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Dilemma With Family

Yenni

By Yenni
in Coping with Celiac Disease

Recommended Posts

happygirl Collaborator
happygirl
Posted

I don't need an article to tell me a crumb will or won't make me sick...I get sick on tiny, tiny amounts. So no amount of "carefulness" is too much!!!!! You are your only (and best) advocate for your health. You must take care of yourself. Honestly, who cares what other people think when you are in bed or in the bathroom, sick as a dog, for days? Its hard to get used to...but once you do....you get over it fast!!!!! (speaking from experience).

But, since I do like articles....here's another one: https://www.celiac.com/st_prod.html?p_prodi...-52106382872.60

And, it was a relatively small sample, so its not to say that smaller amounts don't cause damage. Plus, smaller amounts *might* not cause as much damage, but still may make you sick (just a thought of mine).

Hope this helps.

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Yenni Enthusiast
Yenni
Posted
  • Author
I don't need an article to tell me a crumb will or won't make me sick...I get sick on tiny, tiny amounts. So no amount of "carefulness" is too much!!!!! You are your only (and best) advocate for your health. You must take care of yourself. Honestly, who cares what other people think when you are in bed or in the bathroom, sick as a dog, for days? Its hard to get used to...but once you do....you get over it fast!!!!! (speaking from experience).

But, since I do like articles....here's another one: https://www.celiac.com/st_prod.html?p_prodi...-52106382872.60

And, it was a relatively small sample, so its not to say that smaller amounts don't cause damage. Plus, smaller amounts *might* not cause as much damage, but still may make you sick (just a thought of mine).

Hope this helps.

1/48th of a slice of bread... :blink: Thanks for the link! This all is making me feeling better about what I am doing. :)

You are right in that I shouldn't care. Some times it just gets "lonely on the paranoid side of this" if you know what I mean. I think I needed to read all of this too to feel I am doing the right thing.

:)

Jestgar Rising Star
Jestgar
Posted

Just a light note to this.

When I went gluten-free, I cc'd myself a couple times with pans, but never anything else. I was thinking I was just lucky but reading the note on the silverware reminded me....

One night, shortly before I went gluten-free, I was up in the middle of the night and went into the kitchen to get a drink of water. When I turned on the light there was a VERY well fed mouse sitting on my sink looking at me. After screaming for a couple minutes I started chasing him around the kitchen trying to catch him in a bowl. All I was able to do was chase him into my silverware drawer, and then out into the heating vents.

Needless to say, the next day I took apart my kitchen and scrubbed everything I had...

Now I'm thinking the mouse did me a favor.

Yenni Enthusiast
Yenni
Posted
  • Author
Just a light note to this.

When I went gluten-free, I cc'd myself a couple times with pans, but never anything else. I was thinking I was just lucky but reading the note on the silverware reminded me....

One night, shortly before I went gluten-free, I was up in the middle of the night and went into the kitchen to get a drink of water. When I turned on the light there was a VERY well fed mouse sitting on my sink looking at me. After screaming for a couple minutes I started chasing him around the kitchen trying to catch him in a bowl. All I was able to do was chase him into my silverware drawer, and then out into the heating vents.

Needless to say, the next day I took apart my kitchen and scrubbed everything I had...

Now I'm thinking the mouse did me a favor.

:lol::lol:

Dan Newbie
Dan
Posted

akJenny,

Your dog's markings are very similar to my dog. What breed is your dog.

Yenni Enthusiast
Yenni
Posted
  • Author
akJenny,

Your dog's markings are very similar to my dog. What breed is your dog.

She is a German Shephard/Labrador retriver mix. A "Germador Shephiver". :)

2,5 years old now. She is a "forever puppy" though.

daffadilly Apprentice
daffadilly
Posted

Jenny, you can get sick from someone with wheaty hands touching your keyboard. It has happened to me several times. The computer repair guy was here & yep then I was sitting at the computer eating a snack & ZAP...

Then there was the time I took my scrapping supplies to a weekend crop that I was teaching & the only thing they ate all weekend was wheat & then touching all my stuff. I had to come home & wash everything. I will never do that again...

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Yenni Enthusiast
Yenni
Posted
  • Author
Jenny, you can get sick from someone with wheaty hands touching your keyboard. It has happened to me several times. The computer repair guy was here & yep then I was sitting at the computer eating a snack & ZAP...

