Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Growth/nodule On Thyroid?


frenchiemama

Recommended Posts

frenchiemama Collaborator

:(

I was at the allergist yesterday and he found a lump on the left side of my thyroid. I'm just on my way to get an ultrasound and (I think) a needle biopsy done (do that do that on the same day? I have no idea). I'm a bit nervous.

Anyone else had one? What ended up happening?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



chrissy Collaborator

my husband and i have both had thyroid nodules. kevin had one large one. they did an ultrasound, inconclusive---then a needle biopsy, suspicious---then he had surgery. they planned on removing half his thyroid and doing the frozen sample test. if it was cancer, they were going to remove the whole thyroid, if it wasn't they were going to leave half his thyroid. he still has half of his thyroid. a few years later i ended up with lumps in my thyroid. i didn't have to do any tests beyond the ultra sound. i had numerous, small lumps, so mine were not as suspicious. kevin and i are both on thyroid meds to shut down our normal functioning thyroids------it is supposed to keep us from developing more thyroid lumps.

Rusla Enthusiast

I had three on my thyroid. Four endocrinologists refused to see me because "they weren't big enough" yet. Then they would take them out. I got my non endocrin and non family doctor to give me synthroid and I got rid of them. Why could the other doctors say, "well let's see if we can get rid of them with synthroid," well, because they would rather do surgery then help you get rid of them.

hez Enthusiast

My doc found a nodule on my thyroid about 14 years ago. Had an ultra sound (don't remember what they found out), had some type of scan, then had a needle biopsy that came back clean. The ENT didn't believe the biopsy (can't remember why) and did surgery. Turns out I had cancer and a tumor on one side of my thyroid. They removed the entire thyroid and did some radiation treatment for follow up. I am now on synthyroid since I no longer have a thyroid.

I remember during all of this I was very scared. However, after going through it, it was not too bad. When I think of other cancers and treatment, thyroid cancer is the way to go. The most common thyroid cancer has a very high cure rate. There is another thyroid cancer that is rare and does not have the same cure rate (of course I cannot remember the names). The recovery from surgery was painful but the radiation treatment was painless with no side effects.

For me I was scared because I did not know what to expect. Plus the needle biopsy was happening two weeks before my wedding! No matter how curable a cancer is it is still scary for someone to tell you that you have it.

My advice is to get good doctors, do a little research (hopefully to demystify the process), and take deep calming breaths. In the mean time you will be in my thoughts and prayers.

Hez

frenchiemama Collaborator

Ok. Well I'm back from the doctor. They did the ultrasound and took blood to check thyroid function, but didn't do the biopsy. I was a little confused, because the doctor made it sound like it was all done at the same time, but apparently he didn't order it.

Anyway, it's huge. Huge. Like walnut sized. I'm feeling a little freaked out. I hope that they get back to me soon.

georgie Enthusiast

I have nodules in my Thyroid and it got so large that I couldn't swallow food or talk. I take Armour ( natural) Thyroid meds to shrink the Thyroid and nodules. Its working great. Also Iodine. A goitre is a sign of Iodine deficiency. 50 mg Iodine or 8 drops of Lugols.

debmidge Rising Star

in 1999 I had same diagnosis: thyroid nodule. Got a radioactive uptake test and it was a "cold" nodule; however throat surgeon wanted to do biospy but felt that nodule was too small and he could possibly needl biopsy good tissue and have a false negative. So. Opted for surgery biopsy was negative and he took out left side of thyroid and now I am on thyroid pills everyday for rest of my life to keep the thyroid from working and making more nodules.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Rogol72 replied to klmgarland's topic in Dermatitis Herpetiformis
      3

      Help I’m cross contaminating myself,

    2. - ShariW commented on Scott Adams's article in Frequently Asked Questions About Celiac Disease
      4

      What are Celiac Disease Symptoms?

