Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gallstones / Biliary Duct Diffulties?

tiredofdoctors

Recommended Posts

tiredofdoctors Enthusiast
tiredofdoctors
Posted

So . . . . I've had two gallbladder "attacks" in my life . . . back when I was in my early 30's. Nothing sense. Nada.

As many of you know (now that I spilled my guts on a thread I think when I was hacked off at the arguing!), I simply DON'T poop. Not with Zelnorm, peri-colace, fiber, prunes, extra water -- ALL COMBINED. Doesn't happen.

So, my PT (ironic, huh?) has figured out that a big part of the lymphedema that I have is due to the fact that my intestines are so impacted (my brain has forgotten how to tell my intestines how to perform "peristalsis" -- move the stuff through them) that it is impinging my inguinal lymph nodes. So any fluid she GETS up to the nodes can't be absorbed and moved into the lymphatic system.

She started doing this deep peristaltic massage to my intestines. I've done it for my pregnant patients. Works GREAT. Then, one night, I had kind of a sharp pain, not like I remembered before, under my right ribs and around to the back. I was doing the peristaltic massage, and when I got to the area of my liver (where it hurt), I felt and heart this very small "pop" . . . . about 15 minutes later, I had relief! I was thinking, "ALRIGHT!" . . . .

Well, the next day, let's just say "The Color of French's Mustard" -- all day -- and ever since. Even in the impactions.

I went to the doctor, he said that yellow or white stool indicates a lack of bile. He poked around on the area that I told him had hurt (I told him that, even though it wasn't BAD, like I had remembered it, it still was a "sharp" pain vs. dull ache) -- I was able to point out exactly where it hurt and around the side to my back.

His take on this is either 1) I have gallstones (he thinks I may have actually "popped" a stone through to my colon when I was massaging) or 2) I have an adhesion which has formed at the junction where the common biliary duct meets with the pancreatic duct.

It's funny, for the longest time I haven't really wanted to eat because I feel "full" -- and I told the doctor that when he asked me if I was nauseus. When I think about it, maybe that IS the feeling. I feel like I'm so full of sh** (literally AND figuratively) that there's no ROOM for anything else. All I know is that since he went poking around on me, I don't feel so well. I haven't eaten in two days now at all . . . . I still have that "sharp" feeling of pain, but it still isn't AWFUL, but I just don't feel well.

I had bloodwork done in his office the other day, and I'm having an ultrasound done on Tuesday Morning . . .

Can anyone shed any additional light on this for me??

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Ursa Major Collaborator
Ursa Major
Posted

Lynne, somebody started a thread last year to see how many of us had our gallbladder out. And wow, it is VERY common to have gallstones with celiac disease! Even some people in their early thirties (if I remember right) had gallbladder surgery already.

So, it wouldn't surprise me a bit if that is a big part of your problem. Keep us posted.

tiredofdoctors Enthusiast
tiredofdoctors
Posted
  • Author

Thanks, Ursula . . . . at least I'm not going crazy!! (much)

mamaw Community Regular
mamaw
Posted

Hi Lynne

I had my gallbladder out when I was just 23 1/2. didn't no anything about celiacs back then........very interesting ..... When my gallbladder started to bother me I din't have pain on my side but pain directly under or below my breast in the middle. It hurt so much it felt like I was bruised : I barely could touch that spot. I had stones in my bile duct also...... I'm cut from------well lets say I look like a roadmap with all my surgeries....

Now onto your poop part!!!!! I could put a bomb in me & I wouldn't even drop a pebble.What I now have started is milk of mag daily plus some natural stuff on occas.....it works but I must use it daily...now to the gross ???? when you haven't had a bm for many days does your breath smell puky???not like sh-t but odd..I have noticed that on occcas. maybe like old food lying around. Well I guess that is what is going on....

Let us know what your sonogram says.

Are you coming for sure to Columbus????

mamaw

tiredofdoctors Enthusiast
tiredofdoctors
Posted
  • Author

mamaw -- it's cold comfort to know that someone else has the same problem with regard to the 'no pooping' issue! Sorry about that . . . .

It's just so hard to eat -- it feels like there is absolutely NO ROOM. I think my breath smells puky all the time, but right now -- the taste in my mouth almost makes me want to throw up.

Dave brought me home some rice cakes, since I can't have saltines. I ate a few of them, and I feel LESS painful than I did -- a little. I just don't feel well.

As far as Columbus . . . . SEE YOU THERE, BABES!!!!

mamaw Community Regular
mamaw
Posted

Lynne

Do you know where you are staying at yet? I haven't reserved a hotel yet.......

I hope you get felling better soon. My back aches terrible when I get like that........My dad's side of the family all had trouble going so I guess that means we all are full of it!!!!

hugs GET BETTER!!!!!

mamaw

trents Grand Master
trents
Posted

I work in a hospital and I can tell you gallbladder disease is not just common with celiacs, it is extremely common the general population. It is the most common surgery done in our hospital. We have had kids 13 and 14 years old have to have their gallbladders out.

