Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Can You Share More About Why You Felt Ok With Using This Lab?


happy4dolphins

Recommended Posts

happy4dolphins Enthusiast

HI,

The process of ordering the tests on line was very easy and paying was also easy.

It's the back and forth information about weather or not it's more relyable then the blood work. IT's a lot of money, but I'm still interested in doing both my daughter and I. WE (hubby and I) are in deabate about weather or not it wil be usedful for us or if knowning that we react to the gluten is enough.

Now our bcbs said that all of those tests were covered based on the diagnosis they gave, provided it was from an approved lab. Entero Las wasn't on the "approved" list fro bcbs ppo.

SO, I did call the rheumatologist to talk with her and she said she'd done the celiac tests. But I got an e mail from someone saying that I need to ask for a celiac panel test. I would have thought the rheumy would have known to do that. SO there's some confusion there about why it wasn't done.

I do have both of the packages from Enterolab here, so If I change my mind. I"m guessing I can just do a reorder!?!???? I've been thinking maybe I'll do one now for me and do another one for megan later if I can't find any other approved labs here.

Now, does WHY is ENtero lab different, other then being in Texas?

Nicole


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CarlaB Enthusiast

For me, I was gluten-free because I had figured out on my own that gluten was a problem. After some time gluten-free, I was still sick and wanted a celiac test. Now I know I wasn't really gluten-free because of hidden gluten and contamination.

The doc tested me for IgA only. He just wasn't real familiar with celiac. He also didn't mention that I should be eating gluten for the test. The test was negative. I went to a GI several months later, was more gluten-free at the time as I was finding some of the hidden glutens. He told me to eat maybe a little more gluten than I was and he'd do an endoscopy and colonoscopy in 6 weeks. Now I know six weeks wasn't enough and a little gluten wasn't enough either. Those tests were negative, too, yet I spent that six weeks VERY ill. That should have been enough proof for me!

Since I have kids and knew Enterolab had genetic testing, I just wanted someone to tell me I wasn't crazy. So, I used it. I recommend it to people who either have negative testing yet know they have a reaction, or to someone who is already gluten-free because I think it's ridiculous to go on a gluten challenge (especially after having been on one) if you're feeling better off gluten.

I was happy with their service and my dietary response for both the gluten and the casein proves the test were correct for me. I went into denial about the casein, but eventually had to give it up.

dionnek Enthusiast

I used them to get the genetic test for my 2 year old daughter. I was recently dx with celiac; my daughter does not have any sympotms so the dr's won't test her, so I just decided to get the gene test done so I know if I ahve to worry about it in the future - turns out I do :(

They were very easy to use and their genetic test was cheaper than Kimball labs (the other one I checked out).

celiacgirls Apprentice

I used it for my daughter because I suspected her tummy aches were from gluten but the regular blood tests at the doctor were negative. She was tested several times from the time she was 1 until she was 8. My grandmother had celiac and I had read the blood tests were not reliable. My daughter said she felt better gluten-free but the doctors said she didn't need to be on the diet. They thought she was anxious. I thought if I did the Enterolab test and she was negative, I would finally give up the idea that gluten was behind her troubles. Her test was positive so I tested myself and my other daughter.

We were also positive even though we were unaware of any gastro problems. Enterolab suggested we try the diet and see what happened. My mother is also gluten-free even though her biopsy was negative. She also encouraged me to try the diet. Within 3 days, I could see huge differences in the way I felt. That convinced me to have my daughter try the diet. She also feels much better.

Because we had such success with the gluten sensitivity test, I have gradually had other tests done by Enterolab. It turns out we are all casein intolerant and that has made a difference for us, too. Because their results seem to have worked for us, I trust them. My husband is still somewhat skeptical but even he had the gene test done by them. However, when he came up with 1 celiac gene, he said that made him distrust them even more. But he doesn't argue any more with the results we are seeing by changing our diets.

I did not submit our tests for insurance reimbursement. I like that not being part of our record.

AndreaB Contributor

I was gluten light (due to allergy testing) for 1 1/2 months prior to ordering the enterolab tests. After reading more about enterolab and their test I decided to have it done for our whole family. My doctor was willing to test me but since I had been gluten light (very light) I figured it wouldn't come back positive. Me and my children did not have obvious symtpoms prior to going gluten free. Now we all have stomach distress/intestinal distress until it clears our systems.

One thing I found interesting aside from the genes was that I tested IgG intolerant to gluten, soy and dairy; but only IgA intolerant to gluten and soy. I am dairy free as well due to my allergy/intolerance though.

I also did not submit it for reimbursement. From what I understand insurance doesn't cover much of it unless your deductible has been met.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,337
    • Most Online (within 30 mins)
      7,748

    medi
    Newest Member
    medi
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • RMJ
      Update: I have a wonderful new gastroenterologist. She wants to be sure there’s nothing more serious, like refractory celiac, going on. She ordered various tests including some micronutrient tests that no one has ever ordered before.  I’m deficient in folate and zinc and starting supplements for both. I’m so glad I decided to go to a new GI!
    • trents
      Autoimmune diseases tend to cluster. Many of them are found close together on the chromosomes. 
    • Rejoicephd
      Just giving another update... I was referred to rheumatology, and they suspect that I may also be dealing with fibromyalgia (it has not been formally diagnosed, but just suggested at this point).  So, I am continuing with the anti-inflammatory diet and vitamins and still working to keep getting rid of all these hidden gluten sources, but I also do have another possible explanation for some of the issues that I'm dealing with.
    • Scott Adams
      I would pressure the lab to do the IgA control test for free so that you won't write a poor review about their testing services. You could get this done at any time, whether or not you are gluten-free, however, the celiac disease Tissue Transglutaminase tTG-IgA test must be done after you've been eating lots of gluten for around 6 weeks. This way you could salvage the results of your tTG-IgA test, as long as you were eating lots of gluten beforehand.
    • Scott Adams
      Given your strong reactions it would be wise not to eat things offered to you without reading the ingredient labels. It's possible there was indeed gluten or some allergen in the chocolates--barley malt is a common ingredient in some chocolates.
×
×
  • Create New...