Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Oh Man...three Months Of Thinking I Was gluten-free...

MauriceGreene

By MauriceGreene
in Coping with Celiac Disease

Recommended Posts

MauriceGreene Rookie
MauriceGreene
Posted

Arg, I just found out that a good amount of spices I was using in my everyday cooking had WHEAT FLOUR and WHEAT STARCH in them. Stuff like ginger and pepper. WHY WOULD YOU PUT WHEAT INTO GINGER :angry::angry::lol:

My question is, is it enough to still make one feel sick? Can it be attributed to my only 50% improvement of symptoms??? Was it just as bad as not going on the gluten free diet?

Thanks in advance...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


brendygirl Community Regular
brendygirl
Posted

Don't be surprised about the "little" amounts of gluten that can make us sick. Lots of us are even worried about gluten in shampoo and soap since that can get into your mouth when you rinse yourself.

Yep, it's a sneaky world. Don't worry, you'll get it. When you know better, you do better!

Lisa Mentor
Lisa
Posted

MG:

Yup, any ingestion of gluten will cause damage and slow the healing process. Often, gluten is in the last place that you would look. :blink:

I generally buy McCormicks spieces, as they will always list and their natural species generally will have no gluten. But, as always, read the labels.

Once you get a handle on reading lables, it's down hill from there. (And always remember, ingrediences change. So what you bought a year ago, may not be the same as today). That is something that I have to constantly remind myself.

Make a small change and get to that 100% :)

kbtoyssni Contributor
kbtoyssni
Posted

Yes, that will be enough to make you sick. At least you realized your spices have wheat in them now rather than later. I screwed up a lot in the first six months so you're certainly not alone.

I agree that it's silly for spices to have gluten in them. Most spices are gluten-free, you must have just gotten unlucky with your brand.

Sweetfudge Community Regular
Sweetfudge
Posted

Such a pain I know! I was diagnosed in June, and I just found out last month that vanilla flavoring has gluten in it. lol!! Lame cuz I'd used it a lot in baking! That nasty gluten is hiding just about everywhere!

NoGluGirl Contributor
NoGluGirl
Posted
Such a pain I know! I was diagnosed in June, and I just found out last month that vanilla flavoring has gluten in it. lol!! Lame cuz I'd used it a lot in baking! That nasty gluten is hiding just about everywhere!

Dear Sweetfudge,

According to Amanda's Mommy's Blog, Durkee's liquid extracts and food colorings are all gluten -free. Her blog has helped me a lot. :) I love to bake, so it is a must to know about these things! I have only been gluten -free for about three months. Poor Maurice, I can relate to his situation. Calling manufacturers is the best way to know for sure. When in doubt, do not eat it! k

Sincerely,

NoGluGirl

darlindeb25 Collaborator
darlindeb25
Posted

Sweetfudge, real vanilla doesnt have gluten.

Also remember that McCormick spices are gluten free, but not their mixture spices--such as the seasoning spices. Be careful with that--keep your spices simple.

The one thing I always tell people to help them understand how much gluten it takes to make us ill: one piece of bread broken into 1000 crumbs and it only takes 1 crumb, 1/1000th of a slice of bread to make us ill. So yes, the tiniest amount of gluten will keep you from recovering.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


eKatherine Apprentice
eKatherine
Posted
WHY WOULD YOU PUT WHEAT INTO GINGER :angry::angry::lol:

So it won't get hard lumps in it.

Guest nini
Guest nini
Posted

McCormicks Vanilla Extract is also gluten-free, so is Flavorganics brand extracts and Publix brand Vanilla Extract.

I use mostly Simply Organic Spices, or McCormick's spices. The spice blends I use are from The Gluten Free Pantry.

jaten Enthusiast
jaten
Posted
Arg, I just found out that a good amount of spices I was using in my everyday cooking had WHEAT FLOUR and WHEAT STARCH in them. Stuff like ginger and pepper. WHY WOULD YOU PUT WHEAT INTO GINGER :angry::angry::lol:

My question is, is it enough to still make one feel sick? Can it be attributed to my only 50% improvement of symptoms??? Was it just as bad as not going on the gluten free diet?

Thanks in advance...

Which brand?....I want to double-cherck my spice rack!

Mtndog Collaborator
Mtndog
Posted

Maurice- First of all Welcome! I'm sorry that this happened to you. The learning curve on the diet can seem brutal at first. I got glutened by Tropicnana lemonade 6 months into the diet....now I ask you, what is wheat doing in lemonade? Ugh! It's a lot of reading labels, research etc. but I bet you will start to feel better once you get rid of those spices.

