Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

It's Been A While...


JerryK

Recommended Posts

JerryK Community Regular

Hi everyone,

It's been a while since I signed on. I stop thinking about the whole celiac thing, until I have a bout of

symptoms. Usually things aren't too bad, and I've subconsciously adjusted my diet and tend to shy away

of things that I know contain Gluten. This last weekend however, I was bad. I ate a ton of Chinese food

on Friday night. Had toast and an English Muffin at my mom’s house on Saturday. I ate with reckless

abandon. Monday thru Wednesday, I was sick as a dog. I had diarrhea, I hurt all over like I had the flu and

had terrible heartburn. The symptoms themselves are enough to make me be good. I know I need to go

to the doctor and follow up on this, but I just keep putting it off.

Interestingly my mom mentioned something interesting the other day. She said when you were a baby, Oreo’s made you sick. Hmmm, what do you think of that? Sort of ties everything together for me. Anyway, go ahead and bash me for not going and getting a diagnoses, I deserve it. jerry


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Jestgar Rising Star
Anyway, go ahead and bash me for not going and getting a diagnoses, I deserve it. jerry

Be careful what you ask for or someone will bean you with a gluten-free bagel...

Oh heck, I'm gonna bean you with a gluten-free bagel just for reminding me about chinese food when I'm stuck at work and getting hungry. :angry:

LKelly8 Rookie

Welcome back Jerry :wub: !! The prodigal son returns! Where's a gluten-free fatted calf when you need one?

And I shall bean you with Midel gluten-free faux oreos!

:D (the kind that won't make you sick)

CarlaB Enthusiast

Jerry, Jerry, Jerry, dietary response IS clinical proof!!!! What are you waiting for? Till you're really sick and can't even work because of it??? That's about where I'm at! You need to get out of your denial and get off the gluten!!!

There's your scolding you came here for!!!! :D

Canadian Karen Community Regular

Well, if you were gonna cheat, at least you made it worth your while by cheating with Chinese food. My ultimate dream meal that I miss ABSOLUTELY THE MOST is my major Chinese Food Szchewan feasts I used to have...... Mmmmmmmm.......... In fact, I am quite jealous!!!!!!!!!!!!!

Glad you learned your lesson though.......

Karen

IrishKelly Contributor
Hi everyone,

It's been a while since I signed on. I stop thinking about the whole celiac thing, until I have a bout of

symptoms. Usually things aren't too bad, and I've subconsciously adjusted my diet and tend to shy away

of things that I know contain Gluten. This last weekend however, I was bad. I ate a ton of Chinese food

on Friday night. Had toast and an English Muffin at my mom’s house on Saturday. I ate with reckless

abandon. Monday thru Wednesday, I was sick as a dog. I had diarrhea, I hurt all over like I had the flu and

had terrible heartburn. The symptoms themselves are enough to make me be good. I know I need to go

to the doctor and follow up on this, but I just keep putting it off.

Interestingly my mom mentioned something interesting the other day. She said when you were a baby, Oreo’s made you sick. Hmmm, what do you think of that? Sort of ties everything together for me. Anyway, go ahead and bash me for not going and getting a diagnoses, I deserve it. jerry

I get the same way if i'm glutened, i feel cold achy flu like symptoms, heartburn, burpy, nauseous, etc... and guess what, my dr. said he know that i'm gluten intolerable just from the obvious reaction, so you don't actually need a positive test to tell you that! Oh, bye the way, i'm sooooooooo jealous that you ate chinese...but not enough to do it myself :P

Ursa Major Collaborator

Well, Jerry, you really have your diagnosis already. Food that contains gluten makes you sick. Period. It's perfectly obvious. How much proof do you need?

So, quit being dumb, and go gluten-free for heaven's sake! :rolleyes:

Seriously, we don't want you to get really sick with cancer, or adrenal fatigue (which is where Carla and I are at) or a host of other potentially serious problems.

So, take your head out of the sand, face the facts, and get well. You are worth it!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Matilda Enthusiast

...

Mellie Newbie

oh my goodness...you guys are making me so hungry!!! :(

the chinese stuff- I haven't had that in forever anyway cause as I tell my husband...I like it okay but it doesn't like me....so that's something I've avoided anyway and won't miss. But twinkies and bread.....!!!! :(

It's so hard....I'm new here btw- hi! :) I'm not diagnosed yet but my mom has all kinds of stuff (they think it's crohn's disease too and she has gallbladder disease...or did when she had a gallbladder- not that you're ever the same anyway) and I'm trying to go gluten-free to see if that's what's wrong with me per the recomendation of my Dcotors and I've been experiencing all kinds of stuff like the fatigue (they also think I have adrenal fatigue!) and depression and all (oh yeah I have sleep apnea too but not sure if that's connected or not?)....so I keep trying to tell myself gluten might be very BAD for me.

I see where you're coming from though cause this is really hard to wrap one's head around. I mean I used to be able to eat whatever....but as time goes on it gets worse and worse. And then I keep thinking...it's not like a traditional diet (that doesn't work anyway cause it's just that- a diet - and not a life change like it should be) where a little every once in awhile is okay....it isn't. :( That's the thing that's hardest for me at this point.

