Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Just Figured Out,,,,i Have Been Glutening Myself...

chgomom

By chgomom
in Coping with Celiac Disease

Recommended Posts

chgomom Enthusiast
chgomom
Posted

I am soooo stupid. I want to cry.

I thougth these turkey burgers, were ok. Then I was feeling burning today and gassy...and just kinda blah.

I'm like alll I had was fruit...some of my IAN'S allergen free chicken nuggest....and this turkey burger plain...just the meat, that I cooked at home. So I go to the kitchen to investigate. Low and behold...there is an ingredient... maltodextrin. I said...malt....barley....I better look this up.

So I look it up and most ARE WHEAT based. I emailed the manufacturer...and theirs is wheat based.

OMG.....I am sooo...so down about this right now.....I should have known better. I should have known they tasted too good....

:(

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Rusla Enthusiast
Rusla
Posted

I am sorry you feel like crap. Maltodextrin is different than malt by the way and ok. The other thing you can do is get ground turkey meat and make your own burgers. My brother makes Porkin burgers, he uses ground pork and ground chicken and they are great and contain no gluten.

Lisa Mentor
Lisa
Posted

oooohh, so sorry. Hope you feel better soon. And thanks for posting that, it might help someone else.

chgomom Enthusiast
chgomom
Posted
  • Author

I read malodestrin is ok...only if its corn or potatoe based...unless you have issues with those.

They they said some are wheat based...this manufacturer....is wheat based.

:blink:

I should have asked...its my own fault....I am so mad at me!

Rusla Enthusiast
Rusla
Posted
I read malodestrin is ok...only if its corn or potatoe based...unless you have issues with those.

They they said some are wheat based...this manufacturer....is wheat based.

:blink:

I should have asked...its my own fault....I am so mad at me!

I hate when they start doing them in wheat, now they are taking something else from us. Don't be mad at you be mad at them for screwing up a safe food and why did they not list the wheat ingredient, idiots they are.

Guest nini
Guest nini
Posted

if it's from wheat, they are required (in the US) to declare wheat in the allergen statement at the bottom of the ingredients listing, so if they are not, that company needs to be made aware that they should.

Also in the US Maltodextrin is usually corn, if it's not it should be declared.

Suzie-GFfamily Apprentice
Suzie-GFfamily
Posted

Some of the resources I have say that maltodextrin is SAFE for the gluten-free diet, even if it is made from wheat.

Check out Shelley Case's book on the gluten-free diet - there is detailed info about maltodextrin in there.

Apparently when it is produced it is highly purified and no gluten remains in the final product. So I don't think you've been glutening yourself at all.

I've been finding conflicting reports in other places though- for example on the Children's Digestive Health and Nutrition Foundation website, celiachealth.org, there is a series of slides for the treatment of celiac disease. Slide #9 says maltodextrin made from wheat is not safe.

Open Original Shared Link

Some consistency would be nice. It's confusing this way.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


happygirl Collaborator
happygirl
Posted

dr green's book also mentions that maltodextrin is safe...and if it weren't, and was wheat related, bc of the 2006 labeling law, it would have to declare that it is wheat derived.

chgomom Enthusiast
chgomom
Posted
  • Author

Lots of things have modified food starch in them and it can be either corn or wheat based and they don't list it as an allergen....so it apparently not well enforced, or the law allows for it thorugh some loop hole.

I beleive it was those burgers....because everything else alone....when I have eaten them in the abscence of the burgers was fine. Now today I ate them all together and I got sick....prior to that eating them I thought they were fine....but thought it was a new product I was trying....I'm inclined not to think so...

so away they go....

I have to get back to basics the next week or two now....fruit, veggies, meats (all natural of course) and rice. Live and learn.

See this list....it definitely says may or may not be safe for celiacs.

https://www.celiac.com/st_prod.html?p_prodid=185

Saz Explorer
Saz
Posted

Hey.

Sorry it made you fell all yuck.

Try not to beat yourself up to much about, Like somone else mentioned the company should really have stated it.

I have at time read through an ingredients list and completely missed out the wheat.

At least you know and can look out for it in the future.

Hope your feeling better.

eKatherine Apprentice
eKatherine
Posted

Turkey has always made me feel that way. I think it's the turkey itself. Maybe you shouldn't be eating it. In the past I have ground my own chicken for burgers, using some dark meat for flavor and juiciness.

