Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Bf With Possible Celiac


ShannonMarie

Recommended Posts

ShannonMarie Newbie

It is a long story but my boyfriend has been sick for 6 years. We have been together for a little over a year and we found out today that he is likely going to be put on a gluten free diet because his doctors says his biopsy wasn't conclusive but he thinks he has a variation of Celiac disease. He has to see a dermatolgist yet and then back to the gastrointoligist to find out for sure if he is going gluten free but it seems inevitable at this point.

1. I was wondering what I have to do to prevent passing gluten I injest to him. I plan on not eating gluten when we are together. I have read on the boards about it being passed through kissing.

2. Also if the dermatoligist determines his skin condition is related to Celiac Disease does that mean that that detergent, shampoo, conditioner, body wash, lotion, make-up and anything I use that could come in contact with him needs to be gluten free?

3. Also what about utensils, pot and pans, things used to cook that I cook my gluten food in when he isn't here. If they are washed thoroughly should these be a problem?

4. and on a side note does anyone know how to make or where I can get a recipe for gluten free strawberry cupcakes with cream cheese frosting? they are his favorites. I made them for him this weekend just in case it was the last time he could have them cause we knew he might be getting this diagnosis today.

Just wondering so that I can make sure I am helping him get better and not accidentally making him sick.

I know that is a lot of questions in one post. Sorry.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



aikiducky Apprentice
1. I was wondering what I have to do to prevent passing gluten I injest to him. I plan on not eating gluten when we are together. I have read on the boards about it being passed through kissing. what about other things?

2. Also if the dermatoligist determines his skin condition is related to Celiac Disease does that mean that that detergent, shampoo, conditioner, body wash, lotion, make-up and anything I use that could come in contact with him needs to be gluten free?

3. Also what about utensils, pot and pans, things used to cook that I cook my gluten food in when he isn't here. If they are washed thoroughly should these be a problem?

4. and on a side note does anyone know how to make or where I can get a recipe for gluten free strawberry cupcake with cream cheese frosting? they are his favorites. I made them for him this weekend just in case it was the last time he could have them cause we knew he might be getting this diagnosis today.

First of all, welcome! And let me say I think it's really sweet that you're taking this so seriously, your boyfriend is a lucky guy! :)

1. The deal with kissing is just if you still have traces of what you ate or drank in your mouth or on your lips. My husband usually rinses with a little water and wipes his mouth after eating before he kisses me, so far I've never gotten sick this way. Or if he didn't wipe his mouth, he warns me "you don't want to kiss me now" and offers a cheek instead. Or a hug... :wub:

2. this one I don't know for sure, maybe someone with DH will chime in.

3. They shouldn't be a problem, unless they're old and scratched. Basically anything that has nicks and grooves (think old cutting board, wooden spoons, colanders!) that can't be cleaned thoroughly could be a problem, but porcelain dishes, stainless stell pans, that sort of thing that cleans easily, is ok. Don't use the same toaster!

4. I don't know a recipe, but again, that's so sweet! :) I hope someone will know.

Hope this helps

Pauliina

Suzie-GFfamily Apprentice

I hope that your bf will get diagnosed, if he does have celiac disease than things should really improve now.

He's lucky because you "get it". Many people with celiac disease have a problem because their loved ones just don't understand, but it certainly sounds like you do. You're thinking and looking for possible ways that he could accidentally come in contact with gluten- this is what is important.

Having separate containers for butter/margarine will be helpful- using different brands makes it easy to distinguish the gluten-free margarine from the contaminated one. Also- condiments (mayonaise, jam, peanut butter, etc.) can get contaminated too. Squeeze bottles are a good choice- ketchup, mustard, mayonaise, etc.

Have some fun and don't get too stressed about it at the beginning. The diet takes a little while to get used to- but there are so many safe foods, especially if you keep to the outside areas of the grocery store and avoid the middle aisles. Some of the gluten-free foods you try in the beginning may not taste great- so laugh about it together and try some different ones. There are a lot of foods available, and some really good ones too.

I really appreciated my dh's attitude when it was all so new to me a couple of months ago- he was positive and he made it fun, and it "got it" too.

Suzie

Suzie-GFfamily Apprentice
4. and on a side note does anyone know how to make or where I can get a recipe for gluten free strawberry cupcake with cream cheese frosting? they are his favorites. I made them for him this weekend just in case it was the last time he could have them cause we knew he might be getting this diagnosis today.

I haven't tried converting any of my old recipes to gluten-free yet. But I've been doing some reading.

One site I found suggested the country french bread & pizza mix from Gluten-Free Pantry as a substitute for all-purpose wheat flour- substitute in a 1:1 ratio for the flour in your original recipe.