Like others here, I stick with Mccormick plain spices (not mixes), Simply Organic and Morton and Basset. For spice mixes, I make my own or buy gluten-free Pantry. But it's esay enough to replicate their mixes.

Again, sorry this happened to you and hope you're feeling better soon! B

PS Jaten- I am still so in love with your pup! What a beauty!

MauriceGreene Rookie
MauriceGreene
Posted
  • Author
Which brand?....I want to double-cherck my spice rack!

Masterfoods, i dont know if its in the US though...Thanks all for the replies, this feels like a kick in the teeth. But yes hopefully I will really start feeling better now. Thanks.

Aerin328 Apprentice
Aerin328
Posted

I had a similar experience recently. I was at the grocery store and I saw a beautiful tray of hot yummy lemon peppercorn chicken. I asked the cook about the gluten, they said it was gluten-free. Regardless, I asked if I could check the ingredients list on the spice they used... the list looked OK to me, so I promptly purchased and consumed the chicken whole-heartedly. OMG. D, brain fog, malaise, ICK! Lesson to be learned : don't trust generic looking spice mixes!

I feel like I'm on a never ending witchhunt! Only been gluten-free about 4 months, and I'm definitely still learning.

Judyin Philly Enthusiast
Judyin Philly
Posted

i USE MC CORMIC GRINDERS ESP THE GARLIC PEPPER ONE AND THOUGHT SURE IT WAS gluten-free BASED ON A CALL I MADE.

I'VE ALSO NOTICE ALOT OF PRODUCTS SINCE THE 'LABELING' LAWS HAVE ADDED SOY POWER THAT WAS NEVER IN THEM BEFORE....OR WILL SAY OIL (SUNFLOWER, SOYBEAN,CANOLA..YADAYA...AND LISTS 10)

CALLED AND THEY SAID, 'WELL WE DON'T KNOW WHICH SUPPLIER WILL BE THE BEST BUY EVERY WEEK SO WE LIST THEM ALL AS DON'T KNOW WHICH ONE WE WILL BE USING.." :blink: SO WE'RE STILL DOING 'RUSIAN ROULETTE" RIGHT..GRRRRRR. :ph34r:

JUDY

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. JoJo0611
      - JoJo0611 replied to JoJo0611's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      CT with contrast.

      I didn’t know there were different types of CT. I’m not sure which I had. It just said CT scan with contrast.
    2. Scott Adams
      - Scott Adams replied to Russ H's topic in Publications & Publicity
      1

      Coeliac UK Research Conference 2025

      Thanks for sharing this!
    3. Scott Adams
      - Scott Adams replied to Ginger38's topic in Related Issues & Disorders
      2

      Shingles - Could It Be Related to Gluten/ Celiac

      I had the same thing happen to me at around your age, and to this day it's the most painful experience I've ever had. For me it was the right side of my head, above my ear, running from my nerves in my neck. For years before my outbreak I felt a tingling sensation shooting along the exact nerves that ended up exactly where the shingles blisters appeared....
    4. trents
      - trents replied to Mmoc's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Blood tests low iGA 4 years later digestive issues

      Keep us posted.
    5. Scott Adams
      0

      Celiac.com Video News: November 2025

  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,398
    • Most Online (within 30 mins)
      7,748
    Megannnnn
    Newest Member
    Megannnnn
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • JoJo0611
      CT with contrast.

      By JoJo0611 · Posted

      I didn’t know there were different types of CT. I’m not sure which I had. It just said CT scan with contrast. 
    • Scott Adams
      Coeliac UK Research Conference 2025

      By Scott Adams · Posted

      Thanks for sharing this!
    • Scott Adams
      Shingles - Could It Be Related to Gluten/ Celiac

      By Scott Adams · Posted

      I had the same thing happen to me at around your age, and to this day it's the most painful experience I've ever had. For me it was the right side of my head, above my ear, running from my nerves in my neck. For years before my outbreak I felt a tingling sensation shooting along the exact nerves that ended up exactly where the shingles blisters appeared. I highly recommend the two shot shingles vaccine as soon as your turn 50--I did this because I started to get the same tingling sensations in the same area, and after the vaccines I've never felt that again.  As you likely know, shingles is caused by chicken pox, which was once though of as one of those harmless childhood viruses that everyone should catch in the wild--little did they know that it can stay in your nervous system for your entire life, and cause major issues as you age.
    • trents
      Blood tests low iGA 4 years later digestive issues