Then there was the time I took my scrapping supplies to a weekend crop that I was teaching & the only thing they ate all weekend was wheat & then touching all my stuff. I had to come home & wash everything. I will never do that again...

I think I believe you. ;) Yesterday I had nasty heart burn (from probably being glutened from the keyboard/mouse the evening before) and today my body aches. Especially my back. Have a head ache too.

My husband is now instructed not to eat by the computer. :angry:;)

frenchiemama Collaborator
frenchiemama
Posted
I think I believe you. ;) Yesterday I had nasty heart burn (from probably being glutened from the keyboard/mouse the evening before) and today my body aches. Especially my back. Have a head ache too.

My husband is now instructed not to eat by the computer. :angry:;)

That is my biggest annoyance. My husband, who normally is very sensitive to my needs and understanding always would eat (gluten) while he was on the computer. He would eat, wipe his hand on a napkin, and then put his hand on the mouse or keyboard. I asked and asked and asked and asked him not to do it. He continued to do it claiming "I wipe my hands, that's good enough". Finally I just snapped and said "What on earth makes you think that wiping your hands repeatedly on the same ratty little paper napkin is actually getting them clean?? Is eating your damn sandwich while on the computer more important than my health?"

That finally got through to him. Sort of. Now he at least eats with his non-mouse hand. <_<

Creative-Soul Newbie
Creative-Soul
Posted

:blink: Silverware?!? Cuttingboards?!?!? Personal care products??!??

See why this site is priceless??? I honestly didn't know! And computer keys??? Yeah, I can see myself having a lot of fun <_< trying to explain that one... I need a lot of educating...HELP ME!!! I've been wondering why I still feel yucky sometimes even though I try so hard to be strict diet-wise...humnn..

I discovered about vitamins the hard way.I'm usually a great label reader, so the new multi-vatimin I was trying didn't have gluten,but there are many other allergies/intolerances that are being confirmed/showing up out of the blue - like Splenda, which was listed by it's generic name. For a week I was wondering what on earth was wrong with me...I was so exhausted I was sickkkk. Then it hit me. Geez.

I'm still relatively new at this - about a year - and there's so much to learn and be careful of that sometimes my head spins. I don't personally know anyone my age with Celiac /Gluten intolerance, so it's hard! Thankfully my best friend is so understanding, but I'm still trying to negotiate my way around the people I live with..it's been a slowwww process. I'm still trying to get them to understand that I can't have "even a little" bite...I've been told that," It can't be that painful that you can't taste it.." Yes, it can!!!

This is definitely an issue when it comes to dating...

I suspect - strongly - that this is my mom's problem as well, as I think about all of her health issues, but am a little skeptical as to whether she would take it seriously or not. She's suffering so much...any suggestions?

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      Welcome to the celiac.com community, @mamaof7! It means for the one celiac disease antibody test that was ordered, she tested negative. However, other tests should have been ordered, especially for someone so young who would have an immature immune system where there would be a high probability of being IGA deficient.  The one test that was ordered was an IGA-based antibody test. It is not the only IGA antibody test for celiac disease that can be run. The most common one ordered by physicians is the TTG-IGA. Whenever IGA antibody tests are ordered, a "total IGA" test should be included to check for IGA deficiency. In the case of IGA deficiency, all other IGA tests results will be inaccurate. There is another category of celiac disease antibody tests that can be used in the case of IGA deficiency. They are known as IGG tests. I will attach an article that gives an overview of celiac disease antibody tests. All this to say, I would not trust the results of the testing you have had done and I would not rule out your daughter having celiac disease. I would seek further testing at some point but it would require your daughter to have been eating normal amounts of gluten for weeks/months in order for the testing to be valid. It is also possible she does not have celiac disease (aka, "gluten intolerance") but that she has NCGS (Non Celiac Gluten Sensitivity, or just "gluten sensitivity" for short) which is more common. The difference is that celiac disease is an autoimmune disorder that damages the lining of the small bowel whereas NCGS does not autoimmune in nature and does not damage the lining of the small bowel, though the two conditions share many of the same symptoms. We have testing to diagnose celiac disease but there are no tests for NCGS. To arrive at a diagnosis of NCGS, celiac disease must first be ruled out. A gluten free diet is the solution to both maladies.   
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