Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Grrrr...


AmandaD

Recommended Posts

AmandaD Community Regular

All right. I need some advice from a old hat Celiac.

So I haven't been sick in like quite some time and this weekend I went out and I had a chili and baked potato from Wendy's and on another day I had a huge strawberry milkshake from McDonald's.

Yesterday a little and today, more so, I've been dealing with the celiac D. Has anyone ever been cross-contaminated? Has anyone ever been stumped by what made you sick?

And if so, how do you make everything stop?!!!!!!!

Aggghhh....Thanks, AmandaD


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jerseyangel Proficient
All right. I need some advice from a old hat Celiac.

So I haven't been sick in like quite some time and this weekend I went out and I had a chili and baked potato from Wendy's and on another day I had a huge strawberry milkshake from McDonald's.

Yesterday a little and today, more so, I've been dealing with the celiac D. Has anyone ever been cross-contaminated? Has anyone ever been stumped by what made you sick?

And if so, how do you make everything stop?!!!!!!!

Aggghhh....Thanks, AmandaD

Hi Amanda,

It seems like I'm more often than not stumped by what has made me sick ;)

My guess for you is the meal at Wendy's. I stopped going there (only went once in a great while) because although I watched them put my uncut baked potato in the dish, and place my plain hamburger on a clean, separate dish, I still got sick! The people there really tried, and were so nice, but it happened anyway. I guess it's just that the CC risk is so much greater in a place like that.

How to make it stop? I try and just let it run it's course. I'm lucky, though--I don't work outside the home right now. If I have to be somewhere, and have D (or feel like I will), I use Immodium--2 caplets. I find that, for me, it works fast and well. Some people don't use it and have other remedies that they like--I think you have to figure out what works best for you, but the Immodium works for me..

CarlaB Enthusiast

I think it's the beans in the chili that bother me, it's not the same feeling as I get from glutening.

However, if you have been glutened, I would suspect the potato more than the chili. Did they cut it in half for you? What was the knife used for before and where did they keep it?

Otherwise, are you sensitive to dairy?

Queen Serenity Newbie

Hi, Amanda!

I agree with Carla. You could have been contaminated by the knife. Or, maybe, you could have glutened by something else. For instance, believe it or not, a lot of food, especially fast food, harbor hidden gluten. My advice is really to stay away from fast food all together. As far as the milkshake, do you have reactions to dairy products? A lot of people with Celiac's are lactose intolernent. Do you feel sick after a bowl of ice cream? Or, maybe having a glass of milk? If you do, then you have the sensivity to dairy. If you pay attention to your body's reactions, then you will feel better in the long run. I wish you good luck with figuring it out.

Vicki :)

gluten-free for 11 years and still counting!

AmandaD Community Regular

May I say - you're both brilliant this morning. Thank you for your responses!!!!!

I think it was Wendy's too. I never thought about the potato sliced - but yes, it was opened and sliced. I can also be sensitive to dairy in larger amounts. I've noticed that over this last year I've been able to tolerate more and more things like hard cheeses and butter, etc...but I think straight plain old milk does me in for some reason.

I've never used Immodium before. I may have to go get that. I also have the luxury of being able to be at home - the bathroom only feet away :o)...

(P.S. I haven't eaten out in months and I've been doing great. I was starving, we were in Milwaukee and I was desparate. Damn that fast food!)

Vicki -

11 years??? OH my gosh. I just got diagnosed last September...:o). I'm a young'un on this diet :o)!

jerseyangel Proficient

Amanda,

If you get the Immodium, get the caplets--the liquid, I've heard, has gluten in it. ;)

AmandaD Community Regular

Sounds good.

I swear! This diet can be so time consuming some times!!!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



happygirl Collaborator

Amanda,

I'm sorry to hear you are feeling ill! What a pain!

Before I started having issues with other foods, I would notice I would get sick after eating at Wendy's, McD's, all those places (even with super safe foods). I finally just had to stop, and started making 99.9% of my food, and the reactions stopped. I'm one of the 'super sensitive' ones. So my guess is it is cc at those places, although it sounds crazy! (I was determined I was over reacting, that it couldn't be cc on a POTATO, etc etc....well, I learned!)

I now can't eat out due to multiple intolerances, but I would definitely recommend limiting your eating out, as much as it sucks. For me, the reactions were too costly to continue doing it.

Hope you feel better, girl!

Laura

AmandaD Community Regular

Laura -

My family doc is actually sending me to an allergist to see what kinds of allergies, food issues I might have (or if there are even any in addition to the Celiac immune issue).

How did you figure out you had other intolerance; did you doc test you or was it trial and error?

