Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Enterolab Results Are In!

mythreesuns

Recommended Posts

mythreesuns Contributor
mythreesuns
Posted

I sent them my stool and tissue samples exactly two weeks ago, and they just posted my results on their website. VERY impressed with their speed!

Anyway, this is what it says:

Fecal Antigliadin IgA 14

Fecal Antitissue Transglutaminase IgA 10

Quantitative Microscopic Fecal Fat Score 100

Fecal Anti Saccharomyces cerevisiae IgA 7

Fecal Anti Ovalbumin IgA antibody 10

Fecal Anti Soy IgA 11

HLA-DQB1, Allele 1 0201

HLA-DQB1, Allele 2 0501

Serologic equivalent HLA DQ 2,1 (Subtype 2,5)

And the analysis:

I am gluten, egg, and soy intolerant.

I have no signs of malabsorption (was gluten free for 6 wks prior to sample).

I have one celiac gene and one gluten-sensitivity gene. ALL of my kids will have at least one of these genes.

VINDICATION!!!!!!!!!! lol B)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


VydorScope Proficient
VydorScope
Posted

Glad you got your answer! :D

happygirl Collaborator
happygirl
Posted

Toni,

That is great news! I know you have been searching for answers and hopefully this will be your answer, or lead you on your journey!

Congratulations...let us know if we can help. I have multiple (and, still unknown, intolerances), and have found lots of good foods ... that I can now not eat. Let me know if you need some suggestions. PM if you need anything!

YAY!

Laura

mythreesuns Contributor
mythreesuns
Posted
  • Author
Congratulations...let us know if we can help. I have multiple (and, still unknown, intolerances), and have found lots of good foods ... that I can now not eat.

Thanks so much!

I don't plan on being too militant about the eggs. I was eating 1-2 eggs a day at the time of the test, so I don't think the eggs will be much of a factor as long as I don't eat them all the time anymore. Is that true or are they just like milk and gluten?

I've already cut out soy milk and products made mainly out of soy because I already suspected soy contributed to my continuing diarrhea. Do you think that's enough, or do I need to eliminate "hidden" soy like I did gluten?

VydorScope Proficient
VydorScope
Posted

You need to get to a safe base. Complete cut out everything your haveing issues with, give that time so that you KNWO what healthy feels like, then you can try a little of ONE thing and see how that goes. Over itme you will figure out the right blance for you.

happygirl Collaborator
happygirl
Posted

Toni,

That is really a personal decision. I wish I had a better answer. My first thought is, even if you aren't having a reaction, you technically don't know what is happening to your body.

On the other hand, there are other approaches:

Take out ALL soy, eggs, casein, gluten (and any other known allergens). Yes, even the little tiny ones. See how you feel. Then, you can always add things back in and see what happens. But, that brings me back to my first point.

For me, personally....

I needed to get better. I was sick and tired of my health slowly fading away. Now, I haven't found all the answers, but for me, if I know that eating these things are not good for me, then I shouldn't. I am extremely extremely careful. I have no one to blame but myself if I eat a little bit of soy or a few eggs and then get sick. To me, its not worth it. But, that is my personal opinion, based on my symptoms, my health, my outlook.

Plus, you might have other food intolerances. Dr. Fine's test doesn't cover the whole gamut, yet....

Hope this gives you something to think about.

Ursa Major Collaborator
Ursa Major
Posted

Toni, you're having fibromyalgia symptoms, including joint pain. Eggs cause terrible joint pain for me, more so than gastrointestinal problems. Now, I think that maybe it's the egg WHITES that are the biggest problem, not the yolk. So, it is possible you might be able to have egg yolk again some time, who knows.

After eliminating eggs, soy and gluten completely from your diet (and yes, even hidden sources) for at least six months, you can try an egg one day, to see what happens. I did that, and I realized they were a huge problem. Since your Enterolab result is very clear on the eggs, you may never be able to have them again. The same goes for soy and gluten.

So, face the facts, be angry about the eggs for a few days if you must :ph34r: , and get on with your life. I hope that you will feel better soon, and I'm very glad that you were proven right by Enterolab, that must feel good.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


AndreaB Contributor
AndreaB
Posted

Toni,

You need to be gluten free for life, obviously. Personally, I would be soy free for life, since it damages the intestines also.

My allergy doctor I see believes in getting the body to forget the intolerance. You would need to cut out all traces of whatever you need to eliminate for at least 2 weeks....I suggest 2-6 months. Then add one food item per week to see if you have a reaction. You will need to remove all traces of eggs to try to get your body to forget them. The same would go for soy, all traces for that time period than you may not need to worry about soy oil, soy lecithin. I personally am not going to eat anything soy again, but that is your own decision to make.