    3. - klmgarland replied to klmgarland's topic in Dermatitis Herpetiformis
      3

      Help I’m cross contaminating myself,

    4. - Scott Adams replied to klmgarland's topic in Dermatitis Herpetiformis
      3

      Help I’m cross contaminating myself,

    5. - Scott Adams replied to Jmartes71's topic in Coping with Celiac Disease
      1

      My only proof


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,908
    • Most Online (within 30 mins)
      7,748

    ebrown
    Newest Member
    ebrown
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Rogol72
      @klmgarland, My dermatitis herpetiformis didn't clear up until I became meticulous about cross contamination. I cut out gluten-free oats and all gluten-free foods, dairy and gluten-free rice. Additionally, getting the right amount of protein for my body weight helped significantly in my body's healing process ... along with supplementing with enough of all the vitamins and minerals ... especially Zinc and Magnesium. I went from 70kg to 82kg in a year. Protein with each meal 3 times daily, especially eggs at breakfast made the difference. I'm not sure whether iodine was a problem for me, but I can tolerate iodine no problem now. I'm off Dapsone and feel great. Not a sign of an itch. So there is hope. I'm not advocating for the use of Dapsone, but it can bring a huge amount of relief despite it's effect on red blood cells. The itch is so distracting and debilitating. I tried many times to get off it, it wasn't until I implemented the changes above and was consistent that I got off it. Dermatitis Herpetiformis is horrible, I wouldn't wish it on anyone.  
    • klmgarland
      Thank you so very much Scott.  Just having someone understand my situation is so very helpful.  If I have one more family member ask me how my little itchy skin thing is going and can't you just take a pill and it will go away and just a little bit of gluten can't hurt you!!!! I think I will scream!!
    • Scott Adams
      It is difficult to do the detective work of tracking down hidden sources of cross-contamination. The scenarios you described—the kiss, the dish towel, the toaster, the grandbaby's fingers—are all classic ways those with dermatitis herpetiformis might get glutened, and it's a brutal learning curve that the medical world rarely prepares you for. It is difficult to have to deal with such hyper-vigilance. The fact that you have made your entire home environment, from makeup to cleaners, gluten-free is a big achievement, but it's clear the external world and shared spaces remain a minefield. Considering Dapsone is a logical and often necessary step for many with DH to break the cycle of itching and allow the skin to heal while you continue your detective work; it is a powerful tool to give you back your quality of life and sleep. You are not failing; you are fighting an incredibly steep battle. For a more specific direction, connecting with a dedicated celiac support group (online or locally) can be invaluable, as members exchange the most current, real-world tips for avoiding cross-contamination that you simply won't find in a pamphlet. You have already done the hardest part by getting a correct diagnosis. Now, the community can help you navigate the rest. If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
    • Scott Adams
      It's very frustrating to be dismissed by medical professionals, especially when you are the one living with the reality of your condition every day. Having to be your own advocate and "fight" for a doctor who will listen is an exhausting burden that no one should have to carry. While that 1998 brochure is a crucial piece of your personal history, it's infuriating that the medical system often requires more contemporary, formal documentation to take a condition seriously. It's a common and deeply unfair situation for those who were diagnosed decades ago, before current record-keeping and testing were standard. You are not alone in this struggle.
    • Scott Adams
      Methylprednisolone is sometimes prescribed for significant inflammation of the stomach and intestines, particularly for conditions like Crohn's disease, certain types of severe colitis, or autoimmune-related gastrointestinal inflammation. As a corticosteroid, it works by powerfully and quickly suppressing the immune system's inflammatory response. For many people, it can be very effective at reducing inflammation and providing rapid relief from symptoms like pain, diarrhea, and bleeding, often serving as a short-term "rescue" treatment to bring a severe flare under control. However, experiences can vary, and its effectiveness depends heavily on the specific cause of the inflammation. It's also important to be aware that while it can work well, it comes with potential side effects, especially with longer-term use, so it's typically used for the shortest duration possible under close medical supervision. It's always best to discuss the potential benefits and risks specific to your situation with your gastroenterologist.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.