      By trents · Posted

      Keep us posted.
    • Clear2me
      Gluten free nuts

      By Clear2me · Posted

      Thanks for the info. I recently moved to CA from Wyoming and in that western region the Costco and Sam's /Walmart Brands have many nuts and more products that are labeled gluten free. I was told it's because those products are packaged and processed  in different  plants. Some plants can be labeled  gluten free because the plant does not also package gluten products and they know that for example the trucks, containers equipment are not used to handle wheat, barely or Rye. The Walmart butter in the western region says gluten free but not here. Most of The Kirkland and Members Mark brands in CA say they are from Vietnam. That's not the case in Wyoming and Colorado. I've spoken to customer service at the stores here in California. They were not helpful. I check labels every time I go to the store. The stores where I am are a Sh*tshow. The Magalopoly grocery chain Vons/Safeway/Albertsons, etc. are the same. Fishers and Planters brands no longer say gluten free. It could be regional. There are nuts with sugar coatings and fruit and nut mixes at the big chains that are labeled gluten free but I don't want the fruit or sugar.  It's so difficult I am considering moving again. I thought it would be easier to find safe food in a more populated area. It's actually worse.  I was undiagnosed for most of my life but not because I didn't try to figure it out. So I have had all the complications possible. I don't have any spare organs left.  No a little gluten will hurt you. The autoimmune process continues to destroy your organs though you may not feel it. If you are getting a little all the time and as much as we try we probably all are and so the damage is happening. Now the FDA has pretty much abandoned celiacs. There are no requirements for labeling for common allergens on medications. All the generic drugs made outside the US are not regulated for common allergens and the FDA is taking the last gluten free porcine Thyroid med, NP Thyroid, off the market in 2026. I was being glutened by a generic levothyroxin. The insurance wouldn't pay for the gluten free brand any longer because the FDA took them all off their approved formulary. So now I am paying $147 out of pocket for NP Thyroid but shortly I will have no safe choice. Other people with allergies should be aware that these foreign generic pharmaceutical producers are using ground shellfish shell as pill coatings and anti-desicants. The FDA knows this but  now just waits for consumers to complain or die. The take over of Wholefoods by Amazon destroyed a very reliable source of good high quality food for people with allergies and for people who wanted good reliably organic food. Bezos thought  he could make a fortune off people who were paying alot for organic and allergen free food by substituting cheap brands from Thailand. He didn't understand who the customers were who were willing to pay more for that food and why. I went from spending hundreds to nothing because Bezo removed every single trusted brand that I was buying. Now they are closing Whole foods stores across the country. In CA, Mill Valley store (closed July 2025) and the National Blvd. store in West Los Angeles (closed October 2025). The Cupertino store will close.  In recent years I have learned to be careful and trust no one. I have been deleberately glutened in a restaurant that was my favorite (a new employee). The Chef owner was not in the kitchen that night. I've had  a metal scouring pad cut up over my food.The chain offered gluten free dishes but it only takes one crazy who thinks you're a problem as a food fadist. Good thing I always look. Good thing they didn't do that to food going to a child with a busy mom.  I give big tips and apologize for having to ask in restaurants but mental illness seem to be rampant. I've learn the hard way.          I don't buy any processed food that doesn't say gluten free.  I am a life long Catholic. I worked for the Church while at college. I don't go to Church anymore because the men at the top decided Jesus is gluten. The special hosts are gluten less not gluten free. No I can't drink wine after people with gluten in their mouth and a variety of deadly germs. I have been abandoned and excluded by my Church/Family.  Having nearly died several times, safe food is paramount. If your immune system collapses as mine did, you get sepsis. It can kill you very quickly. I spent 5 days unconscious and had to have my appendix and gall bladder removed because they were necrotic. I was 25. They didn't figure out I had celiac till I was 53. No one will take the time to tell you what can happen when your immune system gets overwhelmed from its constant fighting the gluten and just stops. It is miserable that our food is processed so carelessly. Our food in many aspects is not safe. And the merging of all the grocery chains has made it far worse. Its a disaster. Krogers also recently purchased Vitacost where I was getting the products I could no longer get at Whole Foods. Kroger is eliminating those products from Vitacost just a Bezos did from WF. I am looking for reliable and certified sources for nuts. I have lived the worst consequences of the disease and being exposed unknowingly and maliciously. Once I was diagnosed I learned way more than anyone should have to about the food industry.  I don't do gray areas. And now I dont eat out except very rarely.  I have not eaten fast food for 30 years before the celiac diagnosis. Gluten aside..... It's not food and it's not safe.  No one has got our backs. Sharing safe food sources is one thing we can do to try to be safe.        
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.