Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Dilemma With Family


Yenni

Recommended Posts

happygirl Collaborator

I don't need an article to tell me a crumb will or won't make me sick...I get sick on tiny, tiny amounts. So no amount of "carefulness" is too much!!!!! You are your only (and best) advocate for your health. You must take care of yourself. Honestly, who cares what other people think when you are in bed or in the bathroom, sick as a dog, for days? Its hard to get used to...but once you do....you get over it fast!!!!! (speaking from experience).

But, since I do like articles....here's another one: https://www.celiac.com/st_prod.html?p_prodi...-52106382872.60

And, it was a relatively small sample, so its not to say that smaller amounts don't cause damage. Plus, smaller amounts *might* not cause as much damage, but still may make you sick (just a thought of mine).

Hope this helps.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Yenni Enthusiast
I don't need an article to tell me a crumb will or won't make me sick...I get sick on tiny, tiny amounts. So no amount of "carefulness" is too much!!!!! You are your only (and best) advocate for your health. You must take care of yourself. Honestly, who cares what other people think when you are in bed or in the bathroom, sick as a dog, for days? Its hard to get used to...but once you do....you get over it fast!!!!! (speaking from experience).

But, since I do like articles....here's another one: https://www.celiac.com/st_prod.html?p_prodi...-52106382872.60

And, it was a relatively small sample, so its not to say that smaller amounts don't cause damage. Plus, smaller amounts *might* not cause as much damage, but still may make you sick (just a thought of mine).

Hope this helps.

1/48th of a slice of bread... :blink: Thanks for the link! This all is making me feeling better about what I am doing. :)

You are right in that I shouldn't care. Some times it just gets "lonely on the paranoid side of this" if you know what I mean. I think I needed to read all of this too to feel I am doing the right thing.

:)

Jestgar Rising Star

Just a light note to this.

When I went gluten-free, I cc'd myself a couple times with pans, but never anything else. I was thinking I was just lucky but reading the note on the silverware reminded me....

One night, shortly before I went gluten-free, I was up in the middle of the night and went into the kitchen to get a drink of water. When I turned on the light there was a VERY well fed mouse sitting on my sink looking at me. After screaming for a couple minutes I started chasing him around the kitchen trying to catch him in a bowl. All I was able to do was chase him into my silverware drawer, and then out into the heating vents.

Needless to say, the next day I took apart my kitchen and scrubbed everything I had...

Now I'm thinking the mouse did me a favor.

Yenni Enthusiast
Just a light note to this.

When I went gluten-free, I cc'd myself a couple times with pans, but never anything else. I was thinking I was just lucky but reading the note on the silverware reminded me....

One night, shortly before I went gluten-free, I was up in the middle of the night and went into the kitchen to get a drink of water. When I turned on the light there was a VERY well fed mouse sitting on my sink looking at me. After screaming for a couple minutes I started chasing him around the kitchen trying to catch him in a bowl. All I was able to do was chase him into my silverware drawer, and then out into the heating vents.

Needless to say, the next day I took apart my kitchen and scrubbed everything I had...

Now I'm thinking the mouse did me a favor.

:lol::lol:

Dan Newbie

akJenny,

Your dog's markings are very similar to my dog. What breed is your dog.

Yenni Enthusiast
akJenny,

Your dog's markings are very similar to my dog. What breed is your dog.

She is a German Shephard/Labrador retriver mix. A "Germador Shephiver". :)

2,5 years old now. She is a "forever puppy" though.

daffadilly Apprentice

Jenny, you can get sick from someone with wheaty hands touching your keyboard. It has happened to me several times. The computer repair guy was here & yep then I was sitting at the computer eating a snack & ZAP...

Then there was the time I took my scrapping supplies to a weekend crop that I was teaching & the only thing they ate all weekend was wheat & then touching all my stuff. I had to come home & wash everything. I will never do that again...


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Yenni Enthusiast
Jenny, you can get sick from someone with wheaty hands touching your keyboard. It has happened to me several times. The computer repair guy was here & yep then I was sitting at the computer eating a snack & ZAP...

Then there was the time I took my scrapping supplies to a weekend crop that I was teaching & the only thing they ate all weekend was wheat & then touching all my stuff. I had to come home & wash everything. I will never do that again...

I think I believe you. ;) Yesterday I had nasty heart burn (from probably being glutened from the keyboard/mouse the evening before) and today my body aches. Especially my back. Have a head ache too.

My husband is now instructed not to eat by the computer. :angry:;)

frenchiemama Collaborator
I think I believe you. ;) Yesterday I had nasty heart burn (from probably being glutened from the keyboard/mouse the evening before) and today my body aches. Especially my back. Have a head ache too.