What about dairy, wasn't that included?

CarlaB Enthusiast
CarlaB
Posted

I think you'd do better to cut out all you're intolerant to for a couple months. When you're feeling better, add them back in. I've cut out corn and soy even though I wasn't tested for them just because I know a lot of people have trouble with them. It seemed that my number of intolerances was increasing. But once I get this leaky gut healed, I plan on adding back soy and corn, on a rotation basis. I think a very basic diet really aids in healing faster.

mythreesuns Contributor
mythreesuns
Posted
  • Author

Oh, all right! [pouting] <_<

Obviously, you guys are right, so I'll try to cut out EVERYTHING for a while and see what happens.

As for the casein, I knew on my own I was intolerant to that. The test wasn't included in my EnteroLab panel, because I just ordered the stool tests and the egg/yeast/soy test, and they included the gene swabs by mistake. I paid for that separately because I decided that I wanted the gene test after all.

So, because I didn't buy the whole shebang at once I didn't get the milk test thrown in for free.

Ey, yiy, yiy, soy is in everything that gluten isn't! LOL Maybe I'll stick to whole foods for a while. :blink:

CarlaB Enthusiast
CarlaB
Posted
Maybe I'll stick to whole foods for a while. :blink:

That's what I'm doing :blink: The good thing is, I'm feeling much, much, much better!!! :D I will always from here on out see processed food differently -- it's an indulgence, not an every day treat!

AndreaB Contributor
AndreaB
Posted

Toni,

Yes. If it doesn't have gluten, it has soy. If it doesn't have soy it has dairy. If it doesn't have dairy it has corn. Those 4 things are in practically everything!

happygirl Collaborator
happygirl
Posted

Holy cow, Andrea, if that isn't my life......... :D

mythreesuns Contributor
mythreesuns
Posted
  • Author

Ursula--how on earth did I end up with a duplicate post!? LOL

AndreaB Contributor
AndreaB
Posted
Holy cow, Andrea, if that isn't my life......... :D

Laura,

Are eggs in everything too.....probably.

ravenwoodglass Mentor
ravenwoodglass
Posted

I am so glad you know at last. I agree with the others that you should knock everything out for at least 6 months. You've gotten some great advice on testing stuff at a later time so I won't duplicate. I know I feel best eating meat, veggies, fruit, nuts without much else but it can be hard to do. With so many of us having to deal with this sort of thing I am so thankful at least we have a place to come and get recipes, support and advice. I hope you get relief from your fibro and the other stuff soon.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      - Scott Adams replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Positive biopsy

      If you are still eating gluten you could get a celiac disease blood panel done, but I agree with @trents and the gold standard for diagnosing celiac disease would be your endoscopy results. Is it possible they did do a celiac disease panel before your biopsy? This would be the normal chain of events. This article might be helpful. It breaks down each...
    2. Scott Adams
      - Scott Adams commented on Scott Adams's article in Latest Research
      3

      New "Glowing Bacteria" Pill Could Transform Gut Disease Detection (+Video)

      This technology is currently years away, as it will need to go through an extensive FDA approval process.
    3. trents
      - trents replied to mamaof7's topic in Parents, Friends and Loved Ones of Celiacs
      7

      Help understand results

      Actually, it would be more correct to say that the genetic potential to develop celiac disease is passed down from parents to children. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% of the general population actually do. But it is also true that the offspring of those who do have active celiac disease...
    4. Jordan Carlson
      - Jordan Carlson posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Fruits & Veggies

      Hello everyone! Been a while since I posted. The past few moths have been the best by for recovery for myself. I have been the least bloated I have ever been, my constant throat clearing is almost gone, I have stopped almost all medication I was prevously taking (was taking vyvanse for adhd, pristiq for anxiety,fomotadine/blexten for histamine...
    5. wellthatsfun
      - wellthatsfun posted a topic in Gluten-Free Recipes & Cooking Tips
      0

      heaps of hope!

      i know i've been rather cynical and sad about being fully diagnosed in june 2025, but my boyfriend has been consistently showing me the wonderful world that is gluten free cooking and baking. in the past couple of days he's made me a gluten free rice paper-wrapped spanakopita "pastry", plus a wonderful mac and cheese bechamel-ish sauce with gluten free...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,998
    • Most Online (within 30 mins)
      7,748
    SpoonedMango
    Newest Member
    SpoonedMango
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Scott Adams
      Positive biopsy

