Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Last Minute Day-trip

Nantzie

By Nantzie
in Coping with Celiac Disease

Recommended Posts

Nantzie Collaborator
Nantzie
Posted

My MIL called me tonight and asked me if my husband had told me we were supposed to go to a harvest fair thing an hour away tomorrow morning. :blink: Uhh.... Nope. That was the first I had heard of it.

A few months ago I would have just said we couldn't go with such short notice. I've got two gluten-free kids, plus myself to cook for. Basically we're looking at 12 hours notice.

But now, no problem. Irritation, yes. Eye-rolling that my husband didn't tell me, sure. But problem? Nope.

Delimex taquitos for the kids, fruit cups and carrots on the side. I put a bread mix in the bread machine so I can make myself some sandwiches, and cooked some bacon. (Mmmm... BLT's...) Chips and gluten-free cookies for snacks. Lemonade for their drinks. All set.

Life is good.

B)

Nancy

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Kaycee Collaborator
Kaycee
Posted

Yes Nancy life is good.

I still try to take something with me that I can eat if I go away for a day or so, whether it is crackers or fruit, it doesn't matter. But I at least will give the food on offer a go or a look over, and if that does not suit, I can still have my crackers! And if the offerings are okay, I can leave my crackers, knowing they will be fine for another day.

Now having kids in tow, who are coeliac would be a totally different thing, and harder to manage, and it is good to see that you have that sorted out.

It has taken me time to get here, but I think after a few months I am getting quite good at feeding myself.

Catherine

daffadilly Apprentice
daffadilly
Posted

Good for you sounds like you are in the swing of things. That sounds like a great lunch, and snacks.

I have been meaning to post about these great tupperware type containers that I have, they are water tight, so they can float in a cooler of water (or sink) & they will not get water in them, the name is Biokips. they are in several sizes, an oblong shape and the lid has overhangs on the 4 sides that snap down. I really like them for packing food to go, especially for a cooler. I am not sure where I bought them, probably walmart, Target, or the Container Store.

It is just me, & I have no problems or inconveniences being gluten-free, but I know it is harder with kids!!!!

kbtoyssni Contributor
kbtoyssni
Posted

I'm glad you were able to make such a fantastic sounding lunch on short notice. Have fun at the harvest fair!

Guhlia Rising Star
Guhlia
Posted

Woo-hoo!!! What an encouraging story!

jerseyangel Proficient
jerseyangel
Posted

Love it, Nancy! Yep--life is good :D

Hope you all have a great time today!

Nantzie Collaborator
Nantzie
Posted
  • Author

Yep, it turned out great. We bought apples, fudge, rode ponies and had ice cream. It all worked out great and none of us got glutened.

:D

Nancy

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Heatherisle
      - Heatherisle replied to Mihai's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      22

      Pain in the right side of abdomen

      Hasn’t been given folic acid as GP says vit b and folic acid can’t be given together which I find strange cos any time I did venepunctures B12 and folate were always grouped together? Her folate level was 2.2, just below the normal level
    2. Heatherisle
      - Heatherisle replied to Mihai's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      22

      Pain in the right side of abdomen

      Hi Thanks for your input. Don’t know which exact medication she’s on, keep asking but she keeps forgetting!!! I still think her Vitamin D levels might be low cos she had the back pain and tingling last year( around March /April) and levels were low so she had 3 month course then and it helped. She’s coming home next week (as in to ours) for a long weeke...
    3. knitty kitty
      0

      Dairy and Celiac: studies

    4. Scott Adams
      - Scott Adams replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      how long does it take for the genetic blood test for celiac to come back?