There are lots of different gluten-free flour mixes available to buy or recipes you can use to make your own mix. I'd suggest buying a pre-packaged mix to start with instead of buying all of the different flours and rising agents.

debmidge Rising Star

when making cake, make sure the beaters are either new or cleaned very well. Those beaters could have been used in making regular gluten cakes in their past lives...

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,050
    • Most Online (within 30 mins)
      7,748

    Rima
    Newest Member
    Rima
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • tiffanygosci
      Hi Cristiana! It's so nice to meet you! Thank you for the kind reply I am glad I live in a time where you can connect with others through the Internet. That is a mercy I am grateful for.
    • knitty kitty
      In the study linked above, the little girl switched to a gluten free diet and gained enough weight that that fat pad was replenished and surgery was not needed.   Here's the full article link... Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pmc.ncbi.nlm.nih.gov/articles/PMC6476019/
    • knitty kitty
      Hello, @Jordan Carlson, So glad you're feeling better.   Tecta is a proton pump inhibitor.  PPI's also interfere with the production of the intrinsic factor needed to absorb Vitamin B12.  Increasing the amount of B12 you supplement has helped overcome the lack of intrinsic factor needed to absorb B12. Proton pump inhibitors also reduce the production of digestive juices (stomach acids).  This results in foods not being digested thoroughly.  If foods are not digested sufficiently, the vitamins and other nutrients aren't released from the food, and the body cannot absorb them.  This sets up a vicious cycle. Acid reflux and Gerd are actually symptoms of producing too little stomach acid.  Insufficient stomach acid production is seen with Thiamine and Niacin deficiencies.  PPI's like Tecta also block the transporters that pull Thiamine into cells, preventing absorption of thiamine.  Other symptoms of Thiamine deficiency are difficulty swallowing, gagging, problems with food texture, dysphagia. Other symptoms of Thiamine deficiency are symptoms of ADHD and anxiety.  Vyvanse also blocks thiamine transporters contributing further to Thiamine deficiency.  Pristiq has been shown to work better if thiamine is supplemented at the same time because thiamine is needed to make serotonin.  Doctors don't recognize anxiety and depression and adult onset ADHD as early symptoms of Thiamine deficiency. Stomach acid is needed to digest Vitamin C (ascorbic acid) in fruits and vegetables.  Ascorbic acid left undigested can cause intestinal upsets, anxiety, and heart palpitations.   Yes, a child can be born with nutritional deficiencies if the parents were deficient.  Parents who are thiamine deficient have offspring with fewer thiamine transporters on cell surfaces, making thiamine deficiency easier to develop in the children.  A person can struggle along for years with subclinical vitamin deficiencies.  Been here, done this.  Please consider supplementing with Thiamine in the form TTFD (tetrahydrofurfuryl disulfide) which helps immensely with dysphagia and neurological symptoms like anxiety, depression, and ADHD symptoms.  Benfotiamine helps with improving intestinal health.  A B Complex and NeuroMag (a magnesium supplement), and Vitamin D are needed also.
    • knitty kitty
      @pothosqueen, Welcome to the tribe! You'll want to get checked for nutritional deficiencies and start on supplementation of B vitamins, especially Thiamine Vitamin B 1.   There's some scientific evidence that the fat pad that buffers the aorta which disappears in SMA is caused by deficiency in Thiamine.   In Thiamine deficiency, the body burns its stored fat as a source of fuel.  That fat pad between the aorta and digestive system gets used as fuel, too. Ask for an Erythrocyte Transketolace Activity test to look for thiamine deficiency.  Correction of thiamine deficiency can help restore that fat pad.   Best wishes for your recovery!   Interesting Reading: Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pubmed.ncbi.nlm.nih.gov/31089433/#:~:text=Affiliations,tissue and results in SMAS.  
    • trents
      Wow! You're pretty young to have a diagnosis of SMA syndrome. But youth also has its advantages when it comes to healing, without a doubt. You might be surprised to find out how your health improves and how much better you feel once you eliminate gluten from your diet. Celiac disease is an autoimmune disorder that, when gluten is consumed, triggers an attack on the villous lining of the small bowel. This is the section of the intestines where all our nutrition is absorbed. It is made up of billions of tiny finger-like projections that create a tremendous surface area for absorbing nutrients. For the person with celiac disease, unchecked gluten consumption generates inflammation that wears down these fingers and, over time, greatly reduces the nutrient absorbing efficiency of the small bowel lining. This can generate a whole host of other nutrient deficiency related medical problems. We also now know that the autoimmune reaction to gluten is not necessarily limited to the lining of the small bowel such that celiac disease can damage other body systems and organs such as the liver and the joints and cause neurological problems.  It can take around two years for the villous lining to completely heal but most people start feeling better well before then. It's also important to realize that celiac disease can cause intolerance to some other foods whose protein structures are similar to gluten. Chief among them are dairy and oats but also eggs, corn and soy. Just keep that in mind.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.