Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Would You Do?


Thankagirl

Recommended Posts

Thankagirl Rookie

I just got a new Prescription for Etodolac - the generic version of Lodine.

Lodine is gluten-free but I cannot find out if the generic is.

Yesterday I started taking it anyway (I know probably real dumb)

I have had brain fog and itchy armpits and head.

Now the issue is dizziness and itchy can be side effects.

My stomach is fine.

I called the pharmacist who opened the package and looked at the list and said - I see no GLUE Teen listed.

UGH. Well DUH! I asked the pharmacist to fax it over so I could check it out. She said it was to small because it was the insert but I could go look. I am not sure I would know what ingredient had gluten or not.

If the pharmacist doesn't know how could I?

The dr doesn't have office hours until next week.

What should I do? I guess stop taking the pill would be good.

I told you I have brain fog right now!

LOL

Any advise would help.

Thanks for bearing with my dumbness....

Sarah


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CarlaB Enthusiast
I just got a new Prescription for Etodolac - the generic version of Lodine.

Lodine is gluten-free but I cannot find out if the generic is.

Yesterday I started taking it anyway (I know probably real dumb)

I have had brain fog and itchy armpits and head.

Now the issue is dizziness and itchy can be side effects.

My stomach is fine.

I called the pharmacist who opened the package and looked at the list and said - I see no GLUE Teen listed.

UGH. Well DUH! I asked the pharmacist to fax it over so I could check it out. She said it was to small because it was the insert but I could go look. I am not sure I would know what ingredient had gluten or not.

If the pharmacist doesn't know how could I?

The dr doesn't have office hours until next week.

What should I do? I guess stop taking the pill would be good.

I told you I have brain fog right now!

LOL

Any advise would help.

Thanks for bearing with my dumbness....

Sarah

I'd call another pharmacy, or ask for the pharmacist, hopefully you just got an assistant.

jerseyangel Proficient

Hi Sarah,

I never seem to be able to get an answer from either my doctor or the pharmasist at the store I go to.

What I *always* do before taking any prescription medication--find out who makes the med--CVS lists it on the RX label. If it's not there, the pharmacist can tell you.

Go to the manufacturer's website or call information to get their phone number. Call and speak to someone (usually a pharmacist or nurse) directly.

I've done this successfully with both name brand and generic drugs :)

jesscarmel Enthusiast

Hi

I always call the manufacturer before taking pills. the manufatcurer name should be on the bottle

Jess

Shalia Apprentice

I found a PI sheet with the inactive ingredients online, but I don't know if it's the right manufacturer.

Who is the manufacturer?

Here's the link I found. Open Original Shared Link

tiffjake Enthusiast
I found a PI sheet with the inactive ingredients online, but I don't know if it's the right manufacturer.

Who is the manufacturer?

Here's the link I found. Open Original Shared Link

Here are the manufacturers, Mylan, Teva, Actavis Elizabeth, EON LABS, and Taro Pharm. I will try to look things up, BUT you should still call them on monday.

Mylan-724-514-1800

Teva-215-591-3000

Actavis, Elizabeth Location- 908-527-9100

EON Labs- 718-276-8600

Taro Pharm- 914-345-9001

LKelly8 Rookie

All Teva products are gluten-free. I take generic lodine too, 500mg, from PurePac. (Now merged with Actavis)

The manufactuer name should be on the Rx sticker on the bottle, just after the drug name or dose. :blink: It's easy to miss.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guhlia Rising Star

The manufacturer may be listed wiht an abbreviation. That's how mine usually are. You may have to call your pharmacy to find out what the abbreviation means. Either way, calling the manufacturer is definitely your best bet.

mouse Enthusiast

If I get a new RX, I either email the manufactor or I call them. The problem I have had with generic is that sometimes the drug manufacture will not even answer my email. And the last generic I took was about 2 months ago and it was suppose to be gluten-free. And it certainly wasn't. It was made in India and I can only assume there was some CC. My mail in pharmacy then sent me the non-generic one.

Thankagirl Rookie

Thank you all for your input.

I got ahold of the other Dr in the office and he said to just stop taking it - duh. I obviously had a problem with it. The next day I felt great.

But for future I am looking up every medication first. I was just so excited to get pain free.

I felt like I lost 2 days to fog and itching and feeling down right awful.