TinkerbellSwt Collaborator

I only go to one Wendys and its so far away from us that I really dont frequent it at all. I go on the way back from CHOP in Philly. Now we always go inside to eat... we are usually starving by then.. as we were with doctors all day by that point. I dont know if this happens in any other wendys or not.. but the potatoes come cut.. as we know.. but they use a special plastic contraption to cut the potato. It is just for the potato, there is nothing else they could use it on. It kinda cuts the potato and opens it at the same time.

I guess I have been lucky there. I have never gotten sick. I only go to that one. I dont even go to the one near me. Its an emergency hunger thing by Philly. I usually get the taco salad, sans tortilla strips and their dressing. I use the chili as dressing. I also sometimes will get a baked potato with that fake cheese (love that stuff) and bacon.

Sorry I dont feel like I have helped anything! I hope you feel better soon though!

Michi8 Contributor
Laura -

My family doc is actually sending me to an allergist to see what kinds of allergies, food issues I might have (or if there are even any in addition to the Celiac immune issue).

How did you figure out you had other intolerance; did you doc test you or was it trial and error?

Just so you know, having an allergy panel done will not show you what you are intolerant to, just what you are allergic to.

You can have an intolerance test for lactose, but I'm not sure if an allergist does that type of testing...it's probably a test that a GI would do. I've never done an intolerance test myself as I already know that lactose is a problem for me, and I'm not up to ingesting a large amount of lactose just to see what my reaction would be...or worse, so some doctor can see what my reaction would be. :)

Michelle

CarlaB Enthusiast

Sometimes the chili bothers me, but then my husband reminds me that sometimes it bothers everyone! I think that sometimes I can handle the beans and sometimes I can't. It's always a risk eating out ... one I don't take right now.

arc Newbie

Is Wendy's chili supposed to be gluten-free? I have found all of one canned chili that didn't have gluten (it sucked) so I have always assumed that chili in a restaurant wasn't safe.

Doesn't matter for me anyway, since I can't eat beans since going off gluten. I just make my own all-meat chili. Purists would say chili shouldn't have beans anyway. :)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - sc'Que? commented on Scott Adams's article in Product Labeling Regulations
      1

      Global Experts Recommend Gluten Reference Dose: What It Means for Celiac Safety (+Video)

    2. - xxnonamexx posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      What's your daily meals? Protein bars?

    3. - trents replied to Seabeemee's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Labs ? Awaiting in person follow up with my GI

    4. - Seabeemee replied to Seabeemee's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Labs ? Awaiting in person follow up with my GI

    5. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      45

      My journey is it gluten or fiber?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,171
    • Most Online (within 30 mins)
      7,748

    Kristy Roberts
    Newest Member
    Kristy Roberts
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • xxnonamexx
      What are your daily meals? Guilty pleasure snacks? Protein bars? I feel when looking for gluten free foods they are filled with sugar cholesterol. Looking for healthy gluten-free protein bars. Something to fill since sometimes I feel like not to eat anything. Especially if on vacation and unsure of cross contamination I figure go with a salad and protein bar to fill and play it safe.
    • trents
      Unfortunately, there is presently no test for NCGS. Celiac disease must first be ruled out. NCGS is thought to be much more common than celiac disease. We know that celiac disease is an autoimmune disorder but the mechanism of NCGS is less clear. Both call for an elimination of gluten from the diet.
    • Seabeemee
      Thanks for your reply Trents…most appreciated.  I am unfamiliar with celiac labs terminology so I wanted to know if the presence of HLA variants (DA:101, DA:105, DQB1:0301 and DQB1:0501) that the labs detected had any merit in predisposing one to be more sensitive to gluten/carbs than the general population?  Also,  I found what you said about NCGS very interesting and I appreciate you mentioning that.  I’ve worked hard to research and advocate for myself with my Hematologist and now with a new GI, since my bowel surgery and to maintain my Vitamin B12 health concurrent with keeping my levels of Iron in the optimal range. I’ve been tested for SIBO (do not have it), biopsy showed negative for HPylori, and have had Fecal studies done (nothing showed up) and I understand how a loss of a large amount of bowel could be highly impacting re: SIBO, malabsorption and motility issues. So I’ve managed pretty well diet and elimination-wise until just recently. That said, this new problem with extreme bloating, distention and upper girth, NAFLD just occured over the last 4 months so it is new for me and I thought celiac might be a possible issue. I’ll probably just continue on in this less gluten/carbs seem to be better for me and see how reintroducing certain foods go.  Thanks again.    
    • xxnonamexx
      Thanks bumped it up and now take all 3 vitamins 2 capsules each with the super b complex at breakfast. I will give it some time to see if I notice a difference. I am going to track my eating daily diary on a myfitness pal app to see if the "claimed" gluten free foods bother me or not.
    • JoJo0611
      Please can anyone help. I was diagnosed on 23rd December and I am trying my best to get my head around all the things to look out for. I have read that yeast extract is not to be eaten by coeliacs. Why? And is this all yeast extract. Or is this information wrong. Thanks. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.