My husband is now instructed not to eat by the computer. :angry:;)

That is my biggest annoyance. My husband, who normally is very sensitive to my needs and understanding always would eat (gluten) while he was on the computer. He would eat, wipe his hand on a napkin, and then put his hand on the mouse or keyboard. I asked and asked and asked and asked him not to do it. He continued to do it claiming "I wipe my hands, that's good enough". Finally I just snapped and said "What on earth makes you think that wiping your hands repeatedly on the same ratty little paper napkin is actually getting them clean?? Is eating your damn sandwich while on the computer more important than my health?"

That finally got through to him. Sort of. Now he at least eats with his non-mouse hand. <_<

Creative-Soul Newbie

:blink: Silverware?!? Cuttingboards?!?!? Personal care products??!??

See why this site is priceless??? I honestly didn't know! And computer keys??? Yeah, I can see myself having a lot of fun <_< trying to explain that one... I need a lot of educating...HELP ME!!! I've been wondering why I still feel yucky sometimes even though I try so hard to be strict diet-wise...humnn..

I discovered about vitamins the hard way.I'm usually a great label reader, so the new multi-vatimin I was trying didn't have gluten,but there are many other allergies/intolerances that are being confirmed/showing up out of the blue - like Splenda, which was listed by it's generic name. For a week I was wondering what on earth was wrong with me...I was so exhausted I was sickkkk. Then it hit me. Geez.

I'm still relatively new at this - about a year - and there's so much to learn and be careful of that sometimes my head spins. I don't personally know anyone my age with Celiac /Gluten intolerance, so it's hard! Thankfully my best friend is so understanding, but I'm still trying to negotiate my way around the people I live with..it's been a slowwww process. I'm still trying to get them to understand that I can't have "even a little" bite...I've been told that," It can't be that painful that you can't taste it.." Yes, it can!!!

This is definitely an issue when it comes to dating...

I suspect - strongly - that this is my mom's problem as well, as I think about all of her health issues, but am a little skeptical as to whether she would take it seriously or not. She's suffering so much...any suggestions?

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Sarah Grace's topic in Related Issues & Disorders
      24

      Headaches / Migraines and Hypoglycaemia

    2. - Scott Adams replied to Russ H's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      KAN-101 Treatment for Coeliac Disease

    3. - Scott Adams replied to miguel54b's topic in Related Issues & Disorders
      1

      Body dysmorphia experience

    4. - Scott Adams replied to Colleen H's topic in Related Issues & Disorders
      2

      Heat intolerant... Yikes

    5. - Scott Adams replied to Jmartes71's topic in Coping with Celiac Disease
      1

      Related issues


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,150
    • Most Online (within 30 mins)
      7,748

    TheaBr
    Newest Member
    TheaBr
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit. 
    • Scott Adams
      I agree that KAN-101 looks promising, and hope the fast track is approved. From our article below: "KAN-101 shows promise as an immune tolerance therapy aiming to retrain the immune system, potentially allowing safe gluten exposure in the future, but more clinical data is needed to confirm long-term effects."  
    • Scott Adams
      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress and inflammation that uncontrolled celiac disease can inflict on the entire body, including the nervous system. It makes complete sense that the specific sensory input—the pressure points of your elbows on your knees—created a temporary, distorted body map in your brain, and the fact that it ceased once you adopted a gluten-free diet is a crucial detail. Your intuition to document this is absolutely right; it's not "crazy" but rather a significant anecdotal data point that underscores the mysterious and far-reaching ways gluten can affect individuals. Your theory about sensory triggers from the feet for others is also a thoughtful insight, and sharing this story could indeed be validating for others who have had similar, unexplainable sensory disturbances, helping them feel less alone in their journey.
    • Scott Adams
      The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Because of this it took me decades to overcome a few long-standing issues I had that were associated with gluten ataxia, for example numbness and tingling in my feet, and muscle knots--especially in my shoulders an neck. Only long term extensive supplementation has helped me to resolve these issues.      
    • Scott Adams
      I am so sorry you are going through this; it sounds incredibly overwhelming and disheartening to be dismissed by the very medical professionals you're turning to for help. It is completely understandable that you feel lost and exhausted, not just from the relentless physical symptoms like the leg pain, stomach issues, and profound fatigue, but from the psychological toll of being told it's "just IBS" or that you need a therapist when you know your body is signaling that something is wrong. While it's true that a normal tTG test can indicate that celiac disease itself is being managed from a dietary perspective, it is a major oversight for your doctors to ignore your other diagnoses like SIBO, a hernia, and Barrett's esophagus, all of which can contribute significantly to the symptoms you describe. You are absolutely right to be seeking a new Primary Care Physician who will listen to your full history, take your Barrett's diagnosis seriously, and help you coordinate a care plan that looks at the whole picture, because your experience is not just in your head—it's in your entire body, and you deserve a medical team that acknowledges that. I had hernia surgery (laparoscopic), and it's not a big deal, so hopefully you can have your new doctor give you some guidance on that.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.