      By Scott Adams · Posted

      If you are still eating gluten you could get a celiac disease blood panel done, but I agree with @trents and the gold standard for diagnosing celiac disease would be your endoscopy results. Is it possible they did do a celiac disease panel before your biopsy? This would be the normal chain of events. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
    • trents
      Help understand results

      By trents · Posted

      Actually, it would be more correct to say that the genetic potential to develop celiac disease is passed down from parents to children. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% of the general population actually do. But it is also true that the offspring of those who do have active celiac disease are at a considerably higher risk of developing active celiac disease than those of parents who have the genes but don't develop the disease. Some recent, larger studies put the risk at near 50% for the first degree relatives of those who have active celiac disease.
    • Jordan Carlson
      Fruits & Veggies

      By Jordan Carlson · Posted

      Hello everyone! Been a while since I posted. The past few moths have been the best by for recovery for myself. I have been the least bloated I have ever been, my constant throat clearing is almost gone, I have stopped almost all medication I was prevously taking (was taking vyvanse for adhd, pristiq for anxiety,fomotadine/blexten for histamine blockers and singulair). Only thing I take now is Tecta. I also no longer get any rashes after eating. Things are going very well. Most success came actually once I upped my B12 daily dose to 5,000 mcg. I do have one thing I am un able to figure out and want to see if anyone else has this issue or has experience working around it. Ever since I was born I have always had a issue getting fruits and veggies down. No matter how hard I tried, it would always result in gagging or throwing up. Always just thought I was a picky eater. Now that my stomach and system has healed enough that I can feel when something is off almost istantly, I notice that after eating most fruits (sometimes I am ok with bananas) and veggies, my stomach instantly starts burning and my heart starts to pound and I get really anxious as if my body doesnt know what to do with what just enetered it. So I am thinking now that this is what probably was going on when I was born and my body started rejecting it before which caused this weird sensory issue with it causing the gagging. Hoping someone has some exprience with this as well because I would love to be able to enjoy a nice fruit smoothie once in a while haha. Thanks everyone!
    • wellthatsfun
      heaps of hope!

      By wellthatsfun · Posted

      i know i've been rather cynical and sad about being fully diagnosed in june 2025, but my boyfriend has been consistently showing me the wonderful world that is gluten free cooking and baking. in the past couple of days he's made me a gluten free rice paper-wrapped spanakopita "pastry", plus a wonderful mac and cheese bechamel-ish sauce with gluten free pasta (san remo brand if you're in australia/if you can get your hands on it wherever you are).  those meals are notably gluten free, but mainly he's been making me easy gluten free meals - chili mince with white rice and sour cream, chicken soup with homemade stock from the chicken remains, and roast chickens with rice flour gravy and roast veggies. i'm a bit too thankful and grateful lol. how lucky could i possibly be? and, of course, for those who don't have someone to cook for them, it's quite easy to learn to cook for yourself. i've been making a lot of meals for us too. honestly, cooking is pretty darn fun! knowing basic knife skills and sanitary practices are all you really need. experimenting with spices will help you get on track to creating some really flavourful and yummy dishes. coeliac is a pain, but you can use it to your advantage. healthier eating and having fun in the kitchen are major upsides. much luck to all of you! let's be healthy!
    • knitty kitty
      Help understand results

      By knitty kitty · Posted

      That test is saying that your daughter is not making normal amounts of any IGA antibodies.  She's not making normal amounts of antibodies against gliadin, not against bacteria, not against viruses.  She is deficient in total IGA, so the test for antigliadin antibodies is not valid.  The test was a failure.  The test only works if all different kinds of antibodies were being made.  Your daughter is not making all different kinds of antibodies, so the test results are moot.  Your daughter should have the DGP IgG and TTG IgG tests done.   The tests should be performed while she is still consuming gluten.  Stopping and restarting a gluten containing diet can make her more sick, just like you refuse to eat gluten for testing.  Call the doctor's office, request both the IGG tests. Request to be put on the cancellation list for an appointment sooner.  Ask for genetic testing.   Celiac disease is passed on from parents to children.  You and all seven children should be tested for genes for Celiac disease.  Your parents, your siblings and their children should be tested as well.  Eating gluten is not required for genetic testing because your genes don't change.  Genetic testing is not a diagnosis of Celiac disease.  Just having the genes means there is the potential of developing Celiac disease if the Celiac genes are activated.  Genetic testing helps us decide if the Celiac genes are activated when coupled with physical symptoms, antibody testing, and biopsy examination. It's frustrating when doctors get it wrong and we suffer for it.  Hang in there.  You're a good mom for pursuing this!  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.