      Genetic testing for celiac disease (the HLA-DQ2 and HLA-DQ8 genes) usually takes about 3–10 days to come back, depending on the lab your doctor uses, though some places may take up to two weeks. The test itself doesn’t diagnose celiac disease—it only shows whether you carry the genes that make celiac possible. About 30–40% of people have one of these genes, ...
    5. knitty kitty
      - knitty kitty replied to Mihai's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      22

      Pain in the right side of abdomen

      @Heatherisle, You're not a bother at all. What "Vitamin B medication" is she taking? Is it just B12 and folate? All eight B vitamins, Vitamin D and other vitamins and minerals need to be supplemented because the malabsorption of Celiac disease affects all the nutrients. All the B vitamins work together. Just supplementing one or two...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,667
    • Most Online (within 30 mins)
      7,748
    S.Aulman
    Newest Member
    S.Aulman
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Heatherisle
      Pain in the right side of abdomen

      By Heatherisle · Posted

      Hasn’t been given folic acid as GP says vit b and folic acid can’t be given together which I find strange cos any time I did venepunctures B12 and folate were always grouped together? Her folate level was 2.2, just below the normal level
    • Heatherisle
      Pain in the right side of abdomen

      By Heatherisle · Posted

      Hi Thanks for your input. Don’t know which exact medication she’s on, keep asking but she keeps forgetting!!! I still think her Vitamin D levels might be low cos she had the back pain and tingling last year( around March /April) and levels were low so she had 3 month course then and it helped. She’s coming home next week (as in to ours) for a long weekend so hopefully some TLC from mum and dad will help!!!    
    • Scott Adams
      how long does it take for the genetic blood test for celiac to come back?

      By Scott Adams · Posted

      Genetic testing for celiac disease (the HLA-DQ2 and HLA-DQ8 genes) usually takes about 3–10 days to come back, depending on the lab your doctor uses, though some places may take up to two weeks. The test itself doesn’t diagnose celiac disease—it only shows whether you carry the genes that make celiac possible. About 30–40% of people have one of these genes, but only a small percentage actually develop celiac disease. However, if the test is negative for both genes, celiac disease becomes extremely unlikely, which is why your doctor mentioned possibly canceling the endoscopy if the result is negative. If it’s positive, it just means celiac remains a possibility and further testing, like a gluten challenge followed by endoscopy, helps confirm it. Since you have an identical twin, it’s definitely useful information to share if the genes are present, because twins share the same genetic risk. It sounds like you found a very thorough GI doctor, which is great, especially since she’s also monitoring nutrients and looking at the whole picture.
    • knitty kitty
      Pain in the right side of abdomen

      By knitty kitty · Posted

      @Heatherisle, You're not a bother at all.   What "Vitamin B medication" is she taking?  Is it just B12 and folate?   All eight B vitamins, Vitamin D and other vitamins and minerals need to be supplemented because the malabsorption of Celiac disease affects all the nutrients.  All the B vitamins work together.  Just supplementing one or two can throw the other B vitamins out of balance causing worsening deficiencies in other B vitamins.  Doctors are undereducated about nutrition.  Heavy sigh. This is worrisome.  These are all symptoms of Gastrointestinal Beriberi caused by Thiamine deficiency.   An Erythrocyte Transketolace Activity Assay needs too be done to check her Thiamine level.  But because this test is so expensive and takes so long for the results to come back, it's much simpler to administer 500 mg Thiamine Hydrochloride several times a day for several days and look for health improvement (WHO recommendation).  Doctors can administer Thiamine Hydrochloride by IV along with a "banana bag" with all the B vitamins in it.  (Riboflavin gives it the yellow color.).  I've experienced vitamin deficiencies which my doctors didn't recognize.  When thiamine and B12 deficiencies started affecting my brain function, my doctors wrote me off as a depressed hypochondriac.  I had Gastrointestinal Beriberi myself.  I took over the counter thiamine hydrochloride at home and had health improvement within an hour.  High doses (500 mg) of Thiamine are needed to "jump start" the body into proper functioning.   Apologies if I was curt.  I get very frustrated because the nutritional deficiencies that occur with Celiac disease are not addressed properly.  All I can do is tell people about what I learned on my Celiac journey.  Have you visited my blog?  Tap on my name, look for pull down menu Activities and go to blog.   I do hope your daughter can get the nutritional support she needs.  I'm very worried.  Please keep us updated!
    • Heatherisle
      Pain in the right side of abdomen

      By Heatherisle · Posted

      Hi  Thank you, will tell her to do that
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.