Steve

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. cristiana
      - cristiana replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      14

      Ibuprofen

      Hi Colleen Are you supplementing B12/having injections? I have learned recently that sometimes when you start addressing a B12 deficiency, it can temporarily make your symptoms worse. But it is important not to stop the treatment. Regarding your problems with anxiety, again that is another symptom of a B12 deficiency. I didn't know...
    2. Jmartes71
      - Jmartes71 posted a topic in Coping with Celiac Disease
      0

      My only proof

      Hello still dancing around my celiac disease and not getting medically backed up considering Ive been glutenfree since 1994.All my ailments are the core issue of my ghost disease aka celiac disease. Im angery because the "celiac specialist " basically lightly dismissed me.Im extremely angery and fighting for a new primary care physician which is hard to do...
    3. Scott Adams
      - Scott Adams replied to wellthatsfun's topic in Coping with Celiac Disease
      1

      still struggling with cravings

      I totally get this. It's absolutely a grieving process, and it's okay to feel gutted about the loss of those simple joys, especially at 18. Your feelings are completely valid—it's not about being ungrateful for your amazing boyfriend, it's about mourning the life you thought you'd have. That "tortured by the smell" feeling is so real. It does get easier, ...
    4. Scott Adams
      - Scott Adams replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Oh my goodness medication causing pain !!!!

      Many of us with celiac find that the fillers in medications can cause a reaction, and sometimes our bodies just process things weirdly. That "rebound muscle pain" and "burning feet" you described sounds awful and is a huge red flag. It's frustrating enough managing the diet without medication causing setbacks. So sorry you're dealing with this, but you're...
    5. Scott Adams
      - Scott Adams replied to Me,Sue's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Knowing what to do when feeling unwell.

      It's so tough when you're doing everything right and still get hit with it. I'm glad you're figuring out a system that works for you—the peppermint tea and rehydration powders are smart moves. It sounds like you've really learned to listen to your body, and that's half the battle. Sticking to simple, safe food at home is the best way to build yourself back u...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,871
    • Most Online (within 30 mins)
      7,748
    GR82BNTX
    Newest Member
    GR82BNTX
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • cristiana
      Ibuprofen

      By cristiana · Posted

      Hi Colleen Are you supplementing B12/having injections? I have learned recently that sometimes when you start addressing a B12 deficiency, it can temporarily make your symptoms worse.  But it is important not to stop the treatment.  Regarding your problems with anxiety, again that is another symptom of a B12 deficiency.   I didn't know what anxiety was until it hit me like a train several months before gastrointestinal issues began, so I can certainly relate.   Two books which helped me hugely were At Last A Life by Paul David (there is a website you can look up) and The Depression Cure: The Six-Step Programme to Beat Depression Without Drugs by Dr Steve Llardi.  Although his book is aimed at people who have depression, following the principals he sets out was so helpful in lessening my anxiety.  Llardi suggests we need to focus on getting enough: - physical exercise - omega-3 fatty acids - natural sunlight exposure - restorative sleep - social connectedness - meaningful, engaging activity   ... and we should feel a lot better. That is not to stay you must stop taking medication for depression or anxiety if you have been prescribed it, but adopting the changes Dr Llardi sets out in the book should really help. Can I just ask two more questions:  1) you say that you are B12 deficient, did they test your iron levels too?  If not, you really ought to be checked for deficiency and, 2) did they check your thyroid function, as an overactive thyroid can be cause rapid heartbeat and a lot of coeliacs have thyroid issues? Cristiana        
    • Jmartes71
      My only proof

      By Jmartes71 · Posted

      Hello still dancing around my celiac disease and not getting medically backed up considering Ive been glutenfree since 1994.All my ailments are the core issue of my ghost disease aka celiac disease. Im angery because the "celiac specialist " basically lightly dismissed me.Im extremely angery and fighting for a new primary care physician which is hard to do in Northern Cali.So currently without and looking.Im angery that its lightly taken when its extremely serious to the one who has it.My only evidence is a brochure back in the days when I got news letters when I lived at my parents.It was published in 1998.I was diagnosed before any foods eliminated from my diet. Angery doctors don't take seriously when Im clearly speaking.I did write to the medicine of congress and have case number.
    • Scott Adams
      still struggling with cravings

      By Scott Adams · Posted

      I totally get this. It's absolutely a grieving process, and it's okay to feel gutted about the loss of those simple joys, especially at 18. Your feelings are completely valid—it's not about being ungrateful for your amazing boyfriend, it's about mourning the life you thought you'd have. That "tortured by the smell" feeling is so real. It does get easier, I promise, but it's okay to sit in the sadness and just vent about how much it stings right now. Thanks for sharing that. Celiac.com has published a book on our site by Jean Duane PhD called Gluten-Centric Culture, which covers many of the social aspects of having celiac disease: This chapter in particular covers issues around eating with family and others - Gluten-Centric Culture: Chapter 5 - Grabbing A Bite Together:    
    • Scott Adams
      Oh my goodness medication causing pain !!!!

      By Scott Adams · Posted

      Many of us with celiac find that the fillers in medications can cause a reaction, and sometimes our bodies just process things weirdly. That "rebound muscle pain" and "burning feet" you described sounds awful and is a huge red flag. It's frustrating enough managing the diet without medication causing setbacks. So sorry you're dealing with this, but you're definitely on the right track by connecting the dots. You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      Knowing what to do when feeling unwell.

      By Scott Adams · Posted

      It's so tough when you're doing everything right and still get hit with it. I'm glad you're figuring out a system that works for you—the peppermint tea and rehydration powders are smart moves. It sounds like you've really learned to listen to your body, and that's half the battle. Sticking to simple, safe food at home is the best way to build yourself back up. It's great you can take the time to rest properly. Thanks for sharing what works; it's a big help to others figuring this out too. This article, and the comments below it, may be helpful:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.