, about two or three weeks ago, my neighbor convinced me to taste her special, really expensive beer. Since I've never been a beer drinker, it was just a total DUH moment for me when I took that swig to taste the stuff. It wasn't until a couple of hours later that I realized what I'd done. Fortunately, I got only mildly ill from that one.

My husband is getting pretty good at reading labels with me too, now. So, I guess two heads are better than one.

CarlaB Enthusiast
CarlaB
Posted

I'm 9 months gluten-free and wouldn't dream of eating something without checking ... I guess you just have to get sick enough times before you figure out you need to read ... hopefully this is your last time!!

aikiducky Apprentice
aikiducky
Posted

You can teach yourself a new habit if you take your time to do it and make it into a bit of a game. Like decide that this is "Read The Label Week" and read the label on everything you eat this week, even though you are absolutely positively sure that it's gluten free. Read the labels on everything you use in cooking even if you already bought it ages ago and have been cooking with it for weeks. Just every time you take a package of food in your hand, read the label. The idea is to get ridiculously obsessive with it to make it into a habit. Read every label thoroughly before you put it in your shopping cart. Then again when you put it in the cupboard. Then again before cooking.

I bet you have yourself a new label-reading habit before you even know it. :D:D:D

Pauliina

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


2Boys4Me Enthusiast
2Boys4Me
Posted

Reading labels can certainly be a pain in the ... It has happened where I've read the label and seen nothing suspicious but called the company anyway and sure enough - it's usually the last or near the end of the ingredient list. First I check the bold allergy info line. Then I read the label from top to bottom. Then I put the item in my cart. Then a bit later, before I pay, or while I'm in line at the cashier, I read it from bottom to top. You'd be surprised how many times you catch a forbidden item by reading from last ingredient up to the first.

TinkerbellSwt Collaborator
TinkerbellSwt
Posted

My thing is.. I read the label. I havent gotten sick yet.. but there have been many times that I dont read it for some reason until I get home. I dont know why I do this... it makes me nuts. So, I end up either returning the items, which I dont like to do, or throwing them away. gggrrrr.. I should save the middle man and just throw my money in the trash! :P

2Boys4Me Enthusiast
2Boys4Me
Posted
My thing is.. I read the label. I havent gotten sick yet.. but there have been many times that I dont read it for some reason until I get home. I dont know why I do this... it makes me nuts. So, I end up either returning the items, which I dont like to do, or throwing them away. gggrrrr.. I should save the middle man and just throw my money in the trash! :P

Throw the $$ my way. I'll PM my address. :P

All-about-March Newbie
All-about-March
Posted
My husband is getting pretty good at reading labels with me too, now. So, I guess two heads are better than one.

This is what helps me - do groceries with hubby or friend. Read ingredients out loud to each other. Laugh at each other for what the other cannot pronounce. Wonder about consumption of what cannot be pronounced. :huh: Then have some fun with the grocery store clerks when you catch them 'eyeing' you for being there for 4 hours. :P

prinsessa Contributor
prinsessa
Posted
  • Author

Thanks everyone. The thing is that I have been gluten free for about 6 or 7 months now so feel that I should know better. I ususally check everything and won't eat stuff if I'm not sure it is gluten free. I don't know if it is the brain fog from getting glutened the first time because I will usually forget to check labels a couple of times after that. I don't get horribly sick, but I do feel bad enough that getting glutened is not fun. I need to tell DH that to remind me to check every label at the store. I guess I am mad at myself because I am trying hard be be gluten free, but I end up glutening myself when I should know better. I'm glad I'm not the only one who does it though ;)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      130,006
    • Most Online (within 30 mins)
      7,748
    Ellen Watts
    Newest Member
    Ellen Watts
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • wellthatsfun
      confirmed via biopsy, quite depressed

      By wellthatsfun · Posted

      i am australian. we do have plenty of substitutes, but most are very expensive compared to the originals. i believe i'll just stick to home cooked meals and not have many treats at all. it's sad but it's just so much easier. also, ive heard far too many horror stories of people ordering gluten free food from restaurants and cafés, explicitly telling servers and kitchen staff that cross contamination is a strict no go, and they still get very sick. until i find a reasonably priced fully gluten free kitchen somewhere, i am not eating out for my safety and sanity.
    • wellthatsfun
      confirmed via biopsy, quite depressed

      By wellthatsfun · Posted

      thank you all for the kind words and support. it truly means a lot. i know i will adapt, it really just is a grieving process right now though. looking forward to feeling healthier!
    • The Logician
      Gluten Sensitivity

      By The Logician · Posted

      To Trent’s, yes, from what i’ve read it is not uncommon for digestive systems to become less tolerant to gluten over time. Many types of sensitivity or allergies arise in older people who never had a problem. I don’t see why you are focusing on anything but the fact that after years of my sensitivity to gluten, for whatever reason , it has disappeared after a bout of antibiotics. What i’ve read is antibiotics can make gluten sensitivity worse. In any event, in my case, if I can still eat all the wheat products I want with no reaction after a month or more since my hospital stay this is something that should be investigated. Time will tell.
    • The Logician
      Gluten Sensitivity

      By The Logician · Posted

      I had a UTI, blood cultures are standard to insure that the infection does not get in the bloodstream which can lead to sepsis and death. In my case there was bacteria in my blood which necessitated 48 hours of antibiotic IV
    • Wends
      Finally got in to doctor to get my referral and I lucked out and got into Gastro the same day - question about different transglutaminase results

      By Wends · Posted

      Hi Cameo674. just read your post. Well wishes to a correct diagnosis so that you can get on track to healing and feeling better. Personally I know it’s good to have the eosinophilic disorder ruled out too, as this can show anti-ttg igA antibodies too. But usually without the anti-gliadin antibodies unless gliadin is an allergen for you. Thanks for posting the link to look up SNPs rs… numbers on another post. Was useful. Looking at your result, ”Celiac Associated HLD-DQ Typing: DQA1* Value: 05; DQA1*DQA11 Value: 05; DQB1* Value: 02; DQB1-DQB11 Value: 02; Celiac Gene Pairs Present Value: Yes; Celiac HLA Interpretation Value: These genes are permissive for celiac disease.  However, these genes can also be present in the normal population. Testing performed by SSOP.  So google failed me.  I think these results basically say I have genes, but everybody has these genes so this test was just to confirm that there is a vague possibility?  Maybe this test result explains why I do not have the horrible symptoms most individuals with celiac have?  I told the GI my assumption is that I am just gluten intolerant since I do not have the pain? So maybe this test explains why I have antibodies?” To me it reads.that you carry the high risk HLADQ2.5 haplotype.      
×
×
  • Create New...