Feeling better now :)

Sarah

jerseyangel Proficient

Glad you're feeling better now, Sarah :)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      results from 13 day gluten challenge - does this mean I can't have celiac?

    2. - Wheatwacked replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      13

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      My journey is it gluten or fiber?

    4. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      results from 13 day gluten challenge - does this mean I can't have celiac?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,368
    • Most Online (within 30 mins)
      7,748

    Klairep
    Newest Member
    Klairep
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • catnapt
      oops my gluten challenge was only 12 days It started Jan 21s and ended Feb 1st   worst 12 days of my life   Does not help that I also started on a thiazide-like drug for rule in/out renal calcium leak at the exact same time No clue if that could have been symptoms worse 🤔
    • Wheatwacked
      Welcome to the forum @Known1, What reaction were you expecting? Pipingrock.com High Potency Vitamin D3, 2000 IU, 250 Quick Release Softgels $6.89 I've have been taking the 10,000 IU for close to 10 years. When I started with vitamin D I worked my way up to 10000 over several weeks.  Even at 8000 I felt no noticeable difference.  Then after a few days at 10000 it hit Whoa, sunshine in a bottle.  celiac disease causes malabsorption of dietary D and you've poor UV access.  It took me from 2015 to 2019 to get my 25(OH)D just to 47 ng/ml.  Another two years to get to 80.  70 to 100 ng/ml seems to be the body's natural upper homeostasis  based on lifeguard studies.  Dr. Holick has observed the average lifeguard population usually has a vitamin D 3 level of around 100 ng/ml. Could it be that our normal range is too low given the fact that ¾ or more of the American population is vitamin D deficient? Your Calcium will increase with the vitamin D so don't supplement calcium unless you really need it.  Monitor with PTH  and 25(OH)D tests. Because of your Marsh 3 damage you need to ingest way more than the RDA of any supplement to undo your specific deficiencies. I believe you are in the goiter belt.  Unless you have reason not to, I recommend pipingrock's Liquid Iodine for price and quality.  The RDA is 150 to 1100 mcg.  In Japan the safe upper level is set at 3000 mcg.  Start with one drop 50 mcg to test for adverse response and build up.  I found 600 mcg (12 drops) a day is helping repair my body.  Iodine is necessary to healing.  90% of daily iodine intake is excreted in urine.  A Urine Iodine Concentration (UIC) can tell how much Iodine you got that day.  The thyroid TSH test will not show iodine deficiency unless it is really bad.  
    • xxnonamexx
      I don't know if I am getting sufficient Omega Threes. I read about  phosphotidyl choline may cause heart issues. I will have o do further research on heathy Omega 3 supplements or from foods. Is there a blood test that can tell you everything level in your system such as Thiamine, Benfotiamine levels etc? Thanks
    • catnapt
      If lectins were my problem, I would react to wheat germ (the highest source of wheat lectins) and beans. I don't. I only react to bread and pasta, which are the highest sources of gluten. Therefore, my issue is wheat-specific (Gluten/ATIs), not a general lectin issue.   I have eaten a supposedly high lectin diet (I say supposedly because lectin content in these foods is greatly reduced by proper cooking and I eat very few of those foods raw, and even then, rarely!!) for years. My health has improved greatly on my whole foods plant forward diet. I have asked all my drs and a registered dietician about my diet, asked if eating such a high amnt of fiber might interfere with the digestion of any other nutrients and the answer has always been NO.     while doing the gluten challenge I did not eat ANY wheat germ (since it doesn't have hardly any gluten, and I was too sick from the bread and pasta to want to eat much anyway) I will NOT put that poison in my body again. That was a horrific experience and if this is what most celiac patients have to deal with, I am very sorry for them I don't care if I have celiac or NCGS I won't intentionally cause myself that much pain and suffering it's not worth it.  
    • knitty kitty
      @catnapt,  Wheat germ contains high amounts of lectins which are really hard to digest and can be irritating to the digestive tract.  They can stimulate IgG antibody production as your blood test shows.   Even beans have lectins.  You've simply eaten too many lectins and irritated your digestive tract.   You may want to allow your digestive tract to rest for a week, then start on gluten in "normal" food, not in concentrated vital wheat gluten. This explains it well: Lectins, agglutinins, and their roles in autoimmune reactivities https://pubmed.ncbi.nlm.nih.gov/25599185/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.