Gamecreature Rookie
Gamecreature
Posted

Jennie-O has a listing of their gluten-free turkey products, including ground turkey and turkey franks. Here's the list (scroll down):

Open Original Shared Link

Nooner Newbie
Nooner
Posted
I beleive it was those burgers....because everything else alone....when I have eaten them in the abscence of the burgers was fine. Now today I ate them all together and I got sick....prior to that eating them I thought they were fine....but thought it was a new product I was trying....I'm inclined not to think so...

so away they go....

When I eat chicken or turkey, I feel like I've been glutened. It doesn't matter what the source of the poultry is. How rude of the company not to disclose on the package the source of the maltodextrin. I hope you are feeling better by now!

I'm discovering that just because something is gluten free doesn't mean I won't react to it. I had some cocoa pebbles the other day. New box, no offending gluten, and it didn't even have soy, which I sometimes react to. I was so excited to be able to eat something junky again! I know, it's sad... Anyhow, about an hour later, I got the familiar symptoms. Either there was cross-contamination with the cereal in the manufacturing process (I ate them dry, straight out of the box) or, more likely, imo, I reacted to another ingredient.

Not trying to scare you or anything, but if your body says it doesn't like a food, it doesn't matter if it's gluten free or not. Listen to your body, it's always right!

By the way, I'm on the same newbie diet of fruit, veggies, meat, rice. Just no chicken/turkey for me!

~Li

amber-rose Contributor
amber-rose
Posted

What brand of turkey burgers was it? (so I know not to eat them.)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,545
    • Most Online (within 30 mins)
      7,748
    Jem68
    Newest Member
    Jem68
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Beverage
      Diagnosed celiac for 1-2 months ago and everything makes me bloated.

      By Beverage · Posted

      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
    • Jsingh
      Protein or fat?

      By Jsingh · Posted

      Hi,  I care for my seven year old daughter with Celiac. After watching her for months, I have figured out that she has problem with two kinds of fats- animal fat and cooking oils. It basically makes her intestine sore enough that she feels spasms when she is upset. It only happens on days when she has eaten more fat than her usual every day diet. (Her usual diet has chia seeds, flaxseeds, and avocado/ pumpkin seeds for fat and an occasional chicken breast.) I stopped using cooking oils last year, and when I reintroduced eggs and dairy, both of which I had held off for a few months thinking it was an issue of the protein like some Celiac patients habe mentioned to be the case, she has reacted in the same fashion as she does with excess fats. So now I wonder if her reaction to dairy and eggs is not really because of protein but fat.   I don't really have a question, just wondering if anyone finds this familiar and if it gets better with time.  Thank you. 
    • Chanda Richard
      High Cost of Gluten-Free Foods

      By Chanda Richard · Posted

      Hello, My name is Chanda and you are not the only one that gose through the same things. I have found that what's easiest for me is finding a few meals each week that last. I have such severe reactions to gluten that it shuts my entire body down. I struggle everyday with i can't eat enough it feels like, when I eat more I lose more weight. Make sure that you look at medication, vitamins and shampoo and conditioner also. They have different things that are less expensive at Walmart. 
    • petitojou
      Frequent nausea after gluten-free diet

      By petitojou · Posted

      Thank you so much! I saw some tips around the forum to make a food diary and now that I know that the community also struggles with corn, egg and soy, the puzzle pieces came together! Just yesterday I tried eating eggs and yes, he’s guilty and charged. Those there are my 3 combo nausea troublemakers. I’m going to adjust my diet ☺️ Also thank you for the information about MCAS! I’m from South America and little it’s talked about it in here. It’s honestly such a game changer now for treatment and recovery. I know I’m free from SIBO and Candida since I’ve been tested for it, but I’m still going to make a endoscopy to test for H. Pylori and Eosinophilic esophagitis (EoE). Thank you again!! Have a blessed weekend 🤍
    • knitty kitty
      Unusual bright yellow but odourless discharge

      By knitty kitty · Posted

      Yes, I, too, have osteoporosis from years of malabsorption, too.  Thiamine and magnesium are what keep the calcium in place in the bones.  If one is low in magnesium, boron, selenium, zinc, copper, and other trace minerals, ones bone heath can suffer.  We need more than just calcium and Vitamin D for strong bones.  Riboflavin B 2, Folate B 9 and Pyridoxine B 6 also contribute to bone formation and strength.   Have you had your thyroid checked?  The thyroid is important to bone health as well.  The thyroid uses lots of thiamine, so a poorly functioning thyroid will affect bone heath.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.