Good luck to you!! :)

JerryK Community Regular

Thanks for your responses everyone. I never did go to get tested after our Alaska cruise, life just sort of gets in the way of stuff, if you know what I mean.

It's sort of like---you know--going to the dentist. Lots of people don't even think much about their teeth, until they look in the mirror and see a big hole.

It's not like the symptoms bother me constantly. I can eat a slice of bread with little reaction. However if I eat two or three, I'd likely pay the price. It is the ratio of gluten to other foods that seems to make the most difference. If I eat a big dinner and eat a slice of bread..no problem...or not much anyway. But when I chow down for multiple days with reckless abandon, I pay the price...THEN I start thinking about it again.

jerry

happygirl Collaborator

tsk tsk tsk :P

just because you aren't having an overt reaction doesn't mean that you aren't setting off an autoimmune response, with gluten attacking your intestines....

jerseyangel Proficient

Jerry, Welcome back!

Laura is right, though. If you do have it, you are damaging your intestine every time you "get away with" something containing gluten.

I'd hate to see you ending up with other food intolerances due to a leaky, damaged gut. It's not a lot of fun! :)

elye Community Regular

Hey, Jerry!

Yet another reason to just get off gluten and to heck with the blood panel (or even the biopsy):

THERE CAN BE FALSE NEGATIVES. So, the tests can mean nothing. Getting sick from gluten means everything! ;)

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,351
    • Most Online (within 30 mins)
      7,748

    Fly1962
    Newest Member
    Fly1962
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      @Ginger38, Diabetes and Celiac often go hand in hand.  Having more than one autoimmune disease is common with Celiac.  I'd err on the side of caution and go gluten free.   I did not want to go on insulin, either.  I got my diabetes under control by following the low histamine version of the Autoimmune Protocol Diet (Dr. Sarah Ballantyne).  My diet now does include carbs.   We're supporting you through this difficult time.  
    • knitty kitty
      @Ginger38,  I've been there with horrible symptoms and diarrhea accidents and diabetes and the insulin conundrum!  My doctors were just as frustrating!   I had nutritional deficiencies.  I know your doctors refuse to test for this.  So did mine, saying "I can't make money prescribing vitamins."  Some members say a naturopathic doctor is more open to testing for deficiencies.  Remember not to start supplementing until after testing is done.  Otherwise the supplements will raise your blood levels falsely.   I had studied Nutrition at university, so I decided to supplement essential vitamins and minerals.  A B Complex, extra Thiamine (Benfotiamine) for the diabetes, magnesium and Vitamin D are the supplements I started with.   The B vitamins are water soluble so any excess is excreted easily.  Thiamine even in high doses is safe and nontoxic.  Diabetics lose more thiamine in urine because of weird kidney stuff.   I wanted to get my blood glucose levels under control because gluten free foods made my level spike for long periods, too.  I absolutely did not want to go on insulin.  Once you do, the pancreas stops making it.  Very scary.  Best to help the pancreas function with thiamine in the form Benfotiamine. I began the low histamine version of the Autoimmune Protocol Diet (developed by Dr. Sarah Ballantyne, A Celiac herself).  It's a low carb, very strict diet at first, then expanded.  I considered it similar to feeding a sick baby.  You don't give hard to digest foods to a baby.  You give easily digestible foods.  This allows time for the gastrointestinal tract to calm down and heal.  Symptoms started to calm down quickly.  With the vitamins, I started feeling much better.  My blood glucose levels stabilized.  I did not go on insulin.  I do not take anti-glycemic pharmaceutical drugs like Metformin.  Just diet.  You're making the right decision to live as a Celiac.  Your body is telling you clearly.  You can get through this.  You're strong and you're fighting for yourself and your baby.  Good job!  You have the Tribe behind you!
    • maryannlove
      Though trying to diligently eat gluten free, recent bloodwork was bad so searching for culprits.  Eat lot of (preferably mixed) nuts.  Most allergen labels say may be processed on equpment that also processes wheat, etc.  Finally found ONE kind (unsalted mixed) at BJ's.  Wessley (their store brand) that did not contain that warning.  Says in large letters "A GLUTEN FREE FOOD."  Well, all nuts are a gluten free FOOD!  Have been eating and now wonder if this is intentionally decieving.  So stopped eating until find culprit.  Nuts are so good for protein and fiber (especially if trying to not eat meat).  'Tis so frustrating.  Thanks to above, I'll look into Tierra Farms.   
    • somethinglikeolivia
      Fascinating! This was very helpful, thanks for sharing
    • maryannlove
      Despite being very diligent about eating gluten free, my recent bloodwork was bad.  So been on a mission to find the culprit(s).  During Covid my daughter found "certified gluten free" Yasso mint chocolate chip yogurt bars at Costco.  I was elated and have been eating them since.  When delving into possible culprits I discovered that the boxes with 12 bars at both Costco and BJ's no longer say "certified gluten free."  But the boxes with 4 bars at groceries and Target still say "certified gluten free."  Contacted the manufacturer and was told to go by what the box says.  So guess different machinery is used.  Was also told they were in the process of changing boxes.  Will be interesting to see what that brings.  
×
×
  • Create New...