Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Recommend A Doctor In You State

Guest celiacbuzzroom

By Guest celiacbuzzroom
in Doctors

Recommended Posts

macocha Contributor
macocha
Posted

tacoma, wa:

Open Original Shared Link

part of mary bridge children's health center. awesome doc. after going to another doc here for my daughter who is dealing with fructose malabsorption, I switched to him and got way more answers and way more proactive care.

My son will be going to him to finish the confirmation of celiac disease. just a great doc!

  • 2 weeks later...
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • Replies 113
  • Created
  • Last Reply
Dannyfor zsuzy Newbie
Dannyfor zsuzy
Posted

Dr. Wataru Tamura in Oro Valley, Arizona. He's part of Foothills Gatroenterology.

He's a bit quirky, but seems nice, thorough, and extremely knowledgable about celiac disease. I went to see him after my first GI doc. said, essentially, 'you have celiac. Here's a nutritionist to tell you what to eat. bye.'

Dr. Tamura, on the other hand, started immediately talking about the fact that people with celiac disease can have food intolerances, vitamin deficiences, allergies, and other issues, so we should be checking me out for these right away to get me as healthy as possible.

Considering that I - who have never had a known allergic reaction to food before - had an anaphylactic reaction to 'something' the same day I went in for blood tests for allergies, I'm very glad I'm with Dr. Tamura now and not my first doctor!

Does this Doctor work with kids? My daughter is 10 years old and was diagnosed by Dr. Hasan, But I'm not really satisfied with him.

T.H.

  • 3 weeks later...
Kathy59 Rookie
Kathy59
Posted

No help here in North Carolina...still trying to seek a DR. who cares enough to do some research. <_<

Not sure where you live in NC, but I was finally helped at Highland Neurology Center, 3645 Cape Center Dr., Fayetteville, NC..Neurologist there has helped me immensely! The phone number is 910-483-9200

farmwife67 Explorer
farmwife67
Posted

I secong this one! She also now practices in Marlette, Michigan a day a week, not sure which day.

She is good with celiac because her whole family has it. However, she doesn't use enterolab for testing and she had my boys tested and they came back negative and going with symptoms I am sure they have at least gluten sensitivity. I have active gluten sensitivity and it runs rampant in my husbands family. They also have eosinophilic esphogitis. But, I think if I have it done she would accept it as a diagnosis.

Chef Oonagh Rookie
Chef Oonagh
Posted

Hi,

I'm new to the forum. I am hoping that someone can help me. I have recently decided to move to the northwest part of ohio. I moved from Pittsburgh, Pa. I can not drive the 6 hours to get to my doc back home that was excellent with celiac. Is there any chance that anyone knows of a doc that has some knowledge of celiac in the toledo, fort wayne, lima area? I would appreciate any information anyone has. I have tried so many doctors in this area and it seems that I know more than they do and I'm tired of having to tell them what is what and what to do rather than them knowing. :(

Thanks

HI, our adult son diagnosed a year ago (silent symptoms) recently moved to Pittsburgh PA. Who did you see as a doctor when you lived there. Pittsburgh Celiacs don't seem to say much. I phoned UPMC and girl tried to put me onto asthma and allergy doctors. Then I asked for GI and she said digestive disorders drs, gave me some names, phoned a week ago and no replies. So wouldn't bother going to them anyway. he is very good about following gluten-free diet and can cook, but he still needs to see someone to see healing, any deficiencies, nutrition etc. We live in NH so it is difficult. Plus can you recommend any restaurants that you know genuinely do gluten-free. gluten-free registry lists some supposedly gluten-free places, but when you check menus and comments, they don't seem at all consistent. thanks.

wjp Newbie
wjp
Posted

Not sure where you live in NC, but I was finally helped at Highland Neurology Center, 3645 Cape Center Dr., Fayetteville, NC..Neurologist there has helped me immensely! The phone number is 910-483-9200

Hi Kathy - you see Dr. Serano too. Yes they are helpful and caring. Do you know if there are any care groups for celiac around Fayetteville?

mamaw Community Regular
mamaw
Posted

Ohio

For you people in Ohio --- you have several gluten-free groups available to you.. Childrens hospital of Columbus has great resourses for gluten-free. Mary Kay Sharrett is the gluten-free dietician & she can put you on to doctors who understand celiac & gluten intolerance.

The GIG (gluten intolerance group) has a branch in Canton... I think there may be a CSA group as well....

hth

mamaw

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mamaw Community Regular
mamaw
Posted

Pittsburgh Pa

Three Rivers Endo, Moon Twp 412-262-1000 Dr Ernest Stanley

Allegheny General Hospital has a group in the Wexford area- beside Outback Restaurant

Dr Colatrella & Dr Gloriosio- south of Pittsburgh

hth

blessings

mamaw

GFLindsey Explorer
GFLindsey
Posted

I really need a second opinion and made an appointment to meet with Dr. Colatrella in 2 weeks! Thanks for the recommendation -- I am really hoping he can help me!

LDJofDenver Apprentice
LDJofDenver
Posted

Dr. Leslie Stark, GI,

Kaiser Permanente, Denver CO

  • 1 month later...
Chef Oonagh Rookie
Chef Oonagh
Posted

Hi,

I'm new to the forum. I am hoping that someone can help me. I have recently decided to move to the northwest part of ohio. I moved from Pittsburgh, Pa. I can not drive the 6 hours to get to my doc back home that was excellent with celiac. Is there any chance that anyone knows of a doc that has some knowledge of celiac in the toledo, fort wayne, lima area? I would appreciate any information anyone has. I have tried so many doctors in this area and it seems that I know more than they do and I'm tired of having to tell them what is what and what to do rather than them knowing. :(

Thanks

Who did you see in Pittsburgh? Our son recently moved to Pittsburgh and we are trying to find a celiac dr. for him. University of Pittsburgh was useless.

Linkz Newbie
Linkz
Posted

What about Michigan???

T.H. Community Regular
T.H.
Posted

Have you checked out your local celiac group? That's how I ended up finally finding a celiac friendly doc where I am.

I had found a link for the group in your area here:

Open Original Shared Link

My children and I have all been diagnosed with celiacs and some with gluten intolerances within the past 3 years. I am looking for a good doctor in the South Jersey area or Philadelphia who understand the disease and can help us.

Kathy59 Rookie
Kathy59
Posted

Hi Kathy - you see Dr. Serano too. Yes they are helpful and caring. Do you know if there are any care groups for celiac around Fayetteville?

Just saw this..sorry...I do not know if there are any groups in fville area

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,855
    • Most Online (within 30 mins)
      7,748
    Tara M
    Newest Member
    Tara M
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Celiac and dermatitis herpetiformis has taken Me from Me

      By trents · Posted

      Is this man the father of your children?
    • Jillian83
      Celiac and dermatitis herpetiformis has taken Me from Me

      By Jillian83 · Posted

      Hi, I was recently diagnosed with Celiac and dermatitis herpetiformis after years of suffering without answers. I lost my mind. I lost my job. I lost so much time. I lost Me. Conventional doctors are opulent come near me and the one who did sat across the room, misdiagnosed me, pumped me full of steroids which collapsed my entire hip for 6 months. So without answers I began my holistic journey. Fast forward a couple of years and still struggling with a mysterious whole body itchy, crawling “skin hell”, perfect teeth now deteriorating, thick hair now thinning rapidly and no more than a day or 2 at most relief….An acquaintance opened up a functional medicine practice. Cash only, I found a way. Within a month tests clearly showing my off the charts gluten allergy/sensitivity as well as the depletion of vital nutrients due to leaky gut and intestinal damage. dermatitis herpetiformis was more than likely what I was experiencing with my skin. I was happy. I thought this is easy, eat healthy Whole Foods, follow the diet restrictions and I finally get to heal and feel confident and like myself again very soon! 😔 Supplements are very pricey but I got them and began my healing. Which leads to the other major issue: not working, stay at home Mom of young kids, entirely financially dependent on my man of 7 plus years. He’s never been supportive of anything I’ve ever done or been thru. He controls everything. I’m not given much money ever at a time and when he does leave money it’s only enough to possibly get gas. His excuse is that I’ll spend it on other things. So my “allowance” is inconsistent and has conditions. He withholds money from me as punishment for anything he wants. Since being diagnosed, he’s gained a new control tactic to use as punishment. He now is in control of when I get to eat. He asked for proof of my diagnosis and diet bc he said I made it up just to be able to eat expensive organic foods. Then after I sent him my file from my doctor he then said she wasn’t a real doctor. 😡. I go days upon days starving, sometimes breaking down and eating things I shouldn’t bc I’m so sick then I pay horribly while he gets annoyed and angry bc I’m not keeping up with all the duties I’m supposed to be doing. His abuse turns full on when I’m down and it’s in these desperate times when I need his support and care the most that I’m punished with silence, being starved, ignored, belittled. He will create more of a mess just bc I’m unable to get up and clean so that when I am better, I’m so overwhelmed with chores to catch up that the stress causes me to go right back into a flare from hell and the cycle repeats. I’m punished for being sick. I’m belittled for starving and asking for healthy clean water. I’m purposely left out of his life. He won’t even tell me he’s going to the grocery or to get dinner bc he doesn’t want me to ask him for anything. I have no one. I have nothing. Im not better. My supplements ran out and I desperately need Vitamin D3 and a methylated B complex at the very minimal just to function….he stares at me blankly…no, a slight smirk, no words. He’s happiest when im miserable and I am miserable.  this is so long and im condensing as much as I can but this situation is so complicated and disgusting. And it’s currently my life. The “IT” girl, the healthy, beautiful, perfect skin, perfect teeth, thick and curly locks for days, creative and talented IT girl….now I won’t even leave this house bc Im ashamed of what this has dont to my body, my skin. Im disgusted. The stress is keeping me from healing and I think he knows that and that’s why he continues to keep me in that state. He doesn’t want me confident or successful. He doesn’t want me healed and healthy bc then how would he put the blame of all his problems on me? This journey has been hell and I’ve been in Hell before. I’ve been killed by an ex, I’ve been raped, robbed, held hostage, abused beyond nightmares but the cruelty I’ve experienced from him bc of this disease is the coldest I’ve ever experienced. I’ve wanted to give up. Starving and in tears, desperate…I found a local food pantry in our small town so I reached out just saying I had Celiac and was on hard times. This woman is blessing me daily with prepared gluten free meals, donations, educational info, people who know this disease and how they manage life and the blessings just keep coming. But it’s overwhelming and I feel like I don’t deserve it at all. He just glared and I know he’s going to sabotage it somehow. I don’t even know what to do anymore. I’m so broken and just want peace and healing. 
    • cristiana
      Ibuprofen

      By cristiana · Posted

      @Colleen H   I am just curious,  when you were tested for coeliac disease, did the doctors find out if you had any deficiencies? Sometimes muscle pain can be caused by certain deficiencies, for example, magnesium, vitamin D, calcium, and potassium.   Might be worth looking into having some more tests.  Pins and needles can be neuropathy, again caused by deficiencies, such as iron and B12,  which can be reversed if these deficiencies are addressed. In the UK where I live we are usually only tested for iron, B12 and vitamin D deficiencies at diagnosis.   I was very iron anemic and supplementation made a big difference.  B12 was low normal, but in other countries the UK's low normal would be considered a deficiency.  My vitamin D was low normal, and I've been supplementing ever since (when I remember to take it!) My pins and needles definitely started to improve when my known deficiencies were addressed.  My nutritionist also gave me a broad spectrum supplement which really helped, because I suspect I wasn't just deficient in what I mention above but in many other vitamins and minerals.  But a word of warning, don't take iron unless blood tests reveal you actually need it, and if you are taking it your levels must be regularly monitored because too much can make you ill.  (And if you are currently taking iron, that might actually be making your stomach sore - it did mine, so my GP changed my iron supplementation to a gentler form, ferrous gluconate). Lastly, have you been trying to take anything to lessen the pain in your gut?  I get a sore stomach periodically, usually when I've had too much rich food, or when I have had to take an aspirin or certain antibiotics, or after glutening.  When this happens, I take for just a few days a small daily dose of OTC omeprazole.  I also follow a reflux or gastritis diet. There are lots online but the common denominators to these diets is you need to cut out caffeine, alcohol, rich, spicy, acidic food etc and eat small regularly spaced meals.   When I get a sore stomach, I also find it helpful to drink lots of water.  I also find hot water with a few slices of ginger very soothing to sip, or camomile tea.  A wedge pillow at night is good for reflux. Also,  best not to eat a meal 2-3 hours before going to bed. If the stomach pain is getting worse, though, it would be wise to see the doctor again. I hope some of this helps. Cristiana    
    • Me,Sue
      Knowing what to do when feeling unwell.

      By Me,Sue · Posted

      I was diagnosed with coeliac disease a couple of years ago [ish]. I love my food and a variety of food, so it's been hard, as it is with everyone. I try and ensure everything I eat doesn't contain gluten, but occasionally I think something must have got through that has gluten in. Mainly I know because I have to dash to the loo, but recently I have noticed that I feel nauseous after possibly being glutened. I think the thing that I have got better at is knowing what to do when I feel wiped out after a gluten 'episode'. I drink loads of water, and have just started drinking peppermint tea. I also have rehydration powders to drink. I don't feel like eating much, but eventually feel like I need to eat. Gluten free flapjacks, or gluten free cereal, or a small gluten free kids meal are my go to. I am retired, so luckily I can rest, sometimes even going to bed when nothing else works. So I feel that I am getting better at knowing how to try and get back on track. I am also trying to stick to a simpler menu and eat mostly at home so that I can be more confident about what I am eating. THANKS TO THOSE WHO REPLIED ABOUT THE NAUSEA .
    • Francis M
      The Happy Tart review

      By Francis M · Posted

      Thanks. Since the back and forth and promises of review and general stalling went on for more than six months, the credit company will no longer investigate. They have a cutoff of